The Hermit Club
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mommy, WTF?! I read your post, and maybe I do not understand, but are they nuts? I thiught that tx forever as only for stage 4 ladies? Damn i have it for a full year with herceptin and perjeta and feel that is excessive.
I hate when they wont listen. When my father was going through his long illness and dying stage I experienced a lot of this kind of crap from some providers. It was very horrific and I am absolutely certain it contributed to the stress the cause my own cancer years later. I'm sorry you have to deal with it, but I wish you a wonderful holiday in the meantime!
Hi ONCO! I had my surgery and I'm very much struggling with my drain situation and Staples. I am praying to God I don't believe in, that I will get everything removed on Friday. I have no idea how I'm going to cope even for the next few days. It's not painful anymore, but it is so uncomfortable and hard to describe. I'm doing my best, my husband is helping me but it's just a struggle to get minimal comfort even. Well.....could be so much worse but I am ready to start rippin out staples and drains
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Oh Bippy I'm so sorry u'r having such a difficult time with the drains, I know mine never hurt or bothered me actually I didn't like the fact I couldn't take a shower for 3 months, I'm sure a lot of people around me had a bigger problem, but it didn't hurt me and they never hrt at all taking them out so u should have them out soon and feel more comfortable.
Jazzy's on her way and hoping for a little snow, we don't want any here, on Christmas eve we're supposed to get some snow but not the next day. Partly sunny and not to cold.
Oh so busy today, trying to help my DD a little but can't do what I used to but Joey was feeling much better so he was a ot of help for the 2 of us. They set up 2 tables in the kitchen--it's a big one, but no dining room, but we have a counter going around so all the food is put on there and a small table is put in the kitchen for all the drinks and stuff. The garage has a love seat with a few chairs and TV and it's heated so there should be enough room for everyone and the kids can eat in the spare bedroom cuz it has a table in ther, they like to be alone anyway. I don't blame them--This is to much for me--I don't mean my DD wants me to do anything, I just don't feel comfortable with so many people here--I don't mind my sisters party but let's face it, it's my brother and sister and their families--there's a difference to me anyway. I still can't believe this all starts tomorrow r should I say today.
U know I hope everyone has a happy Holiday and rest if u need to,
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Oh Cammi! I tracked you down, and FOUND you! Is it okay if I post with you guys here?
MERRY CHRISTMAS everyone!
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Bippy,
my hubby was there with me and when he tried to even ask the same questions, he got the same thing. He is just as frustrated as I am over this, because he works with a woman who had the same thing and she's not even on treatment anymore, she is just being monitored for possible relapse. He's going to try and get the day off for the next time I have to go, so that he can finally get them to see what they are doing to me with this attitude of theirs.
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Hi All, heading out for a brain MRI - Yikes! apologies for not wishing you all well, safe travels, etc... a little (?) distracted. I truly appreciate this thread and your upbeat kindness. Bippy, those drains are a bummer - hope they're gone soon! (distant memory will be good) Jazzy, I am jealous - sounds so refreshing. Cami, nice to meet you! Blondie, love DQ - in a pinch, McDonald's carmel sundae. To ALL Hermies, stay warm and peaceful. Thanks for keeping me smiling
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Happy Xmas Eve hermits- enjoying my time here at the hot springs. Fresh snow the night before I drove up yesterday made for a pretty landscape. We may be getting a white Xmas here tomorrow, and jazzy may get her wish to sit in the hot springs with fresh snow falling. Will take some pics and share when I get home so you can see what it looks like here. Deeply peaceful and restorative place. I had a hot mud treatment yesterday (my fav of the treatments here) yesterday and going to have an hour of foot reflexology later today. As I know I have told many of you, my feet are a mess from the impacts of the AIs.
Chevy- welcome to our thread and please join in. I know your handle from a different thread but cannot remember which one.
Bippy- I am sorry about the drains, when do they come out and the staples too? Not soon enough. I hope you are sleeping.....
Mommy- sorry for all the problems with your docs too. I hope Princess is still bringing you a smile.
Blondie- hey!
Cami- is Joey better yet?
Daisy- please let us know about the brain MRI results?
Teka- teka the cat likes her Xmas tree. She is a cutie.
Lilly- thinking of you this holiday season.
Onco- blessings to you this holiday season.
Monis, Maiden, Ducky, Luv, and everyone else here, blessings this holiday season.
Off to go soak this old tired body this morning to continue the restoration process. Wishing you all a good day whatever you are doing. Looking forward to a new year and all the possibilities for all of us here.
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Hey jazzy, so excited 4 u
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Thanks Jazzy!
Princess and her dog brother Jackson are conked out. They were such good kids while their mommy was busy!
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Wishing all my Hermies a very merry Christmas!
Jazzy, so envious of all the pampering!
Chevy, welcome to my other home!
Cami, find a quiet spot. A closet, maybe, or under the bed. I totally sympathize and so relieved not to have a crowd here.
Onco, merry Christmoos.
M0mmy, just cuddle with the kids.
Daisy, waiting with you.
Blondie, Teka, Sally, and all the Hermies, merry Christmas hugs to all.
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Hope you all have a nice xmas....wanted to share this.....I thought this was a beautifu picture.....it is one of my 4 grandaughters.....her name is Shea-Lyn....her Mom took thisi picture without her even knowing it......she is 18 months old....I wonder what she is thinking...one of the ladies on another thread called it "Magical"....
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Sorry ladies....will try again.......Merry Xmas....wanted you to see this......it is one of my 4 great grandaughters..she is 18 months old...her mother took this without her knowing....another woman on another thread called the picture Magical....I wonder what was gong throgh her mind........Magical describes i.
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merry Christmas everyone, had a very hectic and exhausting week, but allowing people to help me......seems i have had a debilitating virus for past two to three months and still struggling with it, tho better than before, but it explains my poor liver results......... Heres to good health for all of us in 2015. X
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Just a quick pop in---
Lily I'm sorry about this virus, but I'm glad they finally found it, maybe u'll start feeling better
Wishing everyone good health and Love
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Hermits- Xmas Eve is here!
Lily- wow, isn't that something about the virus? No wonder you have been feeling so poorly. I am glad you are letting some folks help you too. We get by with a little help from our friends. Wishing you better days in the new year.
Ducky- that photo is magical. It captures the wonder of Xmas so perfectly. Beautiful. I hope you and all your family have a lovely holiday.
Mags- wishing you a peaceful holiday and better days in 2015 too. I come up here to hide from the holiday chaos. The pampering is the bennie.
I am relaxing tonight in the room with a little red vino and started a book called The Christmas Train. I had a divine reflexology treatment today that left my feet feeling the best they have in years. Now THAT is a Xmas present-no pain my my feet.....
Have a peaceful evening and wonderful day tomorrow folks!
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Yay lily so happy they found that virus, b better late than never.
Jazzy, so happy 4u that u treated urself to the springs.
Hugs n happy holidays to
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Oh everyone is gone, and now not a creature is stirring not ever a cat--but me---And no arguments cuz about 10 people didn't come cuz they are upset with Marty's Mom, I told u they love to argue but they didn't want to bring it here, but 1/2 of the ones who did come brought so much food and all their colds and flu stuff here, and Marty's already sick and I think Les is coming down with it too. Joey is much better but he whispered to me tonite his nose was plugging up AGAIN like it started before and his head hurt. Well we don't want to bring it to my sister and her huge family --well we'll see how everyone feels tomorrow and of course I had my D during the day today so I didn't eat all the good stuff tonite and I don't feel very well myself. Such a group. Well it could be worse that's for sure.
Jazzy u'r holiday sounds wonderful, u always deserve the best.
Merry Christmas everyone it's past midnite and Joey put Santa's cookies out for him-He still believes. And I would like to too.
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Merry Christmas to all! If you celebrate Hanukkah, I hope that it was a beautiful celebration for you.
Hello Chevy, are you new to this thread or BCO? Welcome to both (I am new here).
Bippy, best gift ever is a good pathology (sorry so late but congrats!). Happy happy happy for you. God answered
Hope you feel up to a happy dance today.Mommy, a husband that gifts you with a bread maker - that's a gift in itself. Hope the rolls turned out perfect. My memory seems to be spotty, but I hope that your difficulties with doctors are sorted out. It's much easier to deal with the yuck of treatments when you feel like they are on your side. Hope your fur family remains on good behavior.
Ducky, such a perfect picture... this summons great memories. My little ones are over 6' tall now - we used to take an annual picture with the tree, but now it looks silly
Enjoy the holidays with all the little ones.Cami, Hope that other shoe made its way back to your foot! Blessings of peace and happiness for you as well! Only a few of my family will be here this year (8); so, it's very manageable. And my BIL has stage IV prostate cancer, so we both zone out
No little ones yet... it's very quiet here.Blondie, praying for days without pain. {{hugs}} Hoping that your holiday celebration is just perfect.
Teka, is that your cat just sitting calmly under a Christmas tree? What a beauty! We do not decorate the bottom third of our tree... at least neither of ours has climbed the tree yet. Hope your Christmas day is just as peaceful as the pic.
Lily, agreed - good health for all of us in 2015. Special prayers for healing for you now, in 2014.
Onco, I am new here - wishing you Merry Christmas as well.
Mags, in my mind, you are still relaxing in the recliner with awesome Christmas music swirling around and uplifting you. I hope that your Christmas is magical. Wear that BEAUTIFUL Christmas sweater with pride. Hope it's a joyful day. I love this slightly different version of my favorite Christmas Carole, Little Drummer Boy :
Jazzy, I would love to experience the hot springs in the snow - hope it happens for you! I googled The Christmas Train - by Baldacci? it looks like an entertaining read - please let me know how you find it. I have time for reading now that I am unemployed
I am glad for your relief for your feet - can you have reflexology regularly at home? Or are the hot springs key to the relief? My BIL has neuropathy from cancer treatments as well - looking for suggestions... I wish you peace and renewal on this excursion. (You seem to work so hard.) I am sure that I am romanticizing your getaway but it truly sounds divine and ultimately hermit-y. Be well.Dwill, (is that right?), hope you are recovering well...
Love to all. (including past hermits that I have not met)
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Lily, what are the docs doing for the virus? ... if you already answered this question and I missed it, I apologize. I hope the cure works quickly.
Cami, I hope you did not catch whatever your guests brought ... also, hope your family shakes off any bacteria or virus. Hope you all get to go out today. I am just like Joey ... I believe in Santa too.
Happy Holidays everyone.
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Daisy...thank you........I thought it was a picture worth sharing......Hope you all had a great xmas.....hugs.
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no treatment for virus, just rest and not pushing myself, a karmic virus methinks!
Merry Christmas everyone, we had a lovely walk in the mountains with the dogs today now dozing in front of log burner....
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Merry Xmas hermits! I am back from the hot springs and it was a lovely time away. I left a bit earlier than planned to get ahead of the winter storm. No snow while I was there, but decided that since northern NM was going to get a good 10 inches of snow, I did not want to be driving home in that. It is sunny here in the city, but the storm is supposed to be here tonight.
Daisy- I am sorry about your BIL's cancer and also the neuropathy. I don't know much about what might help neuropathy (my mother used to have it with her diabetes), but it is possible that either foot massage or reflexology on the feet could help your BIL.
The hot water does help my feet, and I put them on the jets in the hot tub the gym when I go. Hot springs help more and are good for what ails you. I got into going to them regularly here a few years back and before bc, but now it is part of my post recovery.
My massage therapist here does reflexology on my feet when I see her for massage, but never for a full hour. Perhaps we will be doing that in the future though! The gal at the hot springs also recommended Japanese foot massage too, which I have never tried. The western medicine docs rarely recommend these things, although they do usually think they are helpful. Your BIL might benefit from a visit with a holistic practitioner to see what complementary therapies may help him with the SEs. Some of them are paid by insurance too, especially acupuncture.
Oh and The Christmas Train is very good so far. Already up to 100 pages after starting it late yesterday. I plan to read some more this evening. It is fun easily light reading for the holiday season.
Lili- how nice to take a walk in the mountains with the dogs. Sounds like things are getting better for you. Knowing what has been going on has made all the difference. Nothing worse than not knowing if what we are experiencing may be something worse, which is frightening. Wishing you continued better days.
Sally- happy holidays and hope you are having a nice day! Are you getting any of this weather out west?
Ducky- hoping the day with the little ones is lovely.
Loral- hoping your day today is lovely too.
Did someone say Dwill? Is she back on this thread? Did I miss that?
Hope Santa was good to all of you as I know you have all been nice all year long. Blessings to everyone on this thread, including those who may just listen to our conversation. We care about you too!
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Good morning hermits- here is a photo off FB from a local photographer of the sunrise after the snow storm earlier this week in northern NM. It took my breath away.
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Good afternoon, Hermies. Jazzy, that is a beautiful pic. So glad you had a great refresher at the hot springs.
I have an update on my radiation situation. I called the RO on Tuesday and talked to the tech. I told her I was not going to go ahead with rads because I couldn't handle the pain in my shoulder. It is still hurting a week after the trial run. She said the RO wasn't in but would call me the next day. The RO called Wednesday and told me in no uncertain terms that radiation is not optional with the aggressive nature of my cancer, and the positioning also cannot be adjusted in order to get the correct exposure. She then suggested treating the pain with Motrin (tried it) flexeril (already take it) and narcotics (I don't want to spend 6 weeks stoned). Her final option is a pain specialist. I agreed to try though I am not optimistic. My appointment is January 6th, all the way across town.
Next week I have a PET scan on Tuesday followed by MO appointment on Wednesday. I will tell him that I can't do radiation with my shoulder like this, and I really don't want any more surgery but orthopedic specialist says there's nothing that will fix it short of complete shoulder replacement. I've known that for years. I have had 2 surgeries on it already, because the bone spurs slice through the rotator cuff tendon.
I don't know what the solution will be. Right now I just want to be left alone. I guess I don't have that option either – and I hate being out of control of my own life!
DH gave me an iTunes gift card, so I went hunting around in the shop and found a pianist I hadn't heard before and bought 3 of her albums of Chopin selections. Even though I have other versions of some of these pieces (multiples of some!), the stylings of the different artists bring a whole new sound to them, and I love her styling of some of my favorite works. So I am listening to her now. Her name is Ingrid Fliter. Very soothing to the troubled heart.
Have a wonderful weekend.
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My memory is not good so I don't know if you went to a second RO. They don't all do it the same way. If you haven't consulted with a second one you should
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mags,
Sorry about your situation. I have nothing to offer except I am thinkin of you and hoping for a solution. Keep on with the music!
Jazzy, love the pic!
Bippys drains are OUT! Today the doc was awesome, he has such deft hands. No pain, but weird felin them coming out. Staples still in, but they are no bother. They come out next week.
Tonight we are takin a walk round the hood, lookin at xmas lights and exercising me. I had not left the house since the 18th until today! So I have cabin fever. Back to walking and ramping up exercise! I want to get the weight down and feel good.
Be well hermies!!!!!! I start rads in a few weeks, so enjoying my vacation
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so happy that everybody had a good Christmas I'm so sorry that you have to deal with the shoulder mine but you're the boss it is an option you can say no.
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Mags- so it sounds like you have complications with the shoulder from some earlier issues. Having known someone who had that shoulder replacement surgery (and it is a long recovery), that is certainly not an option for you right now for sure in the midst of the cancer treatment.
Remember that YOU are the patient and that they don't live through the treatments and SEs, we do. Some of these docs are so unkind about this with the way they drag you through things without any respect for your feedback on the process.
Going through your current apts is a good plan and talking to a pain specialist might be worth it. If your MO will "hear you", he/she may have another RO you can talk to or go find your own. Not everyone has the same amount of specialists available to them, depending on where they live though. Your MO and PCP can be the ones to help you most. You don't want to end up more injured in that shoulder because of this. Poor outcomes are not the goal here!
I am glad you found some comforting music. Sometimes this whole thing is so god awful. Hugs sister, and prayers for better days.
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