Life on aromasin
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During the first couple of weeks on Aromasin I had night sweats. But then I adjusted and had no hot flashes whatsoever.
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Not sure if the absence of hot flashes is scientifically proven issues. I know at one time the thought was if you didn't have them with Tamoxifen you were not getting the best use of it in your body and they did a CYP2D6 test to see if you were metabolizing the Tamoxifen properly. What they found is the lack of side effects didn't indicate that you were not metabolizing it well. So not sure if lack of side effects for Aromasin is a predicter. If I had time I would try to look at the research.
Since changing to Greenstone manufacterer for my Aromasin was seeing a decrease in side effects. But today the arm aches and finger joint pain is back. Nothing unmanageable but it is there. Just taking Aleve to see if that will help. I wonder if it is just a thing that comes and goes. Some days not so bad other days ouch?
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Well darn how do we ever know!! I am going back on Tamoxifen then as I had hot flashes a lot more often with it!
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I think it just comes down to what I read here immediately after my dx: cancer is a crap shoot. Didn't realize at that time how true those words are. Sigh.
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Oh my dears--now u'r understanding (a little bit) how I've always been the more u read the more opposites there are and confusion reigns---Ask u'r pharmacist, Dr. or even look up the meds, but u will find symtoms like---diarrhea or constipation, weight gain or loss, lethargic, or can't sleep. headaches or not, hard to breathe or not,achy bones or not---should I go on---to many varieables on each and every one of us and so many times u'r asking a Dr. about a med they look it up or even leave the room to look it up cuz u might be saying a side effect that is not common.
Everytime there is a new study on something that looks good--6ms to a year --there is a problems with it.. I'm not saying don't do healthy things, but the healthy person gets it just like some who do not live heslthy--Well think about it the women who have reasonably taken care of themselves good diets, excercise moderate drinking no smoking are here just like the ones who didn't really think about it all they're lives
Some people have family hystery some don't.---So I truly believe it's a crapshoot, of course u'r going to try and beat the odds and be more vigilant in u'r life style and read up on everything--des it really matter it is what it is and if it rears it's ugly beastly head again it will.
I don't mean to sound down--it's just how I see it.
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You gals are so right, cancer is a crapshoot - it's just plain crappy too. I feel like that cat in the chair today, the generic arimidex is not my friend and this lab rat put a stop to the science experiment today. I'm going to try the name brand Arimidex to see if there is any difference. My husband is retired military and they have it at the Base pharmacy of all places. If that doesn't go well, plan Z is I'm also trying to locate the Mylan generic tamoxifen, because I had the least side effects on it, it just became non-available in my area, but it's got to be somewhere, doesn't it?
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This if off-topic, but hope somebody knows something about low BP. Can't get thru to my doctor.
Went for a 2 1/2 hour walk in the local hills with a friend. We took water as it is 87 here today.
On the way home I suddenly felt light-headed and nauseated so sat down on the curb -Was ok after a few minutes, but still didn't feel right when I got home so took BP.
It was 74/55. My normal BP (without medication) is always around 140/90 so this really scared me. I also had a bit of chest pain. BP is back up now to 124/68 and no other pains.
I called the "nurse line" at UHC. She said I probably had a slight case of "heat disease" and said to drink lots of water today and to rest. She said that at 76 I probably should not walk in the heat for 2 1/2 hours! She didn't think I need to see my cardiologist (who is impossible to get a hold o
What do you guys think? I feel good now; except for being unusually tired.
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When was your last work up with cardiologist? And you are on Aromasin.......I would definitely get it checked out, just to be on the safe side.
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I just looked up SEs - and sudden dizziness was on the list, so is chest pain. I would still get it checked out.
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Dogs, are you still on Aromasin? I thought you went off a while back. Anyway, on my prescription bottle it states "can cause dizziness."
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No, I don't take it anymore---
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Shayne: I have Afibs and am on Warfarin so see the cardio every few weeks (or his nurse) On Friday his office was packed; I was there for my "every 4 months' visit and he said "Oh you look fine, I don't need to see you today" So I left. Due to the meds I take for the Afibs my EKG needs to be checked every few months. so I think I'll call tomorrow and make an appt.
Maybe this was a wake-up call? I feel so healthy most of the time though.
Thinks for your replies, Shane & YorkieMom
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if you feel dizzy, tommorrow am you call the doc but I am lots younger (63) and would likely also feel dizzy in heat.
drink a ton of water and call the doc in the am but betting you will not do that again~~
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Dogs ---Call the Dr.---make an app't. OK---B/P changes constantly but the bottom number wan't to bad but the top number probably made u dizzy which can cause that. Mine has been high---all of a sudden--low last month now high they chaged some meds--I've been on the same for yr. and yrs now something is going on. OK they're saying it could be from so uch chemo and herceptin--it's now coming out or maybe not. They can't be definite cuz that would make all the stuff we got hurting us. I don't blame u for being concerned cuz no doubt it has been pretty normal then zap it's screwy--no doubt that walk was to much for u even tho u didn't feel like it was. Even tho u had water it was dehydrating u and rhen everything goes BoInGgggg---but u need to see the Dr. just for u'r own piece of mind and be exact about it and don't take this it might be stuff--u wsnt to know and u'r scared say that.--but don't be scared u'r all right just say that to get in. and CALL
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I will call -even though I feel ok now. Thanks all of you!
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Not to add to the urgency......but this was on our website under the Aromasin info section:
Some side effects may mean that you're having an allergic reaction to Aromasin. If you have shortness of breath or chest pain, call your doctor immediately.
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Shayne that's why the Drs. always ask thst., I bet. I don't know if I have shortness of breath--I know that sounds silly. but normally if I'm not doing things I don't but when I do something extra and my back starts hurting I have to take deep breaths and I wonder if that's what they mean too? Oh I'd better tell them. Geeze I sound like a hypochondriac lately.
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No, you are not a hypochondriac! My docs say I don't contact them enough---for instance when I passed out that time and cut my chin and lip and urinated all over myself. My cardio said "You didn't call 911?"
They want me to see them more than I'm willing to do for blood tests, etc. My ob/gyn wants a 3rd visit to make sure the boil hasn't returned!
Anyway, I think we probably should do what they say even though it is a nuisance.
My cardio NP wants me to have a stress test so I guess I'll do that. She said the chest pain can have many causes, but they want to check me out because I am so active with jogging and exercising.
By the way, I think maybe the Vesicare I just started taking for stress incontinence may have been a factor in my getting so dehydrated yesterday. I'm going to google it, but I know it causes you to get really dry mouth so I'm thinking it must dehydrate you too. Makes sense, don't you think?
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Dogs I would call oncologist and report B/P as well.
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Hope: I don't think he would care - he never took my BP on any of my visits!
I haven't seen him in a few months anyway - figured my internist can do the blood tests and my cardio is very concerned about BP so he follows that.
And since I'm not on an AI anymore I don't think I really need him--
Thanks for the suggestion though--
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dogs sorry didn't realize you were off of it. I am glad you are following up though with someone. That is way way too low as you know. And your body felt it!
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dogs: how is your BP now, has it gone back to normal?
I have the opposite problem -- high BP. My BP is usually about 120/80. Two weeks ago I went to see the neurologist and she took my BP and remarked that it was high, without telling me the reading. I didn't ask but put it down to white coat syndrome. I had MRIs last Friday (brain, cervical, thoracic) which probably increased my stress level. Still waiting for results on the MRIs. Yesterday I checked my BP and it was teetering around 150/90. This morning it was 155/93. I had my annual physical a few weeks after starting Aromasin and BP was normal. I think this is a recent spike. Not sure whether to call my oncologist or GP about this.
I know high blood pressure is one of the listed side effects or Aromasin. Anyone else having this issue?
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Yes, I am. I have always run a B/P on the lower side. My last annual pap the GYN said it was high and keep an eye on it. It is hard to know if it is white coat or not. When I had my last recon surgery after surgery it was way way low and they had to push IV fluids. So who knows. I would call Oncologist and GP. Both should be aware because they probably don't talk to each other. If they are in the same health system they would have access to EMR maybe but I wouldn't take the chance.
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Mary: Yes it is normal today. It went back into the 90s within an hour of the low reading.
I usually have high BP - 140/90 without medication. But it sometimes goes down into the 90's after jogging or exercising. I told the doc I really don't like taking the medication as it is normal many times, but he says since we don't know when it will spike it is not safe to discontinue it.
When I went for therapy for my broken hip it was 178/110. Luckily it dropped within a few minutes.
I guess I have the kind of BP that goes from one extreme to the other.
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Just starting aromasin, after a few weeks on femara, which caused awful insomnia. Has anyone had sleep problems on aromasin?
Susannah0 -
Susannah - I experienced immediate insomnia on aromasin, which I had never experienced before. That has also happened on the Arimidex I have just stopped. I don't know if it was the lack of sleep or not, but on Aromasin, it quickly progressed to making me feel batshit crazy - and from what my family said, acting the same way. They begged me to stop taking it. BTW, my daughter attended Southampton College for 2 years, before it closed and she transferred to Stony Brook where she graduated with a Marine Science degree. I loved visiting her there and fell in love with eastern Long Island.0
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Susanna, I sleep like a log on Exemestane. I usually take Melatonin at night.
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SLEEP no such ing in the normal sttae anmore---And vesides taking all hese pilss who can tell what's for wha. anymore.
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i think these drugs interere with sleep, pretty much all of them. I slept better, I think, on Arimidex than Aromasin. But the lack of estrogen is just going to contribute to sleep probs. Maybe after a long while the body would adjust? idk.
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