Between the Devil ( the red one) and the deep blue sea
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Congratulations Marybe! Seems like when we start to lose hope, and really get down, you get THIS GREAT NEWS, AND IT MAKES US ALL HAPPY!!!
So this treatment must be the "kitchen sink"? Love your happy news! xoxoxo
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Marybe, soooooo happy things are looking down!!!
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Thank God!! It`s about friggin` time something turned for the better!!!!!
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Wonderful AWESOME NEWS!!!
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Marybe - This is such great news. You have been in my prayers daily and will continue to be. I was so relieved to read this good news and I can just imagine the excitement you felt when the nurse told you the good news. I think I will celebrate for you by having a piece of cake. Will pray that things continue going well. You are definitely an inspiration to me as well as lots of other women. 0
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Marybe, just read your GOOD news. Fantastic Fantastic. Fantastic.
I hope now they'll be coming down each test you have. I can only imagine the elation you must be feeling....do you feel any different in yourself at all?? I will go and have a cherry brandy to celebrate in your honour.....right now !!
(((((((((((((((((((((((((((((((((((((((((((((((((((Marybe )))))))))))))))))))))))))))))))))))))))))))))))))
Isabella.
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Happy Dance! Happy Dance! Happy Dance!
Leah
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im getting FAT; but im celebrating with homemade choc chip cookies for you, tonight, my dear... i've been on a binge all wkend after i woke up, and Mur rold me the good news!!!!
i will keep fighting, ,cause you've taught me to never surrender, never give in!!!!happy dance is on in so. fla!!3jays
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Marybe: ditto to 3jays...happy dance!!!
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FANTASTIC!
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Marybe,
Good luck on your dr. appointment on Wed. Hope he agrees things are looking up for you because the numbers are down!!
Lane
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Marybe congrats on the lowered numbers!
Ginger
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Marybe, goodluck with your docs appointment today! Hope he has nothing but good news for you!
Love n hugs. Chrissy
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Marybe, hope the appointment went well!
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Really really hope you can do a happy dance. Come to think of it you do that most of the time.
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Hoping to hear from you shortly on how your appointment went!
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My appointment went fine.....several of the nurses told me they saw that there was a big drop and said they were happy for me and hope this one is the ticket. Then I saw my onco and God love him, he really is a pompous ass at times, but he can't help it and yes he was happy about the number drop. When I saw him and he asked how I was as he always does when he comes in the room, I said Oh, I am so glad the numbers went down and he said Thank you. I almost burst out laughing and felt like saying and your welcome for the last five or is it 6, that were total flops.....but I didn't because I am telling you even though I have just about given up on him at times, I truly think they are only human and trying to do the best they can with the knowledge they have, but there are just too many variables to say Ok, this is it. This is the chemo that is going to work for you. The reason he put off Xeloda for so long was because he expected me to get the hand foot syndrome and then I didn't get it.....and Faslodex he really had a lot of faith and just about so much as said he was sure it would work for me (but that was because he had so much success with it on other patients) and he told me this one just had a 20-30% chance, but I feel and I think he feels also, I am in that percent. When the nurse who ran my labs took the sheet in to show him to see if they could go ahead and proceed with treatment she asked him Is she good to go and she said he smiled and said She's great to go. She told me he is really happy with the drop. So we are going to put off the scan I had scheduled on the 30th.....I asked him if he thought it would be ok to put if off until I get a few more treatments in and he said he felt we should put it off. The reason I has asked for it was because I did not anticipate a drop in numbers and really wanted to"see" what was going on in the liver. Now I am thinking maybe we might see that the tumors have actually shrunk......Oh, I cannot tell you how happy I would be if that happens. I honestly do not care how much hair I loose, if that would happen. Right now it is just shedding like mad....I need to wear gray or light colors so it is not so obvious....told one of the gals at work today, This is my hair shirt. I told him about the blood I am getting when I wipe and how it is after I have gone and it's has been really hard and I have strained for awhile....He said to try mirolax and that if it continues, he will order a colonoscopy. Let's see, what else.....Oh liver function is still good and liver feels soft when he examines it. And I lost two lbs.....my insane craving for food has subsided so even though I am still enjoying my food, I am not feeling compelled to shovel it it even when I was not really hungry.
We of course went thought the usual thing about work...>Why are you wearing a uniform? I thought you were going on SS. I said Well, I am sort of, but I still plan on working.....and he looked at me really strange and asked how is that? and I said well I am 62 so I am still able to make a limited amount and he says I thought you were doing disability, you can get more on it, can't you? and I said yes, but you really can't work much at all on it and he says, but you get paid for not working. So then I said well, when I think I am dying I am sure I am going to quit, but when I think I am going to live, I want to work. And then he said I am defeating my purpose, Don't I want time to go places and travel and I said I do plan on doing that, but I also want to work awhile longer and am going to do both so then he just shook his head. I can't help it, I like my job, I really do. My INR was 2.3 and it is supposed be be between 2-3 to be therapeutic so I am staying on my current warfarin dose which is high.....alternating 10 mg with 7.5. I must have really thick blood. And I think that is all I know.
Went to see Billy Elliott last night and my friend bought dinner at a restaurant near the theater, which was really good. I did not love the play, but enjoyed it. It was not Phantom or Wicked, but the lead did a wonderful job.
You really do not want to see me do the Happy Dance, Alyson.......but all of you others by all means do it for me. Thank you ALL for your love and support.
The steroids no longer keep me awake all night for some reason so I am going to bed. Physical therapy has helped my leg so much that I can sleep without it waking me up.
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Yay for all of that, Marybe!
YAAAAAAAAY!
Stick around, girlie. We kinda like you around here. In case ya haven't noticed.
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Marybe, that is just perfect!!!! I love it when you get good news as it means we'll have you for a whole lot longer!!!
Love n hugs. Chrissy
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Marybe: When down is up, it's a special day! I just KNEW it this time. I will do a pirouette in your honor because no one's watching and I'm so happy for you. Ah, even if they are watching, who cares; you deserve that and more!
(((Theresa))) I hugged myself while I was at it...
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Marybe, what wonderful news! I'd gotten on here one more time just to see if you'd posted about your appointment, and so glad I did. Now, I can go to bed happy!!
Kathy
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happy days are here again the sky above is blue again, happy days are here again!!!!!!3jays0
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Marybe, you made me laugh so hard when you said you should have kept the ink well and willed it to him. Ha!
I am so happy that your tumor marker numbers have dropped. Yippee!! Congrats!0 -
Great news, Marybe!!
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Marybe: You have God on your side, looking after you. Your have such a wonderful attitude about life and teach all of us new lessons every day. I am so very happy that everything is going well for you right now.
I understand about your work...sometimes work can be fun. It has gotten me through many challenges in my life...if I could do something that I loved, then the pain...emotional and physical...wasn't so bad.
You have many praying for your continued success in treatment and the power of prayer is huge. I learned that yesterday when my RO called and said she wasn't able to plan my rads treatment because she could not find the original surgical bed where the tumor was, even with the CT scan. It has healed as though it never existed. I remembered my DS and DIL praying that God take my tumor away "as though it never existed". Gave me chills!
Keep the faith...all things are possible with God's love.
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Kaara, That is wonderful news and gave me chills also when I read it. The way I look at it, although I have to admit to not being a regular church goer, if there was not a God none of us would be here and all of this stuff going on is happening for a reason.....we may not see it now, but for sure there is a reason and it may just be to make us appreciate life more. I think I would have been gone a long time ago if God did not have some sort of a plan for me.
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Marybe, get yourself on a stool softener for a couple of days and then take Sennokat. You shouldn't have to hurt yourself voiding (I do sometimes, too...sigh) so you need to break up the mass and allow it to pass easier.
I'm so proud of myself!!! I posted the whole paragraph above without using the words shit or crap!!
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Yah, Marybe,
A huge relief for you and for all of us out here pulling for you!
Love,
Lane
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Marybe and Kaara: Rejoicing and thanking God for your great news!!! I'm so happy for you both, but will not stop the prayers! LOL Agree with work... I went on disability Jan 1, but I'm still working 'under the table'.... couldn't just sit around and watch daytime tv.... urg. I love my work too.... fortunately I work from home.
Keep the good news coming....!
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Barbe, you crack me up!
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