2013 Survivors!!!
Comments
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Ramols and Momof3 - I totally understand the anxiety of hair! I have no hair skills but decided to let my hair grow out and haven't had a haircut since August. Not sure where I will end up but it does cause anxiety and grins too. My husband who has self described Oakie hair said to look at his hair when I complain. Better to worry about hair than cancer.
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believe - You are so correct it is easier to worry about hair than cancer! I just don't understand that I was fine when I had it shaved off a week before Memorial Day of 2012 but 20 months later I am scared to even get any cut off. Hopefully I will get the nerve up to make an appointment soon. I promise that I will make an appointment and keep it before the 2 year anniversary of when it was shaved off. I have a friend that finished up chemo herself a few months ago and she just gave me all of the hard and scarves back since she has enough coverage now. It makes me happy that I am doing as good as I am seeing her now since that was where I was last year this time.
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Johnette - sent a Facebook friend request also
Ramols - sending hugs, enjoy those children - love your attitude in spite of your feelings
. I was feeling down/anxious yesterday and couldn't quite figure it out. Realized that in spite of myself I am anxious about the MO visit and mammogram next week which impacts how I am feeling about other aspects of my life like work - (a little overwhelmed with all that needs to be done). At times like this the 'what if's' kind of get in there and try to take my focus off of continuing to move forward. I will be glad when the week is over, until then I will also try some techniques learned from my support group.Stay warm, well and safe everyone!
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Ramos,
The hair issue may be more common than you think. A friend of mine who survived bc about seven years ago and lost all her hair cannot get her hair cut now. It is down to her waist. She will wear it up, under her golf hat but cannot cut it. She had shoulder length hair prior to bc.
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Thanks all so much for the feedback. It really helped me out during the day. Made it through Sunday and even managed to have some fun. Cheered up by seeing that I've made progress in actually dealing constructively with my anxiety now. So that is good. And tomorrow I'm finally off to try an in-person support group for the first time. It's for young women with early stage BC. We'll see how it goes. Feeling rather angry at the cancer gods tonight as my colleague who is around my age, with a son the same age as my oldest (5) is now battling this f'ing disease. Sounds like it's early stage, but they took her back in for more surgery after her first lumpectomy so they could take out more nodes - since the sentinal was positive. And my friend's mother was recently diagnosed. When will it end?! So glad to have all of you! Sleep well. And for those in the deep freeze areas of the globe - stay warm!
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Ramols - I wish you only good hair days! I worried about my last post sounding flippant. I'm just not good at hair! I promised myself I would never have long hair again and here I go trying again. Silly me. I didn't lose my hair so my perspective is off. I'm sorry. Love you!
Today was supposed to be MO follow up. I got a call around 9:30 that my Doctor was sick and her office rescheduled me for next Monday. I didn't sleep at all last night so I know tonight I will really sleep. I used to have a boss that said we created our own stress. Maybe she was right. I feel pretty good so I'm not going to be anxious next Monday. As if I could fool any of you!
Hugs to all!
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Quick hello to everyone... jumping in pockets where needed and sending out big virtual hugs to you all xxxxxxx
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Love the cartoon Aruba!!!!!!!!
Hugs to everyone!!!!!
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Stay warm ladies xxxxxxx
Great cartoon Aruba !
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Aruba - that's great!!
I have much to say, but little time. I have caught up and I get the whole hair conundrum....
Believe: Here's one for you... Stress is the illusion of control.
So my boss continues to prove how much of an utter wanker he is. I am looking for other work, but in the field I'm in, I'm just under skilled enough to no be able to make a move - and in another field I won't get the same kind of money. I feel really trapped right now; and it sucks.
Got on the scale for the first time in 2 weeks on Sunday morning. I put on 4.5 pounds in the12 days of christmas (well actually the 12 days from christmas eve and after). I only ate outside my diet plan for 3 days and 2 cheat desserts on other days. WTF! I feel betrayed by my body. It took SO LONG to lose that weight!!! Hoping it's water bloat. I lost 2.2 so far. I suppose I just have to accept that I will never be able to eat as a please for a full day again. maybe ONE cheat MEAL, with no sugars.... *sigh*
ok - off to meet 2 sponsees and take them to this Guided Meditation Group. Last time I went was pre-chemo and post surgery and I had an absolutly amazing spiritual experience. It gave me clarity and strength. Hoping to get a bit more of that tonight.
In pockets and your all in my heart!
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Just back from Dr. No surgery!! Bones holding in place ok so he will see me in 3 weeks and take off cast, do more xrays and either recast if still tender or give me a portable one of some type for a few more weeks! Pain due to still being in acute stage of healing, but I'll take it vs surgery :}
I bought some huge sweatshirts to cut cuff off of left so I can get cast through. Schlemiel that I am cut off the wrong sleeve
so I cut other to match but not evenly. Between that and trying to pull on pants with one hand, think I'll be home a bunch or go where I won't be recognized since I can't get coat on or use hair dryer very well either. In your pockets as needed...red cast will glow in the dark! Hugs!
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Congrats on no surgery Aruba!!!!!!!!! A glow in the dark cast wow!!!!!! Praying the pain goes away quickly!!!!!!
Juneabugg - sorry your boss is so bad!!!!! I am praying you find another place to work soon!!!!!!!!
My DD is getting so worried about going to the surgeon next Wednesday and I am also! I keep trying to down play it when we talk, but it doesn't seem to be working. I can't wait until it is all over and I hear that they finally got it all!!!! I go to the dermatologist myself Thursday for my mole check and after all we have been through with DD I think they will do at least 2 biopsies on me. I hope I am wrong, but I would rather have them off to find out they are nothing then the other way around!
In pockets as needed and HUGS to everyone!!!!!!
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great news Aruba ... Post a pic of the sweatshirt and red cast ...
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Aruba - great news. A photo is a great idea, can't wait to see what you did to your poor new sweatshirts and red glow in the dark cast. Good choice!
Momof3 - keeping busy is still the best way to make time pass. Does your daughter like puzzles or board games? When I was in labor played Yatzee for too long, almost didn't get to the hospital in time.
I'm taking advise from all of you. I have an odd spot on the chin of my left leg. I showed my Doctor last week and now have another appt next week to have it checked by another Doctor and hopefully frozen off. It is up to us to investigate what we have questions about. I see my MO on Monday and the other Doctor on Wednesday. Hopefully we will leave town after the appts.
Juneau - any chance you can get promoted or moved into another positive in your company? Maybe a lateral move within would help. Just a thought.
Hugs to all and ready for any pocket parties that are coming up. My DH has decided we need to go Vegan so I will be bringing fruit :-)
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Aruba: yay for no surgery - pic would certainly put a smile on our faces I am sure.
Juneau: yes, your boss is a total wanker. OK I understand about the feeling of not being able to move jobs - whatever the reason. Before I was diagnosed I was an HR consultant... lots of stress, hours... blah, blah. Then I was diagnosed - took a year off work and although my old job was there when I went back I didn't want it. I talked it over with my boss (a sweetheart) and said I didn't want that stress anymore, I didn't want to be on work emails at weekends etc.. Although the job I took - still in the same department - still in HR - an advisor to the Consultants, but without the stress and a Monday to Friday 8-4pm job I am loving it. Took a while to get used to the $10 less an hour but it is the best thing I ever did.
Just thought I'd give my opinion... even though you didn't ask for it
Stay safe and warm you lovely ladies xxxxxxxxxxx
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Stopping in to say I am thinking of you all.
Believe let me know if you get down my way.
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Hi lostinmo..... are your travels over? you still on the road?
Happy Friday everybody xxxx
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Hi Tazzy!! How are you? My travels are at least temporarily halted.
I had a lump removed from my outer arm that came back as the bc so I am starting chemo again. Having faith that I meet Ned again and we stay best friends for a long time. Then I can hit the road again.. 0 -
Good luck lostinmo. Will be sending you cancer squashing vibes! Rest up, take care of yourself - and pick your next destination for when this bump in the road is done with! Hugs!
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Hopeless Net almost entirely since I got to the Caribbean and such weak WiFi I could never eve get to BCO. Today good so a copy/paste from the Canadian thread. I have not had time to read all your posts but hope to catch up later this week if I get decent WiFi again.
Checking in at last! This is the first time I have had Wifi strong enough to log on. We are now in Antigua and have been for 6 days. We left Barbados on an overnight passage to Martinique arriving there for NY Eve after a wild night at sea. I stayed with my youngest son on his 6-10 PM watch (took anti nausea pill) then Ativan and slept so so. NY's Day we left for a short passage to a bay closer to an 0400 start to Dominica and arrived just after dark so a 14 hour passage. The next days we sailed as from the beginning in wild and challenging conditions right to Antigua~~5 countries in under a week! The day after arrival here we got whacked in our stern by a hug cat that had just come in from crossing the Atlantic so now we are here longer with repairs being done with total cooperation from the Aussies who hit us. Besides it is too much wind until maybe Sunday to head out anyway. We spent Wed, with a rental car and saw much of the island before dropping YS at airport to fly home via Toronto and his flight was delayed no doubt due to winter in Canada but they held his plane in Toronto for him and 3 others.
As for me, it has been super challenging though my guys have taken total care and did all the sailing work. I am finally feeling that the worst of the post op from Dec. 6 is behind me and I know I need to do more ROM exercise. The bay we had to go to for the repairs is not great for swimming but hope to be back in English Harbour or heading north around Antigua by Sunday and seems that swimming and snorkelling will be good. Meanwhile I can't complain about the weather~~not too hot with all the wind and frequent refreshing rain showers.
I do find that I am easily stressed by small things and worry when there is no need~~my crew are excellent. But really I think I worry more than I did pre BC even though I know it is fruitless. Ah well just part of the journey!
Time to head back to our boat as we are going into a marina to get part of the work done. Flaky WiFi there and yesterday I tried for an hour to get on BCO. Sorry I have not had time to read all your posts but welcome to the new sisters and I will catch up as soon as I can.
XXOO Marian
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Hi lostinmo, praying you meet Ned soon. Big hugs and positive thoughts.xx
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lostinMo - good to hear from you - adding my prayers that you will soon be dancing with NED again
MarianElizabeth - wonderful to hear from you, what an adventure you are having down there, enjoy your scuba and swimming
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lostinmo: may you soon be dancing with NED again soon. Sending positive mojo and hugs your way.
Marian: happy travels.
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Happy weekend everyone.... stay warm and happy.
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Yes, and with curly hair it grows out at different rates and some sticks out, some lies down. I thought getting a trim every 8-9 weeks would be enough. In December 5 weeks and I looked like a mop. I'm thinking of keeping it shortish as it is, (even though I had shoulder length hair for years...) but I don't know much about how you keep it looking good. Today I decided to just forget about it. I decided as long as I don't have andy springy antler curls sticking up on to, I don't give a shit. Today, anyway!
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prayers are with you Lostinmo!!!!!!! May NED come back quickly!!!!!
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Lostinmo, Hope you meet NED again shortly and he rides shotgun with you from here on out!
Momof3,in your pocket Weds! I went to dermatoligist and had a head to toe check in the summer. Had two pinhead size spots removed and checked. Better to be overly cautious.
Tazzy, like the avitar..any particular reason?
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Lostinmo- how dare NED leave you for the moment! Yes, I also hope he is back soon. Are your Doctors in Quartzsite, or do you go to Vegas? I will let you know when we head out. Would love to connect! In the meantime, sending lots of prayers and positive thoughts.
Marian - your trip sounds like a pirates adventure! Enjoy and be safe.
Lisa - I have the same sentiments about my hair.
Momof3 - I'm in on Wed for your Pocket Party. Sounds like you made the best decision about the location. Hugs to you and your girls.
Hi Aruba! Hope that wrist continues to heal and has stopped being painful. Your red cast make me smile. Good choice.
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here ya go.. A cast selfie
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