Bonfire of the Goddesses
Comments
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Linda, I finally caught up and watched the video. It is great (and so are you!)...it really sux that you are dealing with LE, just when you said you were feeling better a few days ago. I am glad we have this fire...I like that we can just sit here and listen. Some days there are just no good words...
(((lpc))) sorry you are having spasms. You've been through a lot, and I agree, it sux.
Granny, hope you had a good week end ... miss you!
Joan0 -
Hey Granny! (insert picture of Leah waving wildly here)
I've visited here but haven't said anything lately. I hope you're doing better.
And now, tossing into the fire Granny's pain, handing Granny her makeup, and also tossing in my recent progression.
Pass the s'mores, please.
Leah
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Just wanted to check in with you lovey ladies. Went to my last PS appt today. Finally after 13 months I am done with recon. Gonna miss my PS. He is amazing, funny and oh so good looking. He has a wonderful staff. Next appt is not until June 10 - 6 month MO appt. It feels so good to have all this free time away from doctor's offices. Nothing to throw in. Moving forward and not looking back.
Leah- I would love to share the s'mores with you.
Hugs to everyone.
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YEA!!! Jo, so happy that this stage is all behind you! Congratulations and enjoy all that free time!
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openheart - The only thing I have left is the damn Tamoxifen. I finish that in Jan 2016.
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I'll have 2 yrs. of Tammi under my belt on July 1....so 3 yrs or maybe 7 yrs to go. My MO is not sure if she will have her DCIS ladies go with the new 10 yr. recommendation or not. I have a feeling that she will want me to since I was grade 3.
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Oh Leah....thank you.....Ill throw in your progressions.....burn you bastard...see i said it....you know i love to curse........ha....pass the s,mores....extra chocolate for me.....look at the fire now.....its burning...come on everyone throw something in.....
In goes the lavender that the dr.thinks im allergic to....thinks!!!!!!
we need help here.....
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Granny. Your doc thinks you're allergic to lavender?
In two weeks, day after my next bone and ct scan, I'm having the word "Enough" tattooed on my left breast. It'll be my big old, throw on the fire, enough of this sh*t mark for me.
Knocking on wood scan will be stable. I'm just tired.0 -
I think im allergic to lavender...had all kinds of tests and lavender seems like the culprit...
Enuf tattooed on your breast?????
Did you ever get a tattoo?
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Granny. I have a few. Boobs are game so won't feel much.
Perhaps you can use tea rose scent instead?0 -
Granny, my college roommate could curse with the best of the Marines, I think it would be great fun to see/hear you together! Am so sorry you are allergic to lavender - it is one of my favorite relaxing scents and it was lavender tea that got me through chemo.
I have BS appointment tomorrow, and they were able to get me in to see the LE therapist after that, so at least will have a plan.
Join me tonight for some laughs, watching Mr. Bean movies - I needed some belly laughs, and willing to share them!0 -
Linda. Glad you have the appointment so quickly. LE is nasty and I hope you find quick relief.
BTW. What I was trying to say was my boobs are fake, not game, especially since the boobs are no longer with us anymore.0 -
Linda, Enjoy Mr. Bean. I love his movies. Have you ever seen the series for children, Pingu? Slapstick comedy with penguins as the characters.
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Linda....Mr. Bean! Looks like you better make room on your couch for my whole family! While they were growing up, my kids ADORED Mr. Bean's TV show! After they outgrew Sesame Street...that was pretty much the only show they watched on PBS!!!!!!!!!!!!!!!!!!!!! If you tire of his movies....you can always catch some delicious scenes of his on youtube:
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Well, it might or might not be lymphedema. What can be worse you might ask? How about tumor extension pressing on neurovascular bundle leading to swelling and maybe nerve pain? Maybe that's not what it is, seems to be some disagreement, but BS and 2 other surgeons that she works with all agree the tumor is not resectable, too close to nerves and blood vessels. LE therapist says it's worth trying LE therapy because it isn't 100% clear that it is actually pressing on the blood vessels - MRI was hard to read in that area. *sigh* Radiation has been suggested. I may also ask about vascular surgery - those guys are used to working in and around the vessels ....
I think I need another Mr. Bean fix ....0 -
Linda: You have just not been getting a break. I am sending bad, bad mojo to that cancer plaguing you and to the tumor in particular. Are you doing both the radiation and the PT? I am just so sorry this is happening to you.
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Oh...Linda, Linda, Linda....How I only wish I could make your pain, frustration and cancer go away!
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Linda - Why can't you catch a break? Sending gentle healing hugs. Hope you get some answers soon.
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Linda, I just had my last surgery a week ago, post-op appointment today and am going through "My Favorite Topics" and deleting the ones I am ready to leave. I just read your May 3rd post - I guess I'm staying. If a wonderful woman like you is grumpy and fed up, I want to be present, for you to know that you are heard and cared about.
I've been crying all evening, whether it is relief that my surgeries are done, or sadness that my plans were so messed up, slowly realizing that my DH probably has early dementia and I need to refocus on our life together, that my classes are done and I survived grad school AND BC, or maybe there isn't a name for how I feel. Anyway, I'm leaving most of my threads, but I'm staying here. Just thought you should know.
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Ahhh, you see Shellshine...You realized, like many of us, that we ARE Goddesses! And so, at the end of the day, that seems to make us all feel just a little bit better. Maybe not complete or whole or truly happy...but it does seem to make us all feel better. Whatever life throws at all of us, big or small, we know we can come down to the bonfire and through the weaknesses AND strengths of the Goddesses we each find some comfort and peace...even if it's just for a moment...and that's what makes it so magical....
Regarding your husband's early signs of dementia....my dearest friend's husband recently had a major heart attack. What was truly frightening is that the cardiologist said, mind you the doctor is the head of cardiology at Mass General, was that 48 hours before the heart attack, there would have been NO WAY TO PREDICT THAT HE WAS GOING TO HAVE THE HEART ATTACK. With all the testing that they do nowadays, you would have thought they would have known he was about to become ill....Anyway, it's been a few months now and my friend is just coming to terms with how she needs to "refocus" their lives together. Following the first week of his attack, I had warned her that the hardest thing to do, going forward, would be to try to figure out how to enjoy her life with him without worrying about him all of the time and also how to stop wondering about their future together. When we take our long walks together, she tells me how difficult that is to do. She worries about him all day long, especially when he isn't near her. My DH has not been well for a very long time. If it gives you any comfort, I want you to know that it is possible to "refocus." Not easy. But possible. For us, every day that we are together is a blessing. I try not to think much if the day was good or bad. That's not constructive. I guess you can say, we live for the moment. And that's good enough. The future? Ha! Ever hear of the expression, "Man plans and G-d laughs." That doesn't stop me from making plans. But I try hard in the present to not think much about the future. I wish you well with your journey...
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Shellshine - As I ended my treatment, I also went through and got rid of several threads. The one I got rid of first was a Rads thread. Rads was the worst part of treatment for me. I am now down to 2 threads - this one being at the top of my list. I really don't have much to throw in these days but I do so like coming here and reading all the posts and trying my best to lend comfort and support.
Like VR said, you can refocus and it may be a bit difficult but you are a true pink warrior sister and you can do this. Never forget we are all here for you. This is the place to vent, cry, scream or even have a good laugh every now and then.
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Shellshine, so glad you are staying here. Most people who have breast cancer eventually recover and are able to move on. A few of us progress and hang out here because we need the continued support. A few of us stay here because we feel useful. And some stay because of the friendships and care that we have for each other. I would like to think that I have done all 4, but know that I will continue needing this support as I progress, and also hope that I can contribute and help others. Indeed, we ARE GODDESSES!!!! We are beautiful and loving creatures, and I am proud to be part of this group!
Yes, it seems I cannot catch a break. But today my LE therapist was SO helpful with the "little details" of daily living, such as brushing my teeth and feeding myself with an arm bandaged. She was able to put the bandages on in such a way that I can bend my elbow enough to brush my teeth and feed myself. DH could brush my hair, but brushing my teeth? Not so much!.... I have several options for tumor invasion - rads, chemo, wait & see if current meds work (3-4 months!), and I have also asked about a neurosurgeon that I have hear about who has done some work in the brachial plexus for another patient who had lung cancer with tumor invasion of that nerve bundle. So lots more appointments. Ugh. Tossing them onto the fire! Meanwhile, my mom has been here helping me spend money - bought some new clothes - first shopping for clothes I have done in 2 years. Looked at curtains for my windows - nothing definite yet, but looking. And DH almost has my new garden ready to plant. So things are good right now. Doing my best to live in the moment, and mostly doing pretty well with it today.
I am so sorry for those of you who have family members with major health issues as well. It is hard enough dealing with BC, and adding the additional stress of illness of loved ones is even more difficult. My heart goes out to you.
It's Friday, girls! Let's spike the coca cola and pop some corn over this fire!0 -
Linda - I have to say I keep coming back here because of all the wonderful friendships I have made over the past 2 years. Along the way, I do hope I can lend support and comfort to those who need it. With the exception of still being Tamoxifen I am finished with all my treatments and now am really ready to move on. I try to check in everyday and at least read the posts. I post when I can.
The physical part of me is so ready to move on. I have to stay this is the best I have felt in a very long time. There has to be something said about antidepressants. I am taking mine for permanent nerve damage from rads and the added bonus is I am able to deal with most issues mentally. In that department, I am still a mess at times. It is getting better but I know I still have a ways to go.
I'm with you on the spiked coke and popcorn. I'll bring the chairs.
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The best laid plans....refocusing...you get it.
I'll go make the popcorn right now. Here's a good recipe: http://www.foodnetwork.com/recipes/rachael-ray/spicy-popcorn-recipe/index.html
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Tossing in my recent hospitalization. My meds lower my immune system so when I had a fever of 103.2 it was off to the ER and 2 days in hospital. I'm home now still feeling sick and still with a fever, but not too high. I'll call the doc in the morning and hope it doesn' mean here-we-go-again.
Tossing in the dang fever and virus, too.
I'm huddling next to the sweet fire with my cup of tea.
Leah
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Leah - Hope you feel better soon. Sending gentle healing hugs.
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I haven't been anywhere most of the week...but I smelled the popcorn and came running...I wouldn't miss a chance to sit with my sisters....we are all at different places...Jo, I understand where you're at...and I am also moving away from treatment and SEs....but the sisterhood here is so strong and I must stay.
Jo, I am glad you are here...glad you made this place for so many...you have always represented sensibility to me....just living each day and doing what the day demands.
Linda, I am glad you had a good session with the LE therapist. I feel your frustration on the tough days; but don't know really what it is like to be in your place. I am very glad you are here and that you trust the goddesses with your innermost daily challenges. Hugs and prayers for your every need today.Wishing all the moms a happy mother's day....my DD is here with her DH and my 2 grandaughters (5,2) which has already made this a wonderful week end. I worked for 12 hours straight getting their rooms ready and it is worth it.
Now, eveyrone in bed, and I get to relax and reflect.
I do not have a sister, but my SIL is the closet I'll ever have....her dear father passed today and she is devastated...he was the finest man I've ever known. She lost her sister to uterine ca and 2 days later, her mother. She is about to see her catholic elementary school close in 4 weeks (she is principal), and now she must bear this loss of her dear dad, too. Sometimes it really is too much.
Linda, new clothes, new anything, are a validation of life....and fun too! Glad you could do that retail therapy.
Hugs to all, and if you have your mom in your life, say a prayer and do something special...even if you are not together.
I never knew I'd miss my mom....but I do.
Hugs to all,Joan
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Happy Mothers Day to everyone.
Feel betta Leah...you were always the best trooper I know.Please keep us posted on that fever
ove,love love all of you
Hugggs granny dukes
My eyes are closing....
Almost lost this post...hate the iPad.
Xoxo grannydukes0 -
Happy Mother's Day dear goddesses! And Leah... Hope you are feeling better soon!
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I need to throw the anxiety of my upcoming scan (next Friday) on the fire.
And I'm bringing my sadness about the loss of my mom and my sister (my second mother).
Linda. My heart goes out to you.
Joan. I am so sorry your sil has lost so much. She is lucky to have you.0
