Between the Devil ( the red one) and the deep blue sea
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Barbe ... that makes two of us! LOL!
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Dear Marybe,
You continually serve a great purpose in your life! You are the best inspiration for women like me and we look for your guidance through the breast cancer jungle on a regular basis. I thank God everyday for your friendship and "hope" for all of our futures.
Love,
Nancy
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Marybe, having you as a patient makes the doctors look good. Glad you are responding once again and the S/E's are tolerable. Get a grayish mohair sweater, to conceal your strays.0
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This is such good news Marybe. Keep it coming.
OMG Barbe I laughed out loud at that!0 -
Marybe...such good news again, keep it coming.
Thinking of you.
Barbe...WHAT are we going to do with you !!!!
Isabella.
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Congratulations, Marybe....and if you want to work, work! But make some fun vacation type plans too!
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I'm still working part-time. The days when I'm feeling good, I absolutely love my job - but when I'm feeling bad, I wonder how much longer I can last. Basically, I feel working has kept me going & has given me a reason for getting up each day. I'm in the midst of another of my frequent UTIs which make me very tired & give me a backache but I also know that 5 days of cipro will have me feeling good again so if this is the worst of my problems, I can work through it. Marybe, I am a big cheer leader of yours & I thrill on your good progress - many huggs for you and many good wishes. You brighten my day!
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I have a small part time business which from now until April 15--17 this year will be full time and toward the end probably overtime. I also volunteer at our senior center about 20 hours a week as I am cook 2 days a week, kitchen manager and Treasurer. I really enjoy all of the above and am sure I helps me cope with BC.
Marybe, I too am thrilled with your progress and look forward to it continuing.
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That is great news Marybe. I am happy for you!
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Yippee for Marybe and Kaara, Good news is good for all of us! Let's keep it coming, girlfriends!
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i have to use miralax; and then take perdiam, otc.. a senna product for dtool softner, that works for me better than senokot.. i got hemoroids, so do yourself a favor, and start asap...love ya gal!........3jays0
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Posting on here is the easiest way for me to keep everyone updated. No news really since we have not done any more tests, but we will be doing tumor markers next week since I have now completed nine adriamycin low dose which would equal 3.
I do not know if this is chemo related or if my eating habits have just finally caught up with me, but I had the worst case of acid reflux ever.....really was thinking I was having a heart attack in spite of the fact my muga scan said everything was perfect. It felt and still feels like it actually, like something is eating a hole into my esophagus, burning a hole there, but not as bad, as it was.I took protonics with my meal Thurs PM since it had been working for me and someone said the nexium was hard on something, I forget what....my kidneys or liver maybe?....then after dinner I was really having problems and it was like a huge pressure in my chest and sort of went into my jaws. I was up taking baking soda thinking that might make me belch and I would feel better.....did not do anything and did not even produce a little burp. So I drank some Malox....no better. This morning I went to work.....had a bowl of cereal and took Nexium then instead of waiting for dinner when I normally take it.....no better. Ate about 6 Rolaids at work and they did not help either. So I called my GP and went there this afternoon and he thinks it is all acid reflux, but I am now to take the nexium twice a day and he added Reglan, three times per day and I put some 6 in blocks under the headboard legs of the bed so I am sleeping at a downward slant. No food for at least three hrs before bed and I am to follow a bland diet and see how I am in a month and if it's not better then I go see a gasto doc. One more specialist to add to my list.
Here I have always been so proud of my cast iron stomach and sure am going to miss hot tamales (the candy) and my normal unhealthy diet. But hopefully this is just a phase and I can eat anything I want like my friends on prilosec.
Also I do not think PT is doing one bit of good for my supposed pinched femoral vein....when I lifted one of those blocks I got to put under the bed, it somehow made my leg worse and I was really limping around like an old lady.
Amazing how all this non cancer crap is causing me more problems than the Adriamycin. Hair is still hanging in, but I may be ready for a toupee (it's all thinning out on the top) soon.
Guess I will go back to bed now. I am hungry, but late night eating is now a No no.
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Marybe: I thought Reglan was taken off of the market due to the side effects and law suits? I took it for quite some time and found much relief from reflux for it (a couple of years ago). However, when I told my onc this time around I was taking it (I suffered from reflux from either X or Taxotere-I was on both), he told me to immediately stop taking it and told me to try Zegerid which is OTC. He told me that the directions say to take only one per day but it was fine to take it twice. It worked like a dream, better even than the Reglan. I have also used Gaviscon (also OTC) and if you can get past the foaming it does in your mouth, that worked very well for me, also. The reflux s/e came and went while I was in treatment. I no longer suffer since stopping chemo so, there is hope! Isn't there always?
Theresa
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Marybe this must be contagious. I was in the ER all night Monday with what turned out to be gastritis for the first time, it burned like a sun of a gun. I am back on my prevacid and lots of antacids. I was groaning and moaning and felt so awful I wasn't the least bit embarassed. The ER is about 35 minutes from our house so my poor DH had to endure the ride with my moaning and barfing in the car. (Lovely) I did get a bunch of scans and tests, but I was hurting enough that I didn't care what they did, all I wanted was pain meds.
I am sorry you had bad acid reflux, I have a haitus hernia and had that bad 10 years ago. I am glad they put you on some meds to stop it. I am thinking about you and hope it does come back at you again.
Hugs Ginger
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An alkaline diet of leafy greens, vegetables, lean protein and some fruits will help reduce the acid in your system, and soon you will not need to take the meds for it. All simple carbs like sugar and other acidic foods cause gastro problems. I love my spicy foods too, but feel so much better on this diet.
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Thanks for the advice. Sorry you are having problems Ginger and glad you got some relief. If I had not gotten an appt, I was thinking of going to the ER myself....was at the eye doctor's while this was going on and two of the nurses said GO since a lot of the symptoms are like a heart attack.
I am thinking this may be hyatil (sp) hernia also....my mother had that and I remember her always saying Well, I had another heart attack last night kiddingly and we knew it was that flaring up...but I do not recall her being on any meds. Yep, it says this stuff is called metoclopramide, Generic for Reglan on the bottle...perhaps my onco will have a fit when he hears I am taking it and I will be sure to tell him on Wed when I get my treatment. I am so glad to hear it improved when you got off chemo, Treso....but I never will be off everything (until the bitter end) , however maybe certain chemos are more likely to cause this than others. I KNOW I did not feel like this before.....sometimes would get that pressure in my chest, but until now either protonics or nexium always took care of it.
The thing is Kaara, I actually love all the foods you talked about....really like salads and have often said I crave salad when I have not had one for awhile, but I need to go easy on the leafy greens due to my need for lifetime anti-coagulation. I also love veggies.
I did print a list of what I can and cannot eat off the internet and am just now having my plain baked potato for breakfast which is fine with me...I love potatoes. I was not shocked at the things it says to avoid except for cranberry juice....OJ, lemon and tomato made sense, but cranberry!! Also macaroni and cheese!...one of my very favorite comfort foods. Oh well, at least it says you can have feta and goat cheese. I needed to go on a diet anyway.
I will keep you posted....this area, lump, whatever it is I am feeling is still there at the base of my neck, but it is better than yesterday.
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good morning Marybe, thanks for the update, sorry for this new development. My hubby has what we used to call 'acid indigestion.' He, however, being male, ignores the pain most of the time except when it's bad in the middle of the night. Then he'll grab the tums on the nightstand and crunch down a few. I cannot get him to go to the doc, the big dummy. Glad you're being smart about this and hope it eases up. Keeping you in my prayers! ((hugs))
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marybe: Yes, sadly cranberries are very acidic, as are cheeses, except for the goat and feta. Sometimes I eat a few dried cranberries along with some walnuts (my dessert) and I handle them fine. Do you like sweet potatoes...they are good for you, also avocados. If you balance a few of the acidic foods you like with a lot of alkaline foods, it's a wash, and the acid reflux frequently doesn't flare up, at least it works that way for me.
I hope you get over this soon. I don't have it often, but I've had it enough to know that it can be very painful and uncomfortable!
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Marybe, please see to this. I didn't and ended up with a perforated ulcer and emergency surgery. Ugh.
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Marybe, it was me about the Nexium and my liver levels. It blew my ALT right out off the page! Please, please look into it for yourself!!
I was born with Pyloric Stenosis and have lived for 54 years having to work around stomach issues. I can normally keep my problems at bay with diet and now Prilosec. But recently, I've had to double-up on the Priloce. What is in the air everywhere that we have so many of us with gastro issues??
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barbe...my DD was born with pyloric stenosis...it used to send me mad, she was always smelling of sick, and I could never keep her looking clean.
I made her a long white dress, with matching bonnet, trimmed with swansdown, for her Christening....and, blow me, even tho' I left putting it on right 'til the very last second before we set off for the church she threw up all over it. The swansdown was ruined, hung down like rats tails. I very near threw her in the river that day !!!! She was going to have an op., but seemed to grow out of it at about 18 months. The projectile vomiting was the pits, the smell seemed to hang in my car more than anywhere, as she always seemed to throw up all over the carpets !!
Isabella.
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Isabella: Oh, the poor little thing...I'm so glad she outgrew it.
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Yikes, Isabella!!! I had surgery at 10 days old just before I died!! I vomitted everything put into me and was getting no nutrients. How did your DD last 18 months vommitting? How did YOU last that long????? What finally fixed her valve?? I know my parents resented me because of my illness. It made their lives miserable and they never let me forget it.
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Barbe, I sent you a PM. Glenna
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So sorry for the problems, MaryBe! I have had lots of reflux/heartburn on different chemos, and then none on some. WATCH the dairy, milk, also... I know it seems like it's soothing, but it can actually cause more heartburn, especially when taken first thing in the morning on an empty stomach. Yogurt is better, because they ALL (despite what Activia claims) contain acidophilus, which is great for the digestion. Try eating it 3 times a day, get the most healthy (non processed, natural, no sugar added) or Greek kind.
I am dealing with a lot of issues right now... looks like cancer tumors are growing in my left eye orb (not the eyeball, but above and below it) ... seeing a specialist that comes from Dallas in March, but don't think I can wait that long. May try to go somewhere else first. Eye is swollen and black and blue: I tell everyone my DH did it... LOL, they know better. Also, looks like the Halaven isn't working. Had such hopes!! It really appeared to be knocking down the skin mets fast, but now, after finishing 3 cycles, looks like they are coming back... nodes on neck on left are enlarging again too. And, looks like my thigh/hip is being affected. Have severe pain on walking, raising leg, etc. I thought I cracked something (had a hard fall two weeks ago on my butt) butr xrays are negative. So, having MRI next week. Good news is that we can radiate that area. My back/spine and shoulder have been totally asymptomatic since radiation.
Now... if I can only find a chemo/treatment that will work for longer than a couple of months...
((I may be headed for MD Anderson soon....
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Oh, Karen!!!...my complaints are petty compared to all you have going on. Do go to MDA....go ASAP unless that specialist in Dallas can get you in sooner. Could the leg problem possibly be from the back?....I am having lots of problems with the femeral (sp) vein and possibly the sciatic nerve is involved and they are telling me it is from a disc that is causing it.....sometimes the leg feels like it will collapse on me, but mostly it is this pain from my him down to my knee. I am so sorry about your news....halaven works for many, but I also know many it did not work for. But there is something that will work, they just have to find it.....the Adriamycin "I think" is working for me, but that is after 4 chemos and two hormonals that did not.
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Marybe... I get sciatica too! I find a rotating foot stool under my desk to help. And, I adjust my seat of my car to tip upwards and that REALLY helps! And I know all of us have to be on our feet, so I always recommend great orthopedic shoes. You'd be surprised what passes for orthopedic shoes these days... But they really help with foot and back pain. Reflux? Can't help in that department. DH and DD suffer from it and I really wish there was a way to get rid of it! Soooo frustrating!
TexasKaren.... Sending thoughts and prayers your way.... And right up the Mississippi River towards Marybe too!0 -
{{{{{{{{{{{{ Karen }}}}}}}}}}}
Always in my prayers, Marybe.
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I am using a friend's computer since I am visiting at my Dad's this weekend and he no longer has one at the house.....have a new one there that my husband insisted we needed, but it is not hooked up and I am not about to try. Anyway, I wanted to let you know that I did NOT get my results for the CA 27/29...at least the nurse was nice enough to call me and tell me that they had not come in and that someone would calll me on Monday. I said, I don't take that to be a good sign and she asked why? and I said well, it never takes more than a day normally and she said well, she felt it was the lab and also they may have sent them in late. Grrrrrrrr. So that is all I know. I didn't want you all to think I had gotten bad news and gone into the depths of dispair or anything.
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Thank you for the update Marybe. I bet they did send them in late.
Enjoy your weekend
Ginger
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