Bonfire of the Goddesses
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Oh that's right....thanks....lol....In she goes!!!!!!!!!
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Jo---congratulations-------drain out. YEAH. MY doc had to pull one of my drains early b/c it looked like it was getting infected around the site. I ended up with a seroma that took a year to resolve an has never been the same. It still swells with activity. So, it may have been a long 5 weeks , but in the end it is worth it, No seroma and no infection _YEAH x's two
D-essa----if we only knew enough to do a turn around on those fishers and hackers. Let them burn to a crisp. I've been fighting a computer virus for a week. Still don't know if it's fixed.------------------snake is gorgeous
Nancy --if the tinnitus went away permanently it would be in the realm of miricale, but we can always hope.
Must run DS in next town-----out to dinner. L*H*P's sheila
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SAS - Seems I have sprung a leak where the hole still is. It is not gushing but is constant. Called PS and nurse told me that would happen. I said, That's funny - it did not happen when the first drain was pulled. She will let the doctor know and see what he says. If I don't hear anything - to me that is a good thing and I will keep watching it and hope the stupid hole closes up quickly.0
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Nancy - Me too!
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Jo, It's a two edge sword for the leak. It's an entry point for infection, keep a dressing on it , but change frequently to keep it dry. Check site each change for redness, swelling, amount of draining --small, medium, large, Type, red, --color deep /med/light, Smell--usual or foul(infection). Pain changes. Write info down as to time date--with finding directly across,
Ask for eval at home by a wound care nurse if possible. There are dressing materials now that are very absorbent and meant to keep skin dry. If skin get wet for to long it will get emacerated which can lead to breakdown and infection
Wash hands well with dial or hibeclens before dressing change. If wound person comes to house ask for cloth tape, least skin reactive>>next for most people paper tape. Get a box of non-sterile gloves for dressing changes.
Hole may not be closing fast b/c of length of time it's been there. Be, aggressive---I'll bring a line that I wrote allot of stuff about wound care/ dressings/dressing station/ some will apply, some not
Clear this all with your doc and nurse.
http://community.breastcancer.org/forum/44/topic/754935?page=1
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Jo! Oy! Hope you're doing better today! Ya know what's going into the fire today...Surprises! When we were little children...I mean really, little children...didn't we all enjoy a surprise? Had my little grand niece visiting a few weeks ago, and when her mommy returned home, she told her she had a surprise. My grand niece's face lit up and she starting clasping her hands in delight that she was going to receive a surprise.
Nowadays...for the most part...couldn't we all live without surprises? Just seems, living an uneventful life with few surprises is so much less complicated and less stressful....Who needs the surprise of springing a leak??
So today, dear friends....into the fire goes all of those unnecessary surprises....Poof!
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Jo, SAS has given you excellent advice! Also, remember that you heal from the inside out, so you don't want that hole closing TOO soon as the fluid has to get out some way; some will be easily absorbed, but if it accumulates too much too fast, that is when a seroma starts, and you don't want that! Sheila has good suggestion about the wound care and dressings - keeping it dry is very important! It took me a long time to get healed up from infected seroma, and it is still very tender under the skin and on the chest where that was, so into the fire with infected seromas and the long-term discomfort! (but it IS getting better 6 months later!)
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Right with you Linda! My seroma is not infected but it is still a pain in the... the only benefit is that it fills out the lumpectomy site nicely! Without it I think I would be rather dented in.
Tossing my moodiness on the fire today...just don't feel right and don't want to do anything. Bleah.
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Thanks SAS for the words of wisdom. I am so obsessed with keeping the tiny hole clean, dry and covered. It is just about closed. Nurse told me I would have a bit of leakage and the hole would close in about 48 hours.
VR - So far no leakage today. But then again, it did not start until mid morning yesterday. Up until then, there was nothing. I sure as hell don't want a seroma. Had several of those after my lumpectomy and they are not fun to have aspirated.
Hope everyone is having a good Wednesday.
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Damn JOJO i thought everything was ok....one day off and look what happens.sending healing prayers to you...enuf!!!!!!!!!
I too would like to throw in what VR is throwing in....THE CONSTANT SURPRISES.....lately they have been bad news anyway....burn it all damn it......
Sas-----prayin for you that the music stops
hugggggs everyone K
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Glad to see the fire is still burning steadily....there are so many things to toss....
Jo - glad about your drain but UGH the uncertainty of the healing....sorry...
Granny - hugs for you who have had such a constant barrage of troubles this year.....so sad about your dear friend's recurrence.
Thanks to those who replied about my student - fortunately I am not allowed to speak with parents. Being the enabler that I am, I let her and another wayward student who disappeared make up the work over the next few weeks. Little do they know how hard it will be.....more work for me though.
(((((Veggy))))) - into the fire with being brave; into the fire with pain.
Joan811
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well ladies,I have not been here awhile but have decided to plop myself down and just hang out with you anyhow..i am sure iw illhave things to toss inagain...just not right now. Here to support you all and enjoy the fire!
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Just a reminder to start posting the intentions here( Catholic Thread) for the novena to St Francis that starts on June 1st and ends on June 9th the Day that Theresa is professed as a Lay Franciscan. I put the link to this page so if you wish to invite others to join us. They can post their intentions after this and I will know where to start combining. I will notify on the 25th everyone I have on my PM list. L&H&P's sheila
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Ebay for giving the seller another 8 days to respond to me when she has already had 7 before I complained. The way it looks I will not get my refund if at all until June 30 and I paid May 17 with money I barely had to get drapes to keep summer sun out to keep electric bill down. She sent 4 panels with one being a different color and she does not do refunds.
So I have no drapes by the old ones that are unlined and do not fit or go w room and I have to hang them on S hooks and them move them to the next window in late afternoon, then take them down and do it again the next day. She has my cash to get different drapes. Or I could hang these that do not match, but what if something happens to them, heck it is the principle. Drapes should match.
Ebay should not give her more time.
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Essa it is so rare to have trouble with an Ebay seller. But let her burn , but not before you get your money and or curtains. I solved some energy problems by leaving up numerous hurricane shutters. and partially putting up some like old time shutters. LOL's
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I was an active ebay seller for a few years and never had any major problems. I got burned by a buyer when I was a newbie and didn't know better. Keep after her and if you used Paypal, use their services to contact her/request a refund. They are powerful and get the job done.
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Jo, I have an intention in for you in the novena it starts today.
Anyone wanting to be included PM me. The words are really Christian , not just Catholic !
Everyone have a great weekend, may be a sweet fire this evening?
MadPC and D-Essa--HUGS
Half way through another year----Yeah.
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SAS - Thank you for thinking of me. A sweet fire sounds good tonight.
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Sunday- night for two more minutes. ------a bottle of wine consumed. Alone. Duh what does it all mean. Never take closeness of family for granted. Mine is spread all over the place. But none in my locale. When we moved to Florida in 1992, I often wondered about the olders that I met, how did they end up here without family. I had family at the time. A husband, a son. Life was fun. It was rich with visitors. Now the visitors are gone. The Dh has died , and the son moved away. Sounds like the lines from a song.
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Sheila... Perhaps a country song? Which reminds me now that you are feeling better it is time for you to saddle up!
CARP DIEM!
I just read a book that you and our sisters might enjoy. Anna Quindlen's Lots of Candles, Plenty of Cake. Filled with pearls of wisdom. If there was ever a perfect book, this one sure seems to fit the bill. I can't recommend it enough...0 -
Vr -----so seize the day, I missed a moment at church. Details would be too long. But next week I'll be in the same seat. If he is, I won't miss the opportunity that i blew off this day. He turned after Mass and tried---there was more than one turn. There was an opportunity at the end of Mass and I pretended to look they other way. WHY?????Felt like a school girl. I was in the pew behind him. He is either a golfer or tennis player-great legs, great butt----kept turning around to look at me...............suriptiously .......then there was the handshake of peace. Well, my , we looked at each other Then I blew it at the end........could have been a beginning.............but I turned away.
So. may be next week if he positions himself in the same seat and I do also- May be?
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Hey Ladies................I have been away from this thread entirely too long.....................guess I got tired of throwing so much shit into the fire....................right now there are days (most days) when I would like to throw "myself" into the fire..................Each night I go to bed I say "Please Lord......1 day without a pain somewhere........just 1 day to remember what it use to be like to feel good..................just wondering if it is worth it...........besides "myself" I have so much shit to toss into the fire, it would "light up the world" if I did..............
Had to comment on Glenn Miller...........he was before my time, but I loved his music.................I was at a wedding of a young girl, and I was invited because my daughter was a bridesmaid...............and her husband was a groomsman......My son-in-laws family was also invited....................well his mother does not "fast dance", but I do, and so does his father.................in the middle of all the "new" music (which I also love, except crazy shit), the DJ played "In the Mood"....................my son-in-laws father said to me "you jitterbug don't you"............I said I sure do............(my husband had passed away, so he wasn't there).....................well we got out on the dance floor...................and by the time the song was done......we had the whole place around us in a circle, shouting and clapping for us.....................when it was over, the DJ said..................now that is what I call "real jitterbugging"...................you kids call it "swing", but now you see how it was really meant to be done...............................such fun, and I won't ever forget it........................and that is what I want.......................just 1 more "dance"..............but the sad part is......................THE MIND DOESN'T AGE, THE BODY DOES.................
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Duckyb1, thank you for sharing the dance! I have had lots of days over the past 2 years that I am ready to thow myself in, too - continue to "fake it 'til I make it" in front of family & friends - only DH and my counselor know the darker side of my thoughts and I hate it that DH knows them - I feel like a real downer some days - every day I wake up and want a "do-over" to choose less toxic treatment ( or NONE) so that at least I would have had a few months of feeling good before feeling bad - I just feel like I lost those couple of months to chemo and will never ever get them back, all because my team kept telling me "it would be worth it" and "might be cured" if I just did the chemo & other treatments that are "mainstream." *sigh* So, there are NO "do-overs" and the best I can do is try to find those moments of grace, those occasions to dance, and find the love that is out there from my family, friends, and all the wonderful ladies here. I am so grateful for the gentle warming fire on so many occasions, and am so glad for the bonfire to toss in all the negatives.
Sheila, you are cracking me up with the little church flirtation.... I LOVE IT! Hope you get another chance at this friendship!
Jo, grannyduke, VR, madpeacock, D-essa, joanne, and anyone I have missed - I will check in periodically over the next couple of weeks, am heading to my healing place in VT for a vacation with DH. I used to do this as a solo road trip, he would fly in and meet me there, and we were both happy - he hates to drive, and I hate to fly. So it will be a long trip, and I am grateful he is willing to sacrifice for me. I have not been able to make the trip on my own since BC and this just ticks me off as well - I really miss having the stamina to make this drive on my own! So into the fire with fatigue!!!! (Maybe next year....)0 -
Ducky - I too would give my right arm to have one pain free day. I suffer from severe nerve damage due to herniated discs in my lower back. I need surgery but have been putting it off due to other health issues, like cancer......
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Linda...........hang in there girlfriend enjoy your trip with the "good man"...........I wish I still had mine.......he died of Pancreatic cancer back in 1991..........I still miss him, never looked at another guy after him.........ok, well maybe I looked, but that was it........lol......hugs to you
King..........Maybe God will be good, and give us a "pain free day".................If this is a test.........I'm not getting a passing grade.........just so weary, and tired of the "not much to look forward to" days................but let's hope they come......................after all, all we have is hope..........love and hugs
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Ducky, you are more than "passing" whatever challenges you face. You say the things we think and feel....you give this place a pulse! And your dance story - I felt like I was right there watching! You are a storyteller of real life. Thanks for being you!
Sas Sheila, your encounter is so intriguing. Again, I could feel what you were feeling...I find that as I get older, it is hard to take the risk of sustained eye contact....so much easier to divert....
One thing I was thinking today -- the common thread we all have is that even though our bodies are different ages, or in different states of health, in our souls we are all still girls at heart....It's a beautiful thing that we can talk without being distracted by appearances....you gotta really listen here, and that takes the heart.
Linda, so glad you are going to VT...a place of healing for sure...for some reason, this year you get to be a travel-mate and passenger...I hope you relax and enjoy the scenery.
Into the fire with any pain that our sisters here are bearing...
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I need to throw my impatience in the fire. I am in the last stage of my recent recon surgery. Saw my PS yesterday for a check up after the last drain was taken out 2 weeks ago. I will need a little revision that can be done in the office. I so want it done now so I can up this chapter in this long journey behind me. It turns out the "next available" appt is not till Aug 6th - 2 months from now. Did not want to wait that long. So frustrating. Guess I have no choice but to wait.
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Linda Thanks, If he's in the same seat .....................
Ducky, how much fun, people will be talking for years about. Your kids were probably blown away with pride and wonder Yahooo.
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SAS - I know my insurance will cover the revision and the office is really clean. The staff is good about hand washing/santizing. The irriating part is I have to wait so long. I got in to all my followups in about a week and for this I have to wait 2 months. I am just being impatient and I know it.
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I just want to be the "real me" again..........not the "me" who gets up each day, limps across the room, holding onto the bureau, and the side of the bed, just to get to the bathroom..............I want to go somewher, and dance till I can't stand up anymore............I want to jitterbug, cha cha, waltz, chicken dance, electric slide, and be able to get down on the floor during "Hawaii 5/0............and of course, kneel to Shout and throw the arms up for YMCA....................that is my idea of "fun"................Oh I do get out on the dance floor, but I'm not the "last one to sit down" like I use to be.
I want to go to all my grandchildren's games......take those long car rides to see them play, walk the boardwalk, go in the ocean and really jump around, and walk in the sand for miles without having to stop to rest cause the knees can't handle it anymore.....................bask in the sun, and not say "oh I'm on medicine, I can't be in the sun"......................those are the things we give up when we get hit with this disease....................life is never the same again...............even though we make it through the shock, the biopsies, surgery, rads, chemo (if you got it)............and still say "hey I'm doing ok"............then they put you on the "killer drug", that zaps your hair, your joints, your very soul......................and then for good measure someone decides that isn't enough, so they give you Lymphedema for good measure.
Have I covered it all.................sorry to depress you all, but even with all this "bullshit".........somehow, we all still go on,,,,,,,,,,,,fight the good fight............let everyone "believe" we are doing great, when inside we are crying out............No we're not, we're sad, we're hurting, and someone has taken something very prescious away from us.............the ability to have "true" quality of life"......................but each day we get out of bed, and say........here we are Lord..............ready to face another day.................Please walkl beside us, and hold us up............hugs.
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