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Jewish Warrior Sisters

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Comments

  • cgesq
    cgesq Member Posts: 183
    edited December 2013

    Pessa,

    Thinking of you.  Hope your surgery went well and that you recover quickly and with as little discomfort as possible.

    Refuah Sh'laima!!

  • pessa
    pessa Member Posts: 137
    edited December 2013

    Thank you for your good wishes.  Unfortunately, I developed a cold and fever(caught it from my generous 16 yo son!), so my surgery was postponed until Monday 12/23.  I will apply everyone's good wishes starting that date.

    Shabbat Shalom

    Debbie

  • rachelvk
    rachelvk Member Posts: 564
    edited December 2013

    Pessa - I'm sorry to hear of your latest ordeal. I hope surgery went well. You're on the Misheberach list. I will keep you in my prayers.

  • pessa
    pessa Member Posts: 137
    edited December 2013

    Got home from the hospital today.  Surgery was uneventful, though painful (still is).  Nodes are negative, tumor was larger than appeared on scans, so stage is 1B.  don't know the significance of the change from a to b.  Will meet with the surgeon and, hopefully my MO, next week.  In any case, am grateful to have survived the surgery and to have what appears to be a good prognosis. 

  • Warrior_Woman
    Warrior_Woman Member Posts: 819
    edited December 2013

    Hi Ladies - I'm Jewish and trying my best to be a warrior so I'm hopping onto this forum.  Smile

  • pessa
    pessa Member Posts: 137
    edited December 2013

    Welcome!  sorry you have to join us, but glad you found us.

  • aviva5675
    aviva5675 Member Posts: 836
    edited December 2013

    I had an interesting discussion at work on Christmas when my friend said Merry Christmas to the alarm operator who was calling us when they finished the call. I said you dont know that person and what they celebrate. She said she was celebrating and passing along her happiness. I couldnt get her to understand how irritating it is (to me, my opinion) when that happens...the minorities must go along with the majorities as if we dont exist. 

  • karen1956
    karen1956 Member Posts: 4,640
    edited December 2013

    Pessa...thanks for the update...been thinking of you

    Warrier...glad you found us but wish you didn't need to...welcome

    Aviva...it doesn't bother me when someone says Merry Christmas....I usually don't comment.....I figure they mean well....

    Hope everyone is doing well...I'm really struggling with Mom and all the issues she has....she is declining and it is very hard....I will be happy to see 2013 come to an end as it was NOT a good year, but I'm feeling down about 2014 as I think it will continue to be  hard year in regards to Mom....oh well....

  • karen1956
    karen1956 Member Posts: 4,640
    edited January 2014

    I hope everyone is doing well...

    Pessa...how are you feeling?  I hope your recovery is going well

      I know I am happy to see 2013 come to an end....it was one of the harder years.  Unfortunately, with Mom's health declining, 2014 doesn't promise to be a much  better year....please keep her in your prayers....Sarah Ester bat Faiyge.   We see the neurologist and pcp on Friday.

    Hugs, karen

  • pessa
    pessa Member Posts: 137
    edited January 2014

    Thank you for asking.  I still have much pain but it gets better every day.  Confirmed at surgeons' office today that all nodes (20) are neg.  10% chance of recurrence.  no chemo needed.  Will see MO on Thurs.

    Karen,  My mother passed away a year ago and, in addition to the pancreatic cancer she had, she also had dementia.  It was very hard to see her decline slowly but surely.  There isn't much that can make the process easier for the family, or for the person who is ill.  I will include your mother, Sara Ester bat Faiyge when I say mishebarach for people who need healing. 

    Pessa

  • Leah_S
    Leah_S Member Posts: 1,929
    edited January 2014

    Pessa, I'm glad to hear you won't need chemo but I'm sorry you're still in pain. Take the meds!

    Karen, I've added your mother's name to my davening list.

    Warrior Woman, I hope your tx goes smoothly. I'm glad you found us though sorry about the reason that brings you (and all of us!) here.

    Leah

  • Leah_S
    Leah_S Member Posts: 1,929
    edited January 2014

    It is with great sorrow that I must tell you of the passing of my father on Friday. I'll be flying to Los Angeles Sunday for the funeral and shiva.

    Karen1956 has the phone number where I'll be while I'm in the U.S.

    May we know no further sorrow.

    Leah

  • FairyDogMother
    FairyDogMother Member Posts: 154
    edited January 2014

    Leah S-  You and your family are in my prayers. 

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316
    edited January 2014

    Leah,

    I am so sorry to hear this. May he rest in peace and may his memory be a comfort to you and your family.

    Caryn

  • karen1956
    karen1956 Member Posts: 4,640
    edited January 2014

    Leah...Baruch Dayan Emet.  I'm so sorry for your loss.  I will call you this week.  Hugs and love from Denver

    JWS...pm me if you want Leah's phone number.  

    Karen

  • Caya
    Caya Member Posts: 46
    edited January 2014

    Sorry for your loss, Leah.

    May you and your family be comforted by the many loving memories of your dear father, B.H.

    all the best

    Caryn (Caya from Toronto)

  • pessa
    pessa Member Posts: 137
    edited January 2014

    So sorry to hear of your loss.  Baruch Dayan Emet.

    Debbie

  • rachelvk
    rachelvk Member Posts: 564
    edited January 2014

    Oh, Leah, I'm so sorry to hear. Baruch Dayan Emet.

  • karen1956
    karen1956 Member Posts: 4,640
    edited February 2014

    Stopping in to update you on my mother and to ask you to please keep her in your thoughts and prayers.....

    Mom had an appointment with the movement disorder specialist today....a specialist neurologist...the news is NOT good...The appt was about 3 hours with the nurse practitioner and the neurologist...He gave 2 working diagnoses but want further testing to help with a definitive diagnosis and help with Tx plan....PSP (or Progessive Supranuclear Palsy) or Lewy Body Dementia ( a form of Parkinsons). He is suspecting the PSP which does not have a good prognosis. There is so much more to tell about the visit but I just can't write all the details from the visit. It just breaks my heart. The doctor said that by the end of the year he does not see my Mother as being able to walk safely (even with the walker) at all. He told us that he is really worried about her and worried that by the end of the year she will have a bad enough fall to break a hip. So now we are awaiting scheduling a neuropsych appt and urology appt (due to incontinence) and need to have some labs drawn. We see her PCP tomorrow for her monthly appointment.

    I just need to cry but can't....I'm so tired of being strong!!! but how do I let go!!!.....Karen

  • FairyDogMother
    FairyDogMother Member Posts: 154
    edited February 2014

    Karen-

      Let the tears flow when needed. Big hug to you.  You and your family are in my prayers.

  • karen1956
    karen1956 Member Posts: 4,640
    edited February 2014

    Fairy.....thanks...I just can't cry....just doesn't happen....

    More bad news...took mom to the PCP today and she was telling him how much her foot her and he got her into Podiatrist...Mom has a broken metatarsal in her foot!!!  Just on overload today......

  • FairyDogMother
    FairyDogMother Member Posts: 154
    edited February 2014

    go for a scream. I'm not much of crier, more of a screamer sometimes to let it all out.  

  • rachelvk
    rachelvk Member Posts: 564
    edited February 2014

    Oh, Karen, that must be hard for you and your Mom. I agree with FairyDogMother - and we're here for you in any way that we can be.

  • dbucla
    dbucla Member Posts: 4
    edited February 2014

    Shavua Tov, Ladies.

    I just found this topic and am new to posting on BC.org.

    I go for a BMX on 2/27.  My hope is to recover enough by April to be able to host (with extra help this year) my 25+ person Passover seder ....  I recognize that this might change if the SNB or pathology shows an invasive component to my DCIS.

    We are very active in our Jewish community and the outpouring of support since I began discussing my situation two weeks ago has been unbelievable.  As the person that is usually doing the supporting, I'm not used to being supported, and so am having difficulty with that aspect.  But, as several friends have noted, I always feel better when I can help someone during a time of need, so now I should allow them the mitzvah of helping me.  (Which makes perfect logical sense, but is still difficult!!)

    Well, I just wanted to say hello!


       

  • Swimmom2
    Swimmom2 Member Posts: 43
    edited February 2014

    dbulca - yes, it is a mitzvah to let others help you! Please let them do that! I hated asking for help during my surgery, but people are so glad and relieved when you give them something to do.  I think you will be in a good place for sedar. No heavy lifting but by six weeks you will be able to do most things. It will be ok!

  • NYCchutzpah
    NYCchutzpah Member Posts: 148
    edited February 2014

    Hello dbucla sorry you have joined us.25 for a seder is a big job. Do learn to accept help when offered you will need it.  Here is a link to another group that has been helpful to me http://www.sharsheret.org/  also if there is a Gilda's club near you they have been another source that I have useful

  • antonia1
    antonia1 Member Posts: 73
    edited February 2014

    Leah, I just came here to check in and I am so sorry about your father. Please accept my deepest condolences.

  • antonia1
    antonia1 Member Posts: 73
    edited February 2014

    dbucla, so sorry you had to join us. Planing 25 for Seder shows a great fighting spirit, but accept all help.

    Stay well.

  • aviva5675
    aviva5675 Member Posts: 836
    edited February 2014

    When you hide the afikomen lay down for a nap. Come back half hour later and just say you really worked hard to find a good place for it this year!

  • Eema
    Eema Member Posts: 403
    edited March 2014

    hi girls,

    A quick check in to say HI! My family and I moved to Brooklyn in December and are settling in. I've been very sick (besides the BC) for years... The docs in Rochester couldn't figure out what was wrong with me and told me it was the city, and that NYC could be better. We sold our house, my hubby got a job, and I lost my tenure track professor job. First doctor I saw here sent me for a CT scan. Turns out I had a mass in my abdomen that turned out to be infected mesh from an old hernia repair (after my hyst.). I had it removed, thank G-d, but now have complications, including an infection. Just called the surgeon on duty for some flagyl and cipro. It never ends, but at least I'm not dead. Thank G-d. Miss you ladies! Xox

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