INSOMNIACS place to talk in the wee hours

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Comments

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    What's cool about the product that Feline found is that it not only supports brain health is it supports the liver and thyroid too. A 3 for 1 product


  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    https://www.medscape.com/viewarticle/748903

    this is on Aromatase Inhibitors I didn't catch it all BBL, bbut it 2011 frankly a waste. This was in the early days of AI's I was there they didn't know shit from shinola in those days. But for some reason I couldn't get this to wipe out

    Aromatase inhibitors (AIs) have emerged as the standard therapy for postmenopausal patients with estrogen/progesterone receptor-positive breast cancer. As adjuvant therapy, treatment is typically recommended for approximately 5 years. Endocrine therapy decreases annual recurrence odds by 39% and annual odds of death by 31%, irrespective of the use of chemotherapy, patient age, menopausal status and axillary lymph node status, but this benefit must be balanced with treatment side effects, one of those possibly being cognitive decline.[1] As mortality has improved, the issues of treatment-related morbidity have grown increasingly more important in breast cancer survivors.[2] Cognition impairment from AI therapy will become more of an issue to consider as clinical trials are looking at the role of AI beyond 5 years.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Tamoxifen is a Serum Estrogegen Modulator I would have to look at it individually from AI's. I would want to see current research on both. In the case of these two drug classes that's difficult. Even if something was published today, it's already several years old. The SERMS are near 20+ years old. I'll see what I can find

    Bottom like Jay to your question yes, Tamox and Ai's can mess with the brain and every other body part

  • kathindc
    kathindc Member Posts: 1,667

    Oh, the fruit of the ginkgo tree! Yuk!! Growing up,the street I lived on and moved back to has ginkgo trees. The city use to spray them to prevent the fruit from forming, yay. If the spray was too late, fruit formed and dropped in the fall. Broken fruit smells like vomit. City stopped spraying over 30 years ago. My block had the female trees cut down and males planted. Several blocks in my neighborhood aren’t so lucky nor did DD2’s neighborhood in the DuPont Circle area. The last thing you want to do is step on them before getting in your car or going into your home. That smell has always prevented me from taking the ginkgo biloba supplement.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Kathy how funny and awful. I used to feel the same way about mulberry tree's. My inlaw's had a tree--not sure what kind. The bird's would get "drunk" and fall all over the place.

    Just found out Westminster is on

  • m0mmyof3
    m0mmyof3 Member Posts: 9,769

    Happy as a pig in the mud!!!!!! Got to see my favorite Enlgish professor from my community college days at the book signing for the release of his second novel. He took a picture with me and hubby and signed a copy of his book for me.

  • kathindc
    kathindc Member Posts: 1,667

    Argh, mulberry trees. Had one in the yard across the alley from us. Man, now there’s a fruit that has the birds pooping all over the place. They must go directly through them without stopping

  • Loveroflife
    Loveroflife Member Posts: 4,243


    Sending hugs for Valentine's day.

    Image result for happy valentines monkey

  • runor
    runor Member Posts: 1,615

    I have not posted on this thread before. I never thought I was an insomniac, perhaps I'm not. But I have something else going on. Sleep avoidance. Bed not-go-to-ness. Suddenly going to bed is, hmm, no, let's not. Hub is in bed and has been for hours, daughter is in bed and has been for hours. But me ... I will sit up and play mah-jong on the computer (can't break that 60% win level!) or look up stupid stuff. Why? What's going on?

    Ever since this cancer diagnosis, there has been a creeping sadness. A lurking, shadowy fear. Maybe this is the monster in the closet that tortured me as a kid, I don't know. But I do know that I do not want to get into bed. The dark is hard. My mood descends as the sun goes down. It's like darkness spreads through my body at night. A coldness. A touch of the void and it scares the hell out of me.

    During the day I can pretend that I'm coping. Today a kindly neighbour asked how I was doing and I said fine. Fine. I'm fine. I AM NOT FINE AND I NEVER WILL BE AGAIN! My head is a messed up bowl of crap! I am sad, so crushingly sad. I am a zombie. I look and move the same, but feel like I am lurching, stumbling, trying to find footing that was automatic before but now I trip on my own feet trying to navigate a way through a life that seems utterly foreign even as it is exactly the same. But not the same. In the day, oh god, the effort it takes to BE NORMAL. But at night, there is no avoiding it. When I crawl into bed all those bad thoughts crawl in with me.

    "You should be living life to the fullest. " "Every day is a gift." "Any one of us could die at any time." "Your stats are good, you will probably live a long life." "Other people have it worse than you, so shut up already."

    Yeah. I know it all. I believe it all. But it doesn't change a damn thing.

    So here it is, well after midnight and instead of getting ready for bed I'm thinking about that cold Coke in the fridge and wondering what a jolt of caffeine this time of night will do. Keep me awake? I have stuff on my mind that is much worse than what's in that can of Coke for keeping me awake! I am deeply ashamed to admit that I am still stuck here, a year later. I should be doing better. Should be living life. Should be past this. Should be in bed. Should, should, should. But I'm not. If this makes me an insomniac, then your numbers have grown by one.

  • feelingfeline
    feelingfeline Member Posts: 5,145

    runor, this is only scratching the surface of the issues you raise but if it is possible, turn down the brightness of your screen at night. You probably know that it has been found that the bright LED light mimics daylight and keeps your brain awake .... HeartHUGS.


  • runor
    runor Member Posts: 1,615

    Hello feeling feline! Thanks for the tip. I would be better off if I just turned off the damn computer altogether! I see you are in Ireland. I have this bucket list fantasy of going to Ireland and importing an Irish Draft. How hard can it be? (says the person who can't get to bed at night!)

  • wren44
    wren44 Member Posts: 7,932

    Runor, As a former counselor, I recommend finding someone to talk to about these feelings. The oncology department may have names. People think we snap right back to our former lives, and that's often not the case. I hope you're able to nap during the day and get some sleep. We need sleep to function. I found a book once that was interesting, but the author had a hypnotic writing style. I have no idea how students stayed awake in his lectures. A couple of pages and I was sound asleep.

  • shepkitty
    shepkitty Member Posts: 878

    Travis is here to make everything A-Okay!

    Thank you Smaarty for introducing us to our fave CatMan! 😻😋💕💕

    https://www.facebook.com/travbeachboy/videos/20180...

    https://www.instagram.com/p/BfHAuHHlkPV/?taken-by=...


    image


    (using two different links just incase........)

  • junieb
    junieb Member Posts: 945

    Related image

  • junieb
    junieb Member Posts: 945

    Oh Goodie! I woke up with a scratchy throat and chest congestion this morning. I was really hopeful that I'd make it through this winter without getting sick. Obviously I was confused.


  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233

    Am running in and out - will read later when in my TV chair and Hubby has his shows on.

    SASSY - your memory is alive and well. Fuzzy's was the BOMB. So much fun. Yes, Essa. Thus the DE for Diane Essa.

    Sas - I got your message - will call you soon. Cannot promise when. Tomorrow seems to be all hospice here, palliative nurse in morn, chaplain and social worker afternoon. Hubby and I will run out for lunch between. It was spread out but w the snow last week reschedules were necessary.

    Runor - I come and go here. But we talk during the day too.

    Back later or soon.

  • Beatmon
    Beatmon Member Posts: 617

    Why am I still awake? I hate this. At least I have bco to come to.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    runor welcome here, chickie, you are normal even though you feel abnormal. Your statement " I have stuff on my mind that is much worse than what's in that can of Coke for keeping me awake! I am deeply ashamed to admit that I am still stuck here, a year later. I should be doing better. Should be living life. Should be past this. Should be in bed. Should, should, should. But I'm not. If this makes me an insomniac, then your numbers have grown by one."

    Sweetie, your abnormally completely normal. Or normally completely abnormal. We all are in the Alice in Wonderland Rabbit Hole. Forever feeling like we are falling.

    Cancer changes our thoughts of everything. Nothing after the beginning will ever be the same.

    BUT and another BUT........YOU can control the fall. we each manage it in a different way. So, many different ways. Me I prayed a lot in the early days. I went on different threads. The key for me was reaching out.

    Your reaching out " I should be doing better. Should be living life. Should be past this."

    Young one, the drugs we take to get pasted this are horrible to the body. We make choices about life quality and life. So, track what these drugs do to your physical life, then make a choices. Then add other drugs that may help you tolerate the drugs you are using.

    As you read on the pages of BCO you will ultimately decide things. that are good for you.


  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Bluebird _ESSA Okay YAY Whoopeee hoot and hoo. whippe yadodo

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    In the early days when this was truly a insomniacs place. Sometimes, I could come here and no one would be here. Then I would just talk. Whatever, the need was, b/c I just needed to talk. I needed a release.

    It was wonderful if someone showed up, or if I showed up when some one else was here.

    Another great fun thing was we met the Aussies and the Aucklanders. They don't come any more. See, it was there daytime.

    May be I'll send a request to the few I know and they can invite others.

  • runor
    runor Member Posts: 1,615

    Sas-schatzi, you bring up something for which I feel a deep gratitude. It's to those people who came here at the start of their journey but have stayed, for the long haul, to offer wisdom, hope and context to those of us who came after them. People come to these boards when they are terrified, in desperate need. They reach out, find what they need, and then, god willing, they move on a point in their lives where this is behind them and they step out of the shadow into the light. I envy them.

    BUT .... a foundation is established by committed individuals who make, for their own reasons, a long term commitment. You, Sas-schatzi, with nineteen thousand posts. NINETEEN THOUSAND! I bow in honour of the work you have done, the time you have spent, the love of others you have shown by staying and being a ray of hope.

    I look at bios. I see progression. I will read a post and sometimes check to see when that poster was last seen. If it was recent I send out a little prayer of thanks, hooray, they're still going! I cheer everyone on - you go girl (and our guys too!). But when I see a name that has not been on for some time I hope they are off living their life but I also feel a coldness in the pit of my stomach. Please, no. Wherever you are, please be alright.

    Yes. Down the rabbit hole. I know I will find my footing again. I believe that. But not now. Not yet. Too new. So I come here and really what I look for is hope. Same thing everyone else is looking for. Hope and a way forward into whatever the outcome will be. Hope is provided by people who have made it worth their while to stick around for as many posts as you have. We all give what we can, what is our part to give. But to you I would express gratitude for the rock solid stones of foundation you and others like you have left for the rest of us. Thank you.

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Ooh I need the Clear Brain product! The other day DD2 found the yogurt I left in the pantry right next to the cereals. It was in there overnight. I put it back in the fridge and ate it after a few hours. Tasted fine. I haven’t burned anything the last few weeks, but did manage to baptize the cabinet near the sink because I walked away to do something and left the filtered water running pass the cup brim for a several minutes! Oy!

    Welcome Runor! I don’t have insomnia. Just like to stay up late and can’t get up in the morning. This place is my escape in a way.

    Blue, I picture you as a deep thinker. A special, but eccentric ( I meant it as a compliment) lady. Who keeps skunks as pets????Loopy

    Ok, my friend just texted me. Got to go. Hello my other friends.


  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Runor, Oh my that's a wonderful thought. BCO has from the beginning been my solace. I blundered in the beginning because I had no clue . It took awhile to understand things. Then the nursing thing kicked in.

    I found the Catholic thread and I organized novena's for awhile. But then I realized it wasn't working. I was working and well..... that's n old story.

    As time went on, I understood about the difference between social threads a what I call working threads. Insomniacs was a social/working thread. Different because it combined both needs. Constipation thread was a working thread, Pain and Other Things, Just Diagnosed -Get Prepared. Others. I then referred to them as housekeeping threads. Maybe a strange name. But I was retired. I would sign on and want to come to my social thread, but I would check on Technical/Housekeeping threads and some times it would be hours and hours answering questions or research. It was okay until I realized it wasn't okay. Then I would take a break.

    Runor what is the worst is I know that our medical system fails us more than people know. I learned that as a young nurse. I then studied so hard after being licensed as a nurse, to make sure that the orders that the docs gave me wouldn't hurt my patients. One example, in the 70's with out all the pre details, I identified that a drug instruction for a pacemaker implant emergency drug was 10,000 mgs over dosage as the emergency drug. Even the cardiac surgeon had to think about it. DUH. I rewrote the work card for that procedure. It's just a example.

    Life has been that way. That's why I'm here for questions. on the housekeeping threads. If I haven't got an answer , I'll look. One recent question from a guy in Bosnia about his wife, showed that the premier producerer and genetic thingy for a drug should not have been used on his wife. IT was awful. He never wrote back, but I'm thinking she died.

    Anywhooses. Why, I fear for my self and others about our care so I work on the housekeeping threads or the research threads. I like to play on my social thread which is Insomniacs. Other threads that I have created like Steam Room, I don't go to, at least not now. Steam Room is very important, Very. I created for a person that needed to rant. BCO had no place to Rant then.

    Hugs runor

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    OMG KATHY, The damn mulberry tree that I had to walk past every day with the fruit squishhing under my shoes. One day a bird pooped on the top of my head. I had to go home and wash my hair. Obviously missed the bus. Was late to school. The nun was disbelieving of the story

  • shepkitty
    shepkitty Member Posts: 878

    http://wjla.com/features/7-on-your-side/fda-to-inv...


    https://www.fda.gov/AnimalVeterinary/SafetyHealth/...


    Aaaaaaaaaaiiiiiieerreee!


    lost looong post grrrr.


    please share pet food recalls!


    Love to all.... back later!

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233

    Thanks for the update on recalls, Shepkitty. I buy USA and organic in hopes of problems but still have to watch.

    MOMMYOF2 - Post the picture!! What book?

    Mulberry trees - Hubby thinks of them as crap trees and wants to whack them off and nail copper nails in the trunk base to kill them. To no avail. They are bird food and make for lovely purple poop though. I made a mulberry tart when I was 12. Of interest is the tomato worms caterpillars will eat tomato plants but they will also eat mulberry leaves. So this is where we take our tomato worms to flourish and become these pretty moths. Hawk or sphinx moth. Otherwise known as hummingbird moth. They are prolific nighttime pollinators. Moral of the story - tomato worms are good - take them to the mulberry trees. Or plant an extra tomato section for them to eat there. I'll shut up now. : )

    image

    Sas - oh the parties of Fuzzy's romp room. Chicken parties! Leaving confetti at the end.

    I am glad you started this thread.

    Today I had lunch with a dear dear friend. We have both been so ill for the last year we have only spoken on the phone. Missed her so much! She and I have been through a lot together in so many ways. I remembered today that my real time friends in life where we sit and talk are capable of deep conversations with me of nothing surface. It's not so much how are you doing and what did the doctor say. It is how do you feel about dying? Do you care if you survive? When and where will we meet again if we can? They will say something like I believe my soul will go on. What do you think, how do you feel. And not ask in order to change my beliefs butto understand. I love deep love and conflict. I have a few other friends I want to re-connect with that I lost when I got too sick to even talk and now I am ready again, soon.

    Runor - you will be gentle with your expectations of yourself, okay? You got through one haul w this and then had another to face headon. It is alive and well in the forefront of your mind now just like before when this started.

    LoverofLife - Deep thinker? Yes. I wrote a novel that was just that. A woman who did not want to be a deep thinker but was and she was touched with gifts she would not deliver to the world too. Somewhere in there is me, the all of me, buried in my denial and avoidance. There were skunks and Newfoundlands and gatherings of friends and magic worlds. Very deep. I loaned the book to a friend who I think never took time to read it and I never got it back. hmmm. I miss it. Think I will order it. If I ask for it back and find out she tossed or lost it I may not forgive that action. Don't need the stress.

    Today is the day I give up stress. One hour at a time?


  • Loveroflife
    Loveroflife Member Posts: 4,243

    Blue, isn't it wonderful when you have a friend you can have deep conversations with? One who doesn't judge you and loves you for the way you are? I know you don't like the word blessing, but to me it is a blessing...a gift.

    What is the title of the book you loaned to this other friend of yours? I would love to read it.

    It's 10 am, sunny and beautiful outside. Much to do around the house as I worked extra the past two weeks. Had my cup of green tea yet I am still sluggish and sleepy. Don't like days this when my body is not in sync. DD2 is down with a viral infection. The poor kid get sick so easily the last few months.

    I like your " Today is the day I give up stress." Wish I know how to balance that idea and rest when I need to. Right now I want to crawl back into bed and sleep. I need a housekeeper. Bawling

    Shep and Junie, don't you hate it when you lose a long post? Happened to me several times. Must be a BCO glitch. Now I am curious what you wanted to say.

    Shep, Travis is too purty for me. Pretty eyes though.

    Mommy, yes! Picture.

    Kath, did you know that Ginkgo nuts are edible? Singaporean folks put them in desserts.

    image

    image

    I have tried them and they are pretty good (says the person who eats beef tendons and fish eyes). Actually, the nuts are good. No stinky smells. Nice texture.

    Phew, almost lost the post.

  • junieb
    junieb Member Posts: 945

    Blue- I first looked at that pic and thought that it was a hummingbird, but realized there was no beak. I didn't know that the worms on tomato plants turn into this. Interesting.

    I signed up for emails from a group that sends out notices on pet food recalls and there was a recall earlier last week for a brand of Bully Sticks that are manufactured in Long Beach, CA. for Salmonella Bacteria.

    Loverly - You are brave to eat a yogurt that has been sitting unrefrigerated for so long. So glad you didn't experience any bad effects. By the way I did buy a piece of Ginger yesterday, plus I found a box of the Raspberry/Hibiscus tea I told you about too.

    Well, the steroid has calmed down the spinal nerve coming from my lumbar spine, but I know once I stop it the pain will return. I'm still waiting to hear from the neurosurgeon. Along with the fractured vertebrae, etc. I came down with a respiratory infection, but the antibiotics are working on that. So this morning I feel ready to get Kirby back home. I am so grateful I have someone I can call to care for him when needed.

    It is 48 degrees here today and overcast/drizzily etc. A good day to possibly do some sewing. We'll see.

    Ok, off to make breakfast. Catch you all later.

  • kathindc
    kathindc Member Posts: 1,667

    Oh Lover, you’re a stinker for posting the pictures. I did know the nuts are edible but can’t imagine anyone harvesting them. The city came one year, I was in second grade, and shook the fruits out because they didn’t spray in time. Oh my, they were several inches deep. It did get the misery of dealing with them over with quicker. Only time they did that. The trees date bake over 200 million years.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,769

    Will get a picture of it up in the next few days. Been fighting a nasty stomach bug the last couple of days, today was the first day I could eat normal food.