The Hermit Club
Comments
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I went in Thursday for a practice run and something went wrong, not sure what, but they are going to have to redo my plan so it will be after Christmas at the earliest before they can start.
But I'm questioning whether I can even do it. I took a pain med and muscle relaxer beforehand, but the pain in my shoulder was still indescribable. There really aren't words. When it was over, the tech said I could put my arm down and I said no I can't. I couldn't even open my hand from the handhold. He had to move my arm down to my side and I yelped in pain. How would I ever be able to do this every day for six weeks? I don't know if they can give anesthesia for rads but I don't know if I can do it without something.
Very discouraging, and I really can't convey the level of pain to those who love me. I asked DH the other day what he would say to my foregoing rads, and he said that was not an option. Not sure what to do.
Thanks for listening, Hermies. I really don't have anyone IRL I can tell this too.
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Mags, I am thinking of you ... I wish I could help
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Mags- this is awful about the rads. I know what your husband says, and that he does not want to loose you, but if you are going to be in excruciating pain, you will not get through this. I think you need to know what the other options are and maybe reach out to your PCP, who I find will be the ones to advocate for you most. They know you the best and at this point, you may need a second opinion.
Don't be afraid to ask for one either. I have had to do it a couple times (and will again) if I am not getting what I need. These specialists offer you what they have or know, and they all have different knowledge. You have had two bad experiences now and two is enough to know this is not working for you.
I hope this is helpful to you. I too wish I also could help you more too.
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Bippy this is completely u'r time to decide whatever makes u comfortable and I'm glad u'r DH is totally there with u and helps so much.-I did go out with the drains but I had them for 3 months and I really wasn't feeling bad then, but u'r still new so do whatever u feel like doing, everyone will understand.
Oh Mags there may be another solution for u, I wonder if they gave u an IV of valium if that would help u or some other relaxant, pills aren't as good, well like Jazzy said talk it out with the Drs. u can't possible do this everyday.
Jazzy u'r my idol--I'm so glad u do what u do. It helps all of us.
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Cami- thank you for the kind words. Glad I am helping in some small way.
Blondie- this made me think of you as you are always saying "whatever" which I love, but also wondering if Tigger has gotten into anything yet?
How about you Mommy?
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Nope. Neither Charcoal or Princess have ever done that!
Princess suprised me this morning. I was filling her food bowl this morning and I had it on freezer that we have in the corner of the kitchen. So while I was measuring out her food, I heard her run in from the living room and then the crunching of the little bit of food that had been left in her bowl. So I turned around and put her back down on the floor until I was done and turned back to finish measuring out her food to catch a glimpse of her jump from the floor to a box near the freezer and then right onto the freezer. I was so proud of her that I had to show hubby this. So I put her on the floor and she repeated it for him. Needless to say, we made the decision that since she can jump up on the freezer now, that is where she has her food and water. This is where we also had kept Charcoal's food and water dishes. We had been keeping it on her little climbing perch to make it easier for her. Now she is napping in the top level of the perch.
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Good Morning.
Jazzy the tree is such a temptation for Katie-Kat, but now that she's older she doesn't bother it at all, (I'm shocked) I used to have t not put anything on the bottom but she's OK with it.
Mo I think our furbabies are so much fun in their world and we get to enjoy it, but my favorite is when we cuddle and she gets right around my neck, but I always have to move her a little cuz she lays on my port. But when I'm home alone I love that our dog barks like crazy til I go to the door, then he's fine, very friendly but if u didn't know him u wouldn't think so.
Well One more present to buy (Ihope) and Les will go for me. I was out a little yesterday to pick up my own stuff, The hat buying me depends so I try to go myself, but sometimes they are stuck cuz I can't leave the house.LOL Joey doesn't mind tho, so they bring him with.
I just ordered Les a beautiful blouse on the internet, Marty really liked it too and super cheap and supposed to come by the 24th and they are usually fine with that. From ShopQ--Just the style she really likes, I get so excited buying things for everyone else. Huge sale now.
I still can't find my shoe and they are the pair I wear all the time too. Drat.
Oh well I hope everyone has a wonderful Sunday and rest if u need to xoxoxoxox.
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Cami- that Joey is a peach. Glad you found something on line for Les. I have been dishing out the last of my gifts to the local folks. Got two more to go.
You keep looking for the shoe, I found a pair of prescription sunglasses I thought I had been lost forever yesterday. They have been missing for over a month, but had a dream they were in a dark place. Yesterday, I pulled a coat out to wear for an evening outing and the glasses were in the pocket of that coat. Pockets are dark places. I like that my dreams lead me to find them.
But of all all the things I have lost, I miss my mind the most.........
Mommy- that is cute about Princess. She sounds like she has brought you such joy since you brought her home.
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She's a joy and a pain at times, like this morning while I was trying to empty the dishwasher and hubby was busy. Can we say into everything?
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Mommy- she is a busy kitten!
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Oh kitties cute when they're small
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Yes she is, that is why I am grateful for when she crashes for a nap.
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Mags.....just a couple words......when they were doing my plan I had to keep my arms above my head more then one time...holding onto metal things and such....I had 2 rotator cuff repairs one in each shoulder........I barely made it through t Pre-lims and the tattooing.........I thought....no ay I can do this everyday fo 38 treatments..
I needed help getting my arms back down too..an yes it was painful and almost brought me to tears....however.....
When it came to the Rad treatments and the positioning on the table.....it was ok........nothing like what I went through wih the planning stage...............I had no problems........swore I would not get through even one with my shoulders, but I did.......don't know if this helps.........
Just a footnote......it was kind of similar to having a colonoscopy........the prep is the worst part........and this I felt was the ssme..........all 38 treatments, on the table were not as taxng as those couple of day planning my treatment.......truly, and I am a Sissy......I often wonder how I delivered 6 babies.....
Back in my day there were no epidurals.....LOL......we got Demerol........LOL.....today they give that for a toothache.........so hope this help
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Got to make my not-so-world famous rolls for Thurs. later today. Gonna make the pies on Wed. while hubby is at work and I have a peace and quiet to concentrate on them.
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good morning hermits!
Bippie is still on the disabled list, doing very good this morning. I gave up trying to clean my house and do things I shouldn't, and it's made all the difference. I can't wait to get my staples and drains out! Does that hurt? Not that it makes any difference ha ha.
I just give myself a whore bath and it feels glorious to be clean. My hair is really growing back. I hope to make it to the end of the driveway today for a little walk. I have not left the house since I got back on Thursday. I can't believe how well I'm sleeping in the recliner! I can't operate it so my husband rigged up an ottoman for my legs, and at least it does recline so I'm basically laying down.
The pies sound wonderful! I'm looking forward to being able to cook again soon. Is everyone ready for Christmas? We canceled our dinner plans out with friends. I'm just too uncomfortable right now, so I'm taking a rain check till New Year's.
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Bippy- glad you are slowing down and allowing yourself to heal. All that other stuff just cannot get done by you right now (cleaning, etc.) Getting up for a little walk is not a bad idea though. Docs like you moving around and not being in bed too much. Keeps the blood moving around your body. Do that walk with your husband to support you. Glad the recliner is helping too.
I have come to really the value of taking a hot shower/bath after going through surgeries and internal rad treatments. Sponge baths cut it only so much.
I got all my presents to out except to one person I wanted to swing by to see this weekend. Even though we have been friends for a long time and have exchanged gifts for a few years now, she seemed surprised I had something for her. Things that make you go hmmm...... Anyways, I did not get a chance to connect with her this weekend, but may try to drop it off later or just get it to her when I am back.
Mommy- sounds like lots of yummy cooking going on your way. I bought some food to take with me to the hot springs tomorrow, but will likely partake of some of the yummy food in their restaurant too.
Hope everyone has a good day. I will pop in tonight to check in one more time before I head out of town for a few.
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Bippy, it's good to see that you have the energy to write. And, I think that it's definitely a good time to encourage others to clean for you. My husband is still vacuuming for me these many months later! The drain removal discomfort depends on the skill of the practitioner - I did not even know it had happened when my surgeon removed the first one. When the nurse removed the second, I felt a twinge - not real pain. I hope your removal is like that - in any case, it's a huge relief to have them out! Sorry that you are so uncomfortable. As Jazzy recommended, walking really gave me both a feeling of well-being, control, and energy.
Jazzy, you sound so organized and ready for the festivities. Your enthusiasm is so encouraging. Heading to some hot springs? I would be living one big, long hot flash??? I hope it's relaxing for you and involves lots of delicious food prepared by others...
Mommy, are the famous rolls a family tradition? My mother always included her signature cinnamon rolls in the bread basket. My daughter bakes them for us now (that baking gene skipped a generation). Their presence is a comforting thing. Hope your rolls turn out awesome. I am certain that your family appreciates the effort!
Mags, I am a bit behind - LOVE the procaffinator. Hope you are relaxing in your recliner listening to Christmas music... Sorry about the difficulties with your shoulder and rads - I have no experience but am praying for a better solution. DuckyB's words are encouraging.
Blondie, I hope your pain is resolving - who needs that? My husband had shingles early in our marriage and it was difficult. You are such a trouper. I am sending prayers for healing.
Cami, hi. I am new here. prayers for restful healing - hope you reach a happy balance of sleep and alertness.
I am getting stiff - cat curled up sleeping behind my knees on the bed... need to get moving but not wanting to disturb her. Hmmmm... what are my priorities here? Wishing you all the best of holidays and joyful moments with family and friends! Recently I am way less able to focus (hope I did not miss anyone posting recently) - love to all hermits and hope that all Hermits are uplifted by the holidays
Hot flash, moved legs, cat is gone, and so am I!0 -
Daisy- the hot springs are lovely in the winter months, probably my most favorite time to go. Highs will be in the 30s up there and lows in the teens at night, so the air will be cool and the waters warm. It feels good on this old achy body, especially on the AI drugs that create such stiffness. I have a knee thing going on right now, which I think is muscular (t-band) based on a massage yesterday and some work there. My knee does not hurt when I walk on it, but had some issues around the left knee with swelling, etc. I think there is some inflammation there and hoping the waters will help. Sometimes I have to get out of the water if I get too hot (can trigger a hot flash!)
I hope you have a nice holiday with those closest to you!
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Just something I've done since my hubby got me a bread maker.
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Hermettes!
My oncologist called a little while ago to tell me that path showed no cancer! They ended up taking 13 nodes but there was no cancer in any of those either. Wooooooohoooooooooo!!!!!!!!!!!
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Great news Bippy!! Woo hoo!
Shirley
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Bippy- excellent news, chemo did it's job. You heal from that surgery and get better so you can go on into the new year and live your life better than you ever have before.
The best Xmas present of all........
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Bippy – Snoopy dance!
Can't believe tomorrow is Christmas Adam.
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Yay bippy, now knock it off n rest, stop doing things n pushing yourself
Thanks daisy, the nerve pain is still there but went to the dairy queen n feeling so much better, ttuly painful
Jazzy have so much fun at the springs..next year it is meet a msn 4 urolls, bread cookies, wish i had the energy
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Hi ladies, I see a couple of names I don't know so I'll welcome u now.
Daisy I had to laugh about the cat, we all know if we move they just usually get off of us, they are so picky.
And who's doing all this baking, Oh chit, my DD has been a busy bee with all she's doing cuz Eve is at our house, but I have to make (fry) peppers tomorrow and finish wrapping--I hope my phone leaves me alone today it was busy--AND I STILL CAN'T FIND MY SHOE. I have to wash clothes tomorrow (mine) to have what I want to wear for Wed. and Thurs. And I do worry about my D interfering with all of this. It better not.
Jazzy again u find the most exciting things to do--all I can ever say is Wow.
Mags I do hope they figure something out for u so u can be comfortable and I honestly can't even imagine it's the Holiday again so quickly, how does this happen to us?
Blondie my sweet I hope u'r doing better and can enjoy u'r family and if anyone really can't do the family thing, just stay home and rest, do what's best for you.
Joey has bbeen in bed for 2 days now and my DD won't let me see him and he won't either so he's blowing kisses to me. He did say he feels better tonite so I hope tomorrow he good--the Dr. said a virus, and to me that means who knows.
Hey Teka (muah)
I hope everyone has a wonderful Holiday and feels good.
xoxoxoxoxox
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This is for BIPPY--doing the Happy Dance
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That's wonderful Bippy. Wish I was as lucky as you. Don't mind my feeling a bit down. Basically my MO and the Practical Nurse just ruined my enjoyment for anything forever. If you want a full explanation, read my post in the Cheezed off thread.
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Hi hermits- heading north today. Cold front came through yesterday with a little rain here, snow up north. I hope it snows while I am up there. I loving sitting in the steaming water with the flakes falling. One of my fav experiences when I go there in the winter.
Wishing everyone a peaceful holiday and will check in with you again soon!
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This is for BIPPY--doing the Happy Dance