Single life after a mastectomy

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  • melp27
    melp27 Member Posts: 295
    edited December 2014

    jazzygirl - yeah at least two more fills after the next one to get up to 490-500 ccs. yeah im happy to be back at the gym too. makes me feel a bit less lazy and a couch potato lol.

    hope everyone is going well :)

  • sandpiper1
    sandpiper1 Member Posts: 508
    edited December 2014

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  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Hi ladies- hope everyone is doing okay (or as good as can be expected). Saw this on FB and made me think of our thread.

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  • grayeyes
    grayeyes Member Posts: 533
    edited December 2014

    Hello to all.  I haven't been able to check in for a while.  Now that I'm back, I'm so glad to see that everyone here is doing well!  :-)

    Jazzy, how did the Dexa scan go? 

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Hi life- well not great. My bone density is decreasing, I am down anywhere from 4-11% from my baseline reading in 2012. I seem to be loosing about 5% a year in my femurs, the spine is fairing better.

    I will talk to the MO's office in January, but have a couple other apts I am going to do to talk about this. I was not surprised, but also not happy with the results.

  • grayeyes
    grayeyes Member Posts: 533
    edited December 2014

    Sorry to hear that, Jazzy.  I hope there's some kind of solution the doctors can offer to you.

    My oncs keep telling me to have a Dexa scan, but I really can't spend $$$ right now.  So, I've never had one.  Therefore, I have no idea how well or how poorly my bone density is doing.  *shrug*

    I know that you take good care of yourself with diet and exercise and vitamins, etc., so it seems that you're already doing everything you can do to stay healthy.  But maybe there's something else your MO can offer.

    Hello to everyone else, too!  I hope you all enjoy your holiday season.  :-)

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Life- well, that is too bad that you cannot do the dexa scan. I have to meet with a CNP this visit as my MO is out on a medical emergency. I was upset to hear about that (another friend has him for the MO too and told me he had a heart attack), so this is what they offered this visit. Not sure the CNP is going to help me that much on this, but will see what she says. I am going to be seeking second opinions and then will decide if I will continue on these meds or not. I hope my MO gets better and that he continues to be my doctor but perhaps not for awhile.


  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Just wanted to wish everyone here a good holiday or two the next few weeks, whether you are celebrating with family or friends, or perhaps home and working through recovery. I know it has been a difficult year for many on this thread, and wishing all of you better days in 2015.

    Attached is a photo of the mountains here after a recent snow storm. May it give you peace.

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  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    hi ladies, I see everyone is doing better, my life has changed in the sense that I become so busy working 7 days a week, well I am very tired but I like been back to busy. Today finally I get to stay home and do the house shores laundry cleaning and organizing. I need to go to the post office to send a parcel to my niece in France but don't even fell like it.I am making a coffee maybe after I have one I ll get energy to move. I

    have been thinking of you all and every day I write a note to go on here and update then I get home and have thing to finish with my crochet hats and end up doing that till late, then get up at 5 or 5:30 to get to the train. I still have pain but very manageable only taking Tylenol now. I wanted to share two movies I was able to watch a few weekends ago. One really impacted me it was like seeing my mom history with the Alz.called still Alice, Hope you ladies can see it here it's is

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    The other one is Serena.

    I also decided to go to Denver Co for xtmas to see my friend. She is so happy I thought I don't want to be here alone and since she has no family there and she is been here so many times it's my turn yo go. I arrive to Denver on Dec 25 around 10:30am and come back Dec 28. Flight was not cheap but I honestly don't care anymore. I figure I am due to go somewhere lol

    Bb, I don't think you are close to Denver, if any of you arebtherr let me know I would love to grave a coffe with any of you.

    I also have my first real estate deal yaaaayy it closed last Monday. I think I ll get pay for that this coming week. I have to tell you I learn so much from the first deal, it was a bit of a headache but it turned out ok at the end.

    I decided even though I am still broke things will slowly became better. Along as I keep been clear of c. Anyway I am ok to sleep now I do have a few night with insomnia so I do my knitting. Here are a few hats I sold so far.


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  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    forgive me I am not good at uploading pictures lol

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  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Enerva- good to hear from you and good to hear you are going somewhere for Xmas. You will rebuild financially with time, but think you need this gift to yourself to go to Denver. I am glad you are busy (although 7 days a week does sound like a lot), but have been there at times myself with work as well. Hope you can slow down, and enjoy your time away with your friend in Colorado. There may be snow in the Rockies this week too.....

    Like you, I had a parent with Alzheimer's (my father). He was diagnosed when I was 23 and it was a very hard thing to go through with my family. He lived 17 years with it. He had early on-set Alzheimers, and was diagnosed in his early 60s with it, although we think had been coming on in his 50s. Early on-set is known to be genetic so my sister and I are watchful for any signs with each other. When it was happening to my dad back in the 1980's, no one was talking about this terrible disease, so I am glad there is a movie to help educate people. I may watch it at some point, but not during the holidays when I already just miss my parents a lot. I have heard it is very good.

    I hope to go see the movie, Wild, that is now out in the theaters and based on the Cheryl Strayed book. It is about a woman who just looses everything and goes on a journey hiking along the Pacific Coast trail. The book was outstanding, and decided the book is a must see.

    My big news is that on Friday night, I got to meet and have photo taken with singer, Michael McDonald, which most you may know. I have loved him forever. It was just a wonderful experience and my Xmas to myself.

    Safe travels, Enerva. Wishing you a beautiful Xmas and many blessings in the new year.

  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    oh jazz I am happy you got to see the singer ;) I know 7 days a week is too much but it feels so good to be busy and not to even think about bc. I had m follow up appointment with the onco n learned she has no interest in doing another scan. I must admit I was surprised cuz it's my 2 years mark n she is not planning on checking me unless I present a symptom. Hummmm in one hand I am ok but on the other hand I worry what if? The what if bothers me.I also saw my surgeon n he injected cortizone in my left breast scars which r not doing great. Hope that improves I just came back from the post office, sent the parcel to France. N stopped at the pharmacy to grab vitamin e,gell a friend told me to use it on my scars.

    I ll try to connect more often, I work from Monday to Wednesday then Thursday morning I need to be at the airport at 6am then come back on Sunday dec28. To work till Wednesday then off the new year but work on Friday the 2nd.

    Jazz I cry last night over that movie, I saw what was happening to mom n that movie like you say educates us.I already gave the name to all my siblings n they ll get it an watch it.

    It's so extrange how I picked it up only due to I love that actrice never knew what the movie was about. It turn out an amazing one.


    Ll talk more later I must star cleaning lol

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Enerva- January will my next bc apts and never know what I will hear. I see the MO's office Jan 5th for my first visit there in a year (we went from 6 months to annually), but will be seeing a CNP this time, as my MO had a heart attack. My bone health is deteriorating so we will be talking about that. My mammo and visit to the BS will be end of January. Sometimes we talk about me doing an MRI again, but so far she did not think it was necessary. This will be my fourth follow up so I am also about 2 years from the end of my treatment.

    My sister says they won't usually do the extra tests unless they see something or you are not feeling well. I do hear what you are saying about whether we are getting enough attention around the follow ups.

    You enjoy your time in Denver!


  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    oh jazz I am glad you tell me about your case and your sister. I am paranoid since my sister is going through it and my brother die from this disease I just worry if I don't fell sick and all of the sudden there is c growing and then I ll be told it's advanced too late. Never mind I am not obsessed about it but I was chocked to hear that at my 2 years mark no scan ll be done and not at my next year or so on unless I feel sick. Having stage 3b I feel nervous about not checking in a deeper level. After seen that movie I started to think of a plan b. Let me know after you watch the movie lol I ll love to talk about it after you ladies watch it. Have a merry Christmas all of you i ll post pictures when I am able to catch wi5 in Denver. ;)

    Oh I forgot to tell you I saw my ex lol nothing happened I only said hi and took off as fast as I could. He then sent me a text asking if he ha done anything to me? That I didn't even give him a hug.lol I only said I never thought about it, it was nice seeing him but I was in a rush and I never meant to seem as if I was mad or anything. Ha ha what a crazy thing Toronto is not small I was at a underground walking and stopped at a coffe place and there he was very strange coincidence specially when he is never in the city. He said he had to be here for a business meeting and that since he was driving back the same day he never thought of contacting me n then there I was in a coffee place he entered to grab a coffee.

    Anyway I thought it was weird how small the world is sometimes

    Good night

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Enerva- I hear you on the worry. I was Stage 1, and no doubt would expect more attention around your case too. I do think we always are thinking something is lurking, especially with every little ache and pain that comes. I know I do. I know with your family history, you want to be doing everything you can. I hope your sister is getting through her chemo, I think the last we heard she was really having a tough time with it again....

    My sister had Stage 2 HER 2 pos which is more aggressive, but outside of seeing her docs every 4 months, she has no advanced testing either.

    I think your interaction with your ex was just perfect. Men and women are just so different about relationships, especially after they have ended. Men never want to close the door on anything, where as I think when we are done, we are done. Seeing and ex in passing and saying hello is just fine. It sounds like he expected you to stop whatever you were doing to chat more. I have had that experience too, and just done the same. It sounded like seeing him did not really bother you either?

    Off to personal training. After four months of this, we finish this week. It has been good.

  • sandpiper1
    sandpiper1 Member Posts: 508
    edited December 2014

    E, glad to know you are doing well and the hats are gorgeous.

    Have a safe trip and enjoy. You so deserve it after such a long year.

    Jazzy. What a wonderful experience to meet MM and enjoy a nice musical evening out n about

    I am keeping busy working. Had car troubles-alternator and battery went bad....huge chunk of change.

    Picked up 4 extra shifts to cover those costs and hopefully get some funds for the trip to NO in April. I am getting nervous as do not think I can afford it. I will just have to save that OT money and hope nothing else major goes wrong in my home or with my car. I am so sick of both.

    Going to get some stuff done before I go in to work tonight.

    I do hope everyone who celebrates has a nice holiday.

    be well ladies

    thinking of you all

    xxoxoxoxo

    Piper

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Piper- sorry about the car problems. They never come at a good time (and are never cheap either). I so want you to be able to do that NO trip in April so fingers crossed. Hope your work over the holiday goes well.

  • grayeyes
    grayeyes Member Posts: 533
    edited December 2014

    Glad to see everyone is doing well.  (Good luck with the car repairs, Piper.)

    Enerva - The hats are beautiful.  I do want to see the movie "Still Alice" but will have to wait to watch it.

    I had stage 2 BC with a positive margin, and my oncologists do not take scans, either.  They wait to hear if we have any symptoms.  I agree that watching for symptoms is nerve wracking.  On the other hand, there are health risks involved with scans, too, or so I've heard.  So, I don't know what the answer is. 

  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    jazz, yes I feel somehow you am I have similar experiences, my poor sister is having a very hard time Se are bad and it's been 3 chemo and still no ultrasound or word of surgery. The onco wants her to have 8 in total. Today I arranged to me a bc sister from the insomnia tread and I am very excited to meet her on Saturday in Denver ;) I wish I was meeting you, Bb, life, all the girls from here but I must say the insomnia tread helped me so much when I was an owl lol it ll be wonderful to meet on of the owl sisters.

    Jazz it didn't bother me seen my ex but my heart stop n I was all nervous lol I think deep inside I ll always have feelings for him, it didn't help that he looked so good too ha ha I wish he was fat or bold ha ha but no. He is still hot. Lol

    Oh well I said hi and took off. Lol like a silly girl so stupid. But acted normal I think lol

    I just finished crocheting a set for a new born I had an order n wanted to finish before I go away. Tmw I must be at at 5am again. I am tired so good night

    Ll keep u posted on my trip.

  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    ok this was posted in the insomnia tread n I need to share cuz it made me smile.


    WARNING! SCAM ALERT! Be on the lookout for these two guys! They are hanging out around the Wal-Mart parking lots. When you are putting your groceries away they ask you for a ride to McDonald's. They are very convincing and very hot! Once in your car one takes his clothes off and starts climbing all over you. While he keeps you busy, the other one takes your purse. I've had mine taken on the 7th, 8th, 10th, 11th, 14th and twice yesterday. Probably will happen again two more times tomorrow. Wal-Mart has purses for $9.99, but I found some at the dollar store for .99¢ so I bought all they had. These two guys not only take your purse, but you never even make it to McDonald's so I've already lost 11lbs. Keep a lookout for them (I find lunch time and around 5:30 the best times.)

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  • melp27
    melp27 Member Posts: 295
    edited December 2014

    hi I had my second fill this morning! I'm at 415cc now out of 550cc mentor expander. Really happy its taking shape now!! should only need two more fills then im done until exchange!!!

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  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    wow, melt 27 your scar is so nice I tend to for kiloide they say but I blame the stich used lol seem my body rejected the stich and one side only it having a tough time healing or clearing up. Good luck with your next frills n merry Christmas. I an on a train now going back to work ;(

  • melp27
    melp27 Member Posts: 295
    edited December 2014

    thanks enerva. My surgeon is a master! Are you going to get something done about the stitches not working?? Merry Xmas to you too

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Melp- things are looking good from both the healing and the filling perspective. Some normalcy returning to your body. I hope you are pleased?

    Enerva- way cool that you are meeting a BC sister while in Denver. I was on the Insomniacs thread for a period but could not keep up as it is a busy thread, so I dropped off. Nice ladies there. I have seen on some of my other threads groups of ladies who have met up in various place and posted pics. It seems like some lasting connections are made on these threads.

    Leaving for the hot springs this morning. Everyone have a good holiday. Wishing you all lots of love and good health in the new year!

  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    hi, wishing you a merry Christmas, it's 11:48 pm I ll get up and a taxi ll pick me up at 5;45am lol ll arrive to Denver around 10;30 am I am super tired but happy to go away even though a snow storm is supposed to hit Denver till Friday night lol oh well I ll post.pictures as soon as I can. My family is having a good Christmas back home my siblings are together and I was able to talk to them on the phone, sister was so happy and her spirit it's still smiling so we can hope for the best.

    Hope you all have a great holiday and new years

    Big hugs, and yes I am excited to meet one lady from insomnia tread this Saturday I made her a beautiful hat too. ;)


    Good night

  • milkyway2
    milkyway2 Member Posts: 186
    edited December 2014

    wishing you happy Xmas .i am on vacation to my homeland to see my brother and old friends and having amazing time .temp is 23 degree c which s not bad.good to see you guys are doing good

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Merry Xmas my single friends! Hope everyone is having a good day, whatever you are doing.

    Milky- so glad to hear you are back to your place of origin and spending time with family. It sounds like they are taking good care of you during your visit. Enjoy your time there and safe travels home when you return. The warm weather sounds lovely......

    Enerva- I hope you arrived to Denver okay, and that same storm was moving into northern NM where I was the past few days at the hot springs. I left late this morning and got home in advance of the storm which is due to my area this evening. Skies are now starting to cloud over here. Hope you have fun in Denver and enjoy your break from the demands of life back home.....

    Remind me to take a picture of this cool crocheted infinity scarf with fringe I got that I bet you would have fun making. They are very popular here where I live this winter. Fringe is in again (back to the 60s and 70s we go.....)

    Peace and love to all here.


  • melp27
    melp27 Member Posts: 295
    edited December 2014

    jazzygirl - yeah I'm really pleased. I will be even happier when i have the exchange!!!

    Had a really good xmas day yesterday. Lots of nice food and great presents!

  • Enerva
    Enerva Member Posts: 2,985
    edited December 2014

    thanks jazz I am getting up now my crazy girlfriend bought tickets to Vegas to go for the day yes she is a wild one lol

    I ll post pictures tonight when we get back from Vegas ;)

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited December 2014

    Enerva- you go girl. Have a blast in Vegas!

    Melp- so good to hear you had a nice day yesterday.

    I got back yesterday afternoon from the hot springs and in advance of the storm that is now here in Central NM. Looks like we had some moisture over night and more snow coming this morning.

    Life, June, Lili-RI, BB, and everyone else here, hoping you had a good holiday.