Bonfire of the Goddesses

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Comments

  • jo1955
    jo1955 Member Posts: 7,545
    edited May 2013

    lpc - This is a magical fire and tears won't put it out.  If anything, it will make it bigger.  At one time or another we have all come here many times to throw crap in and then enjoy the warmth and support that each of us brings with us.  You are never alone when you are down by the fire. 

    My wish for you is as few SEs as possible through chemo.  I did not have it so I can't begin to imagine what it is like.

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited May 2013

    lpc, yes, this magical fire does not drown with tears, but there are many shoulders here to let you cry on. Good luck with chemo. There are several threads that will help you through the chemo phase, both for dealing with any SEs and also for developing relationships with others going through the same thing at the same time. I did not find this site until nearly the end of chemo, and wish I had discovered it earlier. Welcome to the fire, come here often!

  • lpc
    lpc Member Posts: 39
    edited May 2013

    Thank youLinda! I have joined other threads but really really like image of bonfire!

  • FireKracker
    FireKracker Member Posts: 5,858
    edited May 2013

    im back with a shit load of stuff to burn.....

    the sadness.....my rash.....my sons failed operation....missing my sistas get together....and last but not least my teeth.....and mask.....and no makeup......the steroids.....mood swings....

    damn i betta just jump in....maybe a new grannydukes will appear.

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2013

    Welcome back Granny...♥♥♥♥

  • voraciousreader
    voraciousreader Member Posts: 3,696
    edited May 2013

    Granny! You can't throw yourself on the fire! You should know better! GODDESSES DO NOT MELT! GODDESSES ARE STRONG! No matter what we look like and how we might feel at any moment...we rock! We don't break! We don't melt! Together WE ARE A FORCE! It's MAGICAL!



    And sister Ipc... Once you come on down to our bonfire... you WILL feel the force! Active treatment is not a pretty time! But I promise once it's over, you will be a goddess! Until then, here's a box of tissues, a hug, a blanket, some toasted marshmallows and my thoughts and prayers that one day soon life will be wonderful again!

  • FireKracker
    FireKracker Member Posts: 5,858
    edited May 2013

    Thank you VR and Sheila...it still pains me that i missed all of you....But hopefully when all this crap is over we can do it again.....

    It felt good to burn all that crap......

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited May 2013

    Granny, you have got a lot to burn, let me help you toss some of that stuff on, it is too much for one person to handle. Once we have those flames going, we will sit together, give each other a hug, and we will sit in silence and just let it be for now. We cannot change now, but we can share the burdens and we can share the love. I know how so many disappointments can add up.



    Tossing in zometa SEs tonight. I really tried the positive thoughts, first time with it was not difficult, so I thought I was going to be fine. But it kicked my butt today: Woke up this morning thinking I was dying, pain levels at 8-9, fatigue overwhelming despite 12 hours in bed. Took lots of tylenol and aleve, lots of water, went back to bed; feeling a bit better, still nonfunctional. Geez I hate to waste a perfectly beautiful day in bed!



    Thanks for letting me grump a bit - I am sure tomorrow will be different - the only sure thing is that things always change!

  • jo1955
    jo1955 Member Posts: 7,545
    edited May 2013

    Granny - VR is right.  You can't throw yourself into the fire.  We won't burn.  Besides, I would miss you terribly.  We all need to meet by the fire for a group hug.

                                       

  • voraciousreader
    voraciousreader Member Posts: 3,696
    edited May 2013

    Linda...I had a few Zometa infusions.  The first one knocked me off my feet. Yuk!  It did get better. The weather is supposed to be beautiful for the rest of the week....hang in there....

  • 1openheart
    1openheart Member Posts: 250
    edited May 2013

    I hope that all of you beautiful ladies are having a good evening and are nice and comfy by our fire.  Granny...lpc....come close and stay warm.  Throw all you troubles, worries, fears, tears......all your shit..... into the fire.  Love and (((hugs))) to you all.

  • voraciousreader
    voraciousreader Member Posts: 3,696
    edited May 2013

    Wanna throw "time flying by" into the fire! Why is it when things are crappy time goes by so slow? But when life is beautiful why does time have to fly by so quickly? Today is my lovely daughter's birthday. The day was as beautiful as she is! Why must time fly so quickly... I remember the day she was born being so beautiful... Most subsequent birthdays were beautiful days too... When she was little I wondered what she would be like once she grew up...now I wonder where all the years went... I take small comfort that now she is grown and is a lovely woman.. I try not to miss the years that passed too quickly...

  • badger
    badger Member Posts: 24,938
    edited May 2013

    hi ladies and welcome Ruby & lpc.  I'm usually off-line Mon & Tues then catch up Weds, so belated hugs to ((Linda)) and ((GrannyD)) and ♥ to all.  Can't remember who said it (Joan?) but LOL at having a hot flash while eating ice cream.  Had a meet & greet with new boss & co-workers and they couldn't be more welcoming so I'm feeling less anxiety about new assignment.  My anger at current pointy-haired boss (ref: Dilbert) has simmered to low-grade malevolence that can be managed & endured a few more months.  Hot chocolate with mini marshmallows really helps!  L&H&P's to all.

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited May 2013

    Good morning, ladies. I woke up this morning feeling about a thousand percent better than yesterday morning! Am feeling back to feisty, ready to go out and water all my droopy plants (didn't water yesterday, didn't realize the ones I got are water hogs - should have gone with first impulse to just put marigolds out - they recover well from the occasional lack of water). I guess it takes a day of feeling like crap to make me appreciate how good I feel other days - still not like pre-BC and pre-chemo, but surely much better than a year ago!



    I thought I would share a video with you that my niece did. She is an OT student, and the assignment was to show how an OT can help in a variety of diseases, and she was assigned "cancer." They were not supposed to use images from the internet, but from a real person with the disease assigned, and I am so impressed with what she did. This presentation really captures "ME"! Hope you enjoy.



    http://animoto.com/play/U51aWcUcPEd0HmsiUnV1AQ

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited May 2013

    Linda, BEAUTIFUL, you and video. I hope she got her deserved A. Glad today's a good day

  • veggy
    veggy Member Posts: 4,150
    edited May 2013

    Beautiful video, it gave me hope. I agree, she should get an A!

  • ptdreamers
    ptdreamers Member Posts: 639
    edited May 2013

    Excellant job Linda. She did a very good video.

  • voraciousreader
    voraciousreader Member Posts: 3,696
    edited May 2013

    A++++!!!!!

  • wren44
    wren44 Member Posts: 7,932
    edited May 2013

    Beautiful video.  Love your choices of activities to have fun and recharge.

  • shellshine
    shellshine Member Posts: 930
    edited May 2013

    Linda, I am moved by your video - will not ever forget it. Both of you are an inspiration.

  • chabba
    chabba Member Posts: 3,600
    edited May 2013

    Inspiring

  • jo1955
    jo1955 Member Posts: 7,545
    edited May 2013

    All I can say is Wow!.  Excellent job and oh so inspiring.

  • karynhelen
    karynhelen Member Posts: 9
    edited May 2013

    Loved the video! The music, pics, upbeat and informative presentation.... Your niece deserves an A!

  • Linda-n3
    Linda-n3 Member Posts: 1,713
    edited May 2013

    I am glad you all enjoyed the video, and will let her know.



    Today I am tossing in LE. I am angry. I had a little swelling in my arm a couple weeks ago, didn't think much of it, just assumed I was being paranoid. Today, noticeably different sizes in my arms, so stopped by to see my PT, and she confirmed my fears: LE. I have a sleeve, so she told me to wear it, which I did, and now my hand is so swollen I can hardly use it. She told me to sort of "milk" my fingers to keep swelling down, but my left hand is cramping so badly I cannot do that. Elevate the arm, she said. OK, so how do I do that most effectively? Do I just quit doing ANYTHING just so I can elevate the arm???? How long do I wear the miserable sleeve? 24 hours a day, or just as long as I can tolerate it? I wore it today from 9 am to 4 pm and swear if this continues, I will be ditching this body sooner rather than later. I am really getting tired of taking care of it, way too much trouble. Can't get in to see the LE specialist for another 2-3 weeks. BS had told me not to worry about LE, IF it happened it could be taken care of, blah blah blah. BS = bull s***. I have no idea why it happened, so how can I prevent it? How long will it last? Lots of questions, no good answers from the so-called experts.



    Tossing in my first PCP, first MO, BS, BMX, ALND, LE, CIPN, loss of profession, loss of job, all the drugs and SEs, being a friggin' physiology experiment, and the whole BC journey. May be tossing in all my meditation classes and mental health sessions as well - fat lot of good they are doing me right now. This just sucks.



    So tomorrow I am going to an art class, swollen hand and LE or not. And tonight, taking my ativan (alcohol in a pill) to get myself relaxed. Would rather have the booze, but it doesn't taste good anymore - so tossing in altered taste from all the meds!



    OK, so if the greatest sin is ingratitude, I need to find something to be grateful for tonight. I am grateful for this wonderful fire. Thanks for being here. I know things always change, and I am grateful for that - it might even be a change for the better.



    Just sign me "Grumpy" tonight.

  • 1openheart
    1openheart Member Posts: 250
    edited May 2013

    Linda....((((hugs))))

    So sorry to hear about the LE.  You are so right...it just sucks big time.  I'm sending you energy and thoughts for patience, well being and a restful night.  I hope you enjoy your art class tomorrow and that brings you some much deserved joy.

  • gonegirl
    gonegirl Member Posts: 1,022
    edited May 2013

    Lpc, I'm with you on the tears.



    Karyn. I'm so sorry for your loss. I lost my sister about two years ago.



    Linda. I'm hoping you find relief from all the pain and LE.

  • Leah_S
    Leah_S Member Posts: 1,929
    edited May 2013

    Linda, please don't wear the sleeve without a glove! Fluid gets pushed into your hand. Can you call the LE therapist and see if you can get in sooner?

    A poorly-fitting sleeve can cause more problems than it solves. Go to the LE forum for more  info - the ladies there really know their stuff (unlike me, who knows some stuff but not nearly enough).

    Leah

  • FireKracker
    FireKracker Member Posts: 5,858
    edited May 2013

    Leah---is that really you?????so glad to see you by the fire.....and always bringing some good advice...come more often to visit all the way from Isreal...sending you a big huggggggggggg....xoxoxo grannydukes.

  • lpc
    lpc Member Posts: 39
    edited May 2013

    Today the te goes into the fire. Seems as if chemo jas

  • lpc
    lpc Member Posts: 39
    edited May 2013

    Today te into fire. Spasms have reappeared since chemo on the 2nd. This crap just sucks!

    .