Single life after a mastectomy
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morning ladies. Thank you all for the encouragement
June hope you have a wonderful trip.
It is bloody cold here but I keep telling myself a few more days and spring ll arrive lol
I am going to wash my hair dry the afro then I will finish some homework.
I decided that next Saturday I ll go to a yoga class. I just have to find out the time it is offered at a place I use to belong .it is for c patients and it is available free.
I must try to gain some flexibility
It seems now o am very stiff lol
Hope you all are having a wonderful weekend
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E- yay about the yoga class. Yoga feels great and helps with stress. I was thinking on my last yoga retreat how much yoga and meditation have helped me through some of the worst times in my life. I hope you like the instructor and the class.
I am interested to hear about your experience as I want to get certified to teach yoga for bc survivors.
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Jazz lol i think that is a great idea
i dont have the flexibility any more so i doubt i could ever be able to teach any yoga. that could be a wonderful part time job too
you will be a great yoga instructor i am sure.so i got a call and they gave me the MRI appointment for next Monday March 13th. my only issue is that my Period may come for that time it is late ;(
i hope i get it now so is gone by monday but i think it may come for the weekend or even after monday ?
they did asked me when was my last p day. and it was on feb 10th but for what ever reason is not here yet . I believe it u are on it they can not do the MRI? I cant remember how the this works.
Anyway the time works out great cuz i can work the early shift then go do the MRI then school. No need for the day off
i am now worry about the period thing
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Good morning ladies- I hope everyone had a good weekend. June is heading off on her well deserved vacation after meeting her deadline!
E- so you cannot get an MRI when you have your period? They are doing an MRI on the breast area not the pelvic area or maybe both? I hope it stays away or finished before next Monday. I know you are anxious to get this checked out.
BB and E- we have tons of yoga teachers and studios in the city now. When I began yoga here 19 years ago, there was maybe one studio, many instructors doing classes out of dance studios, churches, etc. Now there are probably 50-60 and hot yoga is the trend. Someone mentioned at my last yoga studio she was a yoga teacher in CA, but said Albuquerque is so saturated with yoga instructors (because this is how they make their money now), she will now only sub for the woman who was hosting the retreats.
I did talk to this yoga teacher during a private yoga session I did in February and told her of my interests. Despite knowing her for a long time, she is not someone I shared my dx with at the time but felt okay to share with her in this situation because of the relevance to my goals. She told me she thought it was a great idea and that there are extra classes to take for the certification. Some books about this too and need to get one to see how it differs from what I normally do?
The hospital where I had my breast surgery now offers a class on Tuesdays late afternoon, and may go tomorrow to see what she does and talk to her after. This would be a first step for me to just check it out to see if it is what I think it is. Getting certified requires time and money, the typical certification class here in town is $3000 not including the special classes on top for cancer patients. Something I would like to do once a week to give back but won't be an income producer. I want to get past my 5 years first!
BB- did you decide to go ahead with the scheduled surgery for your back?
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HI girls . Well the MRI is only for the breast area. But what I was told in 2012 when I was doing the MRI was that when u are on your period your breast glands are different hormonal changes now that I don't have bread tissue I don't not what it matters? Who knows o have no clue but I have a feeling it may arrive this weekend I hope it doesn't.
I ll keep u all posted lol
I think my mind is staring to bother me a bit too in the sense that I have been feeling discomfort on my arm but it must be the other therapy I am glad tmw is the last day of that torture lol
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E- well that does make sense. I expect they are looking at the chest wall area. Praying you can get this done and good outcomes friend!
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good morning ladies finally mild here lots of rain but high 8
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BB- the year after treatment, all I did was work and sleep, and did the minimal amount to get by with everything else. It was very hard, but I knew I would get stronger with time.
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bb I agree with you. I am exhausted every day for example today was my last therapy and it was at 1pm so that was my lunch hour . During my 1 hour lunch I run to the metro to go 2 stations north to the hospital had a 30 minutes sesion then rush back to my desk sore and tired and also super busy with sh it that piled up the hour I was gone.
Tmw I see my family doctor at 12 noon which mean another lunch hour used for medical crap.
Is not easy but I did make sure to find a family Dr close to my work so I can do the lunch thing every time I need to.
I was very lucky cuz the hospital gave me the MRI for 3:30pm that means I won't have to take the day off work I will just do an early shift from 6:45am to 2:45pm so I ll have enough time to get to the hospital do the MRI then go to school. I must say working full time and following up with medical stuff and issues is just brutal but it is what it is . On the other hand I remember how I wished I didn't have to return to work back in 2014 but I also wanted to get back to the so call normal what I didn't understand in 2013 is that I was never going to be normal again . Is all a pile of BS we never get our normal back there is always some issue or dissapoitment and that normal never arrives is all in the past we are somehow a different person and with lots and lot more challenges ; (
Night night
Sending you all a big hug
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Oh I asked the nurse to take a picture of my cord in my arm cuz I won't see her anymore and I want to show you what I got bothering me .
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I am glad is over I don't want to get hurt with the ms sages anymore ; ( I had to crop the pictures so not to show u my b buts in that hand she has the silicone cup that stuff really worm me down. When I get back to my desk my arm is sore and I just wish I could be in my bed and even better that my mom could be there to confort me. I miss my mom so much guys. ; (
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http://www.breastcancer.org/treatment/side_effects/aws
E - it is definitely cording you have, look at the picture -
http://stepup-speakout.org/Cording_and_Axillary_Web_Syndrome.htm
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HI yes thanks lily, but that is not what bothers me the most .my problem is in the lower side of the right breast I have some very hard weird scar which also bothers me . My bra hit there and also with movement it pulls on the implant it is more like capsulation of the implant caused by internal scaring se of radiation . The problem with rad is that SE come during years ahead so at the beginning we say oh is not so bad I ll be back to normal in no time but rad keeps damaging slowly through your years no sure if I make sense
I saw my family doc she told me that blood test she did 2 weeks ago was good . Cholesteroland blood sugar normal and all ok she said some irregularities in the kieanees but nothing to worry took more blood and urine today also did a full phisical so that was good.
Tomw at 8:30 before work I go to get discharge from the phisio therapy they will just check my arm range etc.
I am glad is all over at least on that I won't get torture on my arm anymore now I must just keep the streaching on my own
; )
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HI yes thanks lily, but that is not what bothers me the most .my problem is in the lower side of the right breast I have some very hard weird scar which also bothers me . My bra hit there and also with movement it pulls on the implant it is more like capsulation of the implant caused by internal scaring se of radiation . The problem with rad is that SE come during years ahead so at the beginning we say oh is not so bad I ll be back to normal in no time but rad keeps damaging slowly through your years no sure if I make sense
I saw my family doc she told me that blood test she did 2 weeks ago was good . Cholesteroland blood sugar normal and all ok she said some irregularities in the kieanees but nothing to worry took more blood and urine today also did a full phisical so that was good.
Tomw at 8:30 before work I go to get discharge from the phisio therapy they will just check my arm range etc.
I am glad is all over at least on that I won't get torture on my arm anymore now I must just keep the streaching on my own
; )
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ladies remember the lady I told you is a yoga instructor survivor of vc and also has a colonosphy bag. Anyway I follow her and her husband on instagram and look what her husband posted
This is so remarkable how these couple love each other . Just wanted to share with you all
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E- glad your blood work was good. Some kidney stuff came up though? I have a borderline reading on something called GFR which is your filtering measurement and my endocrinologist included some new meds back in Dec that help to protect the kidneys. Hope you are okay there friend.
BB- you have an ultrasound tomorrow?
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good morning. Yes jazz the thing here is that they don't give you much attention till u are very sick so I must keep an eye on my own but kidney must have been altered due to my urine infection I remember last time she checked it was due to me having infection. Yesterday she took urine test again just to be sure it is ok now.
I saw a post on instagram of a man rfering to his wife I want o share here I posted then delete cuz I ll crop the names in case . But their instagram are public anyway. Is the lady who is a yoga instructor.
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good morning. Yes jazz the thing here is that they don't give you much attention till u are very sick so I must keep an eye on my own but kidney must have been altered due to my urine infection I remember last time she checked it was due to me having infection. Yesterday she took urine test again just to be sure it is ok now.
I saw a post on instagram of a man rfering to his wife I want o share here I posted then delete cuz I ll crop the names in case . But their instagram are public anyway. Is the lady who is a yoga instructor.
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It starts by saying Feb 28 2013 was my wife last bc treatment.
Then
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is that beautiful to see how love does exist ? They are to me an example of true love .
Have a great day ladies
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E- I like that a lot. A man who is a true partner in life. How cool that she is a yoga instructor too!
Do you not get wellness check ups (physicals) as part of your health coverage? I would say a lot of western medicine is oriented to that, although with some of the changes with the Affordable Care Act here in the US, those things are 100% covered now. Also mammos and colonoscopies. The new administration is trying to overturn it now, but won't go down that slippery slope here. My kidney function borderline test came up last year as part of my annual physical with my PCP. I think we are re-checking it with my next blood work on May before I see my endocrinologist again in late May.
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Jazz I just had my physical done yesterday and she said "we ate well over due on the Pas too" so she told me all looked good but she needed to recheck the kidneys . I gave the blood and urine so she will call if anything no normal.
So far no period yet and hopping it comes after the 13 and no before lol
Yes that yoga lady you must look for her videos in YouTube her name is yulady saluti
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E- hopefully everything is good on the updated blood work with this latest go around. Fingers crossed the you know what stays away. Do you sometimes just get the cramps and no period? I know chemo changes the whole cycle thing (goes away to some degree or all together?)
That woman is pretty incredible. I am following her on FB and also checked out her web page. She is so young and her web page says she has 6 children. I am in awe.
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Oh jazz I am glad you did search for her. She is an inspiration. She did email me back in 2012 she was dx like us in 2012 and I wrote her a msg and she wrote to me . After I found this site I lost contact with her but I love her she is remarkable. I was wondering about her a month ago and found out that she now has a permanent c bag. She deserves better outcome ; ( but her hubby is amazing and t he kids 6 . Unreal
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E- I saw about the colon issues, she had that to start. So many women come in to breast cancer with other major problems and then treatment can make it all so much worse.
It is so beautiful these past few days. Temps topping 70 degrees and feels like late April vs. early March! Road with the top down in the convertible today, very spoiled. Going for a bike ride tonight on my new bike which makes me so happy.
BB- did you have your test today? Did they tell you anything? Usually I have the radiologist come right in after any imaging that I have done (including the ultrasound). I hope you are feeling okay from that and everything else.
Simplicity- hey girlfriend if you happen to be lurking.
I am getting ready to head out on a biz trip soon and will be off line starting on Sunday for a bit.
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Thanks for checking in BB
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HI girls something else happened today.
So last year I saw my mo in September a week after I saw the ps. At the ps appointment the ps said rad sucks and bla bla I can't fix it. When I complained he said he would refer me to a pain doctor. I got upset and told him I did not want to be back on pain pills. Anyway I went away and did not want to follow up with his secretary so I did not call her at all. Then a week later when I told my MO what had happened the assistant told me she wanted me to see another doctor to see if I could benefit from phisio therapy and then 2 weeks later I was called in to see these team whom helped me till this week. So today I got a phone call. A lady telling me she is calling me from the ps office .that she has a referral appointment for me to go see a Dr. Xxxxx
Anyway I said" whom?" She said I have an appointment for you to see Dr. Xxx. Then I asked her who is this doctor? She said hum I don't know then she pause then she said " I think it is a pain doctor" I wrote down the info and hanged up I still was not understanding. So after I started to remember can you guys believe from sept 2016 to now that ps wants me to see a pain Dr? What is wrong with this? Is it possible my bs wrote a note to him saying how upset I was at his lack of help? And maybe he realized he never gave me any referral ? I honestly have no idea but I think I ll cancel that . I do not want to get pain meds and I do not want to see him either ever
Honestly that is weird. 6 months later they give me an appointment to a pain Dr. Wtf?
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E- sounds like somebody dropped the ball big time. If you don't want to see a pain management doc, just don't make an apt.
Rads and chemo really do a lot to hurt our bodies.
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Hi! New to this thread but not new to these forums. Hope you don't mind if I jump in! I have a strange situation and I need advice. I have been married over 10 years. About 3 years after all my treatment my husband did something dreadful and got sent to prison for 5 years. Before this our sex life was basically non existent, due to me. So almost 2 years have passed since he has been in prison and I still have the initiated a divorce, but have been 90℅ sure I will die to what he did. I thought this is it for me, I am 50 and destined to be single for the rest of life. A girlfriend of mine, her husband has.a friend that needed a place to rent, and she thought he would be perfect to help around the house and property. So we met and he moved in. Well, it turns out we have a lot in common. So after a few months we went out as friends and wound up drinking too much. I confessed my crush on him and he said he had a crush too. We kissed but that was it. We have hung out a few more times, kiss and cuddle but that is it. Be know I have been sick, knows I am still married and knows what my husband did. I have not told him I have a double mastectomy no reconstruction. How do I do that? We definitely want to take it slow, he doesn't want to be the reason for my divorce and I reassured him he is not. But I am so scared to tell him, but be may already know from our mutual friends. It so hard to take it slow when we live together! And what if it doesn't work out? Ugh....What should I do? Part of me wants to break it off because I have been in a fragile state of mind since my husband's been in prison . Rejection would be so hard for me right now. I knew I was not ready to date, but I really like this guy! Sorry sucb a long post. Should I break it off, or keep trying to take it slow? And really I think I should tell him I have no boobs sooner than later but it just won't come out of my mouth! I think he knows so I may be worried for nothing. She. When we kiss, his hands do not roam to my breast area, ha ha too much info sorry! Help! Any advice.
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