INSOMNIACS place to talk in the wee hours

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  • Chevyboy
    Chevyboy Member Posts: 10,258

    Now dangit Loverly! Who ya gonna run to, if not MamaJ??? I WONdered where you were! I just knew something was wrong.... I just had a feeling that your Dad was having more problems.... I'm so sorry.... And don't go feeling bad, thinking it was your fault.... it wasn't! Things just happen.... you know?

    Just be there for your Dad... help him through whatever he needs.... and don't forget to post here, even when you are feeling down.... okay?

    Now Spookie.... I know.... I understand.... but for now, we are all okay. YOU in the warm beautiful weather, and me, sittin' here, waiting for another storm. Yes, it's today Janie is picking me up for lunch at our favorite place....

    SHE has problems with her hand/arm... pinched nerves in her neck/shoulder area.... Going to another neurologist to see what they have to say... So many years of lifting heaving boxes, etc. in her floral department... It gets to you!

    Tulip.... I LOVE video's like that! Hah! So many of them on Face Book!

    Meadow! I had back surgery many years ago! The Ls4 & 5.... Herniated disks/coagulation/ and pressing on the sciatic nerve... but this was in 1985... And no problems now! They didn't fuse anything.... said it would fuse itself, and evidently it did... This "nerve" business is the worst...! Just takes forever to get working right again. I'm just so lucky.

    Sheps... she KNOWS what socks are.... She probably sneaks them on when the temp drops below 72.... she is such a panty-waist! She is like my little sister.... I just have to toughen her up. She needs direction and probably a cup of coffee with cinnamon schnapps...Ha! I think it's called a Hot Damn!

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Wildtulip- well, now I understand better. I expect your mom may have just seen it as an opportunity to have the conversation about the ashes, if you don't see those cousins all that often. But I still think holidays are not the time to bring up heavy stuff.

    Susan- I agree with you about the comments, pretty numb to them these days too. I pretty much don't talk about my health with a few folks anymore, just the ladies here, my sister, and a couple friends who can be present with the whole concept of cancer. People want to say something positive, but it often feels dismissive. I can only imagine the things you hear with being Stage IV.

    Mommy- it sounds like you got leg cramps last night. Sometimes a sign of a potassium or other mineral deficiency. I used to get them a lot in my youth, more recently again. It is a reminder to me to keep up with my daily vitamins and also eat bananas. Worth a try?

    Loverly- welcome back




  • Enerva
    Enerva Member Posts: 2,985

    HI I hardly post anymore but just wanted to wish you all health, love for 2017.

    I just wanted to say to Mammaray that she can private msg any of us if she needs to. I too understand I lost a sister and a brother to c. And often wonder why did I survived? And for how long ?

    Just sending you hugs and strength .

    The only things we can really offer these days

  • feelingfeline
    feelingfeline Member Posts: 5,145

    Lover - Best wishes for your Dad's healing and return to health. May he be romping with the grandkids soon.

    MammaRay Heart

  • m0mmyof3
    m0mmyof3 Member Posts: 9,769

    Think it was more of a case of the dog having curled into the way I was laying in bed that might have done it. I get them occasionally when he does this but last night was terrible. At least he made up for it this morning with how he woke me up.

  • sensitivehrt
    sensitivehrt Member Posts: 310

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    Have a good day ladies

  • spookiesmom
    spookiesmom Member Posts: 8,178

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  • Chevyboy
    Chevyboy Member Posts: 10,258

    Oooooh! It's Sam.....! Did you see THAT Spookers? Get your clothes on.... we gotta go lookin' for him!

    That joke is like.... "I can still wear the same ear-rings I wore in High School"....!

  • lookforward
    lookforward Member Posts: 372

    Loverly sorry about your dad, hope things go well for him. How scary that must of been for you and your family.

    Spookie love the flip flop cartoon.

    We went to Costco today for a few items😬, that apparently is one of the busiest stores in North America, At least that is what the staff tell us. After Costco we went to our favourite Vietnamese restaurant and had lunch.


  • spookiesmom
    spookiesmom Member Posts: 8,178

    FLIP FLOPS Chevy. See?

    Sam????

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Hi E- thinking of you today and wishing you a good year. You know you can PM me anytime too!

  • Chevyboy
    Chevyboy Member Posts: 10,258

    But what's his name? I thought it was Sam! It's Sam Elliott, right?

    Image result for coffee with sam elliot

  • Eeyore07
    Eeyore07 Member Posts: 106

    Loverly, when you stopped posting during vacation, we were worried. Now we know you must be so scared to even think about us. Glad your dad turned out o.k. At his age if he could be discharged from hospital in two days, he must be a very tough person, in good health before the incident. Now, don't look back, celebrate the good fortune of protection from Buddha (from your mom's belief) and from God (in your belief). Your dad must be banged very hard, help him with rehab in the next 30 days, so he can return to be a dragon..( I think he is a dragon, right?)

  • magdalene51
    magdalene51 Member Posts: 2,062

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    Here it is again, for those who missed it the first time around.

    Well Owlettes, it has been a crazy couple of weeks. Don't know when I last posted, but at least I've kept up with y'all's news. Not that I can remember a dad gum thing, but that's par for the course. I have a huge long story about what's been going on, I may have to do it in segments.

    Let's go back to the Sunday before Christmas. My back was giving me fits, like a spasm on steroids, so I took one of those little bitty morphine tablets my doc gave me for breakthrough pain. Now, I'm not saying that was the cause of the insanity of the next few days, but since that was the only thing different, and everything that happened is a listed possible se, however rare, I'm thinking that was it.

    What was the insanity, you may ask? Well, hallucinations, dizziness, falling, did I forget anything? When you look at what you know is a perfectly blank wall and you see something that looks like Greek writing all over it, but you can't read it (even if you read Greek) because it changes as your eyes move; or it's covered with writing in an alphabet you don't recognize, or it's covered with what looks like New Yorker cartoons, and you know there's really nothing there; or you look at the floor beside the bed and there's a man in a green shirt, and you know that can't be, so you look away and look back and he's still there; or your sister is standing beside the bed talking to you and you know she's not there...

    When you head to the kitchen for something to drink and you have to stop and sit 3 different times just so you won't fall – and then you stand up and your legs give out and your cane goes clattering across the tile and your phone screen cracks, and it's 2 in the morning and everyone thinks Olivia has pulled the curtains down again (but come running anyway).

    This went on from Tuesday before Christmas to Christmas Adam. Then it stopped as abruptly as it began.

    So last Thursday I went to have my CT scan and threw what I thought was an unopened bottle of water and my phone with a cracked screen and my iPad mini in a bag and headed to the clinic. While I'm waiting to be called, I reach in my bag for my phone and the bag has an inch of water in it. My phone fried, iPad gone.

    Well the good news is that my lung mets show a 23% reduction! Bad news, I've been without a phone. Good news, it's insured; bad news it has taken us forever to gather the stuff we need for them to replace it. DH has just brought me the last info I need, so I'm going to go take care of that. Probably check in later with the rest of the story..

  • spookiesmom
    spookiesmom Member Posts: 8,178

    uh, happy new year? And the good news is.............reduction

  • susan3
    susan3 Member Posts: 2,631

    boy madgs, sound like you were on quite a trip...all by yourself. Glad Mets look better and you're not seeing little green men anymore

    Lover, that is not called a vacation :(. So sorry your dad had to experience that. I thought to myself, isn't it enough in one lifetime to rescue his own family on a small boat...not knowing the outcome. The rest of his life should be perfect. We know that's not how it works, but are emotions sure wish it did. And you and your kids to see that. Very very happy the outcome was positive. Hugs and prayers to you and your family. I hope your dad fully recovers :)

    Saw two movies these past few days. La la land and Manchester by the sea. I didn't like either. Suppose to be two best rated. I think there is something wrong with me 😬😜🍷

  • wren44
    wren44 Member Posts: 7,932

    Mags, I'll bet it was the morphine that did it. They gave me dilaudid at urgent care and I had to read a newspaper full of those little filler things they use to make the columns come out right. Fortunately, mine didn't last as long. That must have been miserable. Hugs.

  • sensitivehrt
    sensitivehrt Member Posts: 310

    Good evening, thought I would actually try and post tonight more than just pics.  Hope everyone is doing well.  I'm still keeping busy with work, and still feel like I have foggy brain (how long does it last after chemo?)  Doing ok on the tamoxifen,  but do feel like my knee joints are a bit more sore, I know I'm not drinking enough water and have been drinking too many mocha's.  But getting up at 5 every day is kicking my butt, and I say I need the caffeine.

    Shep-I loved your poem, and I like that you are a "trouble maker". There isn't enough of us in the world ;).

    Junie-Do you have Kirby now? Are you snuggled into the hotel? So glad that you took the advice from my previous post.  I'm still pissed about reading that the hospital denied you a voucher.

    Mamma-got to see the pic of you and your wig. You look great.

    Lover-prayers for your dad for a speedy recovery. I hope the rest of your vacation was good

    Hi Jazzy, Chevy, Feline, Smaarty, Susan and Poppy and anyone else that I might of missed. Looking forward to lunch on Friday.

    Mags-sorry about your phone! And someone stole your I-pad......people suck.

  • magdalene51
    magdalene51 Member Posts: 2,062

    Actually, Wren, it wasn't so much miserable as it was amusing. The hallucinations, at least. Not being able to be mobile without help was pretty miserable. But the hallucinations were just strange, because I knew the things weren't there. I was riding in the car with my cousin and when I shut my eyes there was a movie playing inside my eyelids. Once I watched a highly polished wood wall as it blossomed into a bas-relief and came to life. There were so many different kinds of things!

    I had dilaudid in the hospital for the headache from hell. Both oral and iv, didn't do much.

    I'm now getting some in-home PT, and since I had no phone, I had no notice and was unprepared for the thoroughness of the intake, and the invasiveness of it all. Fortunately I have nothing to hide, she checked out all my meds, including OTC, checked the bottles themselves, checked out bathroom/shower facilities, met my caregivers, and won my heart by loving on my doggies. Think I'll keep her. 2x a week x4 weeks to start. That should take us to next PET scan. Just doing some mild stretching/strengthening, no pain.

    Loverly, good to have you back, and will be praying that your dad's recovery is complete.

    Spookie, what do you mean Sam???

    image

    He just gets better, I think.

    M0mmy, I found a pure magnesium oil spray that's great for leg cramps. If you get them often (even from doggie's inconsiderate sleeping position) might be worth it to help iron out the kinks. I have that problem with Olivia, as she favors sleeping on my belly or thighs, or curling up behind my knees when I'm on my side. I've typed this whole post with one finger because she's in my belly now. Well, I guess it's the softest place. Oh! Speaking of Olivia, while all this was going on with me, she had her first heat

  • Chevyboy
    Chevyboy Member Posts: 10,258

    Holy shamoli Maggs! You were on a TRIP !!!! Morphine???? If nothing else, that stuff will plug you up until NEXT Christmas !

    "Breakthrough Pain" ???? She says???? More like "I'm just gonna check out and let my brain go wild, and see what mischief I can get into"...

    I had a Morphine "drip" after I had my back surgery, but I didn't go through all those things YOU did! If I did, I don't remember.... Hah! Besides I was in bed, and not walking for awhile... and you saw a MAN in a green shirt???? That was Sam. No more Sam for you! And I don't understand anything about Olivia anything.... And you had a dil.... a diludodad in the Hospital? along with Sam???

    And I thought my mind was a picnic! I have to go back and read this chit like 4 times to figure it out!

    You make it fun, anyway girl! So glad your mets are down... And YES! When those canes hit the ground, they even scare ME! Not to mention everyone else in the Starbucks'!

    Go get you a computer with a big screen.... something you don't have to carry around and drown, drop or lose! Like a 26" monitor on the thing!

    Okay..... I love reading about your tales... but don't like when you are hurting.... so glad you like your caregivers.....! WAIT JUST A MINUTE !!

    WHO are these people??? Would we approve?? Are any of them women?

    Loverly.... how is your Dad? You sure get quiet when things aren't right...

    Spookie! Are you sure you won't come here anytime soon? For Lunch or something? It is going to be 2 below 0 tonight.... And snow all over the place. I mean not even EYE want to be here... Ha!

    Okay... gals Morning Susan and Looking! Hope you guys have warmer weather than we are having!

  • Chevyboy
    Chevyboy Member Posts: 10,258

    This is Spookie...

    Image result for is it going to be cold today

  • Chevyboy
    Chevyboy Member Posts: 10,258

    funny cold jokes | It's minus 21 with the windchill, today! Got a nice fire going in ...:

  • spookiesmom
    spookiesmom Member Posts: 8,178

    😂😂😂😂😂😂😂😂

    Yep that's me!!!!!

    We do have Starbucks here ya know.

  • Smaarty
    Smaarty Member Posts: 2,618

    morning all.

    Lover, Hope your dad keeps improving each day. Obviously he made it home with you guys? Hope you can meet us for lunch. We all need to play catch up.

    Yes Susan, we will miss you but Elena more ;) is she crawling everywhere now? Today is Evies birthday! They will be coming home in early February to celebrate.

    Mags, wow, sounds weird and fascinating at the same time. I had a friend who hallucinated like that from pain pills. Don't know what she took. Sometimes you just don't know how your brain will work until you take something. Have you never had morphine before? I always tell them no morphine when I have sx, I have a hard time waking up on it.

    Took GD to airport last night, what a wild ride coming home, windy, blow the cars around kind of wind, raining sideways and cold. She's 15, knows everything right? She had on 2 tops but nothing that covered her belly button! She going to freeze! She landed about midnight in Denver! Hopefully she'll learn!

    Got to go, have to take mom to doc appt. she has wax built up in both ears and part of her hearing aid stuck in one side. So no hearing test until we get that cleaned up.

    Bbl


  • lookforward
    lookforward Member Posts: 372

    Wow Mags that was quite the experience you had, good news on the reduction of lung mets. I hope you continue to feel better everyday.

    Chevy we are a few degrees warmer then you, I will meet at Starbucks with my woollies on.

  • Chevyboy
    Chevyboy Member Posts: 10,258

    Smaarty.... It is freezing here! Snowing, and blowing! The closer you drive West towards the mountains, the worse it is.... At least she made it here, before all the flights were cancelled! I remember going to San Francisco visiting my folks there.... EVERY time, I bought another jacket! It was cold there too, but nothing like here! We are under a storm "warning" now.... But all ya gotta do is look out the window, and see the snow.... Hah!

    I got my new hearing aids.... but I'm still working on cleaning the wax build-up out of my ears also.... The Ear Candles work for me.... I would just like to use one, and have nothing come out! Then I would know they are clear. The wax is "different" than a blockage, like I had a couple times before.... usually caused from dried blood. I can hear with my aids, but the wax does make a difference! So far I got about as much as a small egg! In just one ear! The specialist said, he couldn't see my ear-drum in my left ear, so I have been working on it.


  • Loveroflife
    Loveroflife Member Posts: 4,243

    It's Wacky Wednesday! image

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  • shepkitty
    shepkitty Member Posts: 878

    Oh my! This was NOT the happy holiday season we hoped for....

    Image result for christmas tree on fire

    What was that stuff Chevy mentioned? Pass the bottle!

    Image result for hot damn whiskey

    Yes Loverly, a Wacky Wednesday is much needed. We need to kick it up a notch to celebrate all the survivors of the weeks that were.....

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    Sam would approve!

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    Mags ~ Sam IS wearing a green shirt!



  • Loveroflife
    Loveroflife Member Posts: 4,243

    Thank you, my tribal peeps for your prayers, words of comfort & encouragement through PMs, texts, posts, and emails regarding dad. He is sleeping a lot these past few days probably from the Gabapentin and Tramadol. His pain has somewhat improved and he will be seeing a neurologist early next month. He has new pain in his right knee so his Primary Care Doc ordered an XRay of his thoracic and lumbar spine. They didn't do that at the hospital in Hawaii because his chief complaints was mainly neck related. Dad is such a good sport, an ideal patient. Hardly complains. He thinks about others while he is miserable himself. While waiting for the CT and XRay results he was more worried about the kids and grand kids and our friends waiting in the ER to see how he was doing. All the nurses, docs, PT, and OT people at the hospital loved him. I think if it was not for his hard of hearing he would crack jokes with people who cared for him. Ha! He was so grateful for the staffs and was really touched by their compassion. Well except for the two CT techs at the first hospital on the Big Island. He didn't tell me this until days later that when he was in the CT machine he had to endure the extreme heat. " I think they forgot to turn on the AC. I was so hot, but tried really hard not to move or complain. After what seemed like an hour later I knew that this was not right. So I started to bang on the machine with my heels and told them that I need to get out and if they don't let me out I am going to die in there of heat and thirst." When you are short in your service, someone will suffer. The incident probably contributed to Dad's stress level of being in the hospital (his first) . He had normal blood works at the ER, but had SIH (stress induced hyperglycemia) and abnormal CBC and electrolytes the next day. Never had high blood sugar before. I feel so bad for him.

    I have to consciously remind myself that it was an accident and it could happen to anyone. You tend to think that this only happens to other people. When I was around seven or eight, I witnessed a drowning. The kid was my age and a son of my dad's friend. The image of people trying to resuscitate the kid is still edged in my memory after 40 years. I need to look at the "bright side" (interesting phrase btw as Jesus claimed to be the light). Dad is here with us and this ordeal has brought mom and dad closer. She doesn't nag at him as usual because she is busy caring and nurturing him back to health....I think so she can start nagging him again. Ha! We all teased him that he intentionally turned off his hearing aid when he was around mom and the very reason he did not want a better hearing aid.

    Talk about hearing aid, I have a silly story. Not very long ago my younger brother took him to Costco (I think) to get a better hearing aid. DB had to fill out paperwork for Dad and one of the optional question was what was your occupation. Unbeknownst to dad DB put down stripperShockedLoopy DB said you should have seen the female clerk's face when she saw the answer. She looked at dad first with a serious astonished look and then with a half smile trying not to burst out laughing when she figured it out. The whole time Dad had no clue why the clerk kept smiling and looking at him. DB told dad later on and he busted out laughing and scolded my DB at the same time.

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Meadow, you have such a gentle and kind spirit. Thank you! I am glad to hear surgery corrected your problem. I read that success rate for similar surgery is 16%. Hopefully, Dad will not need surgery. We are icing the area in hope that it will take the swelling down. Drop in whenever you get a chance.

    Eeyore!! Yes, it was God's grace that Dad was spared from paralysis or drowning. You know what was interesting was when he realized that he couldn't move and went down he panicked, but then heard a voice that someone will come to rescue him. Dad is not a Christian and does not practice Buddhism. And yes he was born in the year of the dragon, but not a dragon at all. I don't think he has any enemies.

    Oh Mags, that was an interesting and a scary experience at the same time. Crazy how the altered chemistry in the brain cause a person to see and hear things. I have not had Morphine before. Norco makes me more wacko than usual. I didn't have the visual , but I think I did have auditory hallucination. Emergency sirens in full blast. The PT sounds like a neat person. Hopefully, she can help you regain your strength back. Happy to hear of the reduction in mets. Yay!!!

    Ms. Chevy, thank you for your words of wisdom, as usual. I am sure you had a great time with Janie yesterday. I am sorry to hear that she is still struggling with the numbness in her arms. When your love ones hurt, you hurt with them and can't help but worry. I have been busy trying to take care of Mom's car and dealing with insurance . She is covered under our insurance. She got into an accident back in Sac while we were in Hawaii. When it rains, it pours. Well, I again need to look at the "bright side". She was not injured and was not at fault (per our insurance for now). I am grateful for that. She was supposed to go to Florida to help my Sis with the new baby (6lbs, 6oz, 20 inches) born the day after Christmas. She and Sis are healthy, another reason to be grateful.

    Forward, I think I would get depressed if I lived where you and Ms. Chevy live. I can handle a few days of no sunshine, but I need the sun.

    Jazzy, has work slowed down?

    Sensi, I feel bad for people who have to return to work full time after chemo. Hopefully, you will regain your energy soon. How is Chance with the new buddy? Mitzy is moping around again now that DD went back to LA. She left this Monday and DD2 started school today. She is my shadow today.

    JunieB, thinking of you and can't wait to hear your report.

    ShepK, sinus any better? Ah, no whiskey! Don't need any more trouble. Haha!

    Peppy, thank you! Will see you all this Friday.

    Ms. S, Yeah, 15 year old teen agers knows everything. We had some crazy weather yesterday.Dd2 was afraid the wind would break her bedroom window.

    Mommy, ooh no fun getting leg cramps. I usually try to pull or point my toes toward my head. It will break the spasm.

    Ms. Spookie, I guess your body acclimate to the warmer weather. We met a retired widower in Hawaii who used to live in Maryland. He said that the 70's temp they get in Hawaii in December is now too cold for him. Ha!

    WildT, hope your first day back is not too taxing for you. Love that you have dates with the kids. Has joint pain improved? It is interesting how we have Estrogen receptor all over our central nervous and even cardiovascular system. The scholars believe that estrogen depletion can cause joint pain secondary to increased inflammation.

    Kath, how are you?

    Susan, yeah. What a vacation! I will try to focus on the happier times with dad as Ms. Spookies suggested. He still tries to joke with the condition he is in. Monday when I took him to see the doctor, he told me he feels like an old man walking with a cane and laughing at the same time. He must had forgotten he is 76.

    Feline, thank you for sharing the photos of your DD. So graceful and beautiful.