Bonfire of the Goddesses
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happy birthday shiela.
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Sassy - like the way you say that, I got to be.... Happy birthday.
Gloomy Gus has left the forest, good for you, Linda. The talk about the spiritual and learning challenges you are going through and tht these excite you....that is how I sometimes feel. I struggle with it, sometimes down, but I have been able to take this time for learning so many things I thought I would always get to later. The spiritual part, it was a reminder of what I had at one time and forgot, spiritually, not am in need of again desperately. I started a thread on bco, the spiritual journet iinto breast cancer where I encourage others to post the ups and downs of this journey and where it is allowed to say death, dyiing, and talk about hope and fears no matter what stage, need to get there more than I do, originally was going to post there everyday and do not. The spiritual jounrey for me is the most important part.
King, my bs who acted like he was a breast specialist while I was too naive in this conventional world to know better.... did not send me to another dr or an onc or order enough tests to know what I had where, then left a positive margin in a breast that was multifocal, he did not even know it was that, then told me it was a close margin and when asked for clarity drew me a pic of a clear margin so I did not feel the immediate need to have more surgery, I did not know until 6 wks later that it was positive bcz that was when my path report came to me in my bc care book that the bs office did not give to me (which is also how I finally found bco, yeah) and he did not put in drain for the lymph node surgery wwhere he took out 11 nnodes, I was a swollen leaky mess, but to him no big deal to put me under and do another surgery then another instead of doing anything right to begin with. Anyway, like you, I do not wish cancer on him but I am finding forgiveness extremely difficult. Then there is the onc and the surgeon who did the biopsy for the onc lasst month, another story, same need to forgive but too gd mad. Ontothe fire, the anger I still carry, it is a huge wad of anger, a truckload for this, and the OWB and IDEM, are we allowed to mention state offices on here? And none of them can be sued, they are safe while I deal with bc. So away with the anger. Everytime I think of the biopsy lasst mo I want to break things, but am running to heal as fast as can.
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Happy Birthday SAS...I wish you many many more.
huggggggggggs K
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Happy Birthday Sheila....birthdays are awesome!!!!! and that is waht it's all about.....you have the same BD as my #2 daughter. It's a good day.
joan0 -
THANK YOU ALL FOR THE BIRTHDAY WISHES !!!!! BFG--- animal stories
Getting ready to go out on by B-day. In the shower eyes closed washing my hair. Ah, I hear a storm start, pattering on the window.. Suddenly, feel something brush against me. My 75 lb GWP is in the shower with me. She' getting soaked. Just as Danny-boy doesn't like the water, my GWP doesn't either. BUT she likes thunder less. She then decides may be the closet will do. This was a first.
Linda---analpore came from a nursing mate that couldn't swear--it was her solution to asshole. I to think it's good. What is this PEP boy pill?? Is it legal ? LOL.
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Happy B-day, Sheila! Have a good celebration!
Pep boy pill = methylphenidate (Ritalin), and yes, it's legal with an Rx. My PCP/palliative care specialist started me on it a few weeks ago, and I am functional again! I just could NOT shake the fatigue, knowing I wanted to do things, just couldn't make myself move. Someone described it as "if someone yelled 'fire' I wouldn't be able to move" - that's how bad my fatigue was most days. Now I am able to do some cooking, gardening, fun stuff. Still in bed 10-12 hours at night plus afternoon rest, but the hours I am up are productive now as opposed to my sitting staring at things that I wanted to do but just couldn't. DH said I was borderline manic-y the first few days, but that has settled down and I feel closer to "normal" than I have in 2 years!
I wonder if we can come up with some more descriptors based on profanities that we can't say in public.... something to ponder....
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sister won't swear. devout in her faith. when she had a bad fall with broken bones she just kep saying "nasty word" over and over. if that had been me i would have used the expletive.
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My sister and I have this joke that we go around yelling "obscenities, obscenities!" I've done that for different painful procedures.
Or we will scream..."Bloody Murder" like the kids were screaming bloody murder.
You read in the paper that a group of people were yelling racial slurs, well... if you haven't picked up on it by now... we'll yell the words...Racial Slurs.
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Well, my favorite is "Sing or get off the stage" . I'm sure you know what it replaces.
Leah
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The worst language I ever heard at home growing up was the time my Father cut off part of his forefinger on the table saw. He just looked at the finger and said "Oh darn that hurts!" Maybe that is why for years my favorite expletive has been "bad words, bad words, bad words".
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MIL says diddly squat instead of s^*#... like..... I don't know diddly squat about it. My daughter when 10 said this in class, the teacher was appalled!
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I grew up with "diddly squat" in my vocabulary... not sure if I was supposed to say it, though. How did we "just KNOW" that we weren't supposed to say certain words? My younger sister and I were riding in the back seat of the car one day, folks in front, sister says "I'm just pissed off!" and my mom reacted immediately: "Where did you hear THAT word?" and she said "The Bible" and sure enough, piss is in the Bible, maybe just not in the same context, but it took my mom completely off-guard (I'm sure underneath she was cracking up, but couldn't show it in front of the kids!).
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hi all and Happy B-Day SAS!
A euphemism I like from a Dolly Parton movie ("Straight Talk") is tinkle or get off the potty.
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Tossing in the system again. Still having lots of pain from surgery last Oct., called the BS office yesterday & got referral for PT (it helped before), then was told today I cannot have any more PT until October for the same problem, and they told me a different number of PT sessions that I am supposedly eligible for than what the PT told me at my last visit. GRRRR! They said "just do the exercises you were taught" but that was for my arm pain, not the chest pain. Am paranoid that something else is going on, but it probably is just neuropathic pain from the surgery, but geez, I wish someone acted like they even give a damn. Tossing in voice recordings that you cannot get through to a real person as well. I HATE THIS SYSTEM!!!!! They all claim to practice "evidence-based" medicine, but only my PCP seems to understand the concept of "patient-centered" medicine..... there goes that anger thing rearing its ugly head again... will go have an iced tea, do some yoga breathing and calm down.
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I curse like a truck driver.no one in my family ever cursed except me.
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Granny - You curse like a drunken sailor. I have heard them!!! But we love you anyway.
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I admit it.I do.I live in adult bldg.where you can hear a pin drop.love it...after raising 4 kids alone.anyway 1 of my neighbors told my old card game group that someone was walkin past my door and heard me yelling out the most foul words.
Hey I come from Brooklyn!!!!!!!
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Yoo- Hoo--Badger thanks
Linda, You have a new site of complaint(medical usuage) and they are denying evaluation and care. I'm befuddled have they r/o all medical causes by testing? I could probably list at least a dozen without thinking hard.
Perhaps it's going to take a I'm mad as hell and ain't going to take it anymore revolution in Pink October. We come up with tee shirt slogans that say what we think about the medical establishment and insurance and Pain management and what ever Here's one "let me squeeze your balls to the degree of pain that i'm having , just to give you an idea" -------Should we do a thread perhaps "Pinktober Revolution"-- Sounds good to me I'll be back after I've got it written.
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Okay it's done, Start flying with the slogans , pass it around to other threads. I can't do to many otherwise they call it spamming. Have fun sassy
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SAS - I wish there was a "Like" button here. Very well said.
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Jo sweetie go post a slogan then. Theyare strating to come in slow but it should catch on lol and irony sassy
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Linda---My MH counselor has been trying for months to get me to go on something for ADD. I kept refusing until I get genetic testing for the Cytochrome 450 --liver pathways of 2d6,2c9 and 2c19. I will start pushing now thank you thank you. sassy--------glad you found Pinktober Revolution.
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Sheila, I had been asking for genetic testing because of all the adverse reactions I have had to so many meds, including the SSRIs, SNRIs, many of the pain meds.... I finally gave up and am just doing the empirical approach, which luckily finally got something to help without worse SEs. Good luck, hope you find something that helps as well.
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Thanks Sas for the pinktober thread...i posted but im still groggy from my tests today(all is well) BUT ILL BE BACK AND WHEN I DO ITS GONNA BE NASTY.I HATE PINKTOBER.
come on sistas move.....say how you really feel!!!!!!!!!!!!!
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Linda, Whats hateful is that the testing only has to be done once as you already know. It's so stupid to do a risky empirical approach now that testing is available. I turned my MH counselor onto it. He is so much into it he doesn't want to recommend any drug without testing b/c he has seen a huge difference when he recommends based on the data. He even was able to send the paperwork to one of his patients PCP when it showed that her insulin and oral hypoglycemic were not working right b/c she was a fast metabolizer.
That's another thing the testing can show is -not just whether a pathway is present, but whether a patient is a fast ,medium, slow metabolizer. Which changes the amount of medicine that needs to be used.
Should be required by law.
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Granny , you go get'em----There are some biting comments coming in, should be fun to see what kind of phrases come out of this that get translated to written material.
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In goes doctors who do not use genetic testing and chemotherapy sensitivity testing.
Our family is a line that does not do well w any meds, none, and no pain meds. We are completely zonked by the baby doses, all of us. Interesting enough, all parents - mom, dad, stepdad - and the male grandparents were alcoholic. My bro, sis, me, we do nt drink or take meds at all, we swore off after many health pitfalls from them.... the last one with me being in hospital 5 days froma bp med, almost killed me. I think the testing would have been less expensive for insurance by far had all of us had the testing and known what we could take rather than all the ER and hosiptal and longterm health costs from the meds in the first place.
Sassy heading for that link now and will pass it on today. Fun!
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SAS---I love love love that thread you started.....gosh i think i know all the sistas....yay.all the crazy ones all in 1 place.thank you!!!!!
Has anyone heard from Ducky??????
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I have nothing to burn....only if someone is bothering our DUCKY!!!!!!!!!0
