The Hermit Club
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Long live old fogies who can laugh about the indignities required to survive!
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Fl warrior - you could always plead roid rage ... wonder if that is like the insanity defense. hmmm ... now might be the time to get rid of the annoying people while you have an excuse.
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Jane I hate to say this but sometimes they can't explain alot of things LOL Just lad it's ok
Teka I'm the old one on here...so u'r not an old fogee--I don't go out an night either--none of my friends do musch, except we augh now cuz we go to Lunch our whole lives we met for dinner and vlosed the place now it's lunch no one can drive at night anymore. LOL
These young wippersnappers have to go out they have young kids and they do alot of things. but we like hermits here cuz they'd rather not right now. And I just don't want to go out actually alot of the time.
But the girls on here are so sweet they don't care I'm an oldie but goodie LOL So don't stay away cuz of age--this is a great group here really u'll be super comfy here.
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Thanks ladies!!
Bgirl- yay about the xray! But I totally understand about questioning the pain. My liver area still hurts.
Camille- thanks for understanding! Hope you're feeling good tonight.
Cute puppies!0 -
Teka Good Luck--I plan nothing I just enjoy and u'r younger than me sh*t--I thought I got someone older hahaha I love u'r avatar--I have a kitty too names Katie-Kat
Wait u'r in NY were u all right with the storm>?
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Oh I understand that this has aged me even more---like 10 years really I hate it.
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Oh my, im gone for a day and i have 3 pages to catch up on. You have been busy little hermits. I have been at work and i have to be in a midnight tonight, im tired and i don't want to go!!! I have to though, the studios are releasing spiderman tonight and i have to be there to represent the movie Studio!!
Ok im hoping everyone is well, i will go back and read now so i can catch up
Chey</p>0 -
Wow u sound like u have an exciting job ---Geeze what do u do Chey?
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Teka- glad you were away from the storm! We all may be different ages and have different backgrounds, but we all support each other and laugh and cry together!
Chey- that sounds like an interesting career. What do you do work-wise? Doesn't sound very hermitty, lol.0 -
markat- Its not!! I have to be out smiling!! Yuk!! Lol
i work for the major movie studios and record producers, like Disney,Fox, universal , all the top studios..i promote the NR movies, i attend the movie premieres .... movies being released on video, i make sure they are not released before the street date, i promote all the top 100 music artiest , i attend concerts, i make sure no retailer put the music out before its street date as well, big fines.. I work out of LA calif, but i do most everything, through TCS system.
i do red carpet premieres for major motion pictures, that is FUN! Hehe
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Seriously people, I cannot keep up. Now I have even more to catch up on.
Chey - interesting job!
markat - congrats on the job.
camille - sorry about the ER visit
glad they didn't keep you but so sorry they can't get you some answers jane - yay on the xray I have the "we don't know" issue with my rib pain. I had a PET at dx, it was fine. When I complained for a couple months after chemo, had a rib xray, nothing. so frustrating but so glad nothing else has shown up.
teka - pretty cat! I have two...they are lazy and fat boys.
FL - I didn't have roid rage so much but I do get mean as hell on painkillers if I take them during the day.
Skittle - are you a teacher? Ihave a degree in elementary ed but I decided I hate other people's kids so its not working out for me.
whaevah - hi.
Lisa - why was the mo visit so bad?
Is that everyone...I need to stay more caught up. Had a "dry run" planning CT at the RO yesterday and go back for actual simulation today. Totally miscalculated the time - he said 28 tx and I was thinking 28/7 is 4 weeks. Duh, you don't go on the weekend. So if I want to finish before the end of the year, I need to start next week. Otherwise, my 100% coverage will be over and I will have to start over with insurance.
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GM--OK u guys u can not make me laugh I hurt really bad--
Kl u'r hysterical--I don't like other peoples kids hahahahaha that is so funny. So u can teach if u want to, but don't want to. LOL
Chey u job sounds fun fun fun--OMG u go to red carpet events u have to get all dressed up Where do u get u'r clothes and jewelry? U've got to tell me that--Maybe I can't talk cancer but I can talk about those things. LOL
Markat do u realize u'r job start in just a few weeks---are u ready? I'm so glad it's part time for now it'll get u out some.
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Nope camille, I don't want to. I taught 2 years straight out of college, quit when DH and I moved around a little and worked various jobs because I knew we would be having kids and I wanted to stay home w/them. Kids got older, I decided to start working but had let my certification lapse, got recertified and in 2011 I was doing a lot of long term subbing jobs while still working PT in retail. I was just doing the retail when I was dx this spring and quit that job, and sure didn't want to be around little kids while I was in chemo, etc... Now I just don't have any desire to get back into it. There is so much work that is involved in being a teacher nowadays, even outside the school day and I just don't have the passion for it. Plus you have to kill someone or sleep with them to get a job in the schools around here.
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I don't blame u Kl--I always said being a teach is super hard work and kids of all kind. Blah LOL
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Lol Ribbons! My cat's favorite. And ponytail holders. She likes to drop those in the toilet for some reason.
Chey- what an amazing job! That sounds so cool. Hope you got some rest.
Camille - I know! I went to fill out paperwork today and I started getting a little nervous! My last herceptin should be right before Christmas break, so that's good.
K - I hear you on the insurance crap. It sucks.0 -
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FUNNY stuff! Thanks for the laugh!
Me, I'm OK. I did a nice leg work out BUT...I have a patchy bald head. I've taken two showers today, with the hopes that when I get out of the shower, all my hair will be gone. It is of course, everywhere but on my head.
I thought I'd do OK with this. Ha! I've been pissed at my hair for like, my whole life, and even liked the buzz cut. It worked with long earings, etc. THIS really took me by surprise!
For those of you who have had long beautiful hair and have lost it, I mourn your loss. I really thought I wouldn't care but it looks, like, SO gross!
I'm grateful for my nice wigs. I'll be happier when the last of my hair has washed down the drain.
Hope everyone is having an OK day and thanks for letting me whine and complain!
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Omeggo- I'm sorry about your hair. It can be depressing at first...but for me it was kinda okay. I had long hair, it was thick and wild. I either wore it wavy or had to straighten it everyday. It was kind of nice not having to deal with it for awhile! LOL. It's easy for me to say that now because it's been almost a year since I've been through what you are going through, so I don't mean to sound passive or anything. I really loved scarves. Silk to be exact
Hated my super pricy wig that was specially made for my mellon head. Do you have to get Herceptin?I went grocery shopping tonight! At my regular store, not the remodeled one. I have a wicked bad headache and nothing is touching it. Wah. The 7 year old has caught whatever DH had last week, so we are just relaxing.
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kit--yep. I teach. (but no sleeping/killing for my job!) :-) Some days I love it, and some days not so much. It's more from parent friction than kids, though. You wouldn't believe the stories... I love their energy and humor and honesty about what they think and feel. It's exhausting and the kids wonder why I'm freezing all the time, but life goes on and we have a lot of fun.
chey--wow. glamorous excitement. Teaching sounds pretty drab in comparison. It must be exhausting, though, too--and rewarding.
omeggo--complain all you want. Venting is healthy for the soul!
markat--love your spirit. Hope that headache goes away soon.
camille--I agree wholeheartedly with the age thing--I know I've added at least 10 years going through this mess. But I love your feisty edges.
teka--gorgeous Maine Coon. My bff in Topsham, ME, has a trio of them. Huge with massive paws. Enormous purrs. Glad Sandy left you in peace.
wishing all hermits a peaceful weekend
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Hi guys--I'm sure u'r tuched in bed---I hope.
Markat I'm sorry about u'r headache put a cool something on u'r head too. That helps me besides taking something.
Omeggo I'm sorry too for u--I didn't have really long hair it it was crummy to care for so I was actually glad to have it shaved.I mostly wore hats tho and my big old sparkly earrings. LOL But I know how when u really have long and pretty hair I think I'd be upset too. But it will be back.
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Hi Hermits!
I should be all tucked in bed and will be soon.
I have to tell you, I will be crawling out of my hermit shell for a while tomorrow. I am going to go have lunch at The Cheesecake Factory with some of the local BCO sisters. Really looking forward meeting some of the ladies from the boards! There has been several get-togethers, but this is my first time to get to join in.
Omeggo I feel your pain! Glad you have found wigs you like! I was one with long hair prior to chemo. Actually, I had long hair all my life. I totally freaked out about loosing my hair. Luckily, I had a wig that I liked and I wore it for 9 months. I would not go out the front door without it. It took my hair a good 3 weeks to finish shedding and I never lost it ALL. You can "shave" your head if you want to get past this stage. Lots of the ladies do that. I buzzed mine to 1/4 but never "shaved". The good news is it does grow back!
Camille ROFL at your Washington State pic!!! Too funny! Hope your pain is gone!
Markat hope that headache is gone by now. Also hope your DD is better!
Happy Weekend to all!
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FL that sounds so fun --when u actualy meet people that u know but don't know--I'm glad to hear u won't be a hermit tomorrow. Tell us how it goes and hace a piece of cheesecake.
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Hope everyone is feeling better this morning and got some rest.
I was out last night too and yesterday afternoon. My daughter's high school commencement was last night. I am so proud of her! Considering how crazy her senior year was, she did really well. Along with her diploma she got School Honour Role, Ontario Scholar, certificates in the Arts & French (had to take 10 credits with French as language of instruction) and the Vocal Music award for the highest mark. We went out and found a dress that looked beautiful on her. She is a little conservative and not one to wear super short of super tight. It was gorgeous, but expensive, but she loved it on sight. I decided the heck with it, I think she earned that dress going through my diagnosis and treatment last year. Okay ... mom is done bragging!
Will check in later ... happy hermitting weekend.
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Jane I'm sorry, u can't brag enought to us---OMG how wonderful for her and u--Yea this isyear had to be tough on her and she still accomplished all that. Jane I always forget u'r in Canada, that why when I read French I was oh yeah. Good for her and she certsinky deserved any dress she wanted--Can u put a pic. of her up---what a hppy rime for u and really makin u proud. She sounds so sweet.
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Chey - I agree with the others - your job sounds both exciting and exhausting. Be sure to reserve some of that energy for yourself!
Jane - You have every right to brag on your DD. Sounds like she is a smart, talented and sensible young woman. Give yourself an "atta-boy" for how you raised her!
Fl - what a great opportunity to meet BCO sisters! Be sure to fill us in.
kltb - the visit with the MO was an emotionally exhausting one. When I went for my 3-month check up a couple of weeks ago, I intended to present my case on why I should get a scan. I had it all worked out (in my head)...well, I didn't do it. I basically imploded, got emotional and wouldn't talk at all. I think it was a breaking point for me. A few days after the appt, in a more rational state, I made an appt with MO and my chemo nurse (for support) so that I could get everything out that I've been holding since my diagnosis. Does anyone else have a public and a private face? I do - at work, I try to have a good attitude, say "I'm doing well, thanks for asking" and hide my fears, frustrations, and fright about BC. At home, its a different story...thus, my hermitude.
At the second appt, I let it all out...how I feel about losing my breasts, how I'm facing another surgery to take out my ovaries, how I'm waiting for the other shoe to drop, how I hate when other ppl think that now that treatment is over, I'm "cured" so life should return to normal...how chemobrain has seriously affected my job performance...how for the first time in 14 years, I got a "meets expectations" on my annual performance review when I've always gotten "exceeds"...how little energy I have and little interest in doing anything...how cancer has robbed me of laughter, joy and thankfulness...how I wish I could say I'm thankful for being alive...for being a survivor...for fighting bc and winning...but I can't. (I'm posting this so I don't lose it! will continue in next post)
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(con't) - how my daily thoughts are about cancer...how little patience I have for those people who complain about minor ailments as though its a big deal. I'm stuck in this place that I don't want to be in and don't know how to move forward.
At the previous visit, my MO talked about guarantees and there aren't any. He used the "I could get hit by a truck tomorrow" line. I responded to that at this appt - yeah, we all could be hit by a truck...but you have a choice...you can look both ways to make sure the truck isnt coming...you can decide to go another route. The truck has already hit me...wham...and it backed over me and is just waiting to hit me again.
I said that I want to know that all the sacrifices I've made, all the doctors visits, time missed from work, chemobrain, radiation, these hateful TEs and everything I've endured have been worth it. That at a point in time, I want to hear "Right now, we see NED!" I want them to help me move past this place I'm stuck in...that I was sure they had resources that would help me...
We met for more than an hour and I was emotionally drained. But, it must have made an impression...the next day, I got calls that a CT scan was scheduled, was given options for some support groups and counseling...I feel there may be some positive things that will happen...at least I feel like they're fighting for me and now looking at me as a patient, not as a statistic that gets XX treatment because that is what the protocols are.
P.S. My PCP increased the Zoloft she prescribed while I've been on this damn roller coaster. I hope it'll work!
Thanks for "listening" - it helps to get it out here too. Now maybe I can start to move on...
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Jane I'm sorry, u can't brag enought to us---OMG how wonderful for her and u--Yea this isyear had to be tough on her and she still accomplished all that. Jane I always forget u'r in Canada, that why when I read French I was oh yeah. Good for her and she certsinky deserved any dress she wanted--Can u put a pic. of her up---what a hppy rime for u and really makin u proud. She sounds so sweet.
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There are loads of hurdles along the way and some we knock over cuz they're harder to do but u keep on trying --that's what we can do.
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