The Hermit Club

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  • camillegal
    camillegal Member Posts: 15,711

    teka sounds really good.

    Omeggo just rest now and I hope u feel good.

  • kltb04
    kltb04 Member Posts: 234

    Quick update - started rads - getting puppies - more later!

  • markat
    markat Member Posts: 502

    I've been a lazy hermit today. But, we need to go on our daily shopping trip (yes, we have become those people lately). I also need to get stuff in order to do grown up things like open a bank account, get the background check and drug test Thursday. I never added myself to my DH's because it never seemed necessary. Even when I had my little part-time jobs before I would just cash the check at work, lol. Dumb and lazy. I think I might just open my account and use it to save for something.

    K- hope the rads were easy today. Puppie(s) that sounds like plural. Anyone live near Kltb to go check and see if she is having a breakdown Tongue Out

    Stormy-hope you are recovering from your surgery and resting.

    Whaevah and Omeggo- hope you are both done and sleeping by now.

    Teka-have fun with that laundry!

    Camille- it's cold enough here to snow today! We actually didn't have any substantial snow storms last year. First time in my life I think that has happened. I wouldn't mind a repeat this year.

  • camillegal
    camillegal Member Posts: 15,711

    K repeat---PUPPIES---are the rads messing with u'r mind.

    I hope all the girls are resting and done for today.

    Oh Markat I hate grown up things--really do. I always tell Joey enjoy this all u have to make sure is that u do homework. I need to do my nails. I even hate that. OK I scheduled my bone scan for i week from Monday I did't want to get involved with the holiday, now she did say I might need another one cuz this is small and it might not pick up so I won't do this type til January--again I'm not screwing up my Christmas again cuz of this junk  my Doc wasn't crazy about thst but she areed it's not that far away so I really live on the edge.LOL

  • camillegal
    camillegal Member Posts: 15,711

    Oh and anyways I figure u uys will listen to me complain hahahaha

  • Stormynyte
    Stormynyte Member Posts: 179

    Just checking in with my fellow hermits. :)

    Port install was postponed! I'm coughing my head off and the surgon said that wont work while he has big needles in my chest.

    I'm kind of happy it was delayed, cuz I really don't wanna do it, but I kind of just want to get it over and done with too.

    I'll be back latter to catch up, laundry is calling me. Lol

  • Omeggo
    Omeggo Member Posts: 42

    Hi Everyone!  I am back and had to pack an order, hunt down an Emend coupon thingy, get an additional authorization for the next batch (a big project because my insurance wants a $375.00 copay), answered a gazillion work related emails (actually, only six) and I"m STILL at the computer.

    Rest?  I'm trying to drink TONS of water but I feel fine.  This is how it was last time to0.  By Friday I was a wreck but right now, I'm good. 

    Hope you all are doin' OK.  Snow...wow.  I can't do cold.  Living in Germany for 14 years cured me of the need for cold weather, which is one reason I'm in FL.  Still thawing out, after well, another 14 years! 

    They left the IV in since I get more drugs (Decadron, Aloxi) tomorrow.  It hurts.  Other than that, all is OK.  A day at a time.

  • Skittle
    Skittle Member Posts: 395

    Wow.  Busy community of hermits!  Hoping all goes well for each of you.  From snow to puppies to laundry.  Wish my dr were more appealing.  Sadly not... more on the scary side.  Long soak in the tub sounds the way to go at the moment. 

    Cheyenna--good luck.  Every public speaker has had "those" moments, without your good reason why.  Just your beautiful smile will make them all very forgiving. 

                                                  undefined

    Camillegal--hugs to you as you encounter all those challenges...

  • bgirl
    bgirl Member Posts: 435

    Hey hermits, haven't fallen off the planet.  Just busy trying to get some things done with my DD#3 when she was home this weekend.  Yesterday trying to catch up (laundry, groceries) apparently you do actually have to leave the house to get food sometimes.  3rd time was the charm for IV/canula insertion for MRI contrast today.  Think my arm and hand are going to be black and blue tomorrow.

    You certainly have been busy the last couple of days ... so I will just try to hit the highlights.

    First welcome to cindy loo who, Flislander, stormy and anyone else I may have missed.

    Journey ... glad you we able to finally share with your drs. and us.  Happy they are giving you the scan to put your mind a little at rest.  Hopefully you can start to move forward ... however, at your own pace ... not someone telling you "all better now".

    K - puppies OMG you are an amazing mom to consider that right now.  Hope rads are going well ... first couple of weeks usually not too bad ... just time consuming.

    Markat .... You are too funny as always.  Had a friend Mary Katherine (good catholic family) who we used the nickname Meerkat for .. always wondered if you shared a name.

    FLwarrior {{{Hugs}}} back at ya

    Chey good luck ... always found smiling worked when I used to do corporate training in another life.

    Camille .. sorry about the rib.  Hope the change in meds works for you, if you can figure it out. lol   Glad someone appreciated the cold.

    Would post a picture of my daughter, but haven't figured out how yet.

  • Skittle
    Skittle Member Posts: 395

    camillegal... Yep, I got that Joey was your grandson...  I just thought the mentos would make for a cool grandmother gift.  btw, what does he call you?  I've heard everything from Memaw to Granny to Grammy... and on.  If I ever, ever have the honor, I have no clue what name to run with.  (Mind wanders when avoiding bc head on...  I tend to do the ostrich thing when I can.)

    bgirl--hope your black and blue badges of honor aren't too ouchy.  Hope mri brought good news.

    Stormy--good luck kicking that cough.   

  • FLwarrior
    FLwarrior Member Posts: 614

    HI.  For a bunch of hermits, we sure stay busy! 

    Skittle thanks.  I will go by auto zone this w/e.  One of the guys at work checked the fuses and it was not that. Good thing it isn't supposed to rain this week.  AND...lol at the making you smile cartoon!

    Camille NIIIIICE that your card is lookin good!  Hope he gets you fixed up really soon.

    kltb - hope rads was easy on you today.  When I read "getting PUPPIES"  I wasn't thinking animals...more like perky puppies...hahaha...guess bc leaves me in a boob rut. Laughed at myself when it 'dawned' on me what you really meant.

    stormy - sorry 'bout your cough, good thing the port was postponed. Hope you are on the mend soon!

    Markat - makes sure you check out any fees associated with a new bank account.  The banks here are all starting to add misc charges and fees to alot of the accounts.  I am getting ready to change banks because of that very reason.

    Omeggo - Rest is a good idea. Lots of water is a very good thing!  Glad you are feeling well now and hope that it continues!

    whaevah - Hope you had a good pole dance today!

    bgirl - Bummer about the multiple sticks!  :(

    journey - Hope you are feeling better today!

    Hello to all. Hope I didn't miss anyone!

  • markat
    markat Member Posts: 502

    Stormy- Sorry that you have the cough. Let us know when you have to get it.

    bgirl- ugh about the arms! Hope it isn't too bad.

    Hi skittle- hope you had a good day at school! It's almost Thanksgiving break! Does your school get the whole week off, just the holiday and after? The school I'm going to work at has the whole week, but my girls only get Wed, Thurs, Fri.

    Flwarrior- good advice. I had an account before I was married but closed it. Hopefully it isn't too much. Hope your car is an easy fix.

    Well, I fell asleep and only made it to the store. Tomorrow will be grown up stuff. Friday we close on our refi (Yay!). We actually get to skip Dec payment but I think we are going to put that back in savings. DH desperately needs a new car, but hopefully we can get another year out of his. We'll probably end up having two car payments at once. I hate that. I want a little Prius or some other kind of hybrid. I'm sick of gas!

  • camillegal
    camillegal Member Posts: 15,711

    Hi gals-hope r'e doing all right and able to sleep/Skittle my grandson calls me mamma, cuz he said I'm like his grandma and mommy-and he calls his other grandma cuz she's just grandma. g00fy kid./ my favorite time of day after dinner and he does his homwork we watvh TV together for about an hour and he has his arm around my shoulders and my head is on his shoulders, then every so often he kisses my forehead--It's so easy for me to love him so much he gets my coffee in the morning, feeds my cat, and clessns the litter box for me--And makes sure I have enough water. Rhe only man in my whole life that was and is so good to me. LOL

    Oh i might go out tomorrow with my girlfriends for lunch so I hope I can do it. And 2 of mu friends are coming in from FL the next couple of weeks so my sister always picks the restauranr so if we don;t like it we blame her--it's kind of a tradition for the last 40 yrs. We still pick on her, but we always have fun anyway--but I think we'll have to go out 2 different times cuz they planned different times coming in--so that's llright. We have such fun. And then with Thanksgiving--So we'll all be busy next week an it will fly by.

    I've been so broke, I usually have my Christmas done now and I haven't even started I hate this--it sucks.

  • Omeggo
    Omeggo Member Posts: 42

    hi Everyone.  I'm still REALLY loopy from taking various anti nausea meds during the long, sleepless nights.  Thought for a moment I might hurl something mightily..Not fun at all.  Did anyone ever feel like they had a 50 pound cement bag laid on their chest as they went to bed?  That's happened twice now.  I should probably mention it to MO.  It has only happened once, each night after the infusion.  Today I get Emend which should do the trick, I hear.

    Even though last night was rough, I do feel better than last time.with Chemo #1, so far.  I guess I should be happy about that.   Half way done!!!  That's the way to look at it, of course.

    Anyway, I can't think fast enough at the moment to offer any one-liners but when I get giddy again (in about two weeks) I'll try to post some.

    MY love to you all and good luck today with ALL that is going on in each of your lives. 

    Hermitude, hermitudinous, hermitateous, pre-hermitidic, post-hermipsychotic.  I was trying to come up with more hermit related words last night when I couldn't sleep.  There must be thousands!!!  And worked better than counting sheep (or burps). I finally got to sleep at around 5 am.

  • markat
    markat Member Posts: 502

    Omeggo, do you take steroids before or during your infusion? Sometimes that gives you weird feelings/racing, heavy heart. Remember to chug that water today.

    I made the mistake of mentioning a pain in my back/shoulder to my MO. Off to get an xray today. Why not just do a full scan so we can be done with all the maybes? Ugh, I'm sure it has something to do with being weak and out of shape, having some kind of stupid problem with my neck. I'm not worried at all about mets here. Pain sucks.

  • bgirl
    bgirl Member Posts: 435

    What is with this BC shit!!  Pardon my language, but feeling crazy today.

    Wife of woman my husband works with is diagnosed with cancer (friends with him & his brother for years) crap and just found out this morning that a friend from church who lives just around the corner is diagnosed again (17 years later).  Double Crap!!!  One of the nicest most compasionate people I know.

    Not sure if I should cry or scream......... Thanks for leting me vent.

  • markat
    markat Member Posts: 502

    I'm so sorry Jane. It really seems like more and more women are being diagnosed all the time. Maybe it's just because I'm more aware of it now. I know the stats have stayed about the same. I wish they could cure this horrible thing.

  • camillegal
    camillegal Member Posts: 15,711

    OMG it's true--that's all I hear lately all this breast cancer stuff--and they do so much research and more women seem to be getting it. I know stats are about the same but there are more people than before- I think. So the 2 out of 4  might be the same but there are mor 4's now. Does that make sense--All I know is we're hearin about more people with BC than ever before and much younger than ever before Why? if so much research is going on---Like the saying they can put a man on the moon, but can't cure a cold.

    Lik a couple of years ago they had a product for a cold (I forgot the name) and it worked wonders and always sold out, then they took it off the shelves--u can order it but in actuality it was working to good and the drug Cos. didn't want that So somehow they got rid of it--Nothing was wrong that's why u have to order it, but it takes more time to get it  I think someone bought them out. So these kinds of things always run thru my wandering mind. LOL.

  • Omeggo
    Omeggo Member Posts: 42

    The first infusion is decadron with Aloxi, then the cytoxan then the taxotere, if I"m not mistaken. Today (a day later) I go in for my Neulasta shotand they will infuse me with more Aloxi, Decadron and saline.

  • markat
    markat Member Posts: 502

    Wow Omeggo, that's cool that you get the iv fluids and anti nausea the next day too. Are you taking Claritin for the Neulasta?

  • camillegal
    camillegal Member Posts: 15,711

    Wow Markat u know alot--I know nothing of the name of chemos or hardly anything--I know Nuelasta and the red deviloh oh and taxol--I got more but have no idea what I got.

    Omeggo tell us how u feel when u get home--Oh she's probably not reading this now. Well she'll check in--

    OK my girlfriend just called and we are going out to lunch tomorrow--I'm icky today so hopefully I'll feel better tomorrow. Cuz I really wsnt to go So that means 2x in one week OMG am I unhermetuding---NO.

  • markat
    markat Member Posts: 502

    Yay for getting out Camille. I hope you feel better too. The decadron she mentioned is the steroid and the Aloxi is an anti nausea. I only know because I'm a weirdo who looks at every bag they give me and double check, lol. I would get Saline, Decadron, Aloxi, Emend, Taxotere, Herceptin, and Carbo. That was a looonnnggg day. One time a nurse waited until it was over to give me my iv Emend. That concerned me, lol.

    Done with the xray. It was a guy. I was so worried that I'd have to take my shirt off...but he was able to do it with my shirt on. I did so good at the posing that he asked me if I was in the fieldCool I told him I was a model in my former life. He just looked at me. Then I laughed and said no, this isn't my first rodeo. The registration lady started to give me a hard time about my insurance card. "It is different than what I have on my computer screen". I asked her if she was new. "Ugh Yes." Don't worry lady, they'll get paid.

    Oh and I'm a big girl now. I have my own checking and savings account. With $5 in each, LOL!!

  • camillegal
    camillegal Member Posts: 15,711

    Oh our little Markat is growing up---how sweet. LOL This day is joyous.

    U'r so funny. See being older I'm always taking my top off hahaha as soon as zi see anyone--even the cleaning people--Nothing bothers me snymore.

  • markat
    markat Member Posts: 502

    I literally laughed out loud about the cleaning people! Too funny!!

  • Skittle
    Skittle Member Posts: 395

    markat--eeg.  Exactly as I read your post, there was a Prius recall on the news.  (I've always wanted one to get away from gas, but settled for a Fit.  Gets 38 mpg on the way to work, 41-42 on long trips.)  What will you do at your school?  Glad you'll have the week, and hope your girls will have some fun, memorable times at school while they're there...  making turkeys always sticks in memories, no matter how young or old.  Yes... I get the whole week.  (Yay!!!  I can actually catch up on laundry and cooking and a nap or two!) Our district changed recently when attendance kept nose-diving the week of Thanksgiving, so they threw in the towel and now give the whole week. 

    FLwarrior--been thinking of you.  In another lifetime (it feels) we lived in FL and had to have wipers on at the littlest sprinkle.  Have been hoping for dry weather for you!  and hoping for straight routes to get you home safely!  :-)  Funny how we rely so much on our gas-slurping chariots.  Unfun when little glitches happen.

    K--have your puppies yet?  A pond of puppies or just a puddle? 

    Cheyenna--hope you're feeling better and all went smoothly.

    Hugs to each.

  • Skittle
    Skittle Member Posts: 395

    Wait a minute.  You mean there are appts w/o taking your top off??  Seems my routine is the same old, same old... pop a top off a cold one.   (the rooms have to be about 57 degrees!)  :-)

    markat--Congrats on the independent accts!  You should pay yourself for each appt, and watch your $ grow!  then go on a cruise!

    Camille--one procedure I had was literally standing room only.  They packed in about 15 to witness my agony.  Felt like I'd been on the six o'clock news.  (gee... once upon a time I was such a private person.)  I guess I should've looked around a bit.  Coulda been the entire cleaning staff!     

    be good, hermits.           

  • bgirl
    bgirl Member Posts: 435

    Markat - wow $5 ... going shopping on Black Friday ... don't spend it all in one place.

    Yesterday when I had MRI they always work so hard to preserve your modesty, but really at this point I think everyone's seen them anyway ... # of pics of them I have had taken in the last year I think I should be getting paid.

    Cami - hope you feel well enough for your lunch

  • whaevah
    whaevah Member Posts: 282

    Hello Hermits!

    Just resting up and grateful the chemotrain is almost done! Will catch up later

    Hugs to all!

  • camillegal
    camillegal Member Posts: 15,711

    Sorry for u guys still on chemo--it sucks

    And ow can u be modest when u'r in the hospital and they have to stay in there in the bsthroom watvh u poop and take the sample right away. It's all so disgusting and one time my aid was a young 22 yr. old guy and it was disgusting and he had to watch me. Of course if I was a 20 yr. old georgeous girl he'd be fine--but poor guy had to see all this sh*t litterally. hahaha

  • markat
    markat Member Posts: 502

    Oh Camille, that would be really uncomfortable. This guy was probably my age. My BS, PS, MO, OB/GYN, family doc, physician's assistant, and chemo nurses are all women. The only men I've had in this process has been the student that sat in my diagnostic ultrasound, the radiologist that told me I had cancer, my original biopsy surgeon, the guy that gave me my PET scan, and this guy. Oh and a jerky ER doc I saw right when I started chemo. So all the flashing is usually to my female docs.

    Whaevah, hope you are feeling okay. 1 more right? Or are you done now?

    Jane, I know. I'm rolling in $$$.

    I'm so done with cancer. Done, done, done done. The tech said today, "were you in an accident? Or did you have a fall." Nope, I had breast cancer and everything sucks now. Except good coffee creamer, my kids laughing, my DH not grumbling, and laughing at my judgy neighbors who now have a jalopy parked in the front yard. That's so funny to me.