ALL THINGS Gloves and sleeves
Comments
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Purple, if your'e looking in on your thread, I hope you are OK. Thinking of you, and I know the others are too. Gentle HUGS0 -
Oh how I wish I would hear from Purple. I saw her picture wearing the lymphedema sleeve somewhere online today and thought of her fondly.
Hugs and kisses for Purple0 -
Also hoping to hear news of Purple. I am SO grateful for this thread!
And I have another question. I am getting ready to put in an order for more bandaging supplies, and while I was perusing the various online catalogs, started reading about the Biacare Medaglove and night sleeve. I have yet to get adjustments to the Tribute that don't leave my hand swollen and painful - sent it back again this week. What I found is that the substitute fitter relaxed the wrist of my Juzo sleeve AND glove, and they are now working well together! Hallelujah! So I am wondering if I could use the OTS Biacare system by using a size larger than I should, realizing there will be less compression above, but I don't really have problems above the elbow anyway .... anyone have a Biacare garment or experience with it? If I order it today, I can get it next week rather than within the next few months .... not that I am becoming impatient or anything ....
Someone asked what is working finally: Juzo soft, CC1 (may get brave and order CC2 if they can make it in a soft) with adjustments made to relax the wrist by a full cm in both glove and sleeve, added 1/2 cm to the length of the glove from thumb base to knuckles, which relieved the pain on the thumb web space, added length to the thumb, added a 0.2 or 0.3 cm to the circumference of thumb and added 0.2 circumference to tips of all fingers to relieve the rubber band effect. That is still a minor problem, so next glove I will ask that they add an additional 0.1 cm to that distal circumference.
Interestingly, these adjustments were made by the interim fitter while my regular fitter was out sick. Also, she had sent the garment back so many times that Juzo had told her "no more, send her to another brand" and the interim didn't know this so she sent it in anyway! Also, the regular fitter had told me that the inside of the one made with silver was of the same material that the soft is made from, but she did agree that those silver threads COULD be felt through the inner part, and I know there is a DEFINITE difference in how it feels to my skin!
So I am still in bandages at night, hating that I cannot wear my nice winter nightgowns with long sleeves. But really need to know about Biacare if anyone has any experience or suggestions. Thanks!
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P.S. Am not going to do the LANA course. Way too much work and I would have to give up my art for several weeks, so despite the intellectual challenges that I am missing from my work (I guess I thought immersing myself in something scientific again would help me gain something I have lost), I am choosing to let the experts do the best they can with me and I will focus on nurturing my soul with the time I am given. I plan to start posting some of my work on the "Let's be creative" thread soon. Some of the work I am doing now takes a LOT of effort and stresses my arm considerably, but OH, it is SO WORTH it in the end!!!!
Love & hugs to all of you on tis grey cold Saturday! It is a day for hot tea, online shopping, and watching the birds at my feeders.
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Linda birds are soooo neat.
Hope you enjoy watching yours. Hubby and I get a whole lot of fun feeding and watching our blackbirds and thrushes. Good on you too doing your art! I hope you have many hours of satisfaction yet to come. Baby that arm though! I used to enjoy doing fine pencil work and various sketches as well as just doodling. Very rewarding. Ive still got some of my old pieces tucked away in the depths.
Now... DANG DANG DANG! Yesterday I snagged my new glove on my STOOPID umbrella
. Theres a loop about 3/4 inch long. Girls, surely Im not the only one to do this or am I just the queen of clumsy? Is this going to make a difference. How do I fix it? Any ideas welcome! This is the 2nd mitt Ive done this to. The 1st one was a gauntlet that I didnt wear much anyway because it doesnt fit well.0 -
Musical, I have a tendency to snag sweaters like that - have used a crochet hook to work threads back in. Now the glove is MUCH finer, I am wondering if you took it to someone who does alterations and repairs might be able to suggest something. I know you have to find a way to tie a knot in that loop or work it back into the knitting so it doesn't keep pulling. And I'm pretty sure clear nail polish won't work like it does on snagged nylon stockings! I do have several small snags on my Medi95 glove, but it seems so sturdy and the snag is not a loop, and it is looking pretty ragged along the seams anyway ... so bottom line is, I have no good ideas. Just can commiserate.
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musical. If your garments ever run use Fray check, I got mine at walmart. Works great.
I am a walking disaster and ruin everything I touch. My glove has a love affair with Velcro and is very attracted to it. Velcro just comes out and kisses my glove for no reason. I swear Velcro can find my glove anywhere I hide it. So many ruined gloves.0 -
Linda, Biacare is headquartered 30 minutes from my home, but I don't know a soul who uses their garments. I'm pretty sure there have been comments about them in this forum (good comments). Let's keep mentioning your interest in hearing about Biacare experiences, so occasional visitors to this thread might notice the question and Biacare users will be able to comment. Or, maybe you should start a new thread titled 'anyone use Biacare?' or similar.
I think Velcro senses compression sleeves and launches itself at them from across the room. Hugz, I think we need to add a Velcro obstacle course to our Olymphics events.0 -
Linda my glove is a Jobst heavy duty... made of rope ... lol.. well not quite, so its a good deal more coarse than a Juzo but no I dont think a croche hook will be doable. The strange thing is I just cant for the life of me see anywhere where its pulled or where its created a ridge or tightness. Go figure. Of course I wont cut it off. Think I'll wait and see what my LEist says when back from Holiday overseas early January. Meanwhile I'll have to be darned careful and improvise like with some cellotape or something. Come to think of it Im sure I recall something about tying a knot in it if you can.
LOL hugz, you and Tevas would never get on then? its practically all I wear, and they sure have velcro in all directions so yeah, I hear you on the attraction.0 -
I LOVE my Tevas, and you are right about that Velcro! BUT I was shopping at REI a few weeks ago and found that Teva now makes a boot that is truly CUTE - I don't have any cute shoes! - but they have a zipper on the inner side, easy to put on and take off (relatively - they ARE boots, after all) - and NO VELCRO!!!
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I'm not good at describing things, but here goes ...
If you snag a glove so there is a loop of thread that hasn't broken, turn the glove inside out, and using a needle (or maybe a crochet hook if you have a really fine one), coax the loop so it is on the inside of the glove so it won't be as likely to catch further. You can also use the needle to distribute the pulled loop over a few inches of the fabric. It's painstaking and work, but it looks pretty darn good and can't catch anything.
I can't seem to find a warm winter jacket that doesn't have vicious velcro plastered on the pockets, wrists, and front. Anyone know of one? KS10 -
KS1 brilliant thanks! So simple. Im gonna try that but will be careful as you say. LOL I got myself some very VERY strong generic glasses which serve as lil microscopes so I can have free hands for such missions. Theyre great for close up work, but you dont want to be looking at anything else. (aacck)
So...I looked at my poor glove still awaiting to be washed coz it got a VERY hard time on Saturday aside from getting snagged, it got stained with beetroot juice, got dirty and wet with other activities of the day, and other things besides. I turned it back in the other way and looked carefully at it, and indeed I do actually see a ridge afterall :-| . (grrrr)
Linda I would sooo love to be able to wear what normal people wear but my neuropathy totally dictates. Aside from slippers inside when Im sitting or not very active, I just cant stand my feet enclosed in unless its in a severe frost. Its pretty much Tevas all year round (outside). When its borderline frosts, I put light socks on, and when my feet act up, I just ripp them off and we're good to go. Just brought some more and they were about 30% off. Nice and light, spongy heel. LOVE them. They absolutely have to be soft to walk in. Love to see a pik of the bootie.0 -
Spoke too soon about the glove/sleeve combo. Had deep circular indentations around my wrist last night in 2 circles, one on each side of the little band at the hand end of the sleeve where the glove goes over it. Will try with glove under sleeve, but am getting discouraged again. *sigh* Am calling the fitter this am.
OK, Musical, the TEVA boots:
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Linda they look nice and warm. Theyd be nice for when my feet go like blocks of ice like when Im sitting inside in front of poots. Even in summer they can go ice cold and blue. Do they have that typical Teva softness to walk in? Neuropathy in the feet sometimes make you feel like youre walking on the bones of your heels.
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Sorry its back to the drawing board with your sleeves and gloves. I wear a Juzo OTS (off the shelf) for my prophy side which has "suspected" LE. That sometimes leaves indentations at the wrist but I dont find it causes any issues and theyre gone before long. I reckon I'm going to try and REMEMBER (sigh sigh) to take it off earlier each day instead of wearing it all day like my LE side.
Hoping you find something works great for you.0 -
linda
Your boots look great! I have neuropathy and could only wear Keen boots and sandals. The foot bed is soft and I haven't fallen with Keens. Acupuncture helps so much. I also find wool hiking socks really help too0 -
Georgie, I tried the Keen boots also - fell in love with them. Had to make a decision on which ones - VERY tough, but I really like these. However, I think the Keen boots might be better and softer for the feet by just a wee bit over the Tevas. They both felt good to me, but the Keens seemed to have just a little wider toe box and I can imagine they might be better for neuropathy in the feet.
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Keen brand is excellent, Good wearing shoes for sure.
Ok…I brought home my custom Flat knit Elvarex jobst black sleeve with the comfort patch at the inner elbow and have worn it one hour and its rough on my inner elbow. Mind you it was worse when I first introduced a sleeve years ago, so my elbow area has toughened up a bit. I think it really stinks that I will have to wear an anti friction lotion in the elbow when I paid so much money. Why can't they make something softer such as my off shelf Juzo 3512?. I pray that when I wash it it softens up. So far no slipping or wrinkles so that is great….Just looked at the silicon dots and they are marking up my arm pretty good. It may be to tight then, so no wonder it is not slipping. grrrrr.Will try it another hour or so.
I also got measured up for the black Elvarex glove. She gave me a choice. The no seam one or the seamed one and I picked the no seam in black although I understand it doesn't last as long as the seamed on as the material is not as strong.
Anyone have a opinion on the no seam flat glove as I can change my mind by Thursday morn just before we send off the order. Which do you like or maybe Elvarex is bad all together.0 -
Linda-n3 ... sorry you are getting indentations. Is your hand swelling, or are you just having indentations. I always have indentations at the end of the day, and they last quite a while (1+ hour). They are less when I wear the glove under the sleeve.
My old LETx told me not to worry about it as long as my hand doesn't swell. KS10 -
KS1, unfortunately the hand swells. Ugh. And the indentations lasted over several hours between the time I took the sleeve off, got my shower etc. and got bandages on for the night. I also tried the sleeve over glove - no better. I am giving up - just going to use lower compression OTS Solidea sleeve and Farrow light glove or Medi95 CC1 glove for daytime, and bandaging at night. And just get over it. I do see my LE therapist Friday morning, maybe she has some other suggestions, but I am not optimistic. I am just fed up and tired of wasting all my time trying to take care of this stupid arm, and if I can keep the hand from swelling, I am OK with some swelling in the arm as long as it doesn't hurt all day. I think I may be having some progression of the stupid cancer and the LE is the lesser of my worries for now. I still managed to paint for a few hours today with only mild pain issues and moderate hand swelling, and am looking forward to Friday and Saturday art workshops. Things will slow down next week as far as art classes, so I think I can manage a few more days this week.
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I have been experimenting with my LE T. He gave me some 1/4in foam. I cut it to match the top of my hand (at the knuckles) down to the wrist. I covered it with cotton cloth. I stuff it first on the wrist part of the sleeve, then I put my gauntlet on and make sure it is flat. It has been kind of a pain, so today, I cut one of those in half and just put it under the wrist part of the sleeve. It seems to keep the pooling out of my wrist now. I will try to get a picture of what I made and put it on, after work.0 -
These aren't too good of pictures but one is what the pad looks like and one under the wrist part of my sleeve. So far there is no swell in my hands and the wrists are doing ok. I do have a full hand pad too. Just trying this out today to see where it pushes the fluid. A lot of my life is experimenting, to find what works.
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Ok, My appointment has been postponed until next week for glove order. Anyone know which Jobst Elvarex glove they prefer. The seamed or no seam one. I hear the no seam wears out faster but looks better. How do they perform? What is your opinion on them?
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I wonder is there such a thing as custom seamless? Am I being too hopeful, or am I behind the times? My custom Jobst ALWAYS has wrinkles up the arm where the seam is, even though at our request they didnt put the tag on this time.0 -
Musical.I don't think so or I would have got one by now. Just test running my jobst elvarex this week and boy is it sore in my elbow even with the comfort insert. I put glide anti friction on it and it make it more comfy by far. I was told that flat doesn't cause strangulation like circular. It was explained how but I totally got lost in the explanation. Anyone know. I hear flat contains better than circular because of the way it is made. I am in flat now and hate it.0 -
Flat always has a seam, circular does not. I think they DO make a custom sleeve that does not have a seam, but not a custom glove without seams. I have a custom Juzo, soft, that does not have a seam, compression class I. They wanted me in CC II, but I could not tolerate the materials.
Saw my LE-T this am, and she said my arm is best it has been! Am currently bandaging at night, using Solidea "slimming sleeve" with low compression, and Farrow soft glove, and doing better than with custom anything!!!! She has encouraged me to relax a bit and just go with what is working, regardless of compression classification! She did suggest I look into a Carissa (sp?) for night use - anyone have any experience with that?
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Linda... sounds like good news! congrats, also seems good to know it is off the shelf and hopefully not as expensive as the custom stuff
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Hello ladies. I haven't been on these boards in a long time. I am in round 2 of LE treatment because the first therapist was not LE specialist. I am now in bandages for the first time and miserable! The itching is almost unbearable. Do any of you have any advice? I might try taking Benadryl but I don't like taking OTC meds. However, jamming a pencil under the bandages to scratch is certainly not what I should be doing! I hate to complain, but oh how I wish I would have gotten through this phase the first time. Thank you lovely ladies for whatever help you can offer!
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Hello, ZZ! So sorry you've had to join our Sorority of Swell, and I hope this round of therapy goes quickly and well. Be sure she/he teaches you to wrap yourself so you can use that tool if you ever have a flare-up of the stupid swelling. It happens.
Have you checked the fiber content of the layer of stockinette that's against your skin? Some gals have trouble with the non-natural fibers, but there are options available. I find the Eucerin Calming itch-relief lotion helps. Also staying busy so I don't think about it so much.
Also chocolate.
Linda, I think your therapist is referring to the Caresia arm sleeve, made by Solaris. A lot of women find it really helpful and convenient. They come in wrist-to-axilla style and another one with a bit of hand covering.
http://www.brightlifedirect.com/caresia-arm-liner-...
They're actually bandage liners--made to be the bottom layer, so you just have to wrap with a couple of short-stretches over it. But some women find it's enough compression without bandaging over it. They're not custom, but they're not cheap either. Brightlife usually has good prices and they're good to deal with, but it's easy enough to shop around on-line.
Just wanted to add that I've been using Gottfried custom day garments for many years, and I like both the feel and fit. I'm compression sensitive and find their fabric breathable but sturdy enough to hold up well. I don't hear much about others using that brand, and we had a brouhaha here on the board a few years ago with them, but I still have to say I'm well satisfied with the product, the fit, and their customer service. Just wanted to mention that as an option for those of you struggling with fit and comfort. For what it's worth…
Hugs all around,
Binney0 -
Thanks Binney. My therapist used a different stockinette when she changed the bandages yesterday because my arm was so red and itchy. I don't notice any difference with the kind she used. I'm going to change them myself tomorrow and only have the kind that came with the rest of it. I will slather on hydrocortisone and lotion. As you say, if I keep busy and try not to dwell on it, I'm less likely to scratch my eyes out :-)
Hope you all have a great holiday season and no more swelling!!
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ZZ, if this is making your arm red, it's no good! The integrity of your skin is super important for preventing infection. Check in again tomorrow with the therapist, and if your arm continues to be red, check in with your doctor, critical care or the ER too. Recognizing a LE emergency here:
http://www.stepup-speakout.org/Emergencies_and_Med…
Be well, and keep us posted!
Binney0
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