Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Treating estrogen responsive cancer naturally

1161719212286

Comments

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • madpeacock
    madpeacock Member Posts: 216
    edited December 2012

    Very interesting reading. Thank you for all of your insight. I started tamoxifen last November and fired it by March. Just did not feel the risks were worth the potential small benefit, in my situation. My OncoType was 8, so we were talking very small %. My ER was 88% and PR was 81%. 

    Here's my path, just for informational purposes. I am on the Breast Cancer Protocol, which includes iodine and all of the supporting nutrients - Vit C, D, selenium, CoQ10, melatonin, & Curcumin. I also take DIM, 400 mg, and a few other general supplements. I also have Hashimoto's (autoimmune thyroid), and the same protocol works for this as well. Honestly - I've never felt better. I can run four miles and barely get winded, I cycle, teach an aerobics class, and work from home. I'm a size 4 now - never thought that would happen in my lifetime. I eat very healthy with a varied diet. And - I'm still cranking out estrogen like a factory as per my last bloodwork at the MO's office. She is not happy that I am not on one of "her" drugs, but is willing to be patient and check me every six months. She is very openminded and we discuss supplements and ideas at each visit. She says she learns things from me! Last - I turned 50 in October. 

    Here's the link. Lots of other good info on this site on learning to ask the right questions concerning BC treatment. 

    http://www.breastcancerchoices.org/iodine.html

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • Mini1
    Mini1 Member Posts: 1,309
    edited December 2012

    Raw spinach is good in smoothies too. As long as you add some berries, you won't taste the spinach.

  • rgiuff
    rgiuff Member Posts: 339
    edited December 2012

    Day, thanks for posting that link.  It talked about the good vs. the bad estrogen that I mentioned in my last post.

  • Momine
    Momine Member Posts: 2,845
    edited December 2012

    Rgiuff, is that what you meant? Phytoestrogens as opposed to the body's own estrogen? If so, as far as I know, the theory is still controversial. Others think that if the phytoestrogens can attach to the receptors, then they act like your body's own estrogen. That is how soy supplements  reduce menopause symptoms, for example. In other words, if the phytoestrogens can get rid of hot flashes, they can probably also feed the cancer. However, this is an area where I really wish more research would be done, because it kinda matters which side of this argument is right.

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • Momine
    Momine Member Posts: 2,845
    edited December 2012

    Day, thanks for the info. Again, though, it appears that this theory of "good" and "bad" estrogen is controversial.

  • BoomersMom
    BoomersMom Member Posts: 28
    edited December 2012

    My oncologist has stressed to me that it's either Tamoxifen or nothing for me since I'm 32 and definitely not peri-menopausal.  I even got my ovaries checked last week and they are fine, despite 4 months of chemo.  I brought up DIM to my MO and he immediately dismissed it.  Tamoxifen or bust, I guess.

    Never mind the fact that when I was on it, I couldn't sleep, concentrate and my libido was gone, plus I had suicidal thoughts.  They just want to throw med after med, and it's frustrating. 

    I don't know my pecentage, but I looked at my path report again and it just said "strongly" ER+.

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • Live2Laugh2Love
    Live2Laugh2Love Member Posts: 12
    edited December 2012

    What is the best deal on line for DIM? I don't want to take tamoxifen. I have learned a lot from everyone.

  • rockym
    rockym Member Posts: 383
    edited December 2012

    BoomersMom, your MO doesn't make the final decision on your body... you do!  At 32, you are very young, but heck... you did the chemo, rads and the MX.  There is a website cancermath.net that you can fill in your stats and see what percentage of benefit you get from each and every treatment.  At 48, I am a bit older than you and my stats are different, but Tamoxifen put me over the edge emotionally so I have opted out.  If your MO immediately dismisses what you have to say, he might not be that great of an MO.  Easy to give us chemo meds... just mix and serve... harder to discuss other forms of treatment or non-treatment.

  • purple32
    purple32 Member Posts: 1,767
    edited December 2012

    DAY

    Thanks for posting that .

    I do have a goiter and am on the hyper side. I asked my endo dr about taking that and she said no way.  Ppl really do need to be careful- ESP with thyroid issues.  If you arent sure if you have these issues, please ask your dr to do a 'complete thyroid panel"  ( A TSH alone will not  be very telling)

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • mllethani68
    mllethani68 Member Posts: 2
    edited December 2012

    Love this post , thanks ;)

    Stopped tamo after 2 weeks ( horrible s effects) and started my researches ,

    Am taking DIM, omega 3-6-9 and am gonna start Calcium D glucarate this week !!!

    I am a very active person , pro natural , eat almost no red meat ( -about once a month)

    I want to feel good and live , be glad to be alive and didnt feel like that on Tamo ,,

    The onc that prescribed me Tamo said " I had to take it " euhhhh not !!!!!!

    Easier for them to go the traditional way but I rather do it my way , and researches are there to back these natural meds up !

    See u soon 😉

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited December 2012

    Day, how are you on wheatgrass????

  • purple32
    purple32 Member Posts: 1,767
    edited December 2012

    purple, I posted a link. The only problem with raspberry ketones is that they are not recommended if you have diabetes.

    Thanks, day.  I will do a  search for that link.  I am somewhat  familiar with the R ketones ( from DR OZ!)  but not in connection with BC.    Ooops, okay , I see the link.  Essential  oils of the ketones  day ?  Does not talk about ingesting them though.  curious.

  • Momine
    Momine Member Posts: 2,845
    edited December 2012

    Day, very funny, just after our exchange on all this estrogen stuff, I got an email from my mom. Apparently, a bunch of Danish researchers have just gotten a big grant to study the effect on breast, prostate and bowel cancers, as well as diabetes, of lignans, a type of phytoestrogens. So this is good news. It said in the article that consumption of lignans is associated with better survival, it seems, but nobody knows for sure, so now they are going to delve into it.

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • madpeacock
    madpeacock Member Posts: 216
    edited December 2012

    Live2laugh - This is where I get my DIM, which I think is a very good price. I take it twice a day. 

    http://www.youngagain.com/magento/supplements/dim.html

  • Dawn7
    Dawn7 Member Posts: 46
    edited December 2012

    Dear Madpeacock

    I thought microencapsulated DIM was better absorbed? Dawn

  • mybee333
    mybee333 Member Posts: 672
    edited December 2012

    Hey - I finally ordered my Activamune DIM.  Every day since taking it (4-5 days) I have had stomach aches and other gastroissues.  I cut down from 2 to 1 cap. a day but would like to take the higher dose. Cutting back helped a little but not entirely.  Has anyone else experienced this and has it gone away?

  • Shrek4
    Shrek4 Member Posts: 519
    edited March 2013

    0

  • cp418
    cp418 Member Posts: 359
    edited December 2012

    Is anyone taking Calcium D glucarate supplement for it's anti-estrogen activity?  I've read it lowers cholesterol as well for an added benefit.  Very interested in this supplement considering the recent articles about statins to lower cholesterol and its affect on breast cancer.

  • mybee333
    mybee333 Member Posts: 672
    edited December 2012

    Thanks Day.  We'll see how it goes :)

  • Mini1
    Mini1 Member Posts: 1,309
    edited December 2012

    Ii take Rx Vitamin D. 50,000IU 1x a week. I have no problem with it. I had a little stomach ache with my DIM when I first started, but I just made sure I took it with a meal and had no more problems. I have more problems with lentils than the DIM, but I'm geetting used to those as well. Hang in there. It takes the body some time to adjust to new things.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited December 2012

    Hi - reading quickly. I am doing well, the Laetrile gave me no problems when I started taking this bottle, last time was harsh.  So a good sign.  Am still on endo's protocol. Will be back there for tests in 2 weeks, also ordered more iodine, this time Naescent atomic iodine like first. 

    Think I mentioned cinnamon - I use it 3 x day, small small amount. But was reading and reazlied mine is the cassia cinnamon with couramin, can build up as toxic in live accroding to some sources, so I am ordering the ceylon cinnamon, no problem w that. Need to know fact I wish I had known.

    Will update later.

    Love Essa

  • Chocolaterocks
    Chocolaterocks Member Posts: 94
    edited December 2012

    Cp

    I take Calcium d glucate, dim, vitamin D 4000 for winter, fish oil, multi-vitamin, chrondritin glucosamine, and metformin daily. Every 6 months I see a naturalist DO and he has recommended this and more. Hope it all works.

    CR

  • Kath100
    Kath100 Member Posts: 2
    edited December 2012

    Thanks to everyone for their posts - this is just what I've been looking for.  I am awaiting my sixth and final chemotherapy prior to surgery and raidotherapy early next year.  I am very reluctant to take Tamoxifen for five years, nor any of the AIs I have been looking into.  I wonder how all you other refusers have handled pressure from family, friends and the medical profession I am sure to encounter?

    Once my brain returns to normal, I will read through all you research and hopefully add some of my own...

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited December 2012

    Well, my family checked up on the research I did and agree with my decision to not continue with the AL. My GP doesn't know yet; my onc is not happy; my cardio respects my decision.

    I don't think anyone has the right to pressure you one way or the other. After all, it is your body and it should be your decision.