INSOMNIACS place to talk in the wee hours
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JunieB, I have very mild asthma but occasionally get congested and had bronchitis twice. My allergist prescribes Q-Var. i take two puffs in the morning and two at night. It really helps. You might want to ask your doc about it. Glad you are taking your time bringing Kirby home. I'm soooo excited for you.
Spookie, you should be ashamed of yourself calling those temps cold. LOL. No wonder Chevy gives you a hard time.
Mamma, darn I missed your pic wearing the wig. Nothing like being a ginger.
Happy New Year to all
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happy new year everyone
Hope and pray we all have a blessed 2017
Juneb, I know I am a few pages behind..my onc says no shots on chemo. Won't hurt, but the chemo negates them. That's what he says. I think there are different opinions out there, even among oncs.
Hubby, and all are getting better. This one hung on for most. I fared the best...go figure. We had Elena for an overnighter, all by ourselves. They just picked her up. I will be in bed shortly...lol. It is sooooo precious. We have such a great connection. So peaceful and cuddly. It's wonderful
Hate to take the tree down. It's so pretty. I think our garbage tree pick up is next week
And yes, still locked out of email. Set up another one, but haven't told anyone yet. I didn't forget password. Got shut down cause someone tried to hack. Can only get back in with some kind of registration number. Set it up 18 years ago. Never gonna find that number. So the help line couldn't help
All those in pain and those with upcoming surgeries...you are in my prayers:)
Bewell everyone
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41 is too #%&$ cold. Go back and check this coming sat night.
Chevy is stuffing herself with meatballs and Starbucks now. She can't yell at me.
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Well 1.5 days until Kirby comes home.
Kirby taking a New Year's Day romp in the snow
Mom, Dad & Buster romping on New Years Day 2017 (Kirby's birth family)
Leilah
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Susan, I'm taking our tree down on Thursday
(. My nutcracker collection will stay up a little longer.As for shots, my MO says to get them on OFF cycle weeks so they won't conflict with the chemo as much. Always remember that even on off weeks there will still be some chemo in your system.
Lita
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Spookiesmom please send the 41 here, that would be a heat wave for us.
Junie , Kirby is very cute. I hope you have good weather and are feeling better for your trip.
LIta we took our tree down a couple of days ago, as much as I like Christmas it is good to get back to normal. I have spent the last 10 days cooking, my daughter and her partner were over for dinner tonight. Fingers crossed someone will make me a dinner next Christmas season
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Anyone awake tonight?0 -
I was trying to post a cute meme, but when I do, it doesn't show up. Anyway...anyone awake tonight?
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Junie, Sounds like you are doing everything in your power to get better. Kirby is SO cute!
Poppy, So good you had nice time with family.
Spookie, single digits for MN later this week. Want to visit?!
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Quick "Hello" and "Goodnight"! Stupid sinus headache has kept me offline- blah.
JunieB had reminded me of Mags posting a cute saying a while back about us "weirdos" finding our "tribe" here. Certainly the bestest tribe there ever could be!
🎵 Oh give me a home
Where Insomniacs roam,
So full of love and laughter and play.
Where seldom is heard,
a discouraging word,
And Dunedin's toasty all day!
Home, home of the Strange
Where everything's always okay.
We're never bored,
We've got baby pics galore,
And half nekid men come to parade! 🎵
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Love it Shep!!!!
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oooooo she's a poet and don't know it😜😜.
Looks, where's here?
Um no thanks, I don't go north of the Mason-Dixon Line. Or Atlanta.
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spooks, its 41 here in Chicago and 42 tomorrow. I will make up the spare room for you
. Don't look further in the week for temps here. Seize the day !!!!Kirby us soooooo cute. I am very excited for you juneb!!!!!
Got to get ready fir work
I might go see la la land with a friend tonight. They say it's a great movie.
Wishing everyone a very blessed da
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Shep our resident poet laureate.
Spookie I live in Alberta,the sun is shining and it is a balmy -22 Celsius (5.8F) today, I'll head out for a walk when it warms up to -17C.
Susan enjoy your movie tonight.
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Oh, MammaRay, I'm so glad you did vent to us. I completely agree!! Something happened to me on Christmas Eve, and I wasn't going to share, but now I am. Read to the end, because there is a point..
I was sitting around a table talking with my mom, two cousins and a couple others. The cousins are the daughter's of my mom's sister, who died in the early 90's. My aunt died of cancer and when it was discovered, she went in a matter of months. My aunt did not share much of what was going on with her illness, so when my mom and cousins got together (they haven't much over the years) they began talking about everything leading up to the death of my aunt. Then someone said how old she was when she died..exactly the age that I am right now. So I'm sitting there..still dealing with my after-treatment stuff, next to my mom who has leukemia, and we were supposed to be celebrating Christmas. I got up and left the table. Not only couldn't I handle it, but it then just put me in a somber mood for the rest of the day. So, my point is that it IS all around us, and it stinks and there is nothing we can do to make it go away. Unfortunately those of us here have a heightened sense and emotion about cancer. It is perfectly acceptable to walk away and cocoon yourself when needed.
BTW, I sincerely hope and apologize I am not offending anyone with mets or in active treatment. I am not saying we should run away from people who have cancer, which is why I didn't mention this story last week. It's kind of like the oxygen mask thing..sometimes you have to make sure you can breath yourself, before you can help someone else.
Love and hugs all around.
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Her feet show it.... they're Longfellow's! Hah!
We will think of you MamaRay.... Don't let it get you down..... Honest! It will get better.... with this New Year, we are all still together.... Something else,,,, Sometimes Mama, you just gotta take a break from a sad thread.... get your mo-jo back, then you can go back another day...!
Sheps! That was great! Hah! Yes Spookers is ALWAYS in the warmth of Florida.... It has gotten cold here... 30 degrees....
Now Spooks will run in and take off her flip-flops and put on socks & boots....Janie is coming to get me tomorrow, and we will go to lunch at our favorite place....! I am so thankful she lives close to us! About 6 miles away....
Supposed to snow Wednesday & Thursday..... Stay warm girls! xoxo
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Shep, great peom/song. Thank you for including the pic!! Hope you feel better.
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MamaRay take care of yourself, surrounding you with love.
WIldtulip it is perfectly normal to feel overwhelmed, you have a lot on your plate and you handle it with grace and loving kindness
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Shep - Who knew you had such talent. Excellent poem.
WildT - One thing I have become aware of is that those who have not personally (physically) experienced cancer don't have a clue what cancer patients experience physically, emotionally, spiritually on this journey. I read and excellent article on FB last evening, a letter from an oncology nurse apologizing to all the cancer patients she had cared for over the years because even though she was an oncology nurse, she did not truly understand what this cancer journey does to the people it attacks. The fear, anxiety, pain, google searches for info, vigilance, hanging on every word of their providers trying to figure out if there is something they're not telling them, all the questions, etc.
Then this nurse was Dx'd with cancer herself. Then she truly understood. Hence the letter. It is such a complex journey as you all know. There are days when I ask myself if being tired all the time, struggling with low blood counts, the all-over aching, etc is all worth it. It also troubles me when some patients have progression no matter what they do and die sooner, but others live in a state of chronic illness & treatment for years. But I believe it is. I know that I am very fortunate in that I am 27 mos. out from Dx and I have been stable so far. I am being blessed with the gift of Kirby as well.
As Susan said, we need to seize the day. An article I read a few days ago in Guidepost's about living intentionally, written by a husband & wife who were Dx'd one month apart w/ Ovarian (her) and Brain (him) cancer. They were each given 2 years to live and initially during treatment they were tempted to give up and curl up on the couch, then they intentionally decided to keep actively living as their conditions allowed. Now 11 years later they are both stable, doing well and living on purpose. None of us are promised tomorrow, so we need to make each day count.
Now onto something funny.
The breeder sent me a video a bit ago of Kirby jumping at his Mom, trying to get her to play with him. He is definitely displaying the teenage antics. Mom had had enough of his nonsense and let him know it, but after a short respite he started in again. That boy is gonna need to learn some manners & boundaries. Ugggh! Teenagers!
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What are these things called socks?
I saw that nurses letter too. Now, she gets it. Don't know if I posted it here, a BIL was dx'd with it in his tonsils right before Christmas. He starts chemo soon. It's everywhere.
I took a break from here for an entirely different non Ca reason. I may again if necessary.
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MammaRay- I am totally with you about the cancer stuff. It is everywhere. My sister and I had it at the same time. About ever six months, there is someone in my community who is diagnosed with cancer. Most recently, a cousin on my father's side of the family just got diagnosed with bc. It goes on and on and on. And then the sisters here who have lost their battle too. I rant with you. Cancer sucks.
JunieB- you are very right about others not understanding cancer who have not been there. I have lost some friendships since my diagnosis four plus years ago. Some with people who just could not deal with anything, others who I just needed to let go of because they were so unkind during all of it.
That article about the nurse having her own experience with cancer after being an oncology nurse is eye opening. I think the best support people are those who have either had it or helped someone else through it. That is why BCO rocks, a place where women can and do help one another.
Wildtulip- your cousins were being pretty insensitive about talking about the details of your aunt's cancer and ending. But this goes to the point above, people don't get it. It is not appropriate discussion at a holiday gathering, never mind in front of two people who have or are being treated for cancer. Some of the people I don't talk to anymore droned on about everybody else's cancer to the point I had to get away from them. Not sure what they expected me to do or say?
There is no need to apologize for self preservation in the face of these comments. I would limit my time around those cousins if you can. At least for the time being. Hugs sister, you take care of you, okay?
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shep, love your poem.
Chevy, DGD will be in Denver tomorrow night, staying with DGD and Evie. She's worried about freezing! Slim chance of getting snow here in next couple days. Rare to get cold enough and rain.
Spookie, WildT and Mamma, sorry about all that's going on, cancer sucks.
Junie, you be careful and have fun with your pup. He sounds like he's going to be a handful until he grows up a little. How big will he get?
3 of us are having lunch on Friday, hoping that Lover can make it too. She got back last week.
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are you going miss me for lunch smaarty? Can't believe that was a month ago already. Wow dose time fly!
About cancer....most people I know just say to me...." I know you are going to be fine". Oh well, not sure what they don't understand about stage IV , but I think it's easier for everyone. I just smile and think all kinds of thoughts in my head...ha ha. Most don't understand the life we live, I hope they never have to. Since it's been a long journey, thank God, a long journey so far, I am numb to most comments. I understand my life and am very ok with the circumstances. This has actually made me appreciate and love everything more fuller than I could have imagined. As I have said before......in the fire, there is so much pain, and so much beauty..when I focus on the beauty my days are great. Wish I could stay there. But alas I am only human.
Hugs to all
Sweet dreams gals:
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So much on my mind and I really don't know where to begin. I have been wanting to write. It is almost 12:00 am.
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Hey Y'all ~ Many thoughts on today's "topic". I need to organize 'em all and come back in the morning.
So many beautiful, kind and thoughtful responses to MammaRay and WildT.
JunieB is off on a grand adventure.
Loverly has returned.
Somebody needs to explain socks to Spooky.
Much love to all 💕
Goodnight!
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Forgive me for not addressing everyone. It is late and memory is not too reliable.
WildT, big gentle hug to you.
I didn't get to see you, MammaRay in a wig
You made a good Santa though. How exciting for your little guy. MammaRay, hugs. Take the time you need to rest.
And Shep, nice new avatar. Love your poem. Two thumbs up. Oh, dad was petting the turtle while he was snorkeling. Ha! The guy loves animals and nature. He didn't know he was not supposed to touch the turtles
JunieB, I can't believe they let you walked 4 miles in the cold weather in the condition you were in! I have given a few people a ride to either the light rail station or another pharmacy/clinic in cold or rainy weather. DH doesn't like it. I told him I can read people (most of the times). You are leaving tomorrow to bring your baby home, right? Hope you feel better soon. You need the energy for little Kirby. My goodness, he sounds like a busy boy.
Ms. S, when is your surgery?
Teka, nice to see you dropped in. Ahh I saw that ShepK was giving you a hard time. Haha
Ms. Spookie, you guys got some cold weather there. We were supposed to hit high 20's this week, but the weather decided to change and we will be getting rain instead. Usually, it does not get as cold when it's wet.
Susan, we are going to miss you at lunch this Friday.
WARNING: Rambling sentiments ahead.
WildT, it's funny how we think somewhat alike. I didn't want to come here sooner to share of my thoughts and feelings about what happened to dad the day after Christmas while he was boogie board surfing with the grandkids, for concern that somehow the emotions would affect the sisters here negatively. I am sorry, Ms. Chevy, that I ran to you during my distress.
Dad was hit in the back of the neck by another person's board when the wave crashed. It hit him hard enough at the pressure point to temporarily paralyzed his arms and legs. He went down in the water and took in significant amount of fluid in his lungs. Thank God there was a strong young man bodyboarding nearby who saw Dad floating and immediately tried to help. When I saw my dad flaccid body being pulled out of the water, my heart just sank. It was only a few minutes prior I witnessed him smiling and enjoying the activity with the kids and other bodyboarders. It brought joy to my heart to see him so happy and enjoying himself. It was a 180* switch in my emotions. My first thoughts of denial was that could not be my dad! They had to fly him to Oahu as the Big Island hospital does not have specialists and is not equipped to treat trauma patients. We almost lost him. It was surreal.
Thanks be to God he is not paralyzed, but he suffers from nerve pain in both his arms from a herniated disc at c6-7 and bruising in the neck ligaments and tissues. He was in the ICU for one day and stayed an extra day for observation because of his age (76). He has to wear a neck brace for the next six weeks. Waiting for a referral to see a spine doc. He has new pain in his right leg . I am hoping it is just the stress from the trauma. I am so grateful he is still here with us, but sad to see my once active Dad in pain and has to have help with daily activity. Wish I could turn back time to tell him not to go in the water. I know it was an accident, but somehow I feel responsible.
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loverly, so sorry about your dad's injury. I can only imagine how scary it was. I popped in to say "Happy New Year" and saw your post. I want to share that I too had a herniated disc in C6 and 7, and had a fusion there with donor tissue and a titanium plate....and it fixed me right up. Sharing this to give hope that if surgery is necessary, he can be restored to his active self. I realize his age makes every surgery scary, and hopefully he will continue to heal and improve without it, but it is a successful surgery in many cases, hoping for him too if necessary. So very sorry for this, sending you and him my best wishes.
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Had a rough night's sleep. Woke up in the middle of the night with the leg muscles in left leg so stiff that it was unbearable. Didn't want to wake up my hubby with my misery from the stiffness so I had no choice but to go sleep on the couch to try and stretch the muscles to get relief. Didn't wake up until the dog came down and planted his cold nose on my cheek so I could take him out.
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Loverly, I'm so sorry for the trauma you and your family experienced, and your father's pain. Big gentle hugs back at you!! Keep us updated on his status.
Susan, Wishing you many days of beauty.
Forward, Smaarty, thank you for your kindness.
Chevy, Have a great time at lunch with Janie.
Junie, Yes..we do need to live intentionally. I need to remember that. May you and Kirby have a smooth trip!!
Jazzy, I actually think it was my mom who brought up her sister to my cousins. My mom has had her ashes all these years, but has wanted to pass on to my cousins. My mom actually asked me ahead of time if I thought it would be tacky to bring them on Christmas. Obviously my mom is not an emotionally connected person. One of my cousins did apologize to me later. Her 28 yr old daughter, also at the table, is the one person that noticed my reaction and pointed it out to her mom.
Meadow, good to see you.
Mommy, Sorry for your pain.
Shep, What was that meme that you posted a while back..with Happy Dust. I think we need that again.
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I Love that we can share our hearts and thoughts here, but sometimes a person needs to laugh, so here you go!
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