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Life on aromasin

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Comments

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Trisha--like u I don't know if it'sthe aromasin or not but I et teased because sometimes I'm so cold, I have a sweater and blanket around me and it's 75 out so whatever is happening it's something that never happened before.  And good for u 30lbs wonderful.

  • SusannahW
    SusannahW Member Posts: 375
    edited October 2012

    I've become very whiney since starting Aromasin. As someone wrote on another thread about another ai, I just feel"blah." Am hoping this goes away with time, or that I'll get used to it.

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Susannah GM some things kind of fade and some don't--I guess u'll have to see with time what will happen with u--we're all so different and how we feel with it. But one thing we all have in common is we all respect the others and how they feel...I don't doubt anyone. I think these meds are butal, but not everyone has all the reactions. so......

  • SusannahW
    SusannahW Member Posts: 375
    edited October 2012

    Thanks cam. Actually, the other poster said being on ais felt "bleh", which I think is much more accurate. My computer changed it to blah.

  • shayne
    shayne Member Posts: 524
    edited October 2012

    Susannah - Im feeling the same.  I force myself to exercise every day, get outside in nature, write in gratitude journal.....and it does help.  It was worse the first couple months, I feel, today anyways, that maybe its starting to lift.

  • SusannahW
    SusannahW Member Posts: 375
    edited October 2012

    Shayne, that's good news, and good advice. Just back from the dentist and off for a long walk now. Better days ahead.

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2012

    Thanks Camillegal - I'm thankful that I've been able to loose weight on Aromasin, I know many others put on a lot of weight on it, still have a fair bit to loose though lol.  At least there's one other that's become a cold duck like me :-) It will be interesting to see if anyone else is the same. And I like the personality you have now lol

    Shayne good news you are starting to feel a bit better.  Apparently exercise makes your body secrete more ... hmmm ... I can't remember the word!! lol but a substance that lifts the mood.  I have a girlfriend who is prone to depression and she exercises religiously everyday so that she doesn't have to take meds for it.  It's worked for her for many years so far.  

    Trish

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited October 2012

    Maybe endorphins?  I started running while in the midst of a terrible depression.  After a few weeks I was able to go off my medication. You can also get endorphins from exercising really hard and they even kick in during childbirth!

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2012

    Yep Dogs - that's the word!  Enorphins are amazing :-)

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2012

    Camillegal - lol I like that one! I guess you are nearly at the going to bed stage, I'm at the getting up stage, not too sure what the time difference is between where you are and Australia, but it's only 7.30am here :-)

    Trish

    xoxo

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Trisha it's 4:15 PM here  and u wrote that about 45mins ago---so not yet for bed.  But sometimes when I'm up during the nite I go to te insomniacs post and have met some really great women from Downunder LOL And across the pond LOL so I'm on here alot. I'm retired so here I am.Si during u'r daytime try the insomniacs one too. I honestly have been blessed meeting such wonderful people (women) thru cancer which is not what I planned, It's so nice for me and thru the years we've gotten on FB together so we in alot of conversations but not about cancer just some fun stuff mostly and we talk privately too. So I got lucky on this computer which I got about 2 yrs ago, never having one or being on the internet. I'm all over the world on here thus my travels continue.

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited October 2012

    Camillegal - yes I have met some amazing people on this board too, it's one of the pleasant surprises that comes from such an awful disease.  Will have a look at the Insomniac's page, would be interesting to see what people talk about when they can't sleep lol

    Trish

    xox

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Nthing earthsarrweing--We;re talking music riht now. LOL

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

     ^^^^^^^^ Boy can I not type --Wt...

  • shayne
    shayne Member Posts: 524
    edited October 2012

    starting to realize that the few SEs I have, are the same I had when i went thru menopause.  The depression especially.  Wondering if this will pass, because Im not sure I can do 5 years feeling like this

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Shayn make sure u tell u'r onc. there are meds to take care of the meds for some things which will cause a whole other set of side effects so more meds are taken for those meds.----I teasing. It'a my sarcasm that gets me everytime.

    But I am serious about telling u'r onc. exactly how u feel all the time and listen to her suggestions.

  • shayne
    shayne Member Posts: 524
    edited October 2012

    Im putting in a call.  Damn office wont give me my lab reports - had full blood panel done - Would really like to know if there is something else going on......do not want to take more pills!

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Shayne I understand and maybe u don't need them but u'r onc has to know how u feel---why won't they give u u'r results???

  • ptdreamers
    ptdreamers Member Posts: 639
    edited October 2012

    I beleive that legally they can't deny you a copy of your report. Any lawyers out there that can verify for us.

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    I know I had and have no problem getting my labs, in fact while I was etting chemo they used to give them to all os us--that enabled us to play liars poker with out blood tests. Kept us busy.

  • pupmom
    pupmom Member Posts: 1,032
    edited October 2012

    At my hospital we can access all of our records online. Just have to sign up.

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Yorkiemom I did forget about that --I have all the sign up info--just never did yet. The world is one bi computer and we are the mouses.

  • shayne
    shayne Member Posts: 524
    edited October 2012

    My labs were all normal.  The nurse couldnt find them at first - think they were not in my chart.  She said she didnt know why I didnt get a call back.  I left a curt message......saying if they were not going to call me back with the results - then I needed them mailed to me so I could go over them with someone else.  My vit D levels were STILL low!  Higher than before, so I need to up my dose.  I was about to go in to my music class, so couldnt go over my SEs with the nurse.  Will call back and see what they say.....

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Good Shayne they found u'r results. Make sure u go over all of them later. Good

  • ohio4me
    ohio4me Member Posts: 323
    edited October 2012

    My knee pain still persists. I am trying to be more diligent with Caltrate-D twice daily as that seems to help some. Someone also mentioned fish oil but I haven't tried that until I talk with my MO. I take Meloxicam daily for 'arthritis' inflammation/pain although I have never had a confirmed diagnosis of arthritis. Was in San Fran last week and really made a point to walk a lot but my knees hurt the same every day. Walking more just does not seem to help manage the pain.

    Also plan to talk to my MO about anxiety/depression. Ativan helps - unless there is something different she recommends I'm going to ask for a refill. I used Ativan during chemo and it was good.

    I'm still clenching my jaw at night causing dental pain. I'm wearing night guards but I must be clenching hard cuz I still get pain. Don't think this is an Aromasin SE since it starting during RADS which was before Aromasin.

    Just always feels like something is lurking and if I get one thing in control up pops something else.

    But - at the end of day - it's all good. I can take care of myself and my household (live alone) and don't need to rely on others for daily activities - that's good. I may not have the energy I had pre-BC but it is improving over time, I just need to learn patience. I don't like the knee pain but it is not so bad that I don't go places (I just whine about it :). When depression hits, I just cry into my pillow and then I'm better - sometimes life calls for a good cry.

    Can't say I like being on Aromasin - it is like being in Acute Menopause. But, that must mean I have little to no estrogen which means the meds must be working so I keep taking that pill daily. For now - I'd rather fight the side effects than another round of BC.

    Note: I reserve the right to change my ming!

  • camillegal
    camillegal Member Posts: 15,711
    edited October 2012

    Ohio, so far everyday is a wonder and everyday something does crop up. Whine away I don't blame u and maybe u can get something better for u'r depression. I don't know really--To me this just goes on and on one way or another and it's tiring.

  • ohio4me
    ohio4me Member Posts: 323
    edited October 2012

    Camillegal - you are so right. Something always crops up. Sometimes I wonder if all these are 'new' things or if I am just more in tune with everything that happens. Maybe I've been grinding my teeth for years and it is just now causing problems. Maybe the joint pain really is arthritis - but I'm less tolerant now that I can blame the meds. Maybe I'm not really any more depressed than ever before. Every one needs a good cry on occasion and I don't think it's any worse now than ever before.

    For today - it's chin up and bear it. I have things to do, places to go and people to see. I refuse to let these meds (or whatever it is) keep me down.

    Life is full of good days and bad days - and I'm calling today a good day!