Any October 2011 Surgeries out there want to wait together?
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I keep forgetting to ask this question....Does anyone know what it means when the path report says focal areas of tumor necrosis are seen? Thanks>
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Maria~ I'm so sorry that your date has been changed
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Hang in there Suvivor 11 , that happened to me as well...kept taking more skin, then one day just ripped it out..cleaned it up...i was wide awake. The BS and PS said cultures clean, no infection...then Onc saw it said it was infected...sent me to infectious disese doc. I had a nasty infection...my husband spent 2 months packing the big hole. It's been 9 months...and tomorrow I am scheduled for a DIEP with a new PS...please go see an infection doc...they kept telling me I was depressed and it was the radiated skin....3 days after starting Cipro...felt like myself again
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Thanking everyone for the well wishes...as well sending my prayers to all of those having surgery
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I thought I was doing better and decided to have some soup and crackers...bad idea... my DH wants me to go to the doc, but I don't want to! One time I went to that doctor and the next thing I know my boobs are being cut off!
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shannon -
found this on another thread - it speaks to difference between necrosis and comedo necrosis but may help you . . .
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The term "comedo necrosis" means a large central area of necrosis that is confluent and expansive on microscopic review - i.e. this extends along and expands the ducts involved by DCIS. This type of necrosis is usually only seen with high grade DCIS (nuclear grade 3) , which is most frequently comedo type DCIS.
Focal necrosis is a descriptor for very small areas of necrosis within a duct involved in DCIS. Focal necrosis is very common, and can be seen in all types of DCIS. When focal necrosis is present, the DCIS is at least nuclear grade 2 (and would not be generally classified as a nuclear grade 1).
I view comedo DCIS (which always has "comedo type necrosis") as a specific type of DCIS with a higher incidence of being associated with an invasive tumor. I don't equate any specific clinical connotations with focal necrosis (other than when I see it, I know I am dealing with at least grade 2 DCIS). Again, focal necrosis is just a common finding. When we view these cases under the microscope we are looking for "comedo type" necrosis, because if we see it, we know we are dealing with a higher grade and need to search for a comedo type of DCIS.
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Survivor11,
I can't say anything to you that would probably make you feel any better because everyone else has already said everything so eloquently and I am not blessed with the gift of writing... (got misty eyed at CLC's post to you) I will say though...
It seems to me that your BF wouldn't care if you had one boob or 3 eyes!! He loves you for you and not how many boobs you have or what they look like. If he does...well...time to shop around because that would be pretttty superficial!! My husband keeps hugging me and saying "just don't leave me...whatever it takes get it done...I can't lose you". They really show you what they are made of when something this awful comes along!! They are supposed to be all brave and manly, but they are scared too. Let BF know about your insecurities and I am sure he will be right there to wrap his loving arms around you and let you know he will always be there for you.
You are probably just feeling disappointed right now and foggy headed from the pain meds, but you'll see...it will all be okay
and if you need to vent...here we are....right ladies??!! (and gentleman!!)
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Trinity, Rockysg, Gamergirl, MargieC, Stephanie33, DanaDane, Judy67, mauimom, SLOGeek02...I hope you are all recovering well. You are all in my thoughts.
Good luck tomorrow, TracieM...I hope all goes well.
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Survivor- I have seen you encourage and support others and know you can get through this too. It does suck so allow yourself to draw on all the support and love here while you adjust your sights on a new game plan.
Clams-your wife is lucky to have you; thanks for sharing your perspective.
Gamergirl- I can't believe you were updating this page on the morning of surgery; you are amazing and so dedicated.
Hope all today's surgeries went well and good luck to TracieM tomorrow.
So glad I found you guys...
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TracieM,
You're facing your surgery with such strength and grace. Hope all goes well tomorrow. We'll all be thinking about you.
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Thank you so much ladies, I needed to hear all of this. I know my BF loves me, just sat and held and cried with me yesterday when I got out of recovery. Told me how beautiful I was and that he didn't care as long as I was okay and with him. Just my own feelings of wanting to be whole for him I guess. Am feeling better tonight cause I think I've cried all I can over the past 24 hours.
Good luck to everyone having surgery tom and the rest of the week. Prayers are with you all.
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Survivor...it is good to "hear" you finding your way through...I hope the sun is a little brighter tomorrow when you wake...
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Hi Kelley. Thank you for the info, but I have IDC, so not sure if it has the same meaning. I will ask my oncologist when I talk to her next week. Thank you again for being so sweet!
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I'm just checking in now - sorry for responding so late. Survivor11, I am so, so sorry to hear of your situation. It's good that you've gotten such great support from the rest of women here. This whole BC thing stinks. The worst of it is that it forces us to focus so much of our energy and effort on dealing with how to preserve or adjust to changes in our appearances. It cuts right to the core of who we see ourselves as, no matter how independent, strong, feminist/post-feminist (insert your own adjective here) we are. It sounds like your PS is sincerely concerned, and I hope your medical team can figure everything out and move forward. Just keeping focusing on the fact that BC is a battle, and the battle scars we endure may be among the harshest, but they prove that we're still alive. I'll be thinking of you on Thursday - only best wishes.
Mr. Clams - It's so great to have your perspective. Thanks for being such a great support for your wife.
sigarcia - You are such a fantastic cheerleader - we're so lucky to have you and your sunny outlook in our group!
Eema - So sorry to hear about the delay. The waiting is really nervewracking! Hang in there - and stay with our group if you can. We'll stick with you through November.
I've made some progress. I have an MRI scheduled for Friday. Finally!!! Of course, there's a bit of dread - I've gotten myself through the toughest times by reassuring myself that I'm Stage 1. But that was based on my biopsy.The possibility that there's something lurking in my left breast, or beyond, has been buried in the back of my mind (I'm brca+), but today is the first time I started letting it sink in. Plus, I hadn't even thought that might mean I might lose lymph nodes on both sides. I'll just hope the MRI is clean.
To our Oct 4 girls - hope you're already making good steps on the way to recovery. Looking forward to hearing from you. And warm thoughts for Tracie tomorrow.
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Maria, My surgery was also suppose to be on 5ht but when I went in for my pre-surgery appointment his nurse told me they had to switch it to the 12th. That's when the days start to crawl very slowly. The last couple of months have flown by and this one is moving at a snails pace.
After surgery I have my BF birthday on the 19th, a friends BD on the same date, my post-surgery appt. on the 20th and my Granddaughter BD party on the 22nd. At that point I think the time will be flying lol.
Best wishes to all who are having surgery between now and the weekend. Have a speedy recovery with no complications.
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Alright...I can't sleep again. I did this whole not sleeping thing the week before last. Now, I've got work done and behind me and all I have left to face is a massage tomorrow and a day alone with dh Thursday. I should be sleeping like a baby... Sigh...Guess it's that whole surgery thing on Friday that's got me...hmmm...
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Just want to wish TracyM a speedy, healthy recovery - you are in my thoughs and prayers! as always all of my sisters are
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TracieM- You'll be the focus of my thoughts today!
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Go get 'em Tracie!!!! Hugs and prayers coming your way!
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Tracie, I will be thinking of you all day today....sending you love and hugs. You are not alone!
Kelley---did you get my pm? I don't know if it went through.
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Yay for Tracie! Fight like a girl!
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Hi Ladies
Thanks for all the good wishes. My surgery lasted 5 hours yesterday. I was in my room around 3p. I had an issue with one drain spot bleeding but that resolved it's self. The biggest issue for me over night where the muscle spasm - they were killer but they have gotten better. I have one word advise for those going in for surgery - ear plugs. The hospital was quite but the noise in your room will keep you up -- I had these wrap things on both lower legs that inflated and deflated to keep your blood moving and they are loud
Well time to take my first walk around the hospital floor and then nap.
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MargieC...It is so good to hear from you!! I am glad you are doing well... And thanks for the advice...I will buy some earplugs today on my way to my massage. I will also get some for dh or best friend, whichever one ends up staying with me overnight. (Which all depends on how well the kids are faring and if they really want daddy...I know I want him, too)...
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MargieC...would it be rude of me to ask what kind of recon you chose. I'm scheduled for BMX with immediate recon on October 28. I'm just curious to hear from someone else who has done the same. They said the surgery would last about 8 hours. I'm already nervous, but so anxious to get this over with. I have finished chemo but my MRI only showed 10% decrease in tumor size so I'm really ready to get this cancer off of my body. I'm also praying MRI results don't change my surgery schedule, I see the Onc this Friday.
Denise
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Go Margie! fight like a girl!
Denise, I had BMX w/ Recon Aug 2. It was scheduled for 8 hours, but was more like 6 in reality. I got what was supposed to be one-step implants, but we are swapping them out next month. I'm in this thread b/c I'm having the downstairs girls removed Oct 26. My girl parts have become my worst frenemies!
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So just got back from PS office. Cultures from surgery still negative and still no signs of infection. He wants me to wait 3 months before he replaced TE in left and then another 4 months of fills before exchange. Going to get second oppinion cause I don't know why I have to wait 7 months to get back to where I was 3 days ago when I have no signs of infection. Don't know why tissue looked inflammed on the inside and red mark on outside, he can't explain it either and I need to know why I have to go through this hell again. I need answers he isn't giving me. My ooph went well, pretty sore from that, moreso than the chest from TE removal or shoulder from port removal.
Does anyone have a good reconstruction guy in Louisville, Ky that they can PM me the name of?
Good luck to all you wonderful ladies having surgery this week. Don't let my story scare you, I always have to do things BIG.
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When I was in the hospital after BMX I played my meditation cd with headphones...(yes on one of those old walkman type deals). It was great for relaxing me and for blocking out the noise.
MargieC- those leg things were sooo annoying. I just wanted to sleep and they kept waking me up. Good luck with your recovery.
Eema- I am having the "downstairs girls" (love that term) removed in November following my exchange surgery Oct 27th. I am nervous about the possible side effects and surgical menopause hitting me while I recover from the first one.I have had a really tough time with these expanders. That will be my 4th surgery in about 6 months. I am sooo ready to be done! I am BRCA2+
Deniseday- good luck at the ONC!
CLC- good luck with surgery on Friday!
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Denise - My wife had bmx with abdominal flap recon a week ago today. They told us it would be about 6 hours, but she went into the OR about 8am, surgery started at 8:30 and she didn't leave the OR until almost 4:30. So that's almost 8.5 hours total in the OR. Then into the recovery room for almost 2 hours before getting shipped down to her room. BTW, they put her in a double room and having a roommate was a nightmare. If possible, tell whomever is at the hospital with you to insist that they put you in a private room. If they say "no" then keep on insisting, hourly if you have to, until you get your way. Took me almost 24 hours to get my wife into a pvt room, but it was well worth it for the next 3 days. Also, Margie is 100% right about the earplugs and I'd suggest eye shades as well (for sleeping during the day, plus even at night there are always lights on in the hospital room). And Margie - for those muscle spasms, try holding a firm pillow to your stomach. Mrs Clams is still carrying around that stomach pillow a week after the surgery. (btw - she had those leg things too - very annoying to take them on and off every time she got out of bed!)
More good stuff to get - For the hospital - a lanyard with a clip on the end to hold up the drains (we didn't understand this one and then all of the sudden it clicked - "ohhhhh, so that's what the lanyard is for!!"). For the bathroom at home, a shower bench or stool is helpful and so is an elevated toilet seat (it sits atop your toilet). Also, Mrs Clams is sleeping in our guest bedroom because the bed in our room is too high for her to climb into, and since laying flat hurts her newly tightened tummy (and we don't have a recliner), we bought a bed wedge - it's like a giant foam triangle that sits on the bed against the headboard or wall and allows her to lay on an incline. Those things have all been really helpful. Survivor, good luck and I think that getting a second opinion can't hurt and is a really good idea.
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Dawn. I am so sorry to hear about your issue with you one TE. I hope the Dr can figure it out right away and fix the issue.
Mr Claim good to hear that you and the Mrs are back home. Like Mrs Claim I relied heavily on my DH last night after surgery.0 -
Dawn. I am so sorry to hear about your issue with you one TE. I hope the Dr can figure it out right away and fix the issue.
Mr Claim good to hear that you and the Mrs are back home. Like Mrs Claim I relied heavily on my DH last night after surgery.0
