Kiwi ladies who need encouragment, but all welcome.
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Unfortunately I still feel crappy. Hoping Monday's onc appt will come up with a plan to deal with it.
Def time of year for bugs. My son has gone back to school today, thank goodness
My daughters 20th today. She's at uni, but home later in the evening I think, for the weekend.
I'm glad it's friday, here's to the weekend
Have a good one
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KT bummer you aren't feeling better. Hopefully Ruben will come up with a plan to sort things out.
I too have a child home sick today with a sore throat and cold.
yes Nikki Junk free june is fast approaching. I've been preparing by eating lots of chocolate. My daughter is excited about it my 19 yo son not so much.
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Oh kt - not good to hear you are still feeling crappy. Let us know how Monday goes - hopefully something can get sorted for you.
I'm going to a Pink Ribbon breakfast tomorrow...I know..we are over pink etc but the ladies who have organised it have done their best. I'll be thinking of you all and taking you in my pocket. No one knows as well as us what it's all about that's for sure.
We have the fire going tonight and just watched the Hurricanes beat the Blues on the telly. :-). Can't believe the canes are finally doing any good lol. It's been a while. Looks like rain up there. I think we are due to get it by tomorrow night.
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KT good luck with your scan today, and your Onc appointment tomorrow x
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Good luck with your scan and appointment, KT. Hope they get it sorted out.
Shazz - love that you're getting ready by eating chocolate. I don't think I'll do junk free June, but maybe minimal junk June. My birthday is in June and I have a chocolate cake picked out.
Also hoping for a brunch at Quarter Acre Cafe, which is wonderful food, much of it quite indulgent. So I figure I can get a pass on "junk free" for my 60th. Kruise - I did a pink ribbon last year, but with a twist. Elva from Sweet Louise and I were the keynote speakers.
Then (this was fun), they auctioned off men to raise money. The men offered up services - lawn mowing, cooking, window washing (I won that auction!), etc. For Otaki, it was pretty well attended; about 50 or 60 people turned up. And yes, I'm over the pink thing too, but this actually spread some awareness of Stage IV. They raised almost $3K and donated it to Sweet Louise. Another friend had one yesterday in Auckland. Her mother passed of BC and she knows about mine. They raised about $1,000 an donated it to Sweet Louise. I reckon any awareness is good, even if the pink thing is a bit much. Maybe we should start a grassroots movement so when people "think pink" they think stage IV.Sorry you ladies have sick children. I hope it's not the crap I have. Yes, "have", not "had". Still fighting it. Much better though, and I MUST go back to the office tomorrow - I've been gone for almost three weeks now between travel and being sick.
Hugs to all,
Terre
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Wow, that was a nasty cold ? Flu, Terre. My lot are mostly better, tho dh thinks he might be getting it now.
Looks like it might be brightening up outside. It's so windy & cold & wet I don't feel like going out. It just might come right in time
My dd is insisting on driving me to the scan. Then we'll go to my brothers afterwards to say happy birthday for next week. Other family will prob be there so that will be nice. It will be nice to get the scan over with, & even nicer to hopefully come up with a new plan for dealing with things tomorrow.
Thanks for the well wishes everyone. Enjoy your pink brekkie Kruise. & make the most of junk before June Shazza. Don't know if I could forsake chocolate (does it even count as junk, surely it's good for us)
Catch you later.
kt
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No surprises. I have another pleural effusion. The dr looked at my scan & came out & told me. It can wait to be drained tomorrow. So it might be a long day at Ak hosp tomorrow, supposed to have onc appt & aredia infusion (3hrs) too!
Was good to see my family at my brothers too. My dd got to see her cousins, so a nice time was had.
My mum will come with me tomorrow. Early start to get to hosp by 9.
Hope everyone's had a good day despite the awful weather. I'm glad I'm home now & can snuggle up...
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KT...well hell! Sorry you're going though this. Glad it will get sorted tomorrow and you got some kind of fun in today.
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good luck today KT. Hopefully they come up with a good plan to keep you comfortable.
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hope it goes well today KT x
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Hi Ladies, I hope you are all keeping warm with this horrible weather. My poor son is working outside in Ashburton and doesn't know what's hit him! I'm sorry to hear about your problems KT and hope they get sorted really soon. Keen to hear more about junk free June, but doubt I would be any good at it as I don't have any will power whatsoever. Take care everyone, Donna xxx
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Back from auckland. Feeling tired and a bit overwhelmed. Reuben thought effusion didn't need draining so that was good. It certainly doesn't feel as bad as the last one. Had X-ray to check. But may have to have pleurodesis in the future (talc in lining of pleura). Hope not.
So I got a choice- 3 weekly taxotere with more risk of infection (harder according to Reuben) or taxol weekly (more inconvenient, but apparently easier?) so I went for the easier one....hope I made the right choice! Shame to leave xeloda behind, but I wasn't confident it was still working. So hard to make all these decisions, sometimes easier if you have no choice. So now I am on the waiting list to have a port then chemo.
Is it hard having a port put in? Not looking forward to it. Can I get off the bus now?
I'd rather not have stupid breast cancer to begin with, feel like having a wee paddy!!!
I'll get over it, I hope
Hope the weather is improving for you now, sunny here. Some friends have gone to do the Otago rail trail, bad timing as it sounds really cold down that way! Your poor son, Donna.
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KT I think you are well and truly deserving of a good paddy. Horrible to have to make those decisions. I really admire how well you cope. My son is off to Bali in a couple of weeks with his girlfriend. They are both 20 and so cute but I do worry about them in Bali? So we can't feel too sorry for him. Anyway, take care KT.
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Thanks, Donna.
Very cute about your son
At least he can warm up in Bali after the cold of Ashburton. So long as they don't smuggle drugs in they'll be fine We loved Bali, especially Ubud. Didn't spend too long at Kuta beach- too busy & touristy. But lots of nice places to visit I'm sure. Reuben just rang before with X-ray results so got to have a chat and now feel a bit better re new chemo.....
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That's good KT, Reuben sounds really lovely, I think you guys that have him are lucky, it sounds like he has the human touch! I've always been paranoid about my kids going to Bali, but they should be fine. They are going to Bangkok as well to ride the elephants haha. Oh to be young again and know what we know now aye? Take care and stay warm xxx
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KT so pleased that you have a plan. A plan is a plan, which is better than the plan which has stopped working. I think it's easier if you don't have the choice, then you don't get the chance to second guess yourself. Glad you picked the weekly option, it sounds easier than the 3 week taxotere, I had that and it got more difficult with each cycle. It was doable, because there was an end but it was challenging.The port thing was easy (seriously), not pleasant but not as bad as I thought. I have had lots of worse things done over the last year. Take the mild sedation option, suggest it if they don't offer it, it made me more relaxed.
Paddy away, I would x
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Donna, my niece and her boyfriend just came back from Bangkok and Bali. They had a ball. My sister was worried but they were fine.
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KT what a bugger having to move to IV chemo after the relative ease of tablets at home.
As you know I've been on weekly Taxol for over 18 months number 80 tomorrow. Its been a pretty straight forward chemo for me all though it does have its moments. Fatigue is probably the biggest thing. Having said that I'm still able to work 30 hours a week. I wouldn't be without my port. I am so in love with it.
There is a thread on here called weekly Taxol for Stage 4 which you can join me on. There are a few new girls just started.
Cancer is such a bitch I think a good paddy is good for the soul. Good that you were able to chat Ruben and he could put you at ease.
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Fizzdon, you're right, Reuben is good. And Nikki, it is good to have a plan
even if it doesn't appeal right now. I'll get used to it. Shazza, thanks, I will join you on the taxol thread- I might wait till it's closer to happening tho. What side do you have your ports in? Do they bug you when wearing a seat belt etc?....
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my port is on my right side but only because I had only recently had surgery on my left. It doesn't bother me at all now although it did take a wee bit of getting used to. I ended up having mine done privately through insurance as the wait was too long at Auckland hospital. They do make life so much easier at chemo and they can use them for CT scan contrast as well.
I don't think the veins in my arms could have coped with the number of chemos I've had.
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My port is on my right side as well. There wasn't a wait at middlemore so I got mine 2 days before chemo started, my 48th birthday present from CMDHB. I remember Shazza saying that she loved hers and I was sceptical, scared actually, but it was fine. Funnily enough I was thinking the other day that that it hasn't affected me at all but I remembered that I haven't worn a necklace since I got it. Sometimes it twangs me just to remind me it's still there. It's never bothered me wearing a seatbelt.
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Hugs Kt. My port was done at Auckland and only has to wait a few days.
Had weekend away at a meeting and found it cold when I got home as had been in a heated building for three days. Hope you are all keeping warm.
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Thanks girls
I hope you're all keeping warm. Hope this cold snap ends soon, maybe for the long weekend coming up. We can hope anyway
kt
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Just had a call from North shore hosp- I get my port tomorrow afternoon! Suddenly it's a bit scary. I'm going for the sedation option for sure!!! Im glad you girls have been there before (you know what I mean) so I know it's ok and doable!
I also have look good feel better in the morning. Also on the shore, so lots of driving- tho my mum or dad will have to drive me home from port placement.
I hope you're all having a good week
kt
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Good luck KT, I hope it all goes well for you. I've never had chemo so don't know what it's like but certainly sounds like a port is the way to go. Take care and let us know how you got on, Donna xxx
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Good luck, KT!
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Easy peasy KT. Glad you're taking the sedation option. x
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Good luck KT, I'm glad you're having the sedation option too. I don't think you will regret the port. Especially as chemo is a long term thing for us Stage 4 girls. I was looking around the infusion room yesterday at all the people without them. They were busy soaking their hands in hot water and the nurses had to spend time on vein hunts. It was so much quicker and less painful/ stressful for the port people.
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Thanks girls. I think you're right Shazza. I'm already getting tired of the bloodtests, IV infusions, leurs for CT scans etc. I guess I'll still be jabbed in the veins for blood tests.
I've been house working like mad to make up for the downtime after the port placement.
Sun is out today, much warmer
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Good luck with the port KT, it sounds like the way to go. I admire you stage IV girls...how you just get on with it all.
Bloody freezing here, sitting right next to the fire. In the middle of extensive renovations so the kitchen is the only warm place the rest is all open, have to go to bed with a hottie (hot water bottle I mean).
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