The Hermit Club
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Skittle- super cool life! Kltb was from AR I think? What is the best shoe for neuropathy?
Whaevah - of course you do! We all do!
I actually asked DH if Minnesota is a state or city tonight. He got this really worried look on his face...poor guy.
FL, yay! I love the beach. Love love love. I remember looking out at the Gulf last year and just wanting to stay. So beautiful.
Hugs camille! You're not old!
Jane, we all understand. Sounds beautiful. Thinking of you for your surgery.0 -
Oh and Teka- hate the darn chemo brain. Wait what were we talking about
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skittle...awwww, so sweet, sweethearts , your DH sounds like a keeper
markat...the best shoe for neuropathy is barefoot ...on a sandy beach... with those cocktails with little umbrellas ...your feet will be awesome, I promise
bgirl...good luck with surgery..and you rock! yeah FC take that!!!
teka..forgot what I was going to say
camillegal..we are going to get you a tracking devise, so we don't forget when you forget and we can find you. beep beep
Fl...best wishes for that job!
Thanks all for the rad stories! I worked a 10 hr day...with one eye and craw like hands... can't wait to see all the mistakes later
Off to bed , early morning, deportation awaits
*waves* to all I missed
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Just pooin in--I'm falling asllep all different time ick
Jane u'rll be so glad u did the painting, ood for u--u'll have time to rest later--do what u can when u can and it it pays off.
I got a bunch of my small presents done today--thru the mail, but they came so that's done-everyone in the neighorhood is all decorated and so are we. Love it
My niece came over today stayed a couple of hrs. She's so sweet, just love her and she only lives 5 mins. from here.I'm debating if I want to go to my brothers Christmas eve or with my DD to her in-laws. they're nice too. I'll see my sister and other brother and their family's Christmas day--so I might jjust go to my brothers sounds good to me actually. That's why I love the holidays it's all about love and family--we don't exchane presents but again that's not the point.
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Hi all - just back from my weekend with my son, then whirlwind of work Mon/Tues. The visit with DS was wonderful. I did pretty well, and only teared up a bit (vs. full on bawling) when we had to say our goodbyes. He has a new gf, and seems on top of the world. He also seemed reassured by seeing me in the flesh that I'm for now ok. That meant the world to me, because I worry so much about how he's handling this.
I am well and truly exhausted. This is week two for my Xeloda. And? In counting my pills last night, I've found that I've somehow missed 2 whole days worth of pills. I'm supposed to be out on Friday night - but will be out Sun. night instead. I have zero idea how this happened. Talk about chemo brain.
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Teka -
Yup - I think I definitely have to get myself one of those am/pm pill holders!!!!
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Teka .. you are chatty today.
So I am now the proud owner of a new boob (or partial one) lol. Love my DH, told him I bought one and he is kind of like ... okay ... happy with it. No questions about cost or anything ... just whatever.
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markat--Just asked DH what the best shoe for neuropathy would be... response: soft toed, (fabric or leather) with a custom-made insert made of ppt plastizode (?). Usually not laced, has strap for adjustment. Most with neuropathy can sense pressure and do not want them too tight. (eeg. Greek to me.) Barefoot on the beach sounds sooo much more fun and comforting. and bares are always welcome on the beach!
bgirl--congrats! Can any of us picture ourselves twenty years ago celebrating a new boob! Maybe Victoria Secret push up, but certainly not bc. sigh. Reality. And I love that you did your kitchen. Paint is like a second chance. We all need pick-me-ups like that. It's transforming. Thinking of you. Hope all goes quickly and well!
Camille--sorry, sweetie, but with all your d issues, I found "just pooin in" hilarious. (forgive me. Sixth grade humor...and I'm tired.)
whaevah--yeah. Keeper. I'm too old to "train" a new one! A zillion years together makes us like puzzle pieces. The fit doesn't have to be forced.
Liz--so glad you had your visit! Tears are just part of love. Wonderful to spend time together. Wishing my dds had bfs... but none on the horizon. Good men are hard to find.
FL--Ouchita mountains are kind of far, but so pretty. We are closer to Petit Jean mtn and Pinnacle mtn. Autumn colors have been amazing this year. No, skeletoes are not cushy... they are like an enclosed flip-flop as far as "feel"... too flat for softness.
Teka--I found my old pill holder depressing. I found this cylindrical bright rainbow stacked one. The bright colors cheer me up, and I make my way through the week... Monday's red, Tuesday's yellow... etc.
We made it mid week! Hugs to all.
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I would like to apply for membership in the Hermit Club. Since my MX, I have been telecommuting and haven't seen anyone from my office except one person I ran into accidentally when I went in on a Saturday expecting nobody to be there, and another two I saw at the bus stop when I had errands downtown. For some reason I don't want to see my co-workers, or it might be more accurate to say I don't want them to see me, even though treatment has not affected my appearance all that much--CMF doesn't make all of your hair fall out and with my usual wardrobe of loose fitting tops my one-sidedness is not obvious.
I'm planning to retire from my job next year, and just bought a house to live in after I retire. I find myself feeling really secretive and not wanting to tell anyone but my immediate family exactly where the house is, although I have told other people what city it's in. I don't know why I feel this way, but as long as I do I will keep my new address to myself. Does that make me a Hermit?
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Welcome Curveball!! We are a fun supportive group. We chat a lot about everything, so just jump in
Camille is having problems posting to the boards. She pm'ed me. I'm having problems also from my phone so maybe we are both having wifi/data issues. She wants everyone to know she is here reading. PM her if you want and hopefully the issue is resolved quickly.
LL, so glad you had a good trip!
Jane, yay for your new boob! When is your surgery? Today, yesterday, next week? Damn chemo brain.
Whaevah, hope you aren't in pain from yesterday and are feeling okay. Thinking about ya.
Skittle, thank you for asking your DH. I think I have neuropathy. My MO thinks I have Plantars Fascitis. I never had problems before chemo, but I've never been this fat either.
Hi to FL, Teka, and everyone else. Hope all are having a good day. Yesterday was a no good rotten day for me. But today feels better. Hugs to all!
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Pre-op today, surgery Tuesday.
Curveball welcome.
Cami, we still love you.
Markat, glad you are feeling better today.
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definitely no retirement party. I'm a mega introvert and I don't really enjoy parties much to start off with. Office parties, even less.
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I'm fixed--I'm fixed--I think the mods did it, I wrote to them.
Welcome curveball this is the place to be for us who don't care to socialize much, I'm the queen of hermitude so I'm always around.
Jane this coming Tuesday right. I'm so confused ---as usual
Markat I hope u haven't had a rotten day today--why do I always laugh at u even when u descibing bad. LOL
I hope everyone still is OK I feel bad for anyone who's getting an operation, I know we've all had them but no one likes them--that's for sure.
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Curvebsll- U sound kind of normal for this time to me. For some reason some of us just withdraw somewhat--who knows why maybe cuz we just don't feel like we used to and only close people will not question us or ask stupid questions. Cuz for the most part we can't talk about things to people who have not wxperienced this--It's a unique beast that hangs on in different ways at differnt times--so we do understand even where u plan on leavin and moving. It's ip to u to explain and if u don't want to fine--that's up to u too.
Share anything u want, rant, vent or be silly like we are sometimes or ask whst u want, someone will know--(not me) I just fiht this all, but don't know a thing about it--I choose not to. LOL--It's better for me. But share and tell all u want anytime u want.
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Glad you're back Camille! Lol, that's okay to laugh at me! Today was better. Been sort of busy with holiday stuff.
It's quiet around her this week. I guess this time of year becomes more hectic or we decide to sleep more, who knows?
Hope everyone had a great day!
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Sounds like a calm day in the neighborhood.
Curveball, you've found a soft nest to land in. Be as private as you want to be, and no one judges. There's laughter, comfort, advice, support, caring. Hermits all in the same boat. (I'll warn you, though. If any of us wins the lottery, we're abandoning hermitude for a bit to get together to party on a beach and paint our toes at a spa!!)
bgirl--best wishes for your big day.
camille--hope your computer cooperates soon! Must be frustrating.
markat--thanks for keeping up with c! Perhaps your tech issues will straighten out, too.
teka--have you seen Henri (le chat noir) on youtube? If you enjoy cat-thoughts, you might enjoy.
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here's a link to Henri, Pas de deux, and you can go to his other videos from there.
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Hi everyone!
I must be the biggest hermit of all. I hate the holidays anymore. I love being with my immediate family (husband and kids) and their friends. I am going to FL to visit my daughter right before X-mas (14-18). The party on the beach and painting our toes at a spa sounds great! I despise having to go every X-mas Eve to visit his family(sisters, their husbands, their kids, and all their crying kids). They are all loud and obnoxious. I can just see it already; they will be asking me all kinds of stupid questions. Every year they want me to have the party and I refuse. Now that I am not working they figure I don't have an excuse. So the one sister decided to have it at her house on Sunday, the 23rd at 12:00 noon instead of early evening. She is not having a dinner but just drinks and horderves this year. I wish they would just cut that tradition and have it with their own immediate family. And it's not like they get together for a few hours, it's more like 8 hours or more. Too many people. Maybe I am claustrophobic.
Am I being rude or ungrateful to say I don't want to go to my husbands familys X-mas? I am an adult and should be able to do what I want to do. I know he never wants to go to my Mom's or go out of state to visit my family. My two adult kids live on their own, so I am used to peace and quiet around my house and that's the way I like it. BC is like being on a rolllercoaster. I think I am just getting used to taking Tamoxifen. Been taking it for 3 months now. I'm just ranting and raving, the husband is out of town.
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Markat is there anything that you have found that helps the pain in your feet? I have some emla cream left over from my port. When mine are really bad I use it on the soles of my feet. It is a temporary relief. I have heard that Dansko clogs are good. Then I have heard that they are dangerous (tripping hazard)? Skittle what does your DH say about Dansko clogs?
Bgirl hope your pre-op went smooth and uneventful today.
Whaevah yay on be de-ported! That is good for a happy dance.
LizLemon so nice to hear your time with your son was wonderful!
Curveball - welcome to hermit land!
Camille…you wrote “I’m fixed, I’m fixed” Guess where my mind went…Yes I had a great laugh!!! (I realize you were not spade or neutered, but it waaaas funny.) Glad your are fixed…welcome back!
Teka did you see Henri? (Curveball that was cute.) “The whip cream in the bathroom is not really whip cream!!!” Hahaha
Detroit I used to love the holidays! Last year and this year…not so much! I am thankful that I do not have in-laws anymore! Where in FL are you coming?
Thanks again for your support during my job hunt. I was offered the job today. I will start on the 17th. It is not my dream job by any stretch, but it better than unemployment. There is no insurance benefits in place right now. He reassured me that it is coming. It should be offered by March or April. I will continue to look for bigger and better things, but for now I will have a job to go to.
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FLwarrior: Good Luck on your new job. I need to start looking after the holidays. I quit my job as of 10-1-12 but was off since 5-10-12.
I need to stay busy. It seems like I stay very busy in the summer but in the winter I get bored and hate that it gets dark so early.
I will be going to visit my daughter in Ft. Myers. I could get used to that weather easily, but my husband will never want to move there.
Too hot for him
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FL, yay for the job!! I'm the one that talked about the Danskos. I can't remember who fell, hmmm. I haven't really found anything. Pain relievers help for like half an hour, then it's back or numb. I don't really want to go on Lyrica or anything like that. Sometimes when it's really bad I'll take a pain pill, but those don't really help either. Grrr.
Welcome Detroit. I think whatever you are comfortable with doing is fine. I skipped out on a lot of things over the last year. No major holidays because I have little kids, but other gatherings. (I should post a picture for you guys to see from my daughter's First Reconciliation at church. I look gray, wore a gray sweater, had sweat glistening on my face, and my wig was crooked! hahahaha). I'm really over the top with Christmas this year, so just ignore me. Last year was my hellish year, so I'm being silly this year.
Hi Skittle, Teka and Curveball!
So, I baked 4 dozen peanut butter blossoms and made 2 dozen oreo truffles for a lunch I have to go to tomorrow. I had to run some errands tonight and when I came back half of my goodies were gone. Between DH and the girls they annihilated them. They're all getting coal, seriously.
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speaking of hellish...a little sore from the deport, tomorrow will be a better day
send cookies
*waves* to all and welcome to the new hermits ! Will catch up later.
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Whaeveh rest--it is an operation u know. So I hope u take care of u'rself.
Now is Jane getting operated on today? I'm confused (as usual) since I'm all fixed (shut up) so I have to catch up now.
Markat please show us the picture--we always talk and no one knows who we are--I would love to see u'r family.
DETROIT welcome to our little island here. U can rant, vent, laugh whatever u want. And I am thankful I have no in-laws--cuz I could never put up with the ones I had even on the best of days. LOL Well u know what u will do to keep peace in the family but I didn't keep peace so Divorce was my answer any ears ago, but when u'r young u just do things, when u'r older u have to look at the whole oicture. But personally if it's to much for u can't u just say u'r not up to it.---I know people don't believe it when most things are over unless u've been thru it but it is true--sometimes our nerves are just rattled for no reason and we just can't put up with what we used to do. Thru all of this I lived alone and I ot so used to it--it's bad so it's easy for me to be a hermit--But I do love to see my family anytime, if I'm able. So I think we all get it.
Here's my rant for the day----I have my diarrhea again this morning---I've been taking my meds the last few hours--I feel so weak so I'm ranting. LOL--So I'm cacooning myself today--I was supposed to go for a blood panel today-??? I could go Monday I have to see the.Dr. anyway--I'd rather do 2 things at once anyway. I still hate Drs. even tho they are nice.
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Ugh Camille I hate that you have the D again! It would probably be good to get the panel today so the doc might have the results Monday. Not saying that you should do it, because I would probably wait, haha. I'll try to figure out how to post a pic. It's not my best moment on camera, but I tried
Jane's surgery is Tuesday.Whaevah, I hope you aren't in too much pain today. I'll send the cookies with the TP and underpants. They'll be wrapped up in plastic wrap with it all.
I need to get ready for my big day. Running around all day so hopefully I can stay in my pj's most of the weekend, lol. I want to take the girls to a holiday light event at our zoo, but it is soooo hilly and my feet ache just thinking about it. I wonder if they have power scooters you can rent
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Markat the cookie baking makes me jealous!
I would like to do some holiday baking. I cannot “stand” on the kitchen tile floor long enough to bake anything…I do better walking. Just standing kills my feet (damn neuropathy…damn chemo…damn bc).Oh Camille, sorry your back on the D train. Get better soon!
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Hi girls -
FL - OMG - congrats on your new job!! That has got to be record time!! So happy for you!
Curveball & Detroit - Welcome! I'm a newbie here myself, and have gotten such understanding here.
Whaevah - hoping that your pain goes away soon from the deport. And so happy that you were able to get rid of that thing!
Glad you're all fixed, Cami! Computer problems make me want to kill someone.
Markat - re: pj's - I work from home (honest to god, I do real work), so I've been wearing my pj's all day for the last 2 years! Now that I'm re-dx'd, just forget it. I'm lucky if I get my shower in before DH comes home. Sometimes he says that I look like Jim from Taxi (old reference...!).
Jazzy - waving at you!
And hello's to anyone else I may have missed - I didn't mean to! Love you all!
Happy Friday
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LL I know who Jim is--see to me thst would be a compliment I loved that character. LOL U sound good today--and u work from home. Wow I'm hearing that more and more lately. U must be disapkined, cuz if it were me I'd find different things--not to do--just distractions--TV--phone--I have to be in a structured place and even then my efforts aren't enormous.
No wonder it's eady for u to be a hermit--well I'm retired so it's easy for me too.
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FL- my kids were laughing at me because I kept doing leg lifts while baking. I had to take a pain pill last night too. Makes me a little worried about my new job being on my feet- but it's only 3 hours. My shoulder seems to ache after standing too long and advil does nothing for that. Everything hurts worse when I stop moving. Are you like that?
LL- awesome about working from home! Some days I really look like the sterotypical stay at home mom- laying on the couch eating bon-bons.
Camille yay pictures!
Lunch was fun. So full- so many cookies. More cookies tonight. Who knew I could bake? I totally never had the patience or attention for baking. Chemo side effect? Lol.0 -
Thanks LizLemon. I did have a little extra edge over the other applicants...my room-mate works in the same building (different company) and got me the interview and put in a good word for me. He is leaving to go to another firm (he's an architect) in Jan. or I would worry about being around him TOO much...lol. What kind of work do you do at home?
Oh Camille, I love the kitty pic! He reminds me of one I had years ago. His name was Gizmo!
Markat...leg lifts, yep know all about those. Happens anywhere I have to stand very long at all. You should see me in a line at the store...hahaha. In my previous job at the copy machine! And in the kitchen. I have to wear shoes to stand in the bathroom to dry my hair...ugh! My shoulders and neck do bother me. I am much better off if I am moving/walking. Also, I can't handle anything hot or cold with bare hands. Food from the freezer burns like crazy. I need gloves to wash dishes in hot water.
All hermits have a great weekend!
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