2013 Survivors!!!

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Comments

  • kslansky
    kslansky Member Posts: 112
    edited January 2014

    momof3 - I'm in your pockets...but please stay warm!  I'm a South Texas girl and not used to snow and freezing temps!Loopy

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited January 2014

    kalansky - thanks for jumping in the pockets!  My DS has some of those warming packets that he uses when he goes camping with the Boy Scouts so I will make sure to have some of them in there for all to use. The temp right now is 7 but it feels like -12. I am also using valet parking tomorrow so at least the car will be started before we get there. I was hoping to leave my coat in the car tomorrow, but with a high for the day of 12 I think I will keep it with me. 

  • Believe777
    Believe777 Member Posts: 540
    edited January 2014

    Momof3 - in your pockets too. Burr. Time for your winter to be over. Lots of prayers, positive thoughts and cookies too!  

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2014

    Morning all, sorry some of you are experience that 'dark territory', I am with liefie..... do my best to live for the moment - hope you can all find peace within yourself for our new 'normal'. 

    lostinmo/believe: how wonderful you met - very special moments

    Jumping in pockets where needed, sending out virtual hugs to all. xxxxx

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited January 2014

    thanks everyone for being in my pockets today. Surgery was running late, but she is in there now. 

    I wanted to finally give good news that they called this morning and my biopsies I had last week are B9!!!!!!!!! FINALLY SOME GOOD NEWS!  

    I am praying the good news continues with Maddy, but we will have to wait a week or two for pathology to come back  

    Hugs to everyone!!!!!

  • Believe777
    Believe777 Member Posts: 540
    edited January 2014

    Momof3 - we celebrate your good news with you!  Keep us posted in Maddy. 

  • aruba
    aruba Member Posts: 276
    edited January 2014

    Momof3, thank you for the pocket warmer in here...I might have spilled my drink as I jumped for joy with  your news...holding on tight awaiting good news on Maddy!

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited January 2014

    Momof3 I am so happy. They say all good things come in 3's so I'm sure Maddys will be good with lots of follow ups. 

    I hate being in this dark place. It's not me. All through treatment and surgery and rads I never got to this point. Ever. People thought I was in denial. I see my MO next month and will talk to her about it. 

  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited January 2014

    Momof3- great news on the biopsies, pray the same for Maddy

    Believe and Lostimo- LOVE the pic and that you had the chance to get together! How nice!

    Aruba dang you are still sporting that cast! Hope the pain is just the nerves healing or something coming "back".  Yes this new norm is nuts-things we would have grumbled about "before" don't seem worth grumbling about anymore. lol

    Well it's a great day for me- I'm back to thinking positive like Liefie , Tazzy, etc. and like I was before finding my breast lumps! Problem with me is, I'm so positive when I'm positive but let me find a lump or have something happen that I think is going to be a game changer and I plummet deep into thought about treatments, would I have to tell my  dad-you name it!  Amazing what a difference the words "they're cysts" can make! For the time being, I can go back to being positive and appreciative of life again.

    I notice Believe is throwing around the word cookies again so count me in on the pocket parties and calories. Hope everyone gets the results they are hoping for. Keep warm all. Heck even here its COLD! Going down to freezing tonight so I better go cover my flowers etc.

    Love you all for being here and so supportive. (Not to mention nice, fun, crazy, talented,sweet, etc etc etc etc etc etc)

    We haven't had a happy dance for a while so what ever your style, let's dance!

    image   image   image   image

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited January 2014

    Thanks everyone for being with me today!  People looked at me funny when the happy dancing started, but I didn't care. Maddy made it through surgery and we are home again. She is in pain, but doing great considering all she went through today. They were able to get it all done, but it took them about 1 hr 45 minutes to get it all done. Now the waiting, but I am hopeful that they got it all and we will both be in the clear!!!!!  I will keep you posted. 

    Take care and stay warm if you are in the pilot vortex are like we are!!!!!

  • kslansky
    kslansky Member Posts: 112
    edited January 2014

    Momof3 - Great news!!

  • aruba
    aruba Member Posts: 276
    edited January 2014

    All sounds good Momof3!

    2fried...you go girl!!!!

  • Jo6202
    Jo6202 Member Posts: 165
    edited January 2014

    momof3, good news and will keep Maddy in my prayers for good news for her too. 

    2fried eggs, made my day.  I think I know all those dancers :-) Hope to have the energy of dancer 3 some day soon!

  • KrisWahl
    KrisWahl Member Posts: 5
    edited January 2014

    so glad I found this now I can share and let loose of all my concerns, fears and happy self with people who have been there or are going through it right now with me! Hang on my pink sisters Kris is in the house 

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited January 2014

    Welcome Kris! You are in the right place!

  • KrisWahl
    KrisWahl Member Posts: 5
    edited January 2014

    Thank you Karen!

  • KrisWahl
    KrisWahl Member Posts: 5
    edited January 2014

    oh boy it's almost been a year since my diagnoses (May) what an emotional roller coaster ride, at least the anxiety attacks are few and far between these days, but having a lot of fears. Just went to a memorial service for my husbands cousin that passed of breast cancer she battled it for 6 years, this really hit me very hard I guess reality is just now starting to kick in that this is a lifetime battle and it can show up at any given time. 

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited January 2014

    Welcome Kris!  This really is a great place for support!!!!  I would not have gotten through the past 2 years without all these lovely ladies!!!!!

  • KrisWahl
    KrisWahl Member Posts: 5
    edited January 2014

    Thank you momof3

  • Believe777
    Believe777 Member Posts: 540
    edited January 2014

    Welcome Kris. You've found a great group of characters!  Lots of love and support from thus great group of women!

    2Fried - love your video!

  • Nettie1964
    Nettie1964 Member Posts: 627
    edited January 2014

    Ok, I've posted on several other forums, but I'm not getting any responses!  Just wondering if any of you ladies had any back pain after radiation!  This is really messing with my mind!  I've read and read and it seems that mets to the spine for some came with no symptoms at all and for others there was pain!  Just worried, but right now MO seems to think it is related to radiation tissue damage.

    Anyone have any experience with this?

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited January 2014

    Nettie I didn't have back pain but I do have a dull ache in the rib near where the radiation was pointed. My RO said its common. Not going to tell you not to panic but if you are confident with your doc then I hope that gives you a little peace of mind. Any little twinge sends me in to a tailspin but that's life now I guess. 

  • Nettie1964
    Nettie1964 Member Posts: 627
    edited January 2014

    Thanks Karen!  It's just so hard not to worry, but it's also hard to think about being scanned!  I'm just stuck in the middle!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2014

    Momof 3….. absolutely wonderful news – so happy for you.  And who cares what people must’ve of thought of you happy dancing…. When they pay your mortgage they can have an opinion.  Still in pockets for Maddy’s good outcome.

    2Fried… hilarious videos

    Karen: hugs and hang in there honey.  You know we are here for you.

    Kris: welcome – sucks you have to be in this club, but you really have landed in the best place ever.  These ladies will be your sanity – I know they kept mine.  Hugs for your DH’s cousin.  Yes, that for sure will hit home harder now.

    Nettie – I had rads on my left side and get pain in my shoulder blade at the lower part… really feels like a knot some days – was told the same as you – rad tissue damage.

    I have my yearly scans and mammo coming up Feb 12 and 13.  So far not thinking about them, but I do know that closer to the date of that and my 3 monthly check in (Feb 20) I get pretty cranky.  For now though its too far away for me to give any thought too - living in the moment.  But hey another pocket party coming up. 


  • KrisWahl
    KrisWahl Member Posts: 5
    edited January 2014

    All the great welcomes are truly heartfelt thank you bunches ladies, I know I have found a great place for me to turn to when I need that extra pick me up of support, advice or just simply a shoulder to lean on! Xo

  • ramols
    ramols Member Posts: 310
    edited January 2014

    nettie - it could be some edema in the trunk area, which is not uncommon. I had lots of achiness and soreness in my rib cage and surrounding my implant post radiation, and after finally being sent to the physiatrist - was told i had truncal lymphedema. A few visits with the lymphedema specialist to get the fluid moving and I felt better. Persist with questions until you can get some semblance of comfort. Good luck!

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited January 2014

    good evening my lovelies! Haven't been on in a while but have been reading.  I think of you all often.    

    Momof3- congrats on DD's outcome, so happy finally good news.  

    Kriswahl- welcome to our family, lots of love here.  

    I posted on my FB wall last Friday that I went to my MO, and for the first time time in 19 months she actually told me I was NED!  I may have to be on the Femara for 10 yrs rather than the original 5 yrs.  she said the longer I'm on it the better my chances my outcome of me not getting cancer again.   I go this coming Tuesday for another bone density scan as the Femara can throw my into osteoporosis.   

    Believe and lostinmo- great picture, so glad you two met up.  

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited January 2014

    Congrats Chrisrenee on NED!!!!!!!!!!

    Ok I will need some more pocket party's next week. Tuesday I go to my GP, BS and MO all in the sane day!  I know I was trying to save time and gas putting them all in the same day, but my anxiety is already starting!  Then on Wednesday morning I take mt DD back to the surgeon and hopefully get her path results. 

    At least we have a guilt weekend coming up!

    Hugs to everyone!!!!!!!!

  • juneaubugg
    juneaubugg Member Posts: 517
    edited January 2014

    HI ladies - welcome Kris to our family.

    Believe and Lostimo - your beautiful!!!

    I'm with Tazzy and Liefie - I don't worry about recurrence really at all.  How:? I'm too busy obsessing on my weight and physical being (by that I mean how my exercise is changing my body).  And I do mean obsessed.  It's a full time job, I have no time to worry about cancer.  I am just waiting the day my body adjusts back from the chemo and start burning some FUCKING CARBS!!!  FUCK THIS SUCKS!  So I was down to 153.8 last Friday. went away for the weekend - did FAIRLY well.  Yes I ate sugary yummy things (who can resist a chocolate fountain covered home made rice crispy treat?!? - not THIS girl!) and soft pretzels ONE day, and got on the scale today (of course I also had my period all week and it is JUST ending) and I am back at 158 - which is where I was 2 weeks ago.  WHAT THE FUCK! I'm a god damned yo-yo!!  ARGH!

    BUT the weekend away was nice - I could have done without all the screaming, running, children everywhere (I knew there was a reason I decided not to have kids).  I don't mind my friends kids and my nieces and nephews - but when copious amounts of strangers children get between me and getting to my coffee in the morning; or are running like a little basketball team above my head at 8:00 am.... (growl....)  SO I'd didn't rip into my step-sister who get the free house.  She was saying how she had gotten lucky and had free cable at the old apartment for 9 years, and just couldn't bring herself to pay for cable now - so she has no TV. I bit my tongue - I WANTED to say, "why not pay for cable, I mean shit - you didn't pay for the house".  I feel sorry for her - she's a crazy person....  long story, but trust me - she's neurotic and narcissistic. (That's a sad combination because she's too filled with self-importance to realize how nuts she is).  My other step sister is in the middle of a nasty divorce - she looked worn out and exhausted. Poor thing.

    Anyway- I am spread rather thin these days so I haven't been on here too much. Sorry ladies!!! I've missed you.  YAY to chrisrenee and marianeliz what is your blog link???  I envy you and  lifie with your travels.  I must say that SA (and maybe New Zealand) s the last place on my list of travel wishes. ALWAYS wanted to do safari.  I've hit most other continents.  It's so cold here right now (2F this morning), but I do indeed remember living is Adelaide and it being in the 100s and wishing I was home in the cold.... I mean either way your inside in those conditions, right? The grass is always greener!

    Well, back to work.  I wish I had some pearl of wisdom about staying in today.  All I can tell you is what I do. When I start projecting about shit I have no control over and CREATING my own fear by going down a road of worst case what-ifs...

    I have a quick conversation with that scared, negative fearful part of me that goes like this:

    I look down at my feet and I say, "Self, where are your feet?"

    I respond "In today"

    "Good then stay with them".  

    Love you all!!! xoxo

  • ireland20
    ireland20 Member Posts: 175
    edited January 2014

    Gutted...my 31 year old brother has just been diagnosed with testy cancer.  I fu@king hate this disease.