The Hermit Club
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Thanks, Teka & camillegal. I start chemo April 16- 4 intense rounds every 2 wks., then 8 more, 1 time a week, then rads every day for about 5 1/2 weeks, soooo i was hoping to have a couple of good weeks before that all starts. I've been eating really healthy and taking bunch of supplements, chia seeds, protein drinks. I'm overweight ( so now very out of proportion) so I needed to anyway, but I'm thinking about throwing that idea out for next 4 days & eating whatever i want, incl.the candy! Food has been my only real vice....maybe i need it now more than diet? What's it gonna do, kill me?
Thanks again...Hope you all have good holiday weekend.0 -
Grover u need alot of protein and fluids during treatment remember that--hahaha I'm not sure what has protein in it but others will know. So u haven't started yet no wonder why u'r a wreck the starting as more nerveousness than the actual starting so I don't blame u--and believe us when we say we didn't like to be with people much so u r ok with that feeling.See u'r normal and enjoy u'r foo now--let's face it it's not going to make any difference in the next couple of weeks. Oh I'm bad. hahaha
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Markat--Yay! I hope the university guides you to a talented advisor who can answer all your questions and keep you from taking wasted hours. I'm proud of you for looking into it! How did you lose the 10? I need to get serious and lose about 15...especially before seeing mo in May. He gets cranky if I gain anything.
bgirl--you've deserved a restful weekend for a while. Hugs to you. Have a jelly bean and try to relax a little.
grover--what grade!? I teach at middle school as well... but chose not to tell my kids. When I had my surgeries and initial mess, I just took off with no explanation to them... they just knew I was out a lot. (and my district had me writing common core standards, so I was out with that... they just assumed it was more school stuff.) I didn't think I could take everyone knowing and the pity faces, so only a tiny core of friends at school and my principal know the real bc story. Good luck to you!! I agree with the protein suggestions. Your body will thank you for stocking up on good fuel.
blondie--whatcha cookin'? We were going to have a dh, dd1 and 2, and me (that's our entire family) dinner together, but then dd1 just came down with a severe "bacterial conjunctivitis"--pink eye... so she's telling us to stay away. Instead, I'll be going out with my two team teachers to celebrate a birthday since her hubby is in Afghanistan and three sons are weekending with her ex. (It'll be my first girls' night in I can't remember how long. Way beyond hermit comfort.)
FL--you're a busy woman. Collapsing into bed is sometimes the best remedy for all of us.
Curve, teka, camille--take care. Hope your weekends are restful.
Hugs to each.
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Skittle, I teach 7th grade language arts. My school is very small, and like a (somewhat dysfunctional!) family. Plus, our students are nosy, they come right out & ask why we're out. I decided to tell them rather than lie or say it's personal, partly because I knew I'd be starting chemo as soon as possible after surgery & be out the rest of the year, and partly because my kids this year are so wonderful & caring. I knew they'd be supportive, and they were. I did feel a bit odd with everyone knowing, but I also think that responding to 7th graders' innocent, if nosy, questions actually helped me deal with my diagnosis as calmly as possible. Between my "school kids"and my own 2, I had to hold mysself together:) My first experienced source of support was actually a student's mom who is a 7 year survivor. It figures that the year I get my best group of kids ever, I don't even get the whole year with them!
All, thanks for the sharing & support...who knew a discussion board online would be my best therapy? Have a wonderful, relaxing Easter!0 -
U teachers amaze me whether or not if u have cancer or not. Working with young people is a gift you have, I know I couldn't do it. And I really think however u choose to manage who to tell is totally personal and anyway u do it is absolutely fine. It's your choice
Skittle pin eye OMG that's so contagious my DD get it often and has o throw away all of her makeup stuff and everytone stay away from her and doesn't use anything she uses, My GS did catch it once from her but so far after he didn't. And it's painful too. But I know the meds for it usually word pretty good. And u'r keeping u'r self busy.
Grover of course this is a good group of kids--that's the luck u'r having this year, but u have u'r own darlings so u'll settle into u'r own comfort zone this year.It'll be different for u, I know.
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OMG I've never watched this and I don't think I will again HOARDERS, I have a couple of things a little messy but oohhh this is throw-upable. (I know I make up my own words) I realize these are sick people but it's to sad to look at that they don't see it. If they would say please just throw everything out fine, but they can't--oh these poor people and they all have animals that live there and I feel sorry for these pets. I just hugged my Katie-Kat.
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Happy Easter my fav Hermits~
Beautiful sunny day here, will head out for a little Vit D soon. Recouping from the deluge all around , reading occasionally but not posting much
My first big dinner party last night since the shite storm started and really enjoyed it! Bitched swore and laughed with a dear friend who lost his wife to FC in Dec2012. Two lovely young woman brought their guitars and played for us...we cried during one sweet song for our friend/sister/wife. Thank the sweet baby cheeses I wore waterproof mascara, clown shows are not pretty
Se's suck. Fatigue is hardly manageable and my attitude is crappy. Did I mention that SE's really suck? Impatient patient here, looking around for my old hands and feet, which did work rather well this time last year. April 2 will be my 1year surgery date, or as my MO likes to say sprinkled with fairy dust, 1 year NED.
Markat, I have been drinking 1TBSP of organic Apple Cider Vinegar in a big glass of warm water 3x a day (now 1x) and it really has helped with my chemo induced sinus and tinnitus. Still there but not as bad.Yay on the 10 lbs! You must feel so much better, 10 lbs less of this FC crap. See...my bad attitude
I discovered that "natural flavors" in some ice cream (Magnum Minis) give me flu like symptoms...who knew...so stopped those and getting better. I only ate a half of one as a treat, but a couple of times a week. It is like navigating a field of land mines, trying to adjust to this new normal.
Belated Happy Birthday Skittle, my brother shares the same day!
Camillegal...I see you are still giving some great support and advise...and funny too:)
Teka
I have a shovel if you want*waves* to bgirl ,FLwarrier and all the newbies and cave dwellers I have missed.
FC
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Oh whevah it's so good to hear from u--U must be getting out more---I think u said something about SE's and how they suck--Well thumbs up for that one. but u sound good and now u'r partying too. YYYAAAYYY
The weather is kind of breaking here too, well we hope. So u can start u'r Vit. D routine again. We've missed u, but it's good to have u pop in to let us know how u r doing.
More and more are doing better and i love that. Well I don't work so I'm around alot more, that's my excuse and I'm stickin' to it.
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so nice to see you alll...been a rough 3rd week for me thank goodness off next week, did too much and pushed myself too much...so playing for it...making turkey breast and spagetti and meatballs is the intention, we will see.....hate to cook so ragu is the sauce...
hey whatevah......how r things...
Cam I am with you hoarders make my house look good, lolllll...teachers, never could never be one, give you a lot of credit....
Teka, grover, cam, skiddle, whatevah.....and all my hermit friends have a wonderful holiday.....
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Hi friends! Hope all are having a lovely weekend. I'm in the middle of making deviled eggs and some type of pineapple cake that the 9yo requested. You mix a can of pineapple with a box of angel food cake and that's it. Probably too easy to taste good, lol! My mom bought me a Shark vacuum because I was complaining about my Dirt Devil. This thing is amazing! I've never had a nice vacuum before so this is wonderful. It doesn't take much to entertain me anymore haha.
Whaevah! So good to hear from you! Thanks for the tip. I've been reading about Apple Cider Vinegar being a 'cure' for a lot of stuff. Sounds like you had a wonderful time! Yay.
Welcome Grover! We can all relate to what you are feeling and going through. How old are your kids? I'm glad you are surrounded by so many people and have a good support system. The charity stuff can be awkward. A group of our friends had a fundraiser for me when all this began. I was so embarrassed. At the time we had complete medical coverage so I decided to donate the money to the women's center at our hospital. A year later- our insurance sucks,lol!
Blondie, hope your family has a wonderful Easter! Hope you are feeling good.
Skittle, thanks! I'm nervous about some old credits that may not count anymore since they're over 10years old. Of course they are core/required courses so I really hope I don't have to take them over. My other credits will expire in 2years, so I'm not sure how that works. Hope DD feels better soon and you all have a nice Easter. Just have her put goggles on
Thanks Camille, Bgirl! Hugs to all!0 -
Oh and I think I lost the weight because of work- at least I hope that's why. I stand for 4 hours straight so going from my lazy hermit couch potato self to working has helped.
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Hi ladies:
Happy Easter to those of you celebrating the holiday today. It is a sunny warm day here in NM, and hope you are enjoying nice weather, are surround by friends and family, or otherwise enjoying the day in a way that fits you.
Back from my hermit time at the hot springs. The mineral waters and treatments helped to restore me in very good ways. Northern NM is a very spiritual and healing place for many. I enjoyed some peace in my life for a few days, as well as woke up today feeling the best I have in many months. Another step on the path to wellness and wholeness.
And I said a prayer for all of my sister hermits here on this thread for good health and healing as you all continue on your journey.
I am doing okay on the Arimidex. Mostly achey bones and stiff joints, but just getting used to it. It just takes me a bit longer to move when I stand up, or get out of the car after driving for awhile. I do feel old!
Back to the grind tomorrow and two very busy weeks ahead. But I am determined to take good care of me and enjoy the signs of spring that is unfolding all around me.
I hope all of you are doing well this weekend and wishing you a good week with whatever is coming your way!
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Hope you all had a wonderful holiday!!!
Thanks Mark it was wonderful!!
Yay Jazzy how cool is that, all refreshed...do take care of you...
My week off from chemo and as I probably said, it was horrible this time, this 3rd week was the worse one yet....am going to work at Macy's on Wednesday haven't been there in a while.....thank goodness they let me come and go as I please....
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Hi Blondie- so sorry you had such a rough time with the chemo. I hope your new week is better. You deserve a break from all this!
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thanks Jazzy I will take a week.....need to feel somewhat normal...have plans for this week....hope I feel good enough to do them...
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Hi everyone.
Blondie i'm sorry u'r feeling so bad--it tough, I hope this week is better for u, much better.
Jazzy u do sound all jazzed up--u had a well deserved break.
Markat since u are no longer an official couch potato that's why u lost weight. Wonderful, tell us how that cake turned out--it's so easy.
I've been draggy lately, could be the new pain meds. just what I need less activity---OOOHHH
Oh u teachers out there and everyone else LOL--Joey got an assignment due at the end of April of coming up with a brand new invention to make the earth more evironmentally better. 4 IDEAS--4??? Thst no one else has ever done-hahaha I never invented anything let alone come up with 4 ideas and he has to make one of them. Now he'a got a whole month hhaha that companies take years to make. I know I'm old fashion but I'm thinking this teacher wants out and maybe, just maybe some kid will give her an idea she can build on and just do it. I just thought this was funny.
I wish everone a wonderful Monday, and sometimes that's not easy.
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I'm so glad I found The Hermit Club tonight, reading your posts help to feel more normal about the emotional struggle this breast cancer diagnosis is and how it has turned my life upside down since 1/30/2013.
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Markat, My son is 12 and daughter almost 9. She's actually handling all this better than him, but he has Aspergers, so that's complicating things. It was a rocky Easter. Started well, but I kind of lost it at dinner, even w/ DH...in true hermit fashion, spent about 4 hrs. alone in mom's room. At least I got a nap...Feel guilty for messing up day.
Camillegal, Almost all my teacher friends play lottery, so your theory may not be crazy:)0 -
Oh Welcom aboard wahington, I'm s sorry u are here tho--u know what I mean. U'r just starting this horrible beast, but it does get better as u can see. We all feel these feelings and it's not a fun place to be but we're here for u. There are wonderful women on this thread, I think u'll like everyone and rant vent whatever or whenever u feel like it--As is said We get it. Tell us where u are in treatment, how far along are u.? oh I'm nosy.
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Hi ladies: I am heading out to my client site but wanted to welcome Grover who is going through much right now. I wanted her to know how much I love this thread as the ladies here are super welcoming and supportive.
Whatever your particular diagnosis, treatment, emotions, you name it, we are just present with one another here. We share our good days and our not so good days. It is a great place to share feelings, ask questions, and just be with whatever is going on any particular day. We have some chuckles here too. We hope you will find this to be a good place for you.
Like Teka said you are beaten down by all this right now, and we have all been there. It is all still very new for you right now too.
I am glad you found us and we will be here for you as you continue to heal from your surgery and prepare for your chemo. I was told high protein helps you with surgery recovering and all the rest that follows. Comfort food helps too. Find what works for you.
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sorry Cam....draggy, love that....what new pain meds?
I am so not creative....wow...I would think but I would forget what I am thinking of, but will try....
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welcome Washington.....
aspergers, I get that....I am a parent advocate...by profession
Jazzy what kind of work do you do, sounds stressful!!
so happy that we all found this site and this thread!!!
Happy MOnday!!
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Camille... what about time-released water solubility. Think of it--the "styrofoam" is fully solid until it comes into contact with liquid. Then, it has the chemical integrity/structure to hold together for two days. Then, it dissolves, becoming nontoxic water runoff. Then, all the neighborhoods that are littered with Sonic cups, fast-food take-out boxes, coffee cups, etc, would have none of the litter problem. The containers would just self-destruct. Less for the landfills, less for the property owners, less for the planet to heap in eternal pollution. I don't know. Just a daydream, I guess. :-)
Hugs to all. Be good to yourself.
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OMG Skittle ur brilliant--great idea of course it wouldn't be one that he could ever make but like I said he needs 4 ideas--I love this one. Thanks
Blondie u do alot of things u' know u'r very busy it sounds like to me. Good for u. Oh my meds are just increased pain meds--so normally bdeing loopy has now turned into being very loopy--but not as much pain. LOL
Oh I just thought about the newbies--Protein oh yes and super amount of fluids-so drink and eat and be merry. And we're here for u to tell us what's oing on.
I can't believe Lent and Easter is all over, and it's in the 40's and at least it lite later, but I'm up early and it's still dark ick--I'm such a wordsmith--ick.
OK I hope everyone can sleep good tonite. I have been lately, altho I hate to say it---it's bad luck
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Grover, I spent many days and holidays alone, hiding. I had a hard time putting on a brave face...still do.
Welcome Washington.
Camille, I ended up making her a different kind of pineapple cake with pudding and whip cream. It was good!
Scans in the morning, yuck. The benefits lady from the hospital was like, oh you're lucky, you've been healthy enough this year that you haven't met your deductible yet. I said, yeah lucky me ;p0 -
Oh yes markat uve been so lucky--BS--do the Drs. and nurses really think this doesn't affect our lives for a long time or maybe even forever.'OK I'm going to rant ladies so just go to the next posr if u want --I don't blame you.
At forst all I saw was Drs. and got used to it (like all of us), chemo, operations, more chemo, mor operations, mor chemo, rads and finally I was done. And I saw the Dr. every 3 months having everything under control even my scan were goo This last year I've been to more Drs. than at first with so many tests and in the ER (sometimes staying in) more han ever--never being there thru that first time) and now the Drs. send me right to ER and I feel worse now than ever. It's not my stage, it all the SE of all my chemo--etc, I know my age is against me--but for a scan to get worse in 3 months is alot. And more pain than ever. So I hate hearing from people saying oh it's been a few years now u must be fie. Why didn't u go back to work??? That grinds me so much, no one know how I feel, but like all of us we show our happy face. That's why I'm still a hermit---So rant over everyone. LOL had to get it out today. And this is the pace for me. So Sorry--I hope someone reads this anyway.
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I read it and send you a ((HUG)) - I don´t really talk to people in depth as unless you have been to this hell it seems inmpossible to understand..............I get really lonely sometimes especially when I feel miserably low so really pleased we have places like this to come to........
BC stinks
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Lily I don't mean to scare u off--I just get going on something once in a while and I come here and rant and rave. Then I actually feel better. So I throw my troubles away. Lily we really do understand this hermit thing so feel free to say whatever u feel.
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Cami, hugs to you as always. No need to put up a front for us. A step forward occasionally and the 2 or 3 back ... gets us all down at times and with everything you have been through you deserve a rant or 2 or 3.
Wishing all my hermits a happy week.
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Hi ladies- welcome too Washington. I missed your post when I was catching up from my weekend away. I hope you find this a good place to be along with the rest of us.
Markat- don't those comments just irk you to no end? I think people sometimes try to be positive with us and what comes out is ridiculous. I hope all your scans come out with good results.
Cami- we love your ranting and your humor!
Lili-I think this whole thing we go through is a very lonely place. It is part of my reason for finding this site and also finding this wonderful support thread. I only have a handful of people that can be present with all of this. I hope you can find some comfort and support here amongst us fellow hermits.
Blondie- I am a consulting project manager. The project/client I am working for is a very difficult situation, and there is a lot of stress, but all this stuff I have gone through has made me detach from a lot of the BS that goes on, and just do what I can to help. Work to live, not live to work and all that jazz. They basically begged me to come help them late last year and the money is good, but I have to keep up very strict boundaries with them.
I am going to go to my first yoga class at the gym tonight. I need to get my body moving more. Yoga will help my stiff joints and also my osteopenia.
In the 70s here and so beautiful! Spring continues to bloom (ah choo!)
Hoping all you fellow hermits are starting off with a good week and the new month. Blessings to you all.
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