The Hermit Club
Comments
-
Camille...
sooooo happy that your back is c/f!! Congrats! I am thrilled for you. You deserve the good news.
My husband is pretty darned helpful in the nursing department, so even though he is at work during the day, he helps me quite a bit when he gets home. Now, just lying around, deciding if I should cancel my son's ortho appointment today at 3:30, or attempt to get him there. Trying to get to the conference in Philly in April. Hoping that my chemo schedule will work around the dates so I feel well enough to go. I don't know if the se's get better after each infusion, or worse?
any thoughts?
Lynn
0 -
Jazzy I hope you get over it quick! There have been some nasty viruses this winter! That norovirus scares me! I feel like spraying the kids at school with lysol, just kidding...kinda.
Yay Camille! Woohoo! I hope I have the same results
well maybe not deterioration yet...but you know what I mean.
Bgirl, I can't get used to the time change! Wah...
Well, the brothers that had lice at school last month are out with it again as of yesterday (shiver). I want to take a tea tree oil and lysol bath, lol.
Hugs!0 -
Took something to sleep last night, and it actually sort of worked for a change ... guess I was exhausted. Hope it will reset my body clock too.
Cami, sorry for your pain ... of all the pain I have, hate the back worst. I do get it. Because it is not obvious, sometimes others think it is all in your head, especially when you have been chronically ill. Then you doubt yourself and think is it really that bad. Maybe they are right and I am crazy. Nice to have a dr. that believes you AND is willing to treat it appropriately.
Lynn .. wanting to kill your family or just have them go away is normal ... a couple of others on this thread have expressed those sentiments. Sometimes just steriods or plain want to crawl in a hole alone for a bit.
Jazzy ... take care ... the rads will run you down. Like the back pain ... don't see it but it does a number on your body, including your immune system.
Teka .. love the attitude.
To everyone else , happy Tuesday.
0 -
Hi ladies- doing better today. The virus has abated and I am going to work just for a few hours for some things I have to do. Going to come home and rest and sleep the rest of the day.
Bgirl- I was thinking the same thing about the rads. If nothing else they fatigue you but do think they hit your immune system too.
Hoping everyone has a good day!
0 -
Jlynn I don't know what to tell u cuz we all can give u our pwn stories--Some have it worse up front and theyir bodies get more used to it (maybe) I'll be honest I worked when I could the first 4 months of xhemo, after that I couldn't work any more even if they doubled my pay--the loner I ot it and thhey were different kinds it was all a new experience and I only had about 2 days a week where I felt OK. But that was me--When I was in my 2nd year of chemo I felt awful most of the time but again that's me. And rads I was so tired all the time But I know women tat did not have all of this so u'll have to take it as it comes--But I'm glad u have a husband that heps out. But I'm much older with girls that are married so they would come and clean and shop for me--so I could be lazy.
0 -
Excellent news Cam, my kids are older (well 3 of them are) and I hate asking them to do things for me, so I do it myself, so independent it sucks.....
Jlynn I live outside Philly am going to the conference and put something on this stage iv thing about it....mine get more pronounced..the neuropathy is starting and I am on round 5 I think, have to look....and steroids sucks
Mark omg so sorry, hate lice....little creatures..had girls with them never the boys (should shut up now)
bgirl, actually I took all kinds of meds last night to sleep including pain ones cause I was up from 430am and again woke up at 330am but went back to sleep...
jazzy, yay feeling better....
Happy Tuesday!!
0 -
Teka--yay! Red-winged blackbirds hold happy childhood memories for me. Horseback riding in Virgina. They were everywhere. Bright red flash was unmistakeable.
Camille--I had back surgery several years ago. One of the best decisions I ever made. The pain prior was unbelievable. I hope you aren't having to go through that daily!!
Jazzy--glad you sound better, on the rebound. Keep sipping!
bgirl--hope you're able to store up some zzzzz's. Sleep well. Precious energy.
markat--does your school nurse get in on it and alert other families? or do the lice-bearers just go home until they're cleared? Each school is different, it seems. One conference night down, one to go! Some grumpy faces tonight.
Hugs to all.
0 -
Skittle, I'm not sure if they do or not. I know they send them home and they have to be clear until they come back. I don't think our public schools can do that. I've never received a letter from the girls' school. Glad one night is over for conferences for you! DH had back surgery and is probably due for some type of tune-up, it's been over 13years.
Blondie, the brothers that have lice are students, not my kids. I bought some lice repel stuff and use it on my kids since working in a school, lol. I wouldn't normally worry about myself (lunch lady) but I've been going in the classrooms and helping the kids with breakfast stuff. Bending over them, opening stuff. Honestly, I would should probably worry more about the bedbugs lol. Hope you are feeling okay tonight!
Jlynn, hope you are feeling okay tonight. I haven't had Perjeta, so I'm not sure about those cycles. I was on a 3 week cycle, so I did have a "good" week.
Bgirl, glad you got some sleep! I should have taken something tonight but its too late now
Hopefully tomorrow this straightens out. I sure don't bounce back like I used to! Back pain is so hard, all pain sucks. I've been coming home from work and taking 2 pain pills and my back still burns. I'm almost used to it now.
Jazzy, glad you are feeling better! I've told you this before, but after my mom had rads she was always so tired. It seemed to completely zap her. It took awhile for her to bounce back. Sending you hugs.
Teka, yay for the birds!! My youngest loves birds and always watches them, has her own feeder, and reads about them.0 -
I got a call from the doctor's office yesterday afternoon to inform me that my MO reviewed the results from the CT scan and saw nothing of concern and said everything looks good. Yay!
So hard to get up in the mornings with the time change. I wish they'd just quit changing the time around altogether.
0 -
Hi everyone!
I'm new to this site. Just wanted to introduce myself. Wow, I thought it was just me that just doesn't want to socialize or go out of the house. It just takes too much energy. Plus I have no hair!! Putting the wig on takes too much energy also. A little background about myself. I had double mastectomy 10/2012 and finished my last of 4 chemo rounds on 1/31/2013. I am just so tired all the time. I sleep til about noon and then just putt around the house a little before kids come home from school and hubby gets off work. I'm thinking I need to get back to my normal schedule (if that's possible), but I don't have a job anymore because they fired me when I went over FMLA time. I still need one more surgery for exchange of expanders to implants, but that's not for another possibly 6 weeks-don't have a date yet! I feel like my life is in limbo. UGH
0 -
HI Hermits! *waves* to all!
YAY! For the good test results!!!
Welcome hhbelle. Teka is right. I felt the same way for quite a while. I can say that I am 1 year and 9 months PFC and 1 year 8 months out from mx...and I finally feel like I have turned the corner. I do feel better, not the same, but better. I do have some lingering SEs.
Markat, I'm scratchin' my head just thinkin' about it... I think every kid who goes to public school ends up with them at sometime.
Jazzy hope you are feeling better.
Sweet dreams to all and especially those who need a good full nights rest!!!
0 -
Hi all and Welcome Hhbelle. Tho sorry u'r here. But all of this is kind of normal and I'm still hermitting myself--maybe not so normal--but I choose alot of it. LOL
I don't understand about being fired--did u not have u'r papers in time? I guess they can fire u than but if u'r on FMLA they are not allowed to fire u, Don't o by me--I don't know that much. But u have kids--oh that's a big job in itself. So join in and u'll see u'r not so crazy.
Now my head is getting itchy. ick
0 -
Hi hermits- doing better from the stomach bug. Went back to work yesterday. Had a not good day at the client site today and preparing for a difficult meeting tomorrow morning. I am evaluating whether I may opt out of this contract in a few more months. Just not fitting with the new me and all I need to these days to take care of Jazzy. Funny how all this changes you and helps you to walk away sooner from things that don't work for you.
More soon! Yay for good tests, signs of spring and welcome hhbelle!
0 -
Sorry for making everyone itchy. I told DH that I might shave my head again if I ever got them.
Jinkala great!
Welcome Hhbelle. I totally went through what you are going through. Sorry to hear about your job.
Hi FL! Hope the job is going good this week.
Hey Camille, Teka, Bgirl, Skittle, Jazzy. Hope you all are feeling good!0 -
Jazzy u have been having difficulties and no doubt things have changed but u'll do what's right for u, I'm sure.
Markat I would shave my head too, it's no big deal now.
0 -
Mark..Well I did get them from my kids and OMG that sucked....
Welcome
Jazzy glad you are better....
Jink congrats.....
0 -
Fellow Hermits...
Chemo started this past Friday, so will be a week tomorrow. Oddly, exhausted today more than the rest of the days.....so I don't know why that is.
I ventured "out" yesterday, into the real world. By "out", I mean I went to the bank, ran to CVS, and picked up my son from school.....that's out to me now I think. Found myself face-to-face with my face....in the rearview mirror of my car....and there is NOTHING quite like daylight to bring you back around to reality. Holy crap! Luckily, I made this startling discovery while waiting to pick up my son, AFTER my errands were done, because I'd of high-tailed it home ASAP. COVERED in acne. I never had acne before, sure a few here and there that time of the month, but THIS? Oh no. I've a newfound sympathy for my now 18yo who went through puberty COVERED in it...was actually on Accutane for it. I did call my onc, and said I don't mean to complain, but right now looking ugly is NOT the perk I was looking for. He suggested Clearasil pads? Really? I want a prescription strength zit zapper, not Clearasil. He said if not gone by appointment, he will send me to dermatologist. Now, I don't know, but I've read plenty a post on here from women whose ONCs gave 'em the medicine. It's not like I'm suddenly covered in acne and we are all scratching our heads wondering why....so why another bill? I bought Neutrogena "stuff" and used last night. Looked worse this am. I'm not leaving the house again til it goes away. My husband said I was being ridiculous. Good. Point taken, but I'm not going out. ANYWHERE.
And, who could perfectly put together a "first time infusion/got your period thought you weren't supposed to" combo? I guess I did.
Oh boy. Enough said! I am going to find my "half-full" attitude somewhere, though as of right now, I am typing and listening to my otherwise dear love him to death black Labrador who is perched on my son's bed with his head up underneath the shades, BARKING AND BARKING and he won't shut up!! What could be that interesting?
I'm whining. I hate that!
sending good wishes to all of you! I won't come back til I stop my whining. I promise!
Lynn
0 -
Hmm...so he wasn't so off the cuff in referring me outside? That's good to know Teka. Well, good and bad that it may get worse, but good to know he was right. That's what it looks like anyway....acne. Maybe it's a rash?
I did like my son's dermatologist very much, so at least I know someone good!
Thanks for the heads up!
0 -
Hi ladies- rough week with work this week. Just a few things tomorrow and then on call this weekend as we begin a conversion. Got some home time the next few days. Whew!
The weather has been great this week, in the 70s, feeling like spring with the temps and evening light.
Hope everyone is doing okay! TGIF!
0 -
Jazzy I'm glad u have some time away from work--but on call? don't like the sound of that.
Lynn if u'r Onc gives u to a derm. just go and get this taken care of-- it must feel awful. At least u know a good one.
0 -
jlynn - I am usually a positive person, but cancer has made me whinny at times. Here has always been a safe place. Others understand and make me feel better, even if they are going through worse crap. Emotional up and downs are normal ... all grateful for treatments available, but it still SUCKS! .... and it is okay to whine about it sometimes. Society has set up this image of the happy cancer patient who sails through treatment ... but I think that is not often the case ... and even those people behind closed doors have their whinny days too. Especially when you get the less common SEs and think why am I the lucky one. Like getting your biopsy "that should be negative" back and it's positive for BC.
0 -
Bc..
I just now finished an e-mail to someone telling her that I think having this crap automatically allows us to whine as much and as often as we want. You know....before finding out I had this, I looked fine and felt ok. Now, I look just terrible and feel it too! This, of course, due to the chemo. So, whining is perfectly understood and acceptable. I feel like I have to keep on saying "Oh, yes I'm fine" to my kids, or my DH....when I want to say "Oh geez....stop asking....do you see me? How do you THINK I feel?". It's harder with them in the house, in that respect anyway.
I can't imagine that anyone would expect us not to whine, but there are those who do! Those are the people who have never heard the words "You have cancer"...at least I think...for the most part anyway. I am finding people treat me differently (esp having Stage IV), and I want to shake them and tell them that if being sick with this isn't bad enough...you acting like I'm contagious is making it much worse....but then again, I don't know if I'd know what to do or say if I didn't have it myself.
You're right. It sucks. Bigtime. Try to keep the "half-full" attitude..."others have it worse"....etc. Not always easy. Trying not to fall into that pattern 24/7...maybe just a little bit here and there! Today, I am going to see my oncologist, and hoping to go out for dinner with DH and DS later on!! Maybe see a movie. If I feel ok, will definetely do so. I haven't said anything to them yet because I want to make sure I feel good!
Have a great weekend!
Lynn
0 -
Teka u'r so cute.
And Lynn I never really think about well others have it worse--whatever we are going thru it's horrible for us. So u have to whine somewhere so this is a good place cuz we understand most of everything. Of course we wish that no one ever has to hear the words U have cancer--but in reality I think it happens to much and it takes a while before u can truly get this whole thing ourselves, cuz most of us go in feeling fine. It's after everything starts that u feel like u have cancer--Sometimes I think that's wht throws us. But we're safe here with others like us--Like the old leper colonies--OMG that a terrible comparison, but sometimes we are treated like that.
0 -
Camille...
I know you're right. Sometimes, trying to be eternally optimistic gives you a damned headache! I think, I am trying so hard to be the polar opposite of my mother, who whines constantly. Taking my son to the onc with me today. I so hope I'm not doing the wrong thing. I guess I just thought if he went with me, saw how well they took care of me, met the doctor, he'd feel better? He's 15....very mature for his age. Said he wanted to go with me. I hope I made the right decision! Sorry about the D still acting up on you! I had it some yesterday, but it's calmed down today, which is good since my bathroom wont be just a few steps away in a little bit!!
Lynn
0 -
Personally Lynn I think if he wants to go --why not--It would be good to see it in person--who knows he thoughts that are in their heads and to see it's not hrting u and they are so kind--it might give hime a little lift for good outcome.
0 -
agree with all of you!!
My twins went to chemo with me separately @ 19 and my granddaughter was 15...they all said it was boring, but they don't realize it was support for me, not to entertain them....my older kids who are 38, 35 and 31 has not gone anywhere with me, apparently they can't handle it, a friend of mine goes, sometimes, when I tell her or make the appts when she can go, feel bad that she rearranges her schedule and she only does it cause my kids don't, and I am an only child and parents are deceased so basically alone, which is fine..
nobody understands what we go through on a day to day basis, even if you have cancer, it is individual....my kids say, what is wrong with you, or why are you in a bad mood, or when do you go to chemo, can't keep up with your schedule....thank goodness for this site....we can do whatever without judgement...I am so glad I found it, the first time I had in 96 there was nothing....
Happy Friday and thanks friends...
0 -
Blonie it's funny cuz i don't even know how I found this sight, cuz no one told me about it--but it's my way too to get it out of my systom and it's been a few yrs. ow--but still crazy things going on from thod beast of a disease. So i have my comfort zones and use them alot. But it really does help me--cuz even when I'm blabbering I really feel like u guys get it. LOL
0 -
0 -
Jlynn my face broke out really bad with my first chemo, then cleared up on it's own. Are you on steroids? Could be part of it.
I took my 7yo to get my herceptin with me a couple times over the summer. She loved it lol. We watched tv and the nurses gave her tons of snacks. A little different than chemo and teens but I think it is good if the kids want to go.0 -
Cam definately get it!!
0
