2013 Survivors!!!
Comments
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Stride--with you all the way on that FUCK CANCER cheer. Sending lots of hugs and support.
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Stride....listen to Liefie, she's right.....you'll deal with it like you did before and it will be erased.....we are here to support you and listen to whatever you have to say.....deep breath....yes, FUCK CANCER.
Liefie.....I have to apologize to you regarding your birthday......I'm so sorry.....I want to wish you now a very happy belated birthday and glad you enjoyed yourself.0 -
Stride,
FUCK CANCER ........
With you tomorrow ... Keep posted .... Sending hugs and good thoughts.0 -
Stride ~ Hugs, thoughts, and a huge, resounding FUCK CANCER!
MrsCich ~ So "glad" to read your comment about Femera and bone pain. I only had fatigue until now, but the past two weeks I started to have moderate bone, not joint, pain. Of course, my first thought was mets. I read the femera board, but it appears joint pain is most common.
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Stride: You are in my thoughts.
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Oh Stride we are shouting it from the rooftops as we jump in your pockets FUCK YOU CANCER!!!!
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Stride, sending lots of warm fuzzy hugs!!! And a great big FUCK YOU CANCER!!!!
You got this girl, you're going to kick ass once again and we are all going to help you!! In your pockets xoxoxo0 -
Stride- oh my. Not what you wanted to find or news you wanted to hear BUT collectively we decided if that happened, we would do what we did last time, only this time with experience and a whole lot of love and support from our friends! We are all here for you with prayers and lots of positive thoughts! I hope you have big pockets for tomorrow, we are jumping in. I agree with everyone else and haven't posted this in a while:
Mrs. Cinch - your hair do is adorable. Good job on that tattoo also.0 -
Mary....I've had bone pain for sometime and now I'm getting muscle and joint pain....nothing that isn't doable though. I find the more I exercise or move around, the better it is.
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Stride - right there in your pockets with everyone else tomorrow as you meet with your MO
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Oh Stride..big hugs to you. I hope your MO is prepared for the group of us wanting to learn how you're about to kick cancer's ass and take names. If he asks why you are leaning to one side, let him take a look in your pocket because we are all there with you!
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Ireland: big honking hugs
Stride: in your pockets and yes you will kick it into tough again.
FUCK CANCER !!!!
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Oh! that should've read 'touch' not tough. But you are tough and will beat it.
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Stride, yelling loudly, FUCK CANCER!!! Hang in there girlfriend!! We're in your pockets, sending virtual hugs, and praying for you. You're strong and you're a survivor!! Kick cancer's ass!!💗
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Stride for you.....FUCK CANCER......fuckfuckfuckFUCK CANCER. Lots of hugs and love heading ur way.xxx
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FUCK CANCER!!!!!!!
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I JUST caught up... I've missed so much. liefie; happy belated. ireland (((BIG HUGS))) for you and your BIL. marian; you're an inspiration (and look fan-fucking-tastic! mrscich love the TAT and glad your loving the short curly hair. I'm SO over it!!! It's just out of control as it grows out! and of course...stride; I may have missed your appointment, but hell I'm with you now. I will just add to the cacophony of encouragement... FUCK!!!!!!!!!!!!!! and a (((HUGE & GENTLE HUG))).
So my amazing DH came home last week with 8 of those little hand held fans and said (and I'm paraphrasing here) - "remember how you were having unbearable hot flashes during your chemo last year and it was fall and I told you my store (he's a store manager) didn't have any more hand held fans left, because you really could have used one? (I said yes) well, I bought all the ones we had left to bring over to the infusion center. There may be other women who could really use one." I almot cried... so yesterday I was in a training class across the street from the hospital and I walked them over during lunch. Was pretty scary to be back in there, but felt great to bring them in to the nurses and ask that they give them to women who are suffering with severe hot flashes.
So TODAY I went to my appointment iwth the doctor at the Metabolic and Weight Loss Center. i'm 164.8 (yes Tazzy I lost more - but no one seems to be keeping count anymore) lbs and 5'6". He said that my goal of 150 is reasonable. He said that my concern about carrying this much fat specifically in my belly is warranted and there is a correlation to recurrence and belly fat (for estrogen aggressive bcancer). (He also said his wife is a survivor so he gets there fear). He said the chemo alone damages the metabolism many times and the tamoxifen doesn't help the team. They will be running glucose tests that I have scheduled to see if it is insulin related. Then Shannon (who is ALSO a survivor - she is 32, was diagnosed at TWENTY SEVEN!!!!! Found the lump herself... but I digress)... did another simple test that tell you how many calories you burn a day (when resting - sot he number is actually a tiny bit lower then the test since you had to move to get there) - but when she pulled the device away (you breathe into it for 10 mins) she said, "oh"... I said "what", she said "that's not too good".... turns out my body is only burning 1500 calories a day!! She said usually it's around 2200 to 2500!! WTF!!! So no wonder... eating 1200-1500 calories and day and exercising isn't doing the trick. (BTW - side note... I stopped exercising this week for 5 days and lost 3 pounds! guess it's true that you need to give your body a rest every now and then).
So... the Dr said since I've already got the diet and exercise thing down we will see what the test say, but they can certainly give me something to speed my metabolism up into the normal range.
One last thing happened... he felt something (what he is calling a cyst) on a thyroid on the right side of my neck and ordered an ultrasound. He thinks its nothing... but that's what they ALWAYS say. It's on my bc side... I'm a bit freaked out.
OK - guess I better get to work. Since my boss left I'm not very happy here.... really sucks.... but if we ever get our damn house (STILL WAITING to hear from the sellers bank for short sale approval) then I'm going to need my damn job!
Love to you all.....
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Like Juneaubugg I just got caught up .
Stride, I am in your pocket with the others. We all know what a blow this is but like the others said you are tough and will kick this damn bc to the curb once and for all this time and we will all be in your pocket cheering you on.
Liefie I hope you had a wonderful birthday and best wishes for many many more.
Mrscich so nice to hear from you. You look great. I had several issues last year and 3 revisions so I know what you are going through. I could use some more work but I'm taking a break from it as it all really zapped me. Maybe when fall comes I'll decide to finish up.
Flannelette- wow 5 years! Congrats!
Shari seems like just yesterday you were going through so much. So glad you can put it all behind you.
Ireland so sorry what your family is going through.
Marian-what a great picture-you go girl!!!
Juneau what a sweetheart your DH is! That is really cool that the weightloss center can do that test to see how many calories you burn! wow. As far as the thyroid- prayers that it is a cyst. If he thinks it's nothing it probably is nothing but I know how it goes-after all we have all been through there will be no peace until the ultrasound is done..
Believe I swear everytime I get on here you are baking and sending or taking cookies somewhere. We need to come up with a code word for them though because the words cookie and cake make me salivate and bake but the difference in you and me is I eat everything I bake. Dang I guess its better than some other addictions but still! lol
Websister-I think of you often and pray you and your Mom are doing well. Enjoy that new grandbaby.
Momof3 hope youre getting better day by day.
Aruba hope your Dad is improving. SO cool about your daughter!
SwgeeWi hoping and praying they cover the oncotype.
Been busy with my foster dog. She is 7 years old and had a UTI when I got her that they were trying different antibiotics on plus a runny nose that wouldn't stop. She has had a tough several months being booted from her original home then getting sick. The good news is that she is finally clear of the UTI and the head cold. She has made herself very much at home here and has become buddies with my other dog. I'm pretty sure she knows that her "forever home" is going to be here. lol Oh my what a sap I am when it comes to these little beasts but I feel I owe it to her anyway for the love and distraction from my own issues that she has given me. I also had out of town company for a week that just left, but they fell in love with her too so I'm 99.9999% sure she is a keeper.
Hope all have a good week. In your pockets if you need me.
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Thanks everybody for the belated b-day wishes - so appreciated! Scottiee, fortunately I am not a scorekeeper, so will never hold it against you if you forget my b-day. I forget plenty myself . . . LOL.
Stride, sending you good vibes and positive thoughts for tomorrow.
Juneau, sincerely hope that cyst turns out to be nothing indeed, and that you will finally hear good news from the bank. You have been so patient, and deserve to get that house.
2FriedEggs, I hear you about animals. I am hopeless myself, and if DH does not stop me, I will have 20 cats.
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Thank you all for your support! You guys are the best.
I had the appointment with my oncologist today. She said the best thing I can hope for is that there is a new primary hiding out somewhere in my right breast. The mammogram did not show anything, but an MRI could find something. If it is not a new primary, I am metastatic.
This time around I don't have that "deer in the headlights feeling." Do you all remember that first panic reaction when you got the news you had cancer? The first time, I literally ran downstairs and out of my office building. This time I just called the oncologist's office to schedule an appointment and went right back to the task I was doing. I think it's because I know more now than I did the first time, and if I handled cancer treatment before, I can handle it again.
So, I will have a bunch of scans the week after next. But first I am going to find my happy! My husband and I have been planning a vacation next week to visit family and spend a couple of days alone at a B&B on a lake for our anniversary. My oncologist said a one week delay probably won't make much of a difference, so we are going!
Juneau, hoping it's just a thyroid cyst.
I wish I could write to everyone else, but my bed is calling. But please all know that every one of you means so much to me.
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Stride....((((())))).......enjoy that vacation.
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Stride, enjoy your vacation ... You deserve it ... We are here for you when you are home.
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Stride, so glad you are not going to cancel your lovely anniversary getaway with hubby. Go, enjoy yourself, and have as much fun as you can!
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Stride, have a great vacation, I hope you find your happy.
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Stride - enjoy every minute of your well deserved vacation.
Off camping this weekend again - to Grand Coulee Dam to see the light show on Saturday then just hanging around down in Washington State for a few days.
All you Canadians with day off Monday - enjoy.
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Stride I hope you and your husband enjoy your trip. I'm sorry you have to go through all of this again. For what it's worth my idc was basically hidden and found strickly by accident and only by having an open biopsy; It never showed at all on my mammo, and showed only as an area of concern on an MRI (which was only done as a precaution because of an area of atypical lobular hyperplasia on the other breast). A needle biopsy was done and it came back as atypical ductal hyperplasia but not cancer. Due to a 25% chance of a malignancy being found in ALH and ADH, thank goodness an open biopsy was done and the IDC was found hidden in the area of ADH. I was one of the unlucky 25%. The original area of concern of the ALH that started all the comotion, turned out to be just LCIS. So I am a big believer in hidden primaries. Even though this sucks bigtime, like you said, you know what the treatments entail and that you'll get through them. Enjoy your trip-Since it is an anniversary celebration I guess we had better give you your privacy and stay out of your pocket until you get back. But once you are back, you better wear a shirt with giant pockets because we will all be in there! Happy anniversary in advance!
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Tazzy ~ Anywhere near Seattle?
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Enjoy your camping Tazzy.
.... happy weekend everyone!!!!0 -
Stride - very glad you are taking the vacation next week. Enjoy thoroughly and deal with what you need to deal with when you return. Hoping with you that it is the best case scenario
Juneau - hope the house stuff gets dealt with quickly and that the thyroid lump turns out to be nothing. I had meant to tell both you and Ramols that being cold can be a sign of low thyroid
Tazzy - enjoy your vacation
My apologies, feeling a little brain dead today, fairly full work week followed by Herceptin late afternoon yesterday, worked at home this a.m., just checked in now. Would like to address everything I have missed commenting on but know that I would fail dismally. Please know that I think of everyone daily and that I am here for all requiring hugs or pocket parties.0 -
Away for almost a week and much news here.
Stride, have a good and well deserved vacation and I will put my FUCK CANCER t-shirt on this weekend and think of you~~and all of us for that matter.
I stayed active while away but have a enormous blue/black bruise on my left upper/inner arm which I guess is the first thing that hit the road when I fell off my bike last weekend during the tri. I see my physio on Tuesday and I think once the bruise gets better it will not ache so much. Ativan and ice all week. I am still so glad that I did the short course triathlon. Today I go to Vancouver Island with my son to cheer him on in a competitive Olympic length tri Sunday at Elk Lake~~open swim and he rented a special wet suit for that part. Glad there is no short course option!
Juneau, I too hope that thyroid lump proves to be nothing. Websister, thanks for the info re cold/low thryoid. I had a whole lot of B/W done recently for baselines but one of the thyroid tests was cancelled. I see my GP Wed. to go over results and have lots of questions. Triglycerides and cholesterol are abnormal as is ferritin; I know that Anastrozole can cause those first two to elevate but none too happy so soon.
Long weekend here in Canada as Tazzy says. Rain at last but clearing I hear. I was happy for rain for my garden.
Hope all are enjoying the first weekend of August.
Marian0
