Bonfire of the Goddesses
Comments
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Sas, if it were me and my onc said he wouldn't do any follow-up care unless I did tx he insisted on - I'd get a new onc even if I agreed to the tx.
My doc suggests tx, I decide what I will do.
Leah
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Leah S- I was so dumbfounded at his statement, I was at a loss for words. Yes that is possible. The truth is , I'm the biggest patient advocate, I have ever met--formidibale. BUT when It comes to me , if I'm shocked(falls outside of all I know), my reaction time goes to zero. If it had been for a patient, I never would have a shock state. Still working on action plan as they have a monopoly in our county. Something will change, It will not stay the same. Just need to get time to work on it. Have the greatest health plan in the world (exqaggeration of course), when I involve them in this , they are not going to be happy with the provider. Leah every word of your post is true, but what is , is as I described above. So thank you for your words and support. I'll let you know outcome.
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Nothing for the fire this morn yet, just checking on everyone. The tx thing, on my onc's door it says I am the center and most important of all the team, then by him was treated like I was the child who must follow silently. Not happening.
And yes, I too hate the 'how are are you today?' the one asking that is the one who is most importantly supposed to record every word and does not, doesn't really caare and does not listen. Then the dr comes in, same thing. I am from a background in homeopathy and I believe all of the person is the patient not the breast, so I see right through the lazy work ethic involved when my team is not focused, they are not looking at all of any of their patients and most blindly follow. We need personalized and better care.
Fuzzy, goddesses created fire, you cannot throw you in to burn with same affect of when we throw in LE or something, so only the stuff we created fire for. You throw yourself in, you only get stronger, so hope it helped but there are better ways.
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My sinuses need some evaporating! Into the fire they go! Some of you may recall I had a horrific fungal ear infection with TWO perforations followed by a sinus infection this past winter....Well....when the DH was recovering in the hospital, the damn air conditioning flared up my sinues! Kept calling the engineers to come raise the air temp in the room...FINALLY on the THIRD day, someone was smart enough to bring a tool to lower the blower motor in the room....But the damage was done...DH is feeling so much better and VR's sinuses are ready to EXPLODE! Need to be rotor rootered! Got a nifty CT scan of my head and my sinuses are blocked BIG time, as in I CAN'T THINK STRAIGHT! ENT thinks this is a continuation of the winter episode that didn't fully heal. Interesting thing though, went for allergy testing and it isn't an allergy. Never had ANYTHING like this before. Oy!
Even worse....I think I accidentally threw my patience in the bonfire and I desperately need it back! Yikes! However, what's even scarier....I don't even care if I ever get it back...... VR has had a long standing friend of 27 years, who is a real piece of work. On a few occasions she's told VR things in confidence (isn't that what friends do???)....and then had the AUDACITY to call VR after sharing personal info to FIRMLY CONFIRM that VR wouldn't tell a soul what she shared. Insulting? You bet! And that's after two weeks ago, one of HER friends approached VR and asked how VR's husband's recovery was going....Hmmmm....VR doesn't recall telling her piece of work of a friend that it was OKAY TO TELL ANYONE HOW SICK VR'S HUSBAND WAS!!!!!!!! Funny how VR was a lady and was gracious and DIDN'T LACE INTO HER FRIEND FOR SHARING SUCH PERSONAL INFORMATION!!! But, since VR seems to have lost her patience....she REALLY took the liberty of lacing into her "FRIEND" when she dared to call VR and remind her NOT to tell anyone about her misfortune............VR's "friend" took offense that VR lacked compassion and empathy for her situation. VR lack compassion and empathy??!! VR's husband almost croaked...she doesn't OWE ANYONE ANY COMPASSION OR EMPATHY RIGHT NOW. That friendship is in the fire! Her loss...NOT MINE!
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Wow... good to get it out!!
heres a tip for your sinuses..
google NetiPot
i used to have chronic sinus infections until i started using that...
As for friends you cant count on?? Burn them!!
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Celine, Now YOU are a FRIEND!
My younger son HAD chronic sinus issues and used his Neti Pot EVERY DAY for YEARS until the ENT did this balloon sinus procedure on him and he now feels GREAT. I've tried the Neti Pot AND saline drops AND Flonaise and they caused my sinuses and nostrils to catch fire!! The ENT told me to stop doing it! He said, "Only do what makes you feel better...NOT worse." The only thing that seems to help besides a box of Puffs tissues.....is a travel size humidifer next to my bed. I think going from the air conditioning to the humidity is creating havoc on my sinuses.... My older son had his nasal turbinates fixed and he feels terrific too! I'm going to just have to bite the bullet and let the ENT do his magic on me as well. The only problem is he can't do ANYTHING until I'm feeling better.... Yikes, Yikes and more Yikes....
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VR did they Culture it? Some Cultures take longer to culture up than the 48 hrs. ASk if a gram stain would have value. So sorry you are going through this. ------Friend a STUPID
Essa--Sorry, You know how much I hatefor the med/ nursing complex to be so bad. Good Luck in shopping for a new one
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My DD was given a medipot by our GP and she has not will not use it, she would throw it on the fire, so catch it coming through.
Well here we go, for four hours there I was spinning cuz trying to do eBay listings and the mouse was in need of new battery system but I did not realize that bcz my brain is lame. Then I tried to upload pics and that did not go well, I mean how hard can it be to remember, but somehow some angel watching over me knew I was on the brink of bashing this laptop and all it's decorations over the boulder in the yard and tossing it into the woods while hHubby applauded my new-found freedom. And I guess I am not to do so bcz now all is working perfectly. Decided instead of listing my vintage mags I will dissect them and list cover, ads, stories, etc, which wil mean I have a lot of computer and camera work to do, so perhaps I will recall how to do this from the sheer repetition.
Good Sunday to all. Hubby is mowing, we are home for the day, nice day here.
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Oh dear....thank you for pulling me out and helping me with the rules....something got singed off cause I finally figured something out....
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Fuzzy and what was that ???????? willing to share???????
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I needed to learn that its ok to be pissed off. I fought it and fought it..."be positive...think positively...." figured out I need to be pissed and more satisfied with what I'm actually feeling. I'm a positive and irritated person....its not only possible, but its just fine: ) and I feel much healthier this way.
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Fuzzy, well the singeing was worth it You accomplished the fires purpose.
VR here's the link too the intentions page. Ronqt1 said dhe hadn't heard from anyone.
http://community.breastcancer.org/forum/38/topic/760274?page=4#post_3155848
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SAS....I thought I was going to hear from her! I'm sorry. I will send her a pm.....Like I said....my sinuses are ready to explode and I can't think or READ straight. I'm trying to get through this terrific book and it barely registers.....I know the doctor did numerous cultures and he was very clear that I didn't have an infection. I also went to an allergist and he said I didn't have allergies. The ENT keeps telling me that it's "inflammation" and he doesn't have a clue as to why. He thinks because I've "failed" all localized and systemic treatments that it's time for a balloon sinuplasty to "correct" my maxillary sinus cavity which is clogged up the wazooo....
Fuzzy....I used to think I had to be "nice" to everyone and that meant never using the word "No." It was very hard living that way. I was raised to be "A Lady," and as an adult, it was very difficult for me to be anything less than gracious. But one day, I realized that it was okay to say "No" to people and that they would still like me afterwards. Furthermore, although I still find it difficult to tell people I am unhappy with their behavior, occasionally I do draw a line in the sand, like I did with my now former friend. She tried to take the high road by telling me I could have the last word. I didn't think having the last word was necessary. I didn't hear an apology from her, so now, my actions will speak louder than words. I will just refrain from doing activities with her. Again, it's her loss. If she calls me to do anything, I will politely refuse. I think we all need to re-evaluate our friendships from time to time. If a friendship isn't working, then it's time to step back.
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Sorry for the absence recently - I finally figured out how I "loose" my Favorites. Right under the link to "Back to top" is the link "Remove from Favorites" and with my fumbly fingers I occasionally hit that link, and POOF! there goes my favorite into limboland until I remember and track it down again. I am trying to be more careful with those two links so close together.
Reading through the last few pages of posts - hoping the fire is helping all of you today. Neuropathy in fingers really bothersome today, so just checking in & tossing that one on the fire again.... seems to be like the Phoenix - no matter how often I toss it in, comes back to annoy me frequently.
I'll be back later, so save me a space - feeling like a pyromaniac today!
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A positive and irritated person. Never heard it that way, but I have met many like this, including me. Never thought it was all right for me to be irritated, all the shanana of choose your battles, it could be worse, live and let live, they are doing their best (really?) and I too aim for the gracious one who lets it flow off my back, though it doesn't really. I am positive, irritated and highly sensitive... anda very nice person.
So thanks Fuzzy for the morning meditation, that we see ourselves for who and why and what we are, and give ourselves the hug for being that way and reallizing how it is a positive force for the world when we use these characteristics in a good way.
Stopped to take computer out of the fire in case I left it there, could not remember. Had to call server for help before starting work this morn and he said unplug modem and I said which one is that, again I c annot remember. Done it 274 times in my life nad cannot remember how. My business host techs are used to me, so patient. New bank isgetting so, they sit me down and help me log in to accounts again, they don't even have to wonder. But I am getting better. Still, memory issues can go in fire, the memory, I am keeping safe with me.
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My mother is one of those people who doesn't know the word no she also has to forgive everyone. She doesn't even talk back to the doctor when she disagrees with him. She finds the good in everyone. That's how I was brought up.
Seventeen years ago my son started preschool. I began to learn to fight te school system. I learned to be more sarcastic. After my first BC I learned how to scream at doctors, fire them and say no. Once best friends are now mere aquaintances. I try not to hold back. I changed from being shy. I would like to throw shyness in the fire because it is a bad disability.
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VR it's all fixed between you andronqt1 and sgreenarch I pm'd you _im a bit confused now as to who I sent what too, But once it starts< I'll relax.. it' amazing how much work it is. I don't make it easier b/c sometimes what sounds logical to me isn;t to others. as you can see I've given up tonite on Punctuation etc. I should renotify every one about start. Mods wiped out directions. May be I'll get a second wind.
into the fire with confusion and memory>>>duh Essa threw in memory. Ok Pain in the fire.Another thing I learned to late was --use everyones hyperlink as name It'd be a snap to notify them. More work when setting it up, but would oh so make this end easy well OCD will go try.
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SAS... Forget about advocacy groups! They're burning in the fire! What do we need them for since they've lost their direction! Besides, don't we have a higher authority... With your help... Looking after our best interests!!!???.....
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VR I ubderstand the higher power, did I write something about advocacy groups or am I slow on the joke. Which is not uncommon--often have to have them explained . My standard line at one time "I don't have a sense of humor , I had 12 years of nuns and 3 years of Jesuits" .It was a wonder to survive. Actually continued with MH counselor after BC-PTSD &grief counseling, to deal with all the other stuff. Doc says I show real paper(testing tools) and interative characteristics forADD/OCD besides the ON going other Ptsd/grief. I do However get to take my dear Schatzi to appointments with me. If you think ADD and OCD together, it is funny>>>and it's true. Actually being a nurse that is adADD and OCD has worked well, working in certain areas ER/OR, doesn't work in sedate nursing areas.
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Sheila, I had to smile about the years with the nuns and Jesuits. I am reading a book by Father James Marten, SJ called "Between Mirth and Heaven" (or the other way round..?) and he talks at length about humor, laughter, and joy as a spiritual practice, discusses how the church (actually, most religions!) seem to think religion should be very very serious without laughter, and he goes into great depth on why this is so wrong, according to his research. Excellent book, and yes, there are some great belly laughs in it!
Joining everyone else who is tossing in pain tonight. Have had JUST ABOUT ENOUGH of that, thank you very much....
Sassy, I can see that combination of OCD and ADD would make you a GREAT ER nurse!!!! I have known several excellent emergency nurses, and I think they all had a little bit of that combination to be able to make sure all the details were taken care of, yet be able to bounce from one patient to another and to multi-task like crazy. So special place by the warming friendly fire tonight for all the wonderful nurses who are competent and caring (toss the others on the big fire, though!!!!)0 -
Linda yes toss in those nurses that don't have a clue what real nursing is, I could never understand how some nurses could spend so much time sitting in the station and i couldn't take time to pee. One time I absolutely wet my pants, had to have the nursing supervisor get me a pair of scrubs--well at least I got a break while waiting for the pants.
THE STELLAR DAY IN NURSING:ORIGINAL BY SAS-SHATZI
YOU GOT A BREAK, YOU GOT TO GO PEE, YOU GOT LUNCH, YOU GOT OUT ON TIME
Only happened a few times a year. Always wondered about those that got them all, but found out when I would change shifts and had to take their patients, if you get my drift..........
Linda I am so happy you totally understand what i am saying on the ADD/OCD absolutely on mark with your description of the ER nurse. It's the same in OR, EMS, Surgical when it's 6 patients or more(5 was heaven).
Well the fire s a little hot with all those burning nurses, but we'll have a sweet fire then my friend
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Fire's hot tonight...
The heat carries so much tonight
heavy hearts ... worried souls
I love howthe light of the fire , pulls us closer
Old french campfire song...
"Feu feu jolie feu
ton ardeur nous rejoui
Feu feu jolie feu
Dance dans la nuit la nuit
Vive la couleur du feu, vive sa couleur
Feu feu jolie feu
danse dans la nuit la nuit
Celebrate the scent, the warmth , the taste of our burning sorrows.. taken by then wind...
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Throwing the old pain meds on the fire as i got new ones today and the old ones wrrent working any way. And yes i also am getting sick of being ' just fine' all the time so nobody else feels bad. Must be a woman thing as we are expected to be the nurturers not the ones who need something,anything, ever. Sorry ranting now.
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Rider This IS where we rant, and then into the fire it goes. Jo1955 wrote it to be that way
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Celine how poignant... beautiful
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Thank you sas
im truly standing in awe... of everyone here...
Im glad for this fire tonight... i feel some chills
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Linda , I did something with PINKTOBER REVOLUTION That may help you , could make BCO crazy. There was much good discussion going on, and many people offering links. Well too often when a page turns those links are gone Badger had suggested we should somehow try to save them. I did the prayer archive on the Catholic thread . Voila or is it Viola- nope she's my Aunt. Did an archive thread and going to move all the links there under categories. It's started & under construction. Somehow there has to be away to apply what your saying to the same concept. The problem is if we each did it that would take up alot of server space--if that's the right word. But say if there was a thread where you/me didn't mind putting our favorite links we could post our links in case we lost them, we would have a retrieval point. The negative/neutral/positive/ would be anyone going, to that thread could see your favs. Me --I don't care , I think . I travel among the same. In fact a bunch of us do. What I did on the header for Catholic Archives and Catholic intentions was add the links to the other two in the header, Asked Lauraestepp to add it to her header for the discussion thread. Now we can travel between the three without going out to main fav places, to favs to thread. This is all very new. When I tell Fuzzy about it.She will jump on it i know b/c she is on FRR, here, OMG She can put all her favs in her header. if she does it will be realy nice for the rest of us too. So, I'm going to C&P this to FRR. Everyone will be looking for your post and saying --whatpost of Linda's is she responding too. Hey it's on BONFIRES.0
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btw welcome to the fire celine and rider
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Well friends I've had a moment, a special moment. There have been many this past week. But two that stand out. beyond my comprhension and all I can say is that I will look at the word trust differrently. I'll bring back the pages and posts I want you to read. Make of them what you will. sassy. CATHOLIC thread pg291 mkkjd60 , I think i already posted earlier and now pg 292 Sagina's post about the story of Mother Theresa, then LovetoCook and my two posts following hers.
community.breastcancer.org/for...
link to pg 291
Going to repost to bonfires ----Bonfire friends , I had posted this on FRR
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Thanks:-) ive been reading here but just today finally had something really worth throwing on
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