I look for other flat chested women. A rant.
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MT1, no that's a cat I kidnapped off Google images. However I have lived with cats as part of my household my whole life. I am currently cat-less for the first time in 43 years, my baby died at Christmas 2011 at 18, and my other cat at 20 in Aug 2011. As I got diagnosed with BC Jan 2012, not having cats to look after in addition to my children probably worked out for the best, but I do miss the gifts that cats bring to a home. Often think that cats are very good role models for women: they conserve energy until it is really needed, they have grace and poise, a sense of timing and they are unashamed to be themselves, and also unashamed at looking after themselves. They are also wonderful mothers. I could probably do without the all-meat diet though.
Painterly, best advice I could pass along on drains is to ask the person removing them to work with you so that you can give a powerful exhale when the drain is being pulled out. Don't have to tell you that you are tender there, and those drains are long. The first drain was removed one day before the other in my case and the nurse who did it advised me on the exhale. It really worked for me, I felt no pain, and I had really been dreading the procedure. The next day when I was having the second one out I had a different nurse. She didn't say anything about the exhale. Luckily I knew from the day before so was able to ask her to time it so that I could do the breath out. Again it really worked well.
Best wishes for getting them out, it's great to get them out, those things suck!
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My drains were removed five days after surgery since they were draining less than 25 mls in 24 hours. My surgeon did want me to wear a sports bra with padding for two weeks to help prevent fluid build up. That worked very well.
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dfranken, I had bmx in oct 2011, still have problems, but there is a very slow gradual improvement. Each person heals at a different rate, each person has a different experience of pain, numbness, and other symptoms. One oncology nurse that I talk with often said she thinks we should all be told to take 5 years (yes, FIVE YEARS) to expect to feel normal again. Many women are back to more normal life within 2-3, but for many it takes so much longer. Those who are back to normal within a year or so seem to "set the bar" pretty high for those of us who take longer, so we begin to feel like failures, like we are not doing enough to heal, etc etc etc. I am finally learning that it will take as long as it takes, and trying to hurry things along simply set you back instead. If you need rest, take it, because that is what your body needs to heal. If you need to play and laugh, that is also needed. If you have pain or discomfort, it is your body telling you that you need more time, so take it. I was very upset intitially at all the pain and discomfort, and I still do not like it, but it is now a fact of life for me, and I can either grump about it or find something that is beautiful in each day, a moment of joy here or there to allow me to appreciate those who love me. Most of the time I choose not grumping, although I still do enough of that as well!
Drains. Ecchh. I actually read that some surgeons are not using drains, but are using compression from the start to keep seromas from happening. Some study done in the last couple of years, but it hasn't caught on with the majority of surgeons yet. I think the trick is that once those drains are out, keep very good compression, either with good sports bra or even ace bandages for a few more weeks to keep the fluid from accumulating. And I agree with the exhaling while the drain is being removed to keep discomfort at a minimum. I didn't even know mine was out until the nurse showed it to me with this technique!
My cat has been curled up with me all morning. Her warm snuggling body gives me a great deal of comfort. However, her annoying habit of pulling my hair at 5 am to feed her, and her chewing on the earpiece of my expensive eyeglasses and books, papers, computer edges and anything else she can sink her teeth into make me crazy. Why does she chew on these things???? She is more like a dog some days ....
Wishing you all a flat and fabulous day!
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Ooh! Linda! More stories about your kitty please!
Many thanks for your wise words. And your cat does all of those things because she loves you, I am sure of it!
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Thanks Ladies. Oh and thanks Feelingfeline for the exhaling tip when the drains come out!
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I have not posted in a very long time. I kinda had an emotional breakdown/idenity crisis type issue the last couple of months after having been fired upon my return to work after my second mx (2nd mx was done as prophylactic to help reduce my fears of recurrence - for those who don't know me). I am gradually geting a grip on things but it is hard to get rid of the anger. I know that my old boss took my original position at work away and gave it to a co-worker after my first mx - because of the mx - she tried to make it seem like it was a perfectly reasonable thing to do. After all, she said, I might get sick again and it is essential that there isn't any gap in that position (I felt like I had been punched in the stomach, but I had to accept her decision - she owns the firm). I didn't realize at the time how much it bothered her that I had the mx in the first place. (her husband's EX-wife had breast cancer and his divorce may have been linked to it. I think seeing me made her think about that and made her feel vulnerable - I know she would not be able to bear having an mx without immediate re-construction). I don't think she could bear having me come back flat after the second mx, especially knowing that it was my intention to remain flat. Unfortunately we live in a world where other people's neurosis can have a major impact on our lives. Maybe she should have just told me how much of a problem it was for her - but I guess it was easier just to get rid of me - out of sight, out of mind. There was so much going on in my life after the first mx I never really dealt with all the emotions (has anyone really?) before I had the second mx and then, at a time in my life while I was struggling with these emotions and my personal view of myself without breasts, I lost my professional identity as well. poof - meltdown.
Anyway, as I said, I am starting to get a grip on things. I have found some part time work (at a much reduced rate of pay), but I am so tired all of the time. I know the exhaustion is a combination of two separate mx surgeries in 13 months and all of the emotional baggage. But working again gives me some much needed self esteem, and hopefully it will help me to get over the unfairness of life. I have started to think that I might actually were prosthetics - I have ordered them - but I want to make sure if I wear them, that I do so because it makes me feel good, not because of what happened with my job. They may have to sit on the shelf for a while - I really don't know.
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Good thoughts sent your way, Djustme
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Bobogirl, my cat does those things to annoy me, I am quite certain! But she is cute, warm, snuggly, and purrs a lot - I am sure my blood pressure drops 20 points when she sits on my lap, but I am equally sure it shoots up about 40 points when she starts with those annoying destructive behaviors!
Djustme, so glad to see you back, so sorry you lost your job. I also lost mine, and it was done in a rather sneaky way so that it looked like I actually agreed to it .... long story that I won't go into here, but I also felt like I had been sucker-punched. For me, I realized how absolutely fatigued I have been, and struggling to work was slowing my healing and may have been a factor in recurrence and progression. I will never know, but I have done some creative financing planning, and have been fortunate enough that DH and I can live on his salary now, and so I am focusing on healing and taking care of ME. And yet I do miss my profession and all that goes with it, the identity, the colleagues, etc.
As far as wearing prostheses or not, you are quite right that you need to do it because it feels right to you, not because you are trying to please others or fit in. I have mine in a box, I can use them if I want, but most of the time I am just not wanting to take the time to deal with them, and I still have some pain issues with some clothes. So one day at a time, wearing what feels good or right for the moment.
OK, exciting news everyone! I have not bought a pair of "cute" shoes since 1978. Until this week. I have always bought shoes for comfort, and we all know that flats and Birkenstocks are not really considered "cute." So I was traveling with DH last week and on the way home we stopped at a big mega-hunting store filled with dead animals that had been taxidermied like crazy (I am a vegetarian and found the whole experience very unsettling), so I headed for the sale room that had none of that stuff in there, and can you believe it, I found a pair of shoes that are flats, my size, fit like a glove, and ARE CUTE!!!!!! I had this confirmed by a friend who commented on them today (without any prompting, I might add!). WOW! I realize this has absolutely nothing to do with foobs vs. flat, but it has to do with looking good and feeling good, and this is not my usual approach to fashion (actually I don't really have any fashion sense, but I do try on occasion).
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Djustme, glad to have you back. ((((HUGS))))
Bobogirl and Linda-n3, my daughter's cat does the same thing. He'll be a year old in a couple of months and still doesn't have his side teeth. He has chewed through charging cords, ear phone cords, light cords, you name it and he's tried chewing it.
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Djustme, so great to see you back. So sorry about the job, and the fatigue. The tiredness will pass, and as you said, you're getting your self esteem back.
Take care of you, thirteen months is not a long time for you to heal from all those stresses on your body. Take it slowly, you'll feel much better if you pace yourself. There is plenty of time to get back to where you want to be.
To both you and Linda, those foobs can sit in the box for as long as you want. They are there for the time you may feel like wearing them, or not!
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Djustme, Glad to see you back. Sorry about the job. That's really hard.
Linda, Wow. Comfortable cute flats on sale! That's the jackpot.
And you're all right. The foobs are because you want them, not someone else.
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Sorry Djustme. That all sucks.
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Linda, congrats on the new shoes. Good shoes can get you through all kinds of crap. I love nice shoes and cancer has led to my having quite the collection New shoes are my favorite mood booster.
Djustme, sorry for your troubles, what a crazy thing you had to go through. Glad to hear that you are climbing back.
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Djustme, hello. Sorry you have been through so much. I too lost work, but not by being fired by mean boss, simply lost it by being unable to return to work after being out on 6 year career break raising my youngest to school age. When I was about to return to work I got dx, literally days before. So I had to give up job and let them hire someone else as I simply could not return then. This was a financial blow, as it would be to most people, but obviously I had bigger things on my mind right at that moment. Now a year out, in the middle of a recession (yep, we have a bad one here in Ireland) with work prospects skinny (jobs for sandwichmakers are requiring 5 years experience!!) I found myself with a first class honours degree and not qualified to be a sandwich maker (no disrespect to sandwich makers). However the wierdest thing has happened. I discovered loads of free, and nearly free tuition leading to new qualifications. I was originally qualified as a graphic designer, back in the pre-digital era. Haven't worked in the area in years as I took a locally based admin job that was more compatible with working round family. Now I am back studying, learning creative multimedia, web design and development. I'm doing a variety of part time courses at the moment, am absolutely loving learning again, and have aced all my exams thus far. From September I will be on a full time postgraduate course by the end of which I should be fully qualified in digital design and development and I'll just have to find out how the jobs market is then. Now there is absolutely no way any of this would have happened if I hadn't got struck with BC, as I would have gone back to an admin job, that I could do comfortably and competently. That would not have been a bad thing, but I would never have felt as alive as I do right now learning all the things I am learning. This may not be the change that will happen in your life, everyone's path is different, but what I am trying to say is that there is light at the end of the tunnel. You are going to come across good, maybe even great, things and you are going to be glad you saw the back of that mean boss.
Linda-n3, I want to go to that store!! I am a vegetarian too. Cat lover as well. (Never had a chewing cat, but I did have a retrieving cat, Primrose, she would fetch cat toys in her mouth and bring them back to be thrown again, just like a dog). You will all laugh when I tell you all the risk groups for BC that I didn't fall into, and then some. I'm sure many of you have a similar list. I was a non smoker, non drinker, never did oral contraceptives, second generation vegetarian and here's the real punch line, not only did I breast feed both my children for 100 years but for 8 years I was a La Leche Legue Leader (international mother-to-mother breast feeding support and information group). The irony of it! Honestly I had to laugh myself at getting a mx after the years of LLL! Only other people who have had mx can truly appreciate that you actually can laugh. Before I had BC I used to feel so sorry for anyone I heard of who had mx and think it must be an earth-shatteringly awful life sentence. NOT SO!!! I know that now.
Linda-n3, you mentioned bp and purring cat. Everytime I have my bp measured, incl in my pregnancies, I always close my eyes and pretend I have a purring cat on my lap. It combats that "whitecoat effect" a treat.
Djustme and Linda-n3, re not wearing prosthetics. I have not yet done. The couple of other people I know with mx here in Ireland did not feel odd about wearing them so it was great to hear of others here on this thread. I want to pass on is something a very wise friend said to me when I talked about this with her. She said "At any time there are a range of possibilities going all the way from taking a second mortgage on your house to hire a personal shopper who will go with you to buy a whole new wardrobe. (quite like that one but it's not in the budget) to putting the box with the prosthetic in it, unopened, on the mantlepiece, and building a shrine to it. Thus far I have gone for the shrine option, but not on the mantlepiece. More like a shelf in my wardrobe. But I know that everyday the choice is mine, I can wear it if I want. Just haven't wanted. So nice to hear some others feel the same!! As I did feel odd, about feeling odd!
FINALLY, I love this "flat and fabulous" tagline, but does anyone have a good one for lop-siders like me? Lopsided and Lovely? Lopsided and Luscious? Lopsided and Loopy? XXX
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Djustme, Good to hear from you again. I really do believe for some of us, losing our breasts creates a post traumatic stress disorder.I am traumatized, it still hits me at times, it was/is an emotional breakdown of sorts.
I also lost my job and it annoys me that people say "but that isn't legal",,,well, it still happens all the time. So we lost our breasts, as well as our jobs, it is life altering. Not to mention the thought that we had/have cancer...that is huge.
I am glad you are back, keep airing your thoughts, it really does help to talk about it.
Oh, I have foobs in the box too...they still hurt ...I need to wear them when I want to, not because I feel pressure.
Grays Anatomy annoyed me last night, everyone making such a fuss about how fantastic Arizona looked in her "leg with high heels". Give me a break, a prosthetic leg with high heels? I just felt annoyed this was a message being sent to women.
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Feline, thanks for being a LLL leader! A local group was so incredibly helpful to me here, even though I only had a couple contacts with them. Simply hearing stories of women who had trouble getting started helped me get through the 3 weeks teaching my NICU baby to want to suck on human flesh, not a silicone nipple.
I will try to think of a fun uni label. I like calling myself a "flattie," and if I ever get a T-shirt I'll probably put that on it, but I've lost steam for so many things recently. I'm not jealous of the un- or under-employed, but my job is eating me up.
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Feline, my list is so similar to yours, I shouldn't have gotten BC either, being the opposite of all the risk factors! And just before I was diagnosed, there was an article going around Facebook about breastfeeding for 2+ years drastically reducing the risk of BC. I figured I must be safe since my son had just weaned himself at 3.5 years (he didn't even eat solids until age 2!) I was also very active in LLL and started the process of becoming a leader, but couldn't afford it at the time. I want to get back into it once I'm done with chemo & stuff. A LLL with no breasts... hmm.
But, seeing as I'm only 30 and had hoped to have more kids... it kind of does feel earth-shatteringly awful for me to have a MX. My poor son keeps asking me how we can feed a baby if I don't have breasts anymore, he's even more upset about it than I am.
On the plus side, I think I do look fabulous! I want to post pictures everywhere or something so the world can see that you don't need boobs to look great. I have always had such poor self-image but for some reason this experience has given me so much confidence and I am happier with my body right now than I've ever been in my life. My body is strong. My body is fighting to survive. I am so proud of my body for all it can do, and love that before I lost them, my breasts spent almost 4 years helping my child to grow & thrive.
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Indenial, I have had a similar reaction.
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Indenial, I totally get what you are saying about how earthshattering the loss of breasts when you would have hoped to breastfeed another child.
Re photos there is a lady who has put photos on flckr and MT1 put up a link early in this thread so you may have seen it, but I will repeat it here
http://www.flickr.com/photos/sentenced2live/sets/72157594534895235/
She looks great.
Your admiration for your own amazing body is well founded. You are so right you are amazing. And now you've come through all this treatment too. Wishing you well. XXX
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Feelingfeline! Thanks for that link to the photo. How gorgeous is that girl!
I looked at many photos before my Mx, and was fascinated by the strength I saw in those women. My own Mother was a wonderful role model for me too. She had a radical Mx in '94 with full axillary clearance. My goodness, but she was brave. I was in awe of her at the time, but I didn't really apppreciate what she went through, who does, till they have a similar experience. My experience was a breeze compared to hers.
I feel great when I hear of the younger ones here, like Indenial, who see their bodies as "amazing" after they have gone through all this, but I know it isn't that way for everyone.
I am an old girl, almost 60, and I am just so surprised at my own take on this, even with my Mother's experience. I have no negative feelings about the way I look, and although I had a lifetime of "a great set"LOL I was a model in my much younger days, and worked in the beauty industry, and the entertainment industry, both fairly unforgiving when it comes to "looks", but I am strangely proud of this scar, and feel far more powerful, because of it, if that makes any sense.
I guess for me, the planets were aligned or something, because it could so easily have gone the other way, as it does for so many others, I feel for those who have had such a rough time, both with their surgery, and their identity afterwards. Losing jobs on top of it all must be devastating, and would obviously put a completely different spin on it. I really do hope, that with time, their experience gets better.
You are all inspirational women, and I am so glad to have found every one of you!
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Wow such lovely smooth scars, mine is all uneven, lumpy and with folds of flesh in places, does not look anything like hers, she does look powerful and youthful......
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Ariom, What a beautiful post. You sound pretty inspirational yourself. By the way, total truth, I had thought you looked radiant and gorgeous in your photo when I first started on this site, now that I know about your background I see why!
Lily55, I see you had your surgery just a couple months after me. While I didn't feel like my scar was very pretty, the nurses in the hospital would all exclaim over my surgeon's "beautiful" work when they dressed it. He was renowned for his beautiful work apparently! Beauty is in the eye of the beholder seems I was incredibly lucky to get the dreamteam in my surgeon, anaesthetist and oncologist. Anyway, just in case this is of interest to you: When I was diagnosed my fitness league teacher sent me an article about a scandinavian study showing that women using high factor (16umf or higher) manuka honey moisturiser, rather than just moisturiser, did better through radiation. I figured I had nothing to lose so invested in 6 fat tubes of 30+umf organic manuka moisturiser. I had plenty left over after radiation and have continued to use it, I'm only coming towards the end of my supply right now. I have watched the scar fade and parts of it, the parts further out from the fold near my armpit, have literally become normal skin again, without scar. Maybe they would have done this anyway, I don't know, but I personally felt that the manuka moisturiser definitely contributed and have had no hesitation recommending it. I was very grateful to the kindnes of my teacher as I would not have come across this info anywhere else, the hospital just recommended the bog standard moisturiser.
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Thank you ladies for all of your support. crystalphm, thanks for sharing - it's good to know I am not the only one who suffered such an emotional breakdown from the radical changes to my life that resulted from circumstances beyond our control. Who knew that those few mutant cells that decided they were taking over would have such life altering consequences. It is probably a good thing for me to be away from my ex-boss, as she really was quite verbally and emotionally abusive at times - not a good environment to try to recover in. But despite how bad my boss was, the position and the job satisfaction, measured by the numerous clients and other professionals who frequently praised my abilities, was such a big part of what made me feel good about myself. My new job is more on an intermediate rather than senior level at a greatly reduced salary and is only part time and only temporary. But hopefully just knowing that I am able to do a good job at something, regardless of what it is, will boost my self esteem. (If my son was still young, being a good mom would also help with self esteem, but I am also a fairly new empty nester). I am hoping that the energy will start to come back if I am less depressed, and more sure of who I am. So those are the things I am working towards. Taking courses as feelingfeline is doing sounds wonderful, but I need some energy in order to do that.
And yes, I think those prothsetics will probably sit in the box more than out of it, but I think having them will give me a feeling of being empowered by knowing that they are there and it is MY choice to take them out of the box or leave them there. That is what I am hoping for (I pick them up this week). Unfortunately my dh seemed a little too happy about the fact I was ordering the prothsetics, and I am worried that this is going to be yet one more source of pressure to conform.
I never wore a foob during the time between my two mx's because the scars were, and still are, too painful for a bra band. I have taken the suggestion (sorry I don't remember which of you suggested this, but it is brilliant) of taking a very soft t-shirt material sports bra; making a snip at the top of the armholes on the inner layer of fabric; and sewing a line down the middle of the bra to create two pockets. I have worn this a couple of days without any foobs in it, and it is way more comfortable than any conventional bra could ever be! This will at least give me the power to choose, and after having so many choices in my life taken away from me, the power of having the choice of foobs or no foobs seems like a victory.
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Lily, Notice the position she's in. My scar is all wrinkled and saggy, but looks smooth with my shoulders back and arms behind me. I don't think mine looks all that great, but when I imitate a swimming motion, I can see that I need that skin.
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Thank you so much Felingfeline. I appreciate your kind words so much!
You have a very generous, beautiful spirit that comes out in your writing.
You're a Uni, like me, too!
I am going to look for the Manuka moisturiser, it sounds wonderful. I have Manuka Honey from New Zealand, in my tea.
When I told my surgeon of my decision, to forgo reconstruction, I said I wanted the best and straightest scar he could do, because lots of people are going to want to see it.
He was there when I woke up, and said, he had done what I wanted, and it was so straight, he had checked it with a spirit level. In my anaesthesia stupor I remember slurring, "Oh Wow, really!" and he laughed out loud, and said "No!" "But it looks good!"
Apart from a very small "tag" at the very end, which is slightly around the back, just past the armpit, my scar is flat and tight, without being bothersome. It also extends onto the other breast by a couple of inches. My surgeon explained that there was a slight pucker in the front that I wouldn't have been happy with, so that's how he fixed it. I was also amazed that sun damage I had from a lifetime of sunworshiping in Australia had gone, and the slight saggy neck I was getting was gone too. Who'd have thought there could be any unexpected positives with this surgery? Not me!
In the beginning it all felt pretty tight, but it hasn't stayed that way, maybe my age. I guess he managed to stretch the skin enough to make it all smooth out. I think my scar is probably longer than most, at about 12 inches. I had a friend say to me "Oh Moira, it looks like they tried to cut you in half!" LOL
I have always used aromatherapy oils in wheatgerm, macadamia, and sweet almond for Rheumatoid arthritis, and the scars from the surgeries I have had for that, so I have been using them religiously on this scar too. The massage helps to make sure there aren't any adhesions.
I have just ordered a scars Fx silicone sheet for the scar. I have used them before and got a great result with the scars from my many Rheumatoid surgeries. You can use it on old scars too. It fades and softens the line to white so you can barely see it.
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I clicked on the link feelingfeline posted on the woman on the beach - I had wondered whether you could get away with that once both boobs were gone! Not that I would ever have the nerve to do it, it is just once of those weird things that pop into your head. I think it is great that she feels comfortable enough to bare all! My first scar is very flat and has faded to the point that it pretty much just blends in. The dog ear under the arm has disapeared too. Unfortunately, the lack of feeling on the skin and pain under the skin have not gone away. My second scar is very lumpy and very purple still, probably because I had bled through my stitches and developed a huge hematoma when a blood clot blocked the drain. Hopefully it will become less lumpy over time.
Ariom - I have never heard of Fx silicone sheets. I am curious about it more for my son than for me. When he was a teenager he grew so fast that he has huge purple stretchmarks down his sides, back and thighs. His back looks like a tiger raked it's claws down it. He is 23 now and still self conscious about the scars. I was wondering if the treatment you are talking about might help him (he's tried every other stretchmark remedy he could find/afford).
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I looked at the link of the young woman bare breasted* on the beach showing her scars....She is nice and flat. My BS has made me nice and flat and I don't see any dog ears, thank goodness.
How long did it take you ladies to get full mobility back? Right now, my arms are so tight that it seems to me that it will take several weeks before I can swing a golf club again.
*Djustme's comment about whether or not we could get away with going shirtless reminded me of a court case many years ago in Ontario where a young woman took her shirt off in 33F temp. She was arrested but later won the case, afterwhich women were allowed to remove their tops but as the article mentions very few women chose to do so:
http://www.cbc.ca/news/canada/story/2011/07/19/gwen-jacobs.html
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Hi Djustme,
I just have to ask, how long did it take for the dog ear to go away? Oh Wow! I didn't know they went away!
I have been seriously considering having it removed. Not for vanity, but because it is right on the bra line and it is mostly numb, it feels weird. I did ask my Surgeon about it, he said that everyone has that, as part of the breast, but when the breast is removed there is no weight to pull it forward. I have had several surgeries without anaesthetic because I don't do well with general anaesthetic, so I think I could get this fixed without one if need be.
I am not certain about the Fx silicone for stretch marks, but I will do some research and see what I can find out for you. I will let you know.
Hi Painterly, so glad to hear you're doing so well, and got the nice flat chest that we all hope for, no dog ears is good too! LOL
Did you have any nodes removed? That will have some bearing on how long it takes to get the mobility back. I have full mobility, and seemed to be pretty much there after a few weeks, but I still have some discomfort under the arm from the SNB.
Just to let you know Feelingfeline. I had a look on a couple of silicone sheet websites, and the only reference I could find was from dermaheal.com. They say if the stretchmarks are still dark, the sheets and the scar cream can help fade them to white. I have no experience with stretch marks, but can recommend the silicone sheets for reducing scars.
It isn't a really fast process, you need to give it a couple of months to work, but it isn't difficult to put on a strip of silicone for 8-12 hours a day. I always have two strips, because you need to wash the strip before you reuse it. They come in all different configurations, I just bought one that is about 24in long and 1 1/2 in wide, so I just cut it in two. You can also use the ones for c sections, I believe they fit some chest scars perfectly.
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Ariom, I have no dog ears in my arm pits, no extra anything. I did have two small thingies where the scar ends by the sternum, but those have smoothed out. However, even at their biggest (which was right before surgery), my boobs were a modest size.
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Hi Momine! Remember when we chatted early in the morning (for me)? I was just thinking about that.
Moira, I am so impressed and heartened by your story. Getting ready for my own BMX. I want mine straight too. Hope my surgeon uses a level...
This thread means so much to me. I felt like I was the only one.
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