Ladies in their 30s?
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Hey there. Thank you all for thoughts and kind words. Scan came back without much change good or bad. Hopefully this treatment keeps working. MO said that if it doesn't we have many more options.
Bluemnm - recipe for green lemonade sounds great. I am definitely going to try it.
Kate1974- I was given a pet scan initially when diagnosed. That is how they determined i had bone mets. I then had MRI to back--to check for damage to spine from met to T9 vertebra, and MRI brain to make sure i didn't have spots there. Apparently PET doesn't clearly show brain mets.... I had another PET post chemo that determined NED. Since then they were just monitoring tumor markers. i had another PET @ 6 months and it showed the original areas glowing again. Since then MO has just used bone scans. i think...😄i might be wrong..hehe...that PET shows active cancer while bone scan & MRI show detail.....again not a dr here.
Becs511 -thanks for asking about me...scan went okay i guess. Guess it's asking a lot to be cancer free after a month on a hormone inhibitor. I will settle for stable. My MO never warned against juicing. My veggies come straight out of my garden so no chemicals. I will ask why. The only no no i was told about was grapefruit.
Nbnotes-good to here from you. hope you are doing okay.
Sorry this was so long...i like rambling..lol.
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I'm 33 from Cleveland and was diagnosed April 3 with stage 4 inflammatory breast cancer. It's scary but I'm trying to deal and live as normal as possible. I'm currently undergoing chemo and then surgery in September or October. ..then radiation. I have an 8 yr old son and 6 yr old daughter that are my world! !
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Amandajh1980, welcome to BCO.
We're sorry you have needed to join but here you will get excellent guidance and support here on the forums.
The waiting, most agree,
is worse than the tests, so we sympathize. You will be kept busy with a 6 and 8 year old while doing chemo, surgery then rads. Tough for a mother so young. People here have been through
it too, so sisters will be willing to offer advice. Our thoughts are with you.The Mods
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Hi Amandajh198,
We were diagnosed with stage iv around the same time, I am 35. Welcome to the boards, but sorry you are here. There are a lot of great women on here that have great advice though. I don't have any kids, we had been trying for years. I think there is a thread on here called mothers with school aged children you may want to check that out. I hope everything goes well for you and if you ever need to talk feel free to message me :-)
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Hello all I was recently dx with stage IV reccurance. Intitial dx was 8 years ago at 26. I have two children DD 12 years and DS 19 years.
Having hard time digesting the news and have down played dx to family, need them all to stay positive
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Hi girls, I was diagnosed 2 weeks after 31.birthday, end of february 2013, stage 2.Now 3 weeks ago with stage 4, liver mets. That was big shock. I was asymptomatic, no tumormarkers, feeling great. Month after my wedding. I have 5 mets.two of them huge. Biggest one 9cm, necrosis inside of it.second one 5 cm.rest is small.Now on cisplatin/gemzar. Waiting for biopsy (will have in 2 weeks, they will send it to chemosenzitivity testing) and MRI on monday.So scared but starting to cope it better i guess. I am not crying all the time anymore. My survive strategy was always to be in reality (prepare for various possibilities) but hope for best.Now its harder.
I am scared because i have experience of chemo not working (ac resistant from the begining, taxol after 4 rounds) Also, liver mets are too big. I am mourning too for not having kids... that has always been my greatest desire.
Maybe MRI will show something on monday, but i have only two rounds of chemo, its maybe too early. We will see.
As i told you before, this forum helps me so very much. You are so wonderful and brave and caring and you give me lots of power. Also because of you i can cope this.thank you.
Martina
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Was just thinking of all of the wonderful ladies in this thread today, and wanted to check to see how everyone is doing. It seems like its been a while since there have been updates. I'm still NED (knocking on wood even as I write that), and I turn 40 next month. All of my friends are freaking out about their upcoming big birthdays, and all I can think is "thank goodness I'm having another birthday, even if it is a "BIG" one!" Well, I hope all of you are doing well. I think of you often even though I haven't been posting much.
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Hi Nancy.
Congrats on remaining NED and happy early birthday! Doing anything fun to celebrate?
I'm doing really well. I just found out yesterday that after only 3 months of treatment I reached NED myself!! My doctors are amazed. They said that they have never seen somebody at Stage 4 respond this well, this fast. Only 3 more months of chemo for me and then I'll just continue with the targeted therapies.
I got some other good news this week too. I am going to be an aunt for the first time! My brother and his wife are expecting their first child. Knowing now that I won't be able to have kids of my own (I never really wanted them anyway). I am going to absolutely spoil this kid!
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Hi Nancy,
Happy early bday, I hope it's a great one! So glad that you are still NED. I am doing ok, started on my new treatment a month ago so won't have scans until November I think but I feel okay.
Becs, congrats on getting ready to become an aunt, you will enjoy it. I never had any kids but I have 10 nieces and nephews and I love them all like they are my own, they are so fun to spoil! I spend as much time with my as I can, they Glad that you are doing well.
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Becs - Congrats on NED and becoming an aunt! I'm going to Machu Pichu in Peru as my birthday present to myself at the beginning of the month. Otherwise, I think it will be fairly low-key.
Bluemnm - Hope that your new treatment brings stability at least and hopefully regression!
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so nice to hear good news from people and best best hopes for positive results from others as well.
just back from a vacation with no talk of cancer for 2 weeks! did my
best to ignore SEs, worries, and planning and dh & I enjoyed a
fabulous break from the "new" reality. it's all still so surreal.I responded well to treatment and am hoping targeted therapies are still kicking ass. if all stays good, I'm looking forward to surgeries in mid-October. I'm getting first scans since stopping chemo on Monday and am trying to play it cool and keep busy 'till then.
had my 35th bday - one of the best birthdays I can remember. I've been active the whole way through treatment and am finally starting to feel better. I still get occasional little flares of anger/frustration/sadness and don't think I've even begun to process all that's occurred/occurring, but am trying to live healthfully, happily, and as normally as possible.
happy almost Friday! it's nice to read the updates.
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Spicypetunia, so glad to hear you had a great trip. Where did you go? Also happy birthday!
Since we have the a similar treatment plan, I have a question for you. What kind of side effects are you having from just the herceptin and perjeta? I also will be stopping the chemo in the few months and continuing on with just the targeted therapies every 3 weeks. It would be great to know what to expect!
Good luck on your scan!
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Hey there,
I haven't posted in a while. Makes me feel good to hear from you ladies, so i thought i would return the favor. Nancy i have to say i am a little jealous of your upcoming trip to peru....how exciting!!
Great to here from you all.
Hello and welcome to those of you that are new here. You have come to a place full of great listeners. Everyone understands here so feel free to speak your mind or just listen. lots of great info...😌
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hey my sexy young friends! Haha! I had scans on Wednesday and I am as close to Ned as I can be (still little 9mm spots, but could be scar tissue--who knows )! I also just turned 36!
Becs--I finished taxol end of February 2013. Been on h and p only since then. Tumors continue to shrink. I would say I have mild nausea every once in a while...also some fatigue. nothing like taxol!!! It has been wonderful...as far as treatments go. I hope it will be the same for you!
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thanks for responding Kjones - sorry Becs, I'm only 7 weeks in to only h & p and still can't really decipher which SEs are lingering from taxotere and which are due to h & p. regardless, not bad at all. Monday scans were good.
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Becs- glad to hear the good news. Hoping you stay NED indefinitly!
Kjones- Young- YES! sexy QUESTIONABLE i have a drippy nose that has caused a nasty sore/scab in my nose. i vote scar tissue
since i am not a dr its just a guess lol i had scar tissue fool doctors0 -
hi ladies, it's been a while since I have signed on!! Been busy, which is good
ok, I am currently on Aromasin and Folsodex shots. My PET scan was ok, my sternum tumor is NED and no other tumors on any bones or organ however my nodes are all lit up. Clavicle, chest, under arms and near heart. Dr said about double as many as January. My question is this; has anyone else has multiple node involvement ?? He started the Folsodex as kind of a double hit. Said too early to tell if Aromasin didn't really work, was only on it for 3 months prior to scan. Just curious what y'all thought. Thank you! )0 -
Hi all,
A few days ago I found out I had mets in my bones. I was first diagnosed in Dec 2012 - lobular and ductal both 100% to estrogen and Her 1+ /Fish -ve. I had no mets at time of diagnosis....
I had complete mastectomy, completed chemo AC+T, completed radiotherapy. Jan of 2013, docs noticed by fluke a spot in my shoulder but weren't sure what it was. Bone scan came out clean, CT scan came out clean, so they biopsied. It came out negative for cancer and only showed necrosis. I was told - side effect from chemo. Now, 9 months later I'm with back pain, pain in the rib cage and spinal cord. I was told chemo and Tamoxifen didn't do anything and that the initial bone met grew during chemo.
I'm not sure what type of treatment I would be getting since it's all fresh. I'm being presented to the onco board today. Doc say they would change my pills to shut down my ovaries and will start giving me shots to strengthen my bones and that most probably I will not be getting chemo as it didn't help. I'll be turning 37 in Oct and my will to live is irreplaceable. I've been crying non stop, my parents and hubby are devastated. CT scan showed mets only in bones but docs are presuming I have micro mets in organs. I'm considering going to AD Anderson for diagnosis and treatment plan and I'm hoping I can have the treatment plan executed in Canada.
Is anyone else in my shoes and how are you girls treated?
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Hi Modavie,
Welcome to the boards. Sorry that your cancer has returned. I was diagnosed with bone mets in April, right from the start. I started out with chemo but now I am on Aromasin and zoladex(shot to suppress ovaries). I also get an infusion of zometa to stengthen my bones. I completely understand about crying nonstop, I cried every day for the first 4 months, but it got better over time. These boards have helped me a lot in realizing that I can still have a normal life. Once they get your treatment plan together I'm sure you will start to feel better. Prayers and hugs to you.
Sarah
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hey Sarah, thanks! Monday I'll find out when I'm starting chemo again. I know I'll be taking aromasin and zoladex as well. I just hope the chemo will help me this time around. Hugs
Kalina
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Pet Scan came back. No change good or bad....guess i will take it. Hope you all are well.
On a lighter note...my dog had puppies. Poor mamma!!! hehe. Hope everyone has a relaxing weekend.
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Modavie for them to say you probably have micro tumours in your organs is really stupid. If they can't see them they they don't know. It could just be in your bones. Why are they saying that? I would tell them not to put crap in your head that can't be proven. You have enough to process without speculating on things. I'm sorry you are going through this and I will help you all I can. Just erase that comment from your brain. You have bone mets and can live for years with them. In years we will have a cure. The beginning is the hardest time. You are grieving. Its normal and it's hard. But it does get better. You will find a new normal and have some great days still to enjoy. I always explain it like a radio blasting in your head over and over "YOU HAVE CANCER OMG" and eventually you will learn to turn the volume down on those words and sometimes forget the radio is even playing. That's the secret. It takes time unfortunately but you will get there.
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Jena, glad your PET showed stable, stable is good! Those pups are adorable, we are going to get a new puppy next week hopefully. Our current baby Dixie needs a playmate.
I hope you all are well, I'm getting ready to head out to get my zoladex shot and port flush, fun fun. Hope you all have a great weekend.
Sarah
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Becs - you can check out the pejeta/herceptin/taxotere thread for more info on after taxotere
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modavi- I had a bone met grow while on herceptin that was two years ago. I'm on herceptin and perjeta. I'm also on xgeva and they shut down ovaries. After rads and two rounds of perjeta, herceptin and taxotere I was put back onto ned status. I've been living Ned for a full two years. Just had some possible micromets to lungs. Dr. added aromasin. Back to NED. Bone Mets are not that bad. Hope they treat you with some gusto. 😃0 -
Hey girls, thanks for the info and the support. From Jan, when they saw the spot in my shoulder and biopsy came out negative, until now I've been extremely active. I did hot yoga 5 times a week plus jogging 1h a day 3-4 days a week. I had no pain anywhere, not even in my shoulder. A few months ago I felt lower back pain but I always associated it with yoga until the diagnosis. Friday, I had one radiotherapy treatment with a double dose for my lower back. I don't really feel much of a difference. How long should I wait for the radiotherapy to start working? Sep 29, I'm starting chemo ago. Initially they said 5FU for 2 months but I'm waiting for a confirmation. I'm worried with ovaries being removed. Will my sex life be very negatively impacted?
I also did a lot of research regarding new treatments. Here are interesting articles:
I sent a note to my onco to request this test drug directly from Phizer but no response from him yet.
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Hi Modavie:
If you don't want to take your ovaries out you can try zoladex plus the aromatase inhibitor. Ask your doctor about this .
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hey all! Just checkin in and seein how y'all are doing
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happy to have great news - most recent scans look pretty amazing!
PET completely clear, MRI - liver mets are barely identifiable and show no signs of residual viable tumor, Ultrasound - still a small (less than 1cm) mass at site of primary tumor - but they say this could be a variety of things - scar tissue, etc. man, when these her2 drugs work, they do seem to really work!
so, going forward with bmx, direct to implant (hopefully!) & ax node dissection. waiting on pathology results from surgery to make a call on radiation. I'm interested to see the pathology on that remaining mass....
I'm stunned. still kinda shocked that things have gone this well, a little disturbed by the idea of the bmx, a little worried about the full ax node dissection, but certain about going through with it. I keep thinking things should stop seeming so surreal at some point, but 9 months in, it's pretty much still as surreal and bizarre as it was at the start.
I'm very grateful for this site and all of the invaluable information I've gleaned from it. I'm sorry we're all here, but it does feel better to have somewhere to talk and learn about this disease. thanks ladies.
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an interesting tidbit: I see three oncologists and have received three different interpretations of my present condition: pretty much one at each end of the spectrum and one in the middle. just thought I'd share this so others might be able to benefit: an oncologist's opinion is just that - an opinion. fwiw, two of these came from oncs at top facilities in this country.
1. this is great news and we should hope it lasts a long time. do keep in mind though, we can only see as much as our technology enables us to see at this time - it is likely you still have disease in your body. while we'll continue to try to control it, you will never be cured - you will need lifetime treatments and monitoring.
2. this is great news and we should hope it lasts a long time. there is no reason to think this remission couldn't last for 30+ years. And, if it's less, we still have many effective weapons with some truly incredible new ones just on the horizon. keep up with treatments and go enjoy your life.
3. this is great news and we should hope it lasts a long time. while we don't know anything for certain, you're doing great and we have every reason to believe that you will continue to do so.
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Great news spicypetunia! Happy for you
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