The Hermit Club
Comments
-
Good Morning jazzy--I hope u'r day goes well.
S N O W---no, no, no not on my body. LOL
0 -
Thanks and i agree - ionly had one Bone scan to check for spread and nothing elsehas been mentioned......stiffness on getting up and sore joints is worse
0 -
Thanks and i agree - ionly had one Bone scan to check for spread and nothing elsehas been mentioned......stiffness on getting up and sore joints is worse
0 -
Lily, I think putting the chemo, rads, operations and meds all in one big pot and mix them up we are all feeling miserable alot. hahaha
0 -
I think, like in life, there are always a few (like my MIL) who feel they have the right to say whatever they want. I think most just want to offer support and friendship, but it only takes one to stir the pot sometimes. Kind of like it is with men, women often just want to be heard, listened to, and hugged. But, some feel they have to fix others problems and tell them what to do. There is definitely no one right way to do this journey!
What now? What am I supposed to do now? Sick of SEs & pain. That kind of funk. Been a lot of changes in my life in the last year; BC (treatment & diagnosis), living with my parents for 2 months and doing palliative care for my dad, becoming an empty nester and thinking of returning to work which seems like a daunting task after so many years and wondering if I am ready. I survived, but what is next?
0 -
Bgirl- you have much on your plate with your own health, eldercare responsibilities, and thinking of returning to work. So much change. It is hard to think of the future after going through all we go through.
Be patient and kind with yourself. We are here for you.0 -
@bgirl, I have a thought about getting back to work. Would it be possible for you to sign on with a temporary agency? Then you could accept assignments that match your energy level, and turn down the others. I'll be retiring very shortly and I think temping is the only way I would ever consider going back to work. I hope I never have to think about work again!
0 -
Lily55 welcome!!!
Bgirl {{{{{HUGS}}}}}}}}}}}}}
Thinking about all of you.....hope you have a wonderful day!!
0 -
I've been feeling pretty good lately being just on the Herceptin now. It's like night and day compared to the chemo last year. If it weren't for the blisters that keep appearing on my one foot, I would feel almost back to my normal self. Of course having only one boob is kind of a strong reminder that I'll never be back to my old normal but even that I'm learning to deal with. :P
MUGA scan today. I'm pretty sure it will come back normal as usual but I guess they are required to do them every so often because of the Herceptin. I think I'm due for a mammo on my existing breast too and I know she wants me to have an MRI soon too. Bleh - I hate the MRI and I hate having to take drugs to deal with my claustrophobia but I'm not sure I can handle it without the drugs. The other scans haven't been that hard for me but the machines are a bit more open and I'm lying on my back. The face down thing with the MRI and having to hold still in an awkward position for a long time set my anxieties off.
0 -
Hi hermits: I survived turning 53. It was a good day filled with nice surprises and time with friends in the evening. I feel blessed.
Doing okay on the Arimidex. Some SE's but able to cope with everything so far.
Finally getting some of my hung up lab claims cleared out. The insurance company is finally getting the genetic tests paid for (BRACA and Onctotype) but they are sending the checks to me vs. the labs so those folks are after me to send them the money right away. I love being the middle man!
One more day of crazy client work before I head out of town.....
0 -
Jazzy today's u'r birthday--I got all confused--HAPPY BIRTHDAY and it sounds like u had a good one.
Jane u sound so sad, but cirve has a great idea, I never thought of that before--I remember doing that years ago for a time and it was good cuz if I din't like it I knew I as done in a few days and it was just general work and u don't have to take the job, but it might ease u back into the work place. And it is different living with u't parents now so naurally u feel some down sides. U'll see it'll all come together.
Well Jinala u'r mugs is done and I'm glad u'r feeling better.
Teka i'd rather get the stage IV brochures than the cemetary ones I seem to be on their list LOL
0 -
Teka hahahahahahLOLLOLLOL
0 -
jazzy so happy you surived...out of town?
Jink glad you are doing better, the MRI will be over, just hang in there...
0 -
Good morning ladies.
Jinkala I have to admit I hate MRI's but last time I asked for a towel to cover my eyes--what a difference really--U've probably done that, but I honestly never thught of that after all this time.
0 -
ugh, breast MRI face down. 3 in last year. Last time asked the girl to take out the little mirror thing that reflects your eyes back to you. Really, that is supposed to make you feel better. Would rather just look at inside of machine. Good luck.
Thinking about expanding my own work or just going for a simple service job I think. But, yeah the part time hours thing may be good to start.
Trying to decide if I am going to go to my mom/brother's this weekend for a couple of days. Would have to go alone, hubby has to work and my 3 girls are all away at school and busy with end of term essays/exam prep.
Jazzy, happy belated birthday. Tell them they'll get their money when you do!
0 -
Hi ladies- thank you for the birthday wishes. It was tuesday, and it was good. I made it to 53 and glad to be done with 52.
Cami- you get cemetary stuff? Seriously? That is aweful. The world is not always a nice place.
Teka-yes, off to my favorite hot springs tomorrow for some restoration and the holiday weekend.
Blessings to all of you for peaceful holiday weekend. May you be surrounded with love and grace.
0 -
have never got an MRI for this...
0 -
Bondie u'r not missing anything--it certainy isn't painful just encosing u'r body in a tube like outer space and the noises are so loud. but it doable like everything else we do.
And Jazzy yes really for cemetaries and cremation things. The cematary ones i throw away and the cremation ones I burn up.I think that's only proper.
0 -
Teka one I ha it was totally open in the back and some kind of glass top on top with a big clouds picture that's as open as I ever ot.
0 -
Happy travels and late birthday!
Never had mri for bc, but prior to back surgery. What worked for me was knowing ahead that it was coming... and conditioning myself to scent. Dd2 had bought a wonderful herbal scent on her travels, and gave it to me for a mini-spritz by my pillow before sleep... "The brain" conditions to calming, and two weeks later, scent in mri, all went smoothly. Just an idea.
Hope all Good Fridays are gentle to you each. Hugs and happy Easter. (Camille--is Joey too old for bunny/basket? There's something cheerful about jelly beans.)
0 -
Skittle I like the idea of scent--I believe in the calming of it so that's a good idea for MRI.
No, He still believes in the Easter Bunny (we think) but he sure talks like he does and I help him believe because I wish there was one so I tell these big stories about wonderful fairytales (of course I make them up) cuz I want him to hear original ideas and it seems to make him believe longer.???????????
0 -
Camille! When our girls were little, we took a stuffed animal and lightly dipped its back paws in baking soda (could be flour or just about anything powdery.) We left a bunny trail from kitchen (where I just happened to leave out the flour, while baking the annual Easter carrot cake) to their beds to their baskets (very lightly)... They loved the idea of the bunny looking in on them and wandering about before leaving candy and hiding eggs. And of course the carrots we left out were appropriately nibbled.
Teka... I'd be happy to wear more of my clothes, but they no longer like me.
I'm way more mishapen and soft than I was just months ago. (Supposedly an se is to expect weight gain, but I'm fighting with it...) I'm hoping that our new muttkin will help me stay outside more and work off calories, tossing a ball, taking long walks and just generally keeping up with him.Jazzy... I hope you are doing well starting off on arimidex/anastrozole.
Happy Friday ahead. Hope some of you enjoy a long weekend. (We still go to school here, but some are out.)
0 -
Oh, Camille you are such a fun and loving grandma to Joey! Good Grandma's are the best!!! My Grandma was so special to me she was a really super awesome lady!!! Loved her dearly!!!
Happy Belated Birthday Jazzy! Enjoy your fun weekend!
My MRI had a window that I could see out. It didn't feel quite so claustrophobic that way. Jinkala, take one of your favorite CD's that make you feel good and ask them to play it through the headphones. Practice slow, purposeful, rhythmic breathing to relax.
Hi Lily. Welcome to our Hermit world. Everyone here is very kind and thoughtful.
Bgirl, be kind to yourself you have been through so much this past year. It is very scary to return to work after the trauma and SE of bc. I was very scared when I went back to work. After being off for 9 months it was definitely an adjustment. I did find it doable though. I went back to work 1 ½ years ago. There are still some days that I come home from work, take my dog out, eat dinner and crawl in my bed. I refuse to feel guilty on those days. If I am tired, I go to bed. I try to think of it as treating my body good by giving it the rest and relaxation that it needs. Good wishes to you as you decide what is best for you!
Hi Skittle, Curveball, Teka, Blondie and all other hermits.
Hope everyone has a "Good" Good Friday! (Hugs)
0 -
Hi everyone! Busy week for all! Hope everyone has good scan experiences. Mine are Tuesday. This will be my first bone scan. I've had everything else. I made an advising appointment at my University...so nervous!
Speaking of weight gain, I've finally lost 10lbs! And I didn't have to cut off anymore body parts to do it!
Hope all are well and having a happy holiday time. Hugs!0 -
Markat 10 lbs. that alot Oh good for you.,
Skittle I love the bunny story--that's such a cute thing to do.
Teka that makes sense to me cuz that's usually what's at the beginning of the closet cuz of washing clothes and hangin them up--I just grab. Of course I'm no fashionista.
FL u always sound like a cheerleader that's so sweet.
Wow it is Good Friday--fast Lent, everything is going by so quickly.
0 -
Markat good for you.
My MRI s were because of mixed tumour. Lobular doesn't show well on mammo like ductal. Also an internal mammary node they were watching on other side that showed on first MRI. Also lobular can be more likely to have local recurrence. So now I am back to yearly instead of six months. Still get mammos too. Special coil that goes around breasts so that is why face down. Our hospital has 2 machines, but one is often set up for the breast MRIs because of having the Breast Assesment Centre there ... one stop shoppping for BC diagnosis & treatment.
Hope everyone has a wonderful weekend
0 -
Mark good for you...10lbs
have to take son out to get food today...but at least I slept 13 hours and thank goodness my week off is coming.....
Happy Palm Sunday and Easter to you all.....and Passover to others...what are you doing for the holidays....appears that I am cooking on sunday, 2 sons are in fla coming home then, dd2 working and dd1 wants to eat with family, she was gone for 6 years with idiot person, they broke up and now she wants to be with family, gs is 8 didn't see him either for 6 years and he doesn't know us...wish I had the money to make up baskets but don't for grandchildren....maybe will figure out something...or do it when I get money next week....oh well...I have 7 gc....older ones are 17, 14 then 8, 6, 3, 3, 1.....probably won't see them although they live close cause dd2 married a bigger idiot that dd1's that she didn't marry, thank goodness....oh well probably tmi...sorry...have a good day...
0 -
Sorry to jump in in mid thread, but none of others seemed to fit & didn't want to start new one. I too am naturally introverted, but being a middle school teacher has forced me out a bit! I spend most time w close family...which leads to my problem today...I'm at my mom's with 2 kids, my sister & her 3 kids, and other sis & the hubbies still to come. Even though I'm still sleeping in my post mastectomy recliner in the middle of the living room, for the first time since being disgnosed, my first thought this morning was NOT about having cancer. I actually had a moment ( before I stretched & hurt myself) upon waking that I thought I was "normal"...then it was all I could do to not sob, not from the pain, but just the realization that I will NEVER again wake up "normal." I didn't cry, but several hours into the day now, I am having to totally fake being human with my family. I feel so alone even surrounded by these people who love me. I hadn't really gone through an angry phase yet, but I feel it comin' on, and I don't think Easter weekend is the best time! I stopped by my middle school Wed. to visit coworkers & students, & they were doing a "casual day" to raise money for my hospital travels, etc. I am sooo humbled & grateful, and then I feel like a bitch because I'm pissed...I don't want to be a charity! Then my mom comes in to tell me my & my sister's kids are planning something (God knows what!)to raise $ for cancer research for me. Again, touched & grateful for their sweet love, but I want just for one day to be normal, no mention of cancer, no thoughts of it, just being treated normal! Then I feel guilty...endless cycle. I'm already on an antidepressant. I just feel like running (ha!) away & crying.
0 -
Grover I hope u have a good place here for u. U'r at the beginning of this crap and crying comes so easily and u feel kind of like a lil monster among normality. Well u are normal but u have cancer and u'r feeling will change all he time. Sometimes u can be with u'r family and friends and everyone is laughing having a good time and u think I'm not like that anymore why are they laughing? Alot of us have turned to being alone alot--maybe that's not healthy who knows but it seemed to work for us. Now hsome of the girls have gone back to work, but it wasn't easy. So I can't say oh this isn't so bad, we all take and feel differant physically AND mentally and that's OK, we have that right. As time goes by usually we don't wake up with thinking about ancer but it doesn't leave u'r mind so easily. It's not like u've been diagnosed with an infction, take some antibiotics and u'll feel better--Are u gettin chemo, rads or what? I can't paint a rosy piture for u, but I can say it gets better with time and it does. But it's hard to be with anyone that hasn't had it cuz understanding how we feel is totalling foreign to anyone else. It's winthin us--that's why we're here to help each other cuz we get it. When the Drs, talk what the hell are they talkin about then u start digesting what they are saying. Hang in there we're all her and this is a bunch of wonderful women that u can rant to. like I said We get it.
0 -
I've settled into a new 'normal', I think - and even that will change over time especially once I'm done with treatments and side effects and tests and all. I can't imagine going through all that with a ton of people constantly around as well. It would feel so draining to me. I do enjoy my family but I only see them once a week or so and the only person I see day to day is my boyfriend who has his own hobbies to keep him out of my way a lot. Heheh
Today I'm off work so I can go get my Herceptin treatment this afternoon. I'm trying to drink lots of water this morning to hopefully make my difficult veins easier to work with.
0
