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new and future flat sister, with questions

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  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited December 2013

    sounds like it's going to be a white Christmas for a lot of folks. Makes for pretty pictures, especially at night. The next day you want a huge can of snow-be-gone!

  • Ariom
    Ariom Member Posts: 4,027
    edited December 2013

    Gosh, How did I miss all those posts?

    ldesim, thank you for all the information. I thought you'd get a laugh out of the Vegemite cure! Ross and Joy were here to help in the garden, but I couldn't do much it was so hot out there. Thinking of you shoveling snow, while I am boiling hot, swatting the flies:) I actually have one of those hats with the net, but would you believe these sand flies can get through normal netting!

    I have slathered on the cortisone cream, and I feel a bit better. I can't imagine putting hot water on them. The ice feels good, but it is when I start to warm up that it really starts to itch. I hate using the repellant it has so many chemicals in it, but anything would be better than having this itch.

    Bobo, a fall in the shower sounds awful, did you injure yourself? 

    Spookiesmom, we are a day apart for our Sx Anniversary! I just called to Colin and said "it was a year ago, right now, that you dropped me off at the Motel in Sale", which was where I stayed the night before my Sx and SNB. I can't believe how fast the time has flown.  

    otceb, I hope the stretching and exercise helps. I am with ldesim, I wouldn't push it too far. I had cording, but mine was down from my ribcage. I had it massaged by a therapist, and did it myself. It eventually disappeared. It sometimes breaks too. Mine was like a twisted tree branch and when I turned over in bed one night some of it popped!

    I can't stress enough how massage with good oils can improve all that weird tightness, nerve pain and phantom stuff.

    I am another one who hates to take medication of any kind. I usually find the Se's, for me, are far worse than the pain I am taking them for. 

    I also meant to say, that it can go either way, you can either get super allergic to these bites, or you become immune to them, so fingers crossed I am the latter!

    gB, Colin called the gardeners that installed the watering system at the front of the house to come and put one in on the other side so I don't have to drag that sprinkler around any more. 

    I feel a Nana nap coming on, so I will check back later...M x

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    ot, I don't think I would push so much further that you need pain meds.  I think the trick is doing it more often during the day.  I am constantly doing the chicken wing one, the broom handle one (w/out the stick-just reaching up and back as far as I can go), and the side stretches. I do the whole set about 3 times a day but so many more multiples of the 3 above. And I am constantly gently massaging my chest.

    My rash is just about gone so I am still not rubbing any cream or oil in just yet.  I guess the first one I will try is the Aquaphor, it seems to be the most neutral.

    ldesim, no new snow here so far, supposed to come end of the week.  What we had is almost all gone.  One of the items I bought on zulily (a cute fur hat) was cancelled so now I have a credit balance there!  I was really going to stop until after the first of the year......now there is $$ there!

    Ariom, darn, I was hoping the hat could help shield you.  Crossing my fingers you got such a big dose of their stings this time, your body fighting it makes you immune.

    You'll laugh, I'm sitting in the recliner in my blue Marika zip up hoodie with the thumb holes) keeping my hands toasty) and the black with red yoga pants and feel so elegant (and comfy)!

  • ndgirl
    ndgirl Member Posts: 950
    edited December 2013

    SO sorry to hear about your fall Bobo, cant imagine how that felt, hope you are getting some better, you sure did not need that added to your problems. Sending lots of love and hugs your way..

    Ariom, hope your cream is helping somewhat and you can rest, would a bath with baking soda help? I always do that when mosquitoes are bad here and it helps. Are they only there for a short time or are they present all summer?

    Ot.. agree with the other gals, dont push too hard, I didnt have the cording tho, so no advice there, take it slow and easy with stretching and exercise. Until my drains were out I was only to bend over slightly and swing my arm in a small circles, switching directions and after drains start the stretching. hope things go good for you.

  • ndgirl
    ndgirl Member Posts: 950
    edited December 2013

    Oh btw.. one year for Spookiesmom and Ariom... yay you made it! your are paving the way for alot of us. Thanks and congrats!

  • Ariom
    Ariom Member Posts: 4,027
    edited December 2013

    Thanks ndgirl!,

     I took the advice of the Aussie site ldesim gave me the links to.I love ldesim, she finds Aussie stuff all the time! I tried the hottest water I could handle. I have to stand under it, not try to sit down in it, if you get what I mean.ShockedGuess what, it seems to work. Yay!  Not altogether a pleasant experience. Apparently  the hot water neutralizes the anticoagulant that they put into you. If you can do it immediately after you've been bitten, it can fix it right away. If it is after a bit of time, you may need to do the hot water 2x a day. I am going to do it again before bed and use the cortisone cream, just to be sure. This advice comes from someone who works in a Hospital up North where these things are extreme. That's what they do at the Hospital.

    I don't think these things are here all the time, just in the Summer for a while. If they were here all the time I surely would have encountered them before. I walk in the areas where they are supposed to breed all the time. They supposedly get worse around the full moon and move with the tides, they get carried on the wind, so I guess I was in the wrong place at the wrong time. 

    gB, I am picturing you in your Marika ensemble. I always feel really comfy in mine too.

    I hope you're right and i have had a big enough dose that the Sand Flies won't be an issue again.

    Thanks to everyone for all the support during my F'ing itchiest time, it has been, well, different!

    Now, you have to shop if you have a credit on the site! or will you wait till the after Christmas sales?

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    Ariom, glad you found some comfort!

    No/Yes, I think I am close to being done with zulily. I got 3 scarves that I hope will go into Spring and maybe Summer.  The thing I really don't like about zulily is the delivery is so slow, more than a month.  The tracking is unreliable.  I've shopped there over a month and from what I see, offerings are repeating. I am happy with my purchases so far and think the rest will be fine as they arrive.  I have been replacing my wardrobe due to weight loss and body shape changing, but I think I am set as far as cold weather clothing goes.  Maybe Spring/Summer will bring another shopping spree, I hope not, but who knows?

  • ldesim
    ldesim Member Posts: 1,193
    edited December 2013

    Wanted to quickly stop in and acknowledge a couple of milestones... hopefully by now Zils has completed her last radiation.... Yay!!!!!!!  You are an amazing woman Zils, and you went through this with good humor and grace and I am glad this is now behind you!

    M, I'm probably a little early, but happy anniversary.. again you too are an amazing woman!! You've accomplished so much in such a short time, I raise my coffee mug to you :)

    {{{{Granwe}}}}  Thanks for making me cry over my cereal bowl this morning!!!  Love you too girl.. hope you can log on soon and let us know how the OG is doing!  Think of you all the time.

    I should get off my ass and help Joe with the shoveling, have to leave in 20 mins for appts and here I am sitting on my ass typing :)

    Have a great day everybody!

  • wren44
    wren44 Member Posts: 7,928
    edited December 2013

    Bobo, Sure hope you didn't do any major damage. I'm sure you're sore as all get out. Good thing MD isn't there to tell you about her (far more dangerous) fall.

    Ariom, Maine and Washington have black flies which have an awful bite. I've seen mesh clothing at LL Bean which is for protection. You might e-mail someone there and ask if it would protect against the sand things. They sell it mostly in the summer, but should know if it would work.

    We're enjoying our guest kitty, Freckles. He's black with white whiskers which make him look distinguished. I'm going to suggest they change his name and photos on Petfinder. And pick a name at the beginning of the alphabet so he shows up sooner. We foster parents have devious ways.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited December 2013

    Yes, I'm done! I feel lighter? Was there early today. Told skin may get worse in next two weeks. Got an Rx for itching. Can get Rx for pain meds but declined. 

    Still tired. Have JS tomorrow. Told about a natural product at health food store. If I remember I'll stop in and ask. New pink skin under tape markings. 

    I'll catch up later. Have to find a shirt and pick up kids.

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    Yay Zills, so glad you are finished with the rads!! 

    And congrats on the Anniversaries, Ariom and Spookiesmom!! 

    Hoping for a bobo update and one from granwe also.

    Wren, he sounds like a cutie!  What would you change his name to?

    Gotta run and pack some eBay packages and get them to the PO.

    Hugs!

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited December 2013

    YEA ZILLS

    WOOOHOOO. 

  • Ariom
    Ariom Member Posts: 4,027
    edited December 2013

    Just up, and so far, no itching!!!! Yay! ldesim, you're an absolute gem. The super hot water definitely helped. I wish I had known about it when it first happened. I may have averted the worst of it. I will be spreading that information to everyone around here.

    Thank you for the well wishes, much appreciated! A year ago this minute I was heading in for the SNB, scared to death. It seems so surreal now!

    Zills, Hip Hip Hooray to you!!!!!! You are an amazing woman. I can understand how you feel lighter. It has been a huge commitment and stress. I hope you just breeze through the next couple of weeks with no skin issues. Onward and upward. Happy shopping!Happy

    Wren, I am going to the camping shop in town the next time I am in there. They will have netting that is small enough for these critters. I also discovered that Deet is really the only repellant that works. I hate the thought of using that, but it may be the only defense. I just find it extraordinary that I haven't had any issues before with them. I even spoke with the landscapers when they were here about installing a watering system out there and they haven't ever had an experience like mine even though they have been working in this area for years. Go figure!

    You're a cracker Wren, I re- read your post trying to work out who MD was, Mommy Dearest, and you're right, she would have had a much worse fall. 

    gB, thanks! Good to see you're selling again on Ebay! I really don't enjoy the packing and posting bit.

    We have the same kind of thing here as Zulilly, it is called Ozsale, and it takes ages for stuff to arrive too. I bought a Gel Nail system and when it arrived a couple of weeks ago, one of the polish bottles had smashed in transit, so I got a sticky mess all over everything. The good thing was that I had no trouble getting a refund, but it is a hassle that you can't replace things through them. They don't hold any stock. Most of the things I buy come direct from the US. They often have Marika too!

    I am hoping Bobo isn't having a lousy time of it after her fall. I imagine she may be more sore today. Poor Bobo, hasn't had an easy time of it. I am still waiting to hear how the whole thing actually went.

    I can't believe it is Thursday again already. Opp Shoppe day for moi! I love to visit my lovely friend there, she will be shocked at my 1 year anniversary today. She has Ovarian ca, and was so nice to me when she found out I was new here and was going in for my surgery. She promised to think of me while she was in chemo, on that day, and I thought of her while I was waiting to go into theater. She was so genuinely thrilled for me when I caught up with her after the holidays and could tell her about my final Path report.

    Take it easy everyone. I am going out early and back before it gets too hot today, it is supposed to reach 40c before storms tonight. M x

  • ldesim
    ldesim Member Posts: 1,193
    edited December 2013

    I wish I could take a lot of credit, but I literally just googled "australia fleas vegemite", looked at about 6 sites, found two with what appeared to be good info and posted a blurb that sounded interesting from another and that's it lol.  I am SOOOO glad it worked for you though and you weren't going to try it at first!!!!  It's funny how sometimes the simplest things can have the best results.

    Sorry that I didn't get the answer for everybody about the painful spot, it was chaos at the hospital today.  Waited an hour for my Herceptin treatment which made me late for the MO appointment, then waited 45 minutes for her and couldn't wait any longer.. so I have to reschedule.  It probably won't be until later in January now.  So now I have to take another 1/2 day and this one was wasted and I dislike having to inconvenience my co-workers unnecessarily!  And of course I always feel a little out of it and icky after the treatment and I had to go right into work when usually I get the treatment end of the day.  End of whinefest.

    Saw a lot of people doing it rough in the treatment room today, makes me very sad, especially this time of the year, and I could hear a lot of them that had to go in Xmas eve day for their next treatment.

    Gonna wrap myself in a blanket and zone out to a movie on the sofa.. cyas later :)

  • otceb
    otceb Member Posts: 129
    edited December 2013

    Happy mx anniversary Ariom! And I'm so glad hot water has helped with the itch. Have a great time with your friend today, she sounds like a sweet person.

    Good job Idesim on finding relief for Ariom, you're quite resourceful!! Sorry to hear about the Herceptin appointment, I hope you don't mind waiting all this time for your next MO appointment.

    Zills, congrats on being done with rads!! I hope your skin does not bother you too much in the coming weeks, then gets better quickly.

    gB - sounds like you have your wardrobe situation in order! It's fun to think you have a credit waiting for you for spring shopping!

    Wren - glad you're having fun with Freckles. I never would have thought about the alphabetical order of the pet name influencing their adoption - you're not devious, you're smart!

    Well, I went shopping today and bought my "real foobs"!  Although I'm only 3 weeks out of surgery, I was getting tired of the shapeless cushions and how they looked. And I'm fed up of the surgical bra!  I tried the Amoena Climate Control prosthesis but they did not look great on me. I ended up getting the ABC Massage Forms. Does anyone have these? If so, do you like them? I also bought 2 bras, one with an underwire, one without. Yeah!  I think I'll still wear the little cushions regularly at home, especially as I'm still healing, but I'm happy I have forms & bras that make me look a little bit more "normal", whatever that is! I'm curious to see how long I'll use all these, since I'm still planning on getting reconstruction despite the horror stories... I was told not before 6 months after bmx, but it also depends if I will need radiation or chemo...

    Tomorrow morning is supposed to be my appointment with the BS for pathology results... we shall see if they're ready...

  • ndgirl
    ndgirl Member Posts: 950
    edited December 2013

    Yay for you Zills!  you have been through so much, glad it is behind you now. get some rest and take care of your skin.

    Wren, I thought Tuxedo Kitty sounds good because of the black and white but then I saw where you want him first in alphabetic order, makes sense, you are such a kind soul to take care of all these cats!

    Otceb, dont have those foobs, be careful and dont injure your sugery site. I sure know how you feel to get them, just ask Ariom and I how we pushed the limit. They wouldnt even measure me until 6 weeks out. yes, whatever normal means anymore, you are so right! Good luck, and sure hope you plan to reconstruct works out.

    Glad you found relief Ariom..

    Darn it.. idesim that things didnt work out today, hope you are feeling better, keep that blanket wrapped around you tightly!! hugs to you and everyone here.

  • Ariom
    Ariom Member Posts: 4,027
    edited December 2013

    Just back from my visit with my friend and a trip in to town to pick up some orders. It is scorching out there, just checked the weather station and it is 38.9c, with no wind...phew

    ldesim, you are amazing. I had researched for ages, and really got no where, you google fleas and get the answer for Sand Flies! You're a legend! I have told everyone, and no one else had heard of it either.

    Sorry you had the run around today. I hate having to reschedule appointments for tardiness on their part. Having to make time again next month is a nuisance.

    I hope it's a good movie, stay comfy on the couch, and feel better.

    I have had the weirdest day, I have been re-living last year. Every time I look at my watch I am thinking about what was happening. I wasn't even out of surgery yet. I didn't think it had really left much of an impression, but it must have.

    otceb, you sound as impatient as ndgirl and me! LOL We both went for the Prosthesis too early, too. I was at the fitter one week after surgery, but the shooed me away and told me not to come back till at least 6 weeks post surgery. They wouldn't even measure me till then because the site wasn't healed enough to wear a prosthesis.

    I have a climate control from Amoena and an Energy from Amoena which is their version of the massage one you have, I think. I like them both for different times. I have quite a collection of Foobs, Boobs and Prostheis, in my "Foobmoire", named by our gramwe!

    I don't want to freak you out, but I read about a woman on these boards who wore an under wire bra after her BMX. She was numb from the surgery and didn't realize the wire had broken through the bra and had stabbed her, causing quite a bad injury. It makes me shiver just thinking about it. I know I have no feeling under there, so I wouldn't feel it either.

    I believe Amoena has brought out an underwire Mx bra, that may be what you have,  it is a malleable plastic wire, not sharp metal like in normal bras.

    Good luck for tomorrow, I am in the bag if you need me!

    Too hot, going to lie down and have a snoozie with Dex...chat later!

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    ldesim, sorry about your appointment.  What a pain in the a$$ to have to reschedule!  Rest, relax and enjoy your movie.

    otceb, I waited about 8 weeks to go get fitted.  I have a pair of ABC Triangle Lightweight and a pair of Amoena Contact prostheses.   It is too soon for me to wear the Contact, need to wait 6 months on those.  I have 4 mastectomy bras.  I wore the ABC around the house for a while some time back and was really uncomfortable with them.  I've never worn them in public. I'm hoping that I'll like the Contacts better, otherwise I'll just continue to be flat and fabulous!  I'm a little worried you may be trying too soon.  Be sure you don't irritate your scars.

    I'm in the bag too for tomorrow's appointment.

    Ariom, sorry it is so hot there.  It is going to get really cold here again by the end of the week.  Supposed to snow.  Not much snow left on the ground, hopefully by Christmas there will be some.

  • wren44
    wren44 Member Posts: 7,928
    edited December 2013

    They are predicting snow here also. I don't believe it until I see it falling. It will probably snow north of us, but we're close to the water and not on a hill. 

    Ariom, way too hot. I don't handle heat that well any more.

    Bobo, it's making me nervous that you haven't posted since your fall. I hope no major damage was done and you're just resting.

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    Yeah, I'm with you on that.  They predicted snow so many times already this season and nothing materialized.

    I'm worried about bobo too.  She has been so uncharacteristically quiet about everything.  I hope she is just taking things slowly and resting a lot.

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    It is 1:40AM here now, just getting ready to call it a day.  I looked out the window and it is snowing!!  Yay!   Good sized flakes, hope I wake up to a white landscape tomorrow.

  • Ariom
    Ariom Member Posts: 4,027
    edited December 2013

    Sleep tight!

    gB, You're looking at snowflakes, it must be beautiful. I love to see snow, I just can't handle walking in it. I love when I see the trees covered in snow.

    Wren, I used to cope with the heat much better, but now about 28c is my limit for comfort. These 40c+ days are torture.

    It couldn't be more different here.

    I am looking out my window, it is 8.20pm and the sun is going down. The water outside is blue, and the sky is red, fading to pink, and blue. There are Pelicans on the water and a Kookaburra sitting on my fence. It is so still and quiet, still very warm, and not a breath of wind.

    I have watered the whole of the street side garden, and my veggies needed a big drink. I was a bit paranoid that I may get bitten again, but nothing, thank goodness. No more itching! Thanks ldesim, and I am over my blow by blow memory of this day last year! It's all good!

    There are supposed to be storms tonight, but no sign yet. 

    Sleep well everyone, I will catch you later!

  • bobogirl
    bobogirl Member Posts: 2,083
    edited December 2013

    Hey there you guys.  Forgive me for not posting much, but I have not very many positive things to say.  Just woke up literally crying in pain.  Missed a pain meds dose earlier in the night, and still paying for it. I am trying to wean onto Tramadol, which is just an analgesic, plus valium for spasms.  Spasms are really something -- first time I had one I really felt like someone shot me.  It's funny because I have a pretty good pain tolerance -- didn't take much of anything with the other two sxs, just the first three days or so.

    The fall was pretty awful. I did not want to post details.  I am thinking of taking a picture of my as$, though, and sending it to interested parties via text!  Because it is amazing.  My backside and my head got the most damage.  There is a part of my back that is black and purple in a way that you cannot describe.  And it has actually made it more difficult to walk.  And you know how I have to sleep on my back and not my side or stomach?  That's right -- I sleep right on the bruises.

    Hate to just sit and complain like this.  One of the teachers picked up the children to ferry them to school yesterday morning, brought flowers (nice, right?  But then...), she stole a quick look at my 'rack.'  A pretty obvious one.  I played it off, kissed the chlldren, and then went inside and I was just shaking.  My hands are shaking.  I have not really been 'seen' since the sx.  All my courage is gone.  Tonight is the holiday musical at the school.  Z went to hers, champion that she is.  She is my hero.  But I am literally scared to go to mine.  I don't want to be a bad mother.  But that could mean so many things.  It may also be being a bad mother to sit there and cry through the entire thing, or to get in snip fights with rude parents.  I'm pretty sure everyone will be staring.  It is a small school.

    My brother called yesterday (first time since I got home) and asked me to go Xmas shopping with him so I could help him pick out presents.  He needs a woman's opinion.  He made me do this last year.  I explained I wasn't going out at the moment -- he said, Why not?  I gave him an example, the fall that had happened the day before.   Just for an hour, he said.  I explained I was scared of crowds -- scared someone would brush against me.  Anyway, I have finished my bit of shopping -- everything finished except poor DLLP has not gone shopping for me yet.  My brother then suggested I go with him and pick out some presents for myself, since I hadn't gotten any.  Then he told me he'd call in an hour.  Then he hung up, and then didn't call back.

    Spookie, Happy Anniversary!  And M, is it yours too?  I dislike it when Drs look at your issue (like those bites) and say, Yeah, welcome to the area.  We have that here.  Would it kill him to have a little compassion?  You have been miserable.  I LOVE how idesim magically found your perfect AUS solution.  She is a wonder.  Are you feeling woozy, L?  What movie did you zone out to?  I watched BRIDE WARS.  It was perfect for my situation.

    Birdie, I would love a Freckles update.  Agree about the name.  How about a cute older name, like Arthur?  Does he look like an Arthur?  I know a new puppy named Douglas -- he is so cute.  I am hoping for a Freckles update soon.

    Idesim alluded to a grawe post, and I looked and looked but did not find it.  I miss you granwe!  ND, I used to know a kitty called Tuxedo Man.  You know, Miguel is a tuxedo kitty.  He is extremely fastidious.

    I may not have told you, but i have my first fill on Christmas Eve!  I have to take the kids!  That's right, I am the worst mother ever.  No ability on their part to reschedule.  I told the PS I didn't want fills, didn't want the drama of it.  But, as the surgery happened, it turns out I must have them anyway.  Good news:  I finished the Princesses' lovey blanket yesterday.  It took only four more hours.  I'm very relieved.  I have a few other things to finish.  The bad news:  my mother is coming Friday.  So should I go to the concert tomorrow -- which will be long, at least 2.5 hours, and very disorganized -- or should I listen from home, by phone?

    Otceb and other new people, I'm sorry you're getting to know me this way.  Welcome to our thread.  There are the most wonderful people here.  You guys, your cards have meant everything to me. I hold them and read them all the time.

  • Ariom
    Ariom Member Posts: 4,027
    edited December 2013

    Well, my Miss Bobo, you're bruised and battered and I wish I could give you a hug, but I might hurt you.

    I am so sorry you are in so much pain F that! I guess we have to see the fall as, lucky it wasn't worse, but shit, like you needed that to happen at all!

    Now you're having fills too, what is it with Doctor's who say it will be one way and then it all changes, What's that about" I am sure it will all be fine, but worst Mother in the world? I don't think so!!!!

    Don't be concerned about venting, that's what this place is for. Do you want to go to the concert? I am not understanding about the concert, or about the woman checking out your "rack", does that mean they know about the surgery? Why would you have to fight with rude parents? I think I am missing an awful lot here.

    Don't worry Bobo, I wasn't at all upset by the Doctor's laconic response, it was not malicious, just the way people are in the country. It is a very different kind of humor!

    Your brother is a live one isn't he.  You have to wonder just what he thinks you've been through.I hope you reminded him of his recent procedure that he thought was a major surgery. I'd just say "No" can't do that today, "I finished my shopping, before my surgery!". Don't let him make you feel bad about it, he should have done his bloody shopping earlier.....geesh!

    I hope you feel better Bobo.

  • ndgirl
    ndgirl Member Posts: 950
    edited December 2013

    Glad to see your post Bobo, but not glad to hear about pain, fills, etc. So hoping the pain was in control by now. The fall sounds horrible, but as Ariom said, could have been worse, wouldnt it be just the worst if you broke a bone? I am so paranoid about that, never was before, but now taking this med, it is said to weaken the bones and of course we have months of snow and ice still ahead of us. About the concert,, do you feel strong enough for a 2.5 hour concert?  boy that is a long time even while feeling well. If you arent up to it, just listen on phone, or have someone take a video. I think we are more anxious about our "chest look" than others, but to be honest.. people do take a glance when they know.. we live in a very small area and everyone knew about my surgery, except they didnt know which side was missing... so I always would delight in making sure I was even or wore something that covered like scarf, vest etc. just to keep them guessing!! have to have a little humor about it, but I remember going to a Ladies Nite out about 2 weeks after surgery and made sure I had my makeup on and dressed nicely and so many ladies were so gracious and told me how good I looked and asked how I was feeling and frankly I think most were surprised I was able to be there. Once you go out in public and bite the bullet it gets much easier! But I am not worried about how you look for this concert, just very concerned that it is too long for you, probably not a comfy seat either! But you need to do what is right for you in your mind.  I am thinking of the Mom returning.. suppose it is too much to ask that she would have a change of heart and step up to plate and actually be a help!! Take care and sending the most positive thoughts your way. Thanks for the post... keep them coming, dont ever worry about being negative or any such thing, please vent all you want/need! we all " get it" here in this club! In your pocket all the way! hugs!

  • fiaranch1
    fiaranch1 Member Posts: 259
    edited December 2013

    All,

    Checking in , I have had a horrible flue for  3 days .  BE CAREFUL ALL , I got the claw badly from throwing up repeatedly

    Bobo , M , Spookie hope you are feeling better.

    Hello and happy holidays to the rest of you, I will write more when I am back among the living

  • otceb
    otceb Member Posts: 129
    edited December 2013

    Hi, I got my results - left side was good, DCIS only, no lymph nodes affected. Right side had tons of DCIS (7 cm) and 2 areas of 0.3 cm of IDC, and 1 of the 4 lymph nodes had 0.3 mm of cancer...... The BS says the MO will probably recommend chemo due to my age (they prefer aggressive treatment with younger patients) but it's not sure since the area of cancer in the node was small. I will likely go on tamoxifen since it's ER+. I will likely not need radiation since the margins were good. I will have an apt with the MO in 1-2 weeks. I will also have apts for bone & abdomen scans to ensure there is nothing there yet and to get a baseline.

    I was really hoping for better news....... I really don't want to go through chemo. I know that many people have gone through it, and this board has tons of them, and both my aunts did and are thriving now, but.... I feel like I'm now defined by cancer. It's me, that's what I'm about, that's what my life will be about, even if I don't have chemo, i will always be worried about getting cancer elsewhere. I wish it was different. I wish I could just wake up from this bad dream. I just want to turn back the clock and be the career-focused mom that I was. I'm starting to realize that this stupid illness is also there to get our priorities in check. I should stop caring about my looks, my curly hair, my job and ambition. Just focus on family, watching snow fall, listening to music... But I thought I appreciated those things before... Can't I have it all? Sorry, I probably sound very stupid and shallow right now.

    And bobo, please don't worry about venting here. I hope that this is what this forum can let us do. We all understand more or less what each one of us is going through, and there's only so much we can share with our loved ones.

  • wren44
    wren44 Member Posts: 7,928
    edited December 2013

    Otceb, Sorry your news wasn't better. It's such a shock to realize they're talking about you and cancer in the same sentence. And it's perfectly normal to want it all - don't fault yourself for that. At first it does feel like cancer is defining who you are. Gradually is becomes less and less important. It's there, but not so much in your face.

    Bobo, Don't worry about venting here. It's not about a hangnail, after all. Personally, I would stay home from the concert. You're still healing from surgery and a fall. Sitting in a folding chair for 2.5 hours would probably have you in serious pain. And tell your brother no way about helping him shop. Just remember Miss Manners phrase "I'm afraid that's just impossible" and don't offer an explanation. Is this what the PS said he would do? It seemed easier and quicker when you described it after your appointment.

    I would like to say I've never stolen a look at someone's 'rack' after a mastectomy, but that would be a lie. That's actually the reason I told very few people about my bc. I feel badly about it now, but it's as hard as not putting your tongue in the hole where your baby tooth was.

    Ariom, Glad you weren't attacked again. Once is plenty.

    Freckles is being very affectionate and spent the night with us on the bed. He stayed at the bottom; his sister headed for the pillow, so perhaps they had an arrangement. He was very curious about our breakfast in bed. I think he might be disappointed by the lack of meat in our household.

  • ndgirl
    ndgirl Member Posts: 950
    edited December 2013

    Sorry otceb, that isnt the news you had hoped for and I understand that you dont want chemo, perfectly normal, and of course we want it all.. you sound like you already have your priorities in order. This cancer diagnosis send us into a tailspin in a hurry, I remember checking my facebook account one night after being diagnosed and saw someone had posted a rubber bracelet for someone with cancer, and it was like.."OMG I have cancer too! that is me! But we get through it and come out on the other side a bit stronger in many ways! Take care and sending you special (((hugs))) today! and continue to enjoy family, watch snow fall and turn up the music, it is good therapy!

  • grammaB
    grammaB Member Posts: 1,118
    edited December 2013

    bobo, I am so sorry you are in so much pain! Don't ever worry that you don't have much positive to post, we all love and care for you and want to know how you are doing, the good and the bad.  Your experiences could well help someone else along the way. This is just the place to come and vent any time any of us need to! 

    I can't believe your brother!  What a selfish, self centered ......  Why can't his girlfriend go with him?  What is it with men any way that they have to wait until the last minute to shop??  Or, how about MD going with him tomorrow instead???  I'm with Wren, sitting on a folding chair, especially with your bruises, for 2.5 hrs is a lot to ask of your body right now.  You'll decide in the end which is the best for you to do.  Maybe take a pillow to sit on or sit towards the back so you can stand up periodically. 

    Sending you gentle hugs and healing energy. ((((bobo))))

    Fiaranch, so sorry to hear you have been sick.  Hope you get better quickly.

    otceb, (((hugs))) I am so sorry you didn't get the news you hoped for.  But at least now you know where you stand and you have a plan.  You'll get through it, just take it one day at a time, maybe sometimes even one step at a time, and eventually you will be on the other side of the treatments too.   He11, we all want it all, nothing wrong at all about that! Try to rest and pamper yourself. I like the idea of watching the snow and listening to music, very soothing.  

    ndgirl, I know what you mean about all of a sudden it is right in your face, that's me, I have cancer too.  When I was getting my things pre sx some women were at the drug store talking about someone with bc.  I walked past them and it felt like I walked into a wall.....I have bc too!!