Jewish Warrior Sisters

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  • rachelvk
    rachelvk Member Posts: 564
    edited July 2013

    Caryn - I am so, so sorry! Please let me know if I can do anything. I'm here in NJ.

  • pessa
    pessa Member Posts: 137
    edited July 2013

    So sorry to hear about your loss.  My mother died earlier this year, so I can understand your grief.

  • Caya
    Caya Member Posts: 46
    edited July 2013

    Sorry for your loss Caryn.  May you and your family know no more sorrow.

    all the best

    caya (Caryn in Toronto)

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316
    edited July 2013

    Thank you all for your kind expressions of sympathy. I am grateful to have had time to stay here with my dad. It's still hard to believe I won't see my mom anymore. Will be heading back to CA on Tuesday.

    Caryn

  • antonia1
    antonia1 Member Posts: 73
    edited August 2013

    I have been away in Poland for the last two months staying with my childhood friend. We traveled, socialized with her, and now my, friends. I came back rested to by brand new beautiful granddaughter, Fiona, born in July.



    Now, I am catching up with my children and grandchildren and fixing everything that went wrong with my house while i was gone ( broken pipe, telephone out of order, etc.) and waiting for my test results. Yes, I had my 6 month check up and now I am waiting for the blood results. In September will be 3 years since my diagnosis. So much has happened in those three years that is mind boggling: I was diagnosed with stage III

    BC, my beloved Mother passed away, followed in the same year by my Father in Law, Brother in Law, Mother in Law and then, last December, my Husband, after his difficult battle with cancer.



    Yet, during the same time there were happy times, as well : all my wonderful grandchildren were born, bringing us so much joy. Life is moving on and I must keep moving forward with it.



  • [Deleted User]
    [Deleted User] Member Posts: 126
    edited August 2013

    Hello all,

    I hope you won't mind a question from someone who is not Jewish (okay, actually 1 great grandmother).  Given Eema's initial invitation to those who are gastronomically Jewish, I hope that you will not.

    Do you continue to eat smoked or otherwise similarly preserved fish? I am in the midsts of a second round of chemo and craving lox but am not clear that it is okay to eat.

    Anyone? and thanks for considering the question.

    V

  • karen1956
    karen1956 Member Posts: 4,642
    edited August 2013

    I don't care for lox much since chemo, but I do eat a bit every now and again...I also eat smokd salmon.  I don't remember though if I ate it during chemo.  But my onc did not restrict me from any foods during chemo...I was loosing weight so his goal was for me to eat...

  • [Deleted User]
    [Deleted User] Member Posts: 126
    edited August 2013

    thanks Karen.  Have you ever heard that it is bad for those of us with bc?

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316
    edited August 2013

    I love lox. As a matter of fact, I love salmon in every conceivable way. I have never heard it was bad for us.

    Caryn

  • karen1956
    karen1956 Member Posts: 4,642
    edited August 2013

    HVV...I've never heard that its bad for us....actually my onc has never told me to stay away from any foods....he even permits me to eat soy, but to just limit the quantities.....

  • aviva5675
    aviva5675 Member Posts: 836
    edited August 2013

    Hi fellow Jewish girls! diagnosed last month dcis and benign area on right. 2x lumpectomy with oncoplasty on right and reduction on left last Tuesday. Friday path results show invasive tumors both sides-- so double mastect w/reconstruction tomorrow. Its fast, and crazy, so trying to get thru.

  • pessa
    pessa Member Posts: 137
    edited August 2013

    Hope it goes well for you tomorrow......

  • [Deleted User]
    [Deleted User] Member Posts: 126
    edited August 2013

    Hang in there Aviva.  Thanks for the advice re: lox all.  I was craving it and thought becasue it was preserved it was off limits.

    V

  • karen1956
    karen1956 Member Posts: 4,642
    edited August 2013

    Aviva...will be thinking of you today....wishes for an easy recovery....hugs...

  • aviva5675
    aviva5675 Member Posts: 836
    edited August 2013

    hi ladies- day 4 post surgery, got home Sunday, doing well. Got one of two drains out today. Tired and really emotionally drained. the slightest thing sets me off. Normal, but weird. Getting test results back hopefully tomorrow, 2d drain out hopefully Thursday.

  • Leah_S
    Leah_S Member Posts: 1,929
    edited August 2013

    Aviva, I hope you continue to heal well. The emotional reaction is normal but you're right, it's weird.

    All the best.

    Leah

  • Doragirl34
    Doragirl34 Member Posts: 38
    edited September 2013

    The drains were horrifying. Hang in there.

  • aviva5675
    aviva5675 Member Posts: 836
    edited September 2013

    Good path report- all cancer out, no nodes involved, yah!  Remove final drain tomorrow. Walked pretty far today, that felt good.  I had ordered a drain belt before surgery and am really glad- velcros on, and there are pouches for up to 4 drains, that also velcro on to the belt, easy to remove for emptying etc.

  • Leah_S
    Leah_S Member Posts: 1,929
    edited September 2013

    Aviva, that's wonderful news on the path report! Keep healing well.

    Leah

  • pessa
    pessa Member Posts: 137
    edited September 2013

    Wishing everyone a happy, HEALTHY New Year.  Shana Tova!

  • Leah_S
    Leah_S Member Posts: 1,929
    edited September 2013

    Shana Tova to everyone! May it be a year of good health and many blessings.

    Leah

  • NYCchutzpah
    NYCchutzpah Member Posts: 148
    edited September 2013

    Shana Tova a healthy and sweet new year to all

  • karen1956
    karen1956 Member Posts: 4,642
    edited September 2013

    L'Shana Tov umetuka, K'tiva v'chatima tova.

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316
    edited September 2013

    L' Shana Tova to all.

    Caryn

  • rachelvk
    rachelvk Member Posts: 564
    edited September 2013

    L'Shana Tova everyone!

    HVV - The only thing I could think of is that when I was on chemo I was told to avoid sushi (and uncooked fruits and veggies that couldn't be peeled) because of the potential for food poisoning. Lox and smoked fish are preserved are sort of in between, so I'm not sure, but after chemo, there shouldn't be any issue at all.

    Aviva - Welcome, and glad to hear your recovery is going well and your path report came out fine.

  • toomuch
    toomuch Member Posts: 254
    edited September 2013

    Wishing you a year filled with happiness, health, and peace.

    L'Shana tovah.

  • Jtrosesav
    Jtrosesav Member Posts: 13
    edited September 2013

    Hi brave women,

    I'd like to join this forum. Had BMX 10 days ago. Drains out yesterday and pathology report received yesterday. I know I shouldn't complain because many others have it worse but before surgery it was thought that both my cancers (in left breast) were stage 1 and now the report showed that 1 of them was stage 2. Which means that chemo may be in the picture. My oncologist suggested having the Oncotype test done which would help in making that decision so in 2 weeks I go back to get the results of that. It's scary thinking about risk of recurrence and chemotherapy when I'd hoped it wouldn't be in the picture. Anyway, it's definitely the strangest Rosh Hashana I've ever had. I need G-D more than ever now. I will probably go to synagogue for a little while today but I'm not observing in the way that I usually do (orthodox). I wish all of you l'shana to a and refuah shlaima (complete healing of body, mind and spirit).

  • aviva5675
    aviva5675 Member Posts: 836
    edited September 2013

    HI Jtro...my journey is similar: thought I had only a dcis on right, turned out (after 2x lumpectomy with both side reconstruction) to have invasive on both sides. So Im a 2a right now, chemo also possibly in my future. They did get it all and no nodes, during bmx, so that is the only positive right now.... try for the oncotype test and see what MO recommends- thats my next step also.

    Im happy for a new year, but being sort of agnostic at the best of times ( super Jewish, non religous) this year Im having a hard time feeling optimistic and happy.  Of course it can only get better than the last few months, but not feeling very thankful to a possible God. Sorry for the cynicism but maybe next year.

  • rachelvk
    rachelvk Member Posts: 564
    edited September 2013

    Jtro and Aviva - So sorry that you have more difficult choices ahead of you. I did chemo, and while it wasn't a walk in the park, it was extra reassurance (well, hope) that it will never come back. I was triple negative, so it was automatic in my case; no oncotype test for me.

    There's no good time to get BC, but I agree getting a diagnosis around the HH adds a whole new dimension. I think I started a thread 2 years ago about that after my dx. I can look for it and give you the link. Eema was great to then start this thread, which has really kept many of us together.

    The rabbi's sermon today was particularly poignent - the usual 'carpe diem' theme, but really with an urgency that hit home: too many people wait around "until" to do what they really want, only to find that they never reach "until". Two years after my dx, I still struggle with what my 'purpose' is here. Work is satisfying but filled with a lot of grief (public classical music radio - and we were just told this past week that we have to make major, major cuts). Lots of unfinished projects and thoughts and ideas that keep getting pushed aside "until I have time." Even BC hasn't provided the urgency I expected to get me to clarify my priorities.

    The one exception - I start teaching Hebrew School this Sunday. 1st and 2nd grade. It's daunting - I've never done much teaching - but I hope that it gives me a feeling of giving back to the community and making a difference in childrens' lives, since I don't (and now can't) have my own.

    By the way - there is a Misheberach thread if you want to add your Hebrew names so we can all include each other in our prayers, or during the prayer for the ill. I'm going to bump it up. As for any of the women who are on it - please let me know if you'd like your name removed because you're done with treatment, etc. I think I've left mine on... I figured it can't hurt as a survivor.

    Hoping everyone is having a good holiday.

  • josgirl
    josgirl Member Posts: 61
    edited September 2013

    L'Shana Tovah ladies,

    I start my chemo on Thursday and have been going through (I am sure) the same feelings of anxiety and fear that all of you did when first diagnosed and figuring out treatment plans.  But last night at synagogue it really hit me that I would be doing my first chemo during the days of awe and I really decided to embrace it.  I think I will take the Mahzor home with me on Friday and read it next week through all the endless apts and of course chemo.  I have to be honest that being diagnosed (at 34 with no history and healthy living) really shook my faith.  I was so conscious of preventing the diseases in my family history that BC never entered my mind.  I was so angry (still am but different now) and wasn't sure if I could regain the trust I had in G-d.  But slowly it is coming back and giving me strength again.  Very thankful to have supportive people around me and especially this community - lurking here for the last two months has been so helpful.  So thank you and may you have a sweet (and healthy) new year!