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Any October 2011 Surgeries out there want to wait together?

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Comments

  • slgarcia05
    slgarcia05 Member Posts: 154
    edited October 2011

    Glad you are home mauimom!  Stay strong!

  • Judy67
    Judy67 Member Posts: 213
    edited October 2011

    I'm two days out from my BMX w/Recon.  I got to come home yesterday as I was doing well and moving around a lot.  Much better at home.  Anesthesia and pain meds make me sick so now I'm just on regular Tylenol until I can take my blessed Advil after 72 hours out. They did not find cancer in initial lymph node biopsy.  Wednesday I have my follow up with BS and pathology results should be back, then I see the oncologist to discuss Chemo and/or further treatment.

    Gamergirl and Survivor I wanted to cry when I read your posts.  I'm so sorry about your setbacks.  This whole ordeal is so scary.  I wished we didn't have to go through this.  I keep thinking back to 6 weeks ago when I was blissfully unaware.  I will never again take my health for granted.  Hope you both get better news soon.

  • CLC
    CLC Member Posts: 615
    edited October 2011

    Yeah, Judy67!!!  It is so good to hear you are doing well!!

  • MargieC
    MargieC Member Posts: 302
    edited October 2011

    Maria_Malta and Judy67. Welcome home. It much nicer being at home. I know I got twice the sleep in my recliner then I did in that hospital bed

  • solange49
    solange49 Member Posts: 19
    edited October 2011

    Hi Denise, that's ok. No need to apologize. I totally understand how you're feeling. I have been in a funk lately myself. It's a challenging time for everyone going through this. As my surgeon told me yesterday it's like mourning a loss. I am normally a very positive upbeat person. We're just having a down time. We're gonna make it through this!!! Ive heard UAMS is great. :) And thanks for replying, you're the only one that has replied to my post. I've really been needing that lately,



    Hugs,



    Diana

  • trinity927
    trinity927 Member Posts: 479
    edited October 2011

    Hi to all my sisters!

    I'm 3 days out from bmx with TEs ... home from the hospital ... recovery is going OK ... initial sentinel node biopsy came back "negative" and 2 additional nodes negative as well ... my doctors weren't expecting this outcome, since I have a very aggressive cancer (HER2, overexpresssion +3 and Ki67 at 60%) ... so, I'm being very cautious with my thinking until the final pathology report is back ... things have a way of changing at every turn (as we are all too aware of) ...  it feels as though I have 1,000 pounds sitting on my chest ... my PS told me that's how many women describe the feeling ... I think they might have overfilled the TEs a bit ... the most challenging part of this journey has been the emotional stuff that accompanies the surgery ... the first time I looked at myself in the mirror, I completely lost it ... breasts long gone ... admittedly, I've sank into a deep depression ... but, hopefully, things will start looking a little brighter down the road ... 

    Survivor and Gamergirl -  From my heart to yours ... a friend of mine sent me a card while I was in the hospital ... and, I wanted to share the message for both of you ... it really touched my heart ... so, this is for both of you ...

    "Legends say that hummingbirds float free of time carrying our hopes for love, joy and celebration.  The hummingbird's delicate grace reminds us that life is rich, beauty is everywhere, every personal connection has meaning and that laughter is life's sweetest creation."

    We are all here for you!   We have all met each other at this crossroad in our lives, and have bonded with one another in a very special way that connects us all ... please remember you both have your sisters to lean on ... 

    My thoughts and prayers are with everyone!

    CLC - I'll be with you in spirit, along with your other surgery sisters tomorrow ...

    Love~Peace~Joy

    Trinity

  • trinity927
    trinity927 Member Posts: 479
    edited October 2011

    Also, if anyone has any questions for me, please let me know ... by posting on this thread or by PM ...

    Love to all!

    Trinity

  • Dukes_Up
    Dukes_Up Member Posts: 112
    edited October 2011

    Good Afternoon All~

    Sending HUMONGOUS HUGS to our October 7 Ladies tomorrow:  Kellyconboy, Sherylh72, CLC, Jesslove29, and Nell2109!  My virtual hand will be extended for all to hold! 

    Judy67~ So glad to know that you're home!  Thanks for updating us so quickly; much apprectiated!   Those spasms sound nasty--- glad you're staying on top of the meds.   

    trinity927~ Welcome home to you!  I'm so glad that the initial SNB was negative.  I'll  continue to pray that the final pathology is clear too :) 

    CLC~ Did you go to your massage?  I hope you were able to relax and enjoy-- if even for just a bit.  I'll be sending you wishes for some sleep tonight (I know it will be nearly impossible but one can hope, right?)  Just know that you will be on my mind all day tomorrow...

    AnnAlive~ Looking forward to hearing how surgery went.  Really hoping it went as smoothly as possible.

    Susanella~ I'm sorry you have to be here with us--- but know that you are in excellent company. 

    Shayes~ Wow, you've been through a lot this year too.  Do you have a surgery date schedued?

    Solange/Diana~ I'm really sorry to know that your recon has to be postponed.  I'm sure this news was very hard to take.  Hugs.

    MargieC~ Were you able to get the drain pulled today? 

    Eema~ That virus sounds horrible-- sure hope that you're on the mend.  BTW, is it wrong that "Tits in my Pits" gave me a little chuckle? I have faith that your replacements will be rockin'!  Also, do you have a date for your derm surgery? 

    slgarcia05~  Loved that cheerleading visual!  I'll join you with my pom-poms!

    mauimom~  YAY for being home and managing ok!  I can't imagine that the flight must have been very comfortable for you--- UGH! 

    I apologize to anyone that I've mistakenly missed.  I'm off to get ready for my son's Parent Night at school-- be back later!

    Love to all of you~

    AJ
     

  • Unknown
    edited October 2011

    Hi, new here and mine is moving so fast I'm having problems keeping up with dates. Fri. Sept.23 mamagram showed cluster on back wall. This was repeat of one done 3 days earlier. Told needed biopsy. Appointment already set for that Monday afternoon with my GP. He told me at 5:30pm to exspect a call the next day from Oncolagy. At 3:30 on Tuesday I'm being told needed Core ASAP. We were leaving next day for vacation and told her we'd be back Sunday by midnite. She said to have me in Out-patient by 7am Monday morning. Like she thought she could only barely reach outer edge of cluster for sample. Yesterday she called saying I will still have to have lumpectomy in 2nd week of Oct. and she will have to take muscle from armpit and lymps to get to the back wall. Need help in deciding should I go ahead and make it a total since I am already small chested. 34B HELP!

  • rachelvk
    rachelvk Member Posts: 564
    edited October 2011

    Hi Barnyard Kitty - Hard to say, though it sounds like even a lumpectomy will have to take a lot. Do you have any history in your family or other risk factors? The fact that you're already asking if you should go ahead with it makes it sounds as if you're comfortable with the possibility. You'd then have to figure out the whole reconstruction issue, and since surgery is coming up soon, that could force you to rush into a choice, and there are many. Definitely ask your doctor if it is something that you should consider.

  • Kelleyod
    Kelleyod Member Posts: 125
    edited October 2011

    Barnyard Kitty . . .   sounds a bit extreme and quick. . . .   can you push a day or two for 2nd opinion?

  • Kelleyod
    Kelleyod Member Posts: 125
    edited October 2011

    solange49 / Diana -

    did you get your surgery date set yet?  I totally get your loss analogy. . .   and feel it. . .    as we all do. . .I hope you are doing ok. . .Hugs to you - you are so good at giving them!  

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited October 2011

    Barnyardkitty - that does all indeed sound very fast - not enough time for you to process what is happening!  Have they explained your pathology report to you - do you know what stage you are?  My initial surgeon dx'd me Friday and wanted to do lumpectomy that following Tuesday.  I got a second opinion and was told I had time to slow things down and this gave me time to decide on how I wanted to proceed.  This may not be an option for you if you have an aggressive cancer, but you at least need to find that out. 

    Trinity - as you know, I am so happy to see you here posting my friend.  You are now on the other side of surgery and a big step forward in battling this beast.  <HUGS> 

  • ginger48
    ginger48 Member Posts: 1,437
    edited October 2011

    Good luck to the Oct. 7th surgery ladies!  Try to get some sleep tonight.

  • GrandmaV
    GrandmaV Member Posts: 1,045
    edited October 2011

    Kellyconboy, Sherylh72, clc, Jesslove29, and Nell2109, you will be in our thoughts tomorrow.  Hope all goes as planned and you have a fast recovery. 

  • kks_rd
    kks_rd Member Posts: 99
    edited October 2011

    Just wanted to say I have learned so much from what you all have shared.  Thank you!  I am keeping all the "first week" ladies in my thoughts and prayers. ((((GENTLE HUGS))))

  • rk85
    rk85 Member Posts: 80
    edited October 2011

    Hello ladies, I don't know if anyone else  has realized this, but we October surgery women really are a fashionable bunch.  We are all having our BC surgeries in BC awareness month!  I've never been a slave to fashion, but I'm really going all out for this one.  

  • CLC
    CLC Member Posts: 615
    edited October 2011

    Thank you all for your well wishes.  Thank you all for sharing here.  Coming to this thread has helped me enormously this past 3 weeks.  Whatever comes tomorrow...I am glad that I will be able to come back here soon for support.  Good luck to all of my October 7th compadres...(or is that commadres?)

  • Kelleyod
    Kelleyod Member Posts: 125
    edited October 2011

    RK85 -

    I thought about this too!  hahahaha. . .   talk about the ULTIMATE slave to fashion!    I've been telling friends, "Come on!   All the cool girls are doing it. . . ."  hahahaha . . .   thanks for the giggle. . .

    Good luck 10/7 girls!   you'll be in many prayers tomorrow!

  • rk85
    rk85 Member Posts: 80
    edited October 2011

    Claire, I hope you get some rest tonight.  The hard part is almost over, you will be on the recovery road this time tomorrow.  Looking forward to hearing from you and the other 10/7 ladies on the flip side!  Thinking of all of you and wishing you the best possible outcomes.

  • trinity927
    trinity927 Member Posts: 479
    edited October 2011

    Diana - I just realized I hadn't sent you a personal note ... I remember you and dancetrancer being there for me when I was first diagnosed ... it seems like so long ago, doesn't it?  In any event, I just wanted to let you know that I have read your posts, and just wanted you to know that you're always in my thoughts and prayers ... it will get better ... but, it's definitely a rollercoaster ride ... and, not a very fun one!  :(

    dancetrancer - you're just an awesome woman!  I don't know what I would have done without all your wonderful insights, and words of strength and encouragement ... thank you!   You've been an inspiration for so many of us ...

    To all my October sisters -  If I can get through the surgery, anyone can ... I realized I had strength I didn't know I had ... it was hiding from me for a while ... Smile  But, fortunately, it made an appearance just in time ...

    Now, it's time to get some sleep Friday gals ... as Mr. Clams stated, "it's time to get your game face on."   I remember reading his post before my surgery, and I told myself "ok trinity, find the warrior in you" ... time to kick some BC a** ... 

  • rachelvk
    rachelvk Member Posts: 564
    edited October 2011

    Good luck to all the 10/7 women tomorrow. And good to hear from those who have just started their recovery. Keep pushing ahead.

    Tomorrow's a double whammy. I have an MRI at 7:45 am - the first since my diagnosis, so while I'm glad finally to have something else to check what it's been up to, I'm scared about what it will say.

    From there, it's off to the PS to go over my CT scan. There's a chance he'd need to take some muscle on one side - so much for a true DIEP. So I have a big decision to make. I'd still like to go for it - I'm as concerned about muscle weakness from a double lat flap. Or, implants with hopes for a later DIEP when they've refined it even more. I've never been a good decision maker, and it's really frustrating now. Thanks for giving me a place to mull and vent.

    If I don't have a chance to log in tomorrow - all the best for a great weekend to everyone.

  • TracieM
    TracieM Member Posts: 12
    edited October 2011

    Wanted to say thank you for all the well wishes...they worked, it was an 11 hour surgery, went well can't believe how great it looks. Sooo much better then it did with TE. PS was a god send...after care is great, pain managed well and very proactive



    Thanks again

    Trace

  • Kim137
    Kim137 Member Posts: 105
    edited October 2011

    Good luck today girls! I'm thinking of each of you and hoping for a speedy recovery!

  • slgarcia05
    slgarcia05 Member Posts: 154
    edited October 2011

    October 7th Ladies.....GO GET 'EM!!!!  We are pulling for you!  God bless all of you!  Praying everything goes smoothly.

    Shannon

  • rk85
    rk85 Member Posts: 80
    edited October 2011

    Hi Kim, I read from your prior posts that you had a SNB before your BMX.  I've wondered about that and thought it might be a good idea but no one had suggested this.  Can you give some info on how you chose this route?  Also how could grade 2 DCIS already be in your sentinel node unless there is an area of microinvasion unseen by the MRI?  I like your surgeons idea that it might be some cells released by excisional biopsy but you need to know for sure so you don't have unnecessary rads or AND.

  • Kelleyod
    Kelleyod Member Posts: 125
    edited October 2011

    RachelVK - thinking of you today with your double whammy. . . .  let us know how it goes.   Hoping for the best to lead to a clear decision.  I know how hard those can be. . . .

  • Clams
    Clams Member Posts: 34
    edited October 2011

    Very sorry to hear about the recent setbacks - and for those whose operations are yet to come, don't let those setbacks scare you or get you down.  Fortunately, things have been going relatively smoothly for Mrs. Clams.  Yesterday (day 8 post bmx) she got the last two drains removed.  The nurse also told her that everything is healing nicely and she gave her some range of motion exercises to do.  Other than walking, that's the only exercise that she's allowed to do until she sees the PS in 2 weeks.  In other news, Mrs Clams is now taking her percocets as needed instead of every 4 hours, and she's coming along on (slow) dog walks around the block - the beautiful weather lately has been a big help in getting her out of the house.  Two days ago she even made it to Whole Foods (with 2 drains!) with her mom.  And yesterday she moved herself and her foam sleeping wedge back into our bed.  It went OK last night but I'm afraid to move in the bed because I'm scared I'll bang into her.  

    Yesterday we got the pathology results from the surgery and it turns out that she had LCIS in both breasts.  We knew about the left breast but the right one was a surprise.  While it reaffirms her decision to have the bmx, it's a little scary because none of the mammograms, CT scans, MRIs or PET scans over the years ever revealed any abnormalities in the right breast.  It's disconcerting because now a seed's been planted... what else is going on inside her body that we don't know about???  But still, the breasts have always been the main concern, and they obviously are no longer an issue.

     Try to have a peaceful weekend and stay strong, ladies.

    PS - what is an SNB? 

  • Eema
    Eema Member Posts: 403
    edited October 2011

    Hope all of you ladies are doing well, and please, please laugh at "Tits in Pits."  Laughing is the only way I can deal with this, and Cancer doesn't have a sense of humor, so neener neener Cancer, we are all going to kick your Cancer @ss until you cry like a little... BOY!  Because GIRLS fight mean!  We pull hair and talk sh!t behind your back!

    Take this as a warning, Cancer!  You are not welcome here!

  • Kelleyod
    Kelleyod Member Posts: 125
    edited October 2011

    Oh Eeema. . . I am dying with laughter!   hahahah - Tits in the Pits. . . hahahahah   I'm REALLY glad you find it funny.  I told my colleagues at work that if I came back in January and ANY of them were were double breasted suits I was going to be SO OFFENDED.  :)   Thankfully they laughed. . . .