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new and future flat sister, with questions

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  • ldesim
    ldesim Member Posts: 1,193
    edited June 2013

    {{{{Zills}}}}  I can't believe you read through all our nonsense hahah.. at least we didn't offend you, that's a relief!!  Welcome and thank you for the wonderful advice, I will look up Jin Shin therapy and for sure will try what you suggested.. that sounds fascinating.  As you read, I am trying to find ways to rebuild all that has been destroyed.

    Zills, you are a trooper and a half.. how are you finding the chemo so far and how many more treatments do you have to go?  Same thing with me, no history of breast or ovarian cancer, in fact both my grandmothers are still alive, one is 100 1/2 and the other 86ish.  Since I turned 40, I've had mammos every year and bam.. this year unlucky.

    I love the dragon concept, unfortunately my dragon is a wimp haha.. he will let anybody in at anytime as he is incapable of saying no.

    Brothers bday party was a success, I made him his fav choco chip cookies and the weather held out until about 1/2 hour ago and now we're back to rain.  F rain. I did a little cooking, but mostly people brought things, so it was nice and I have a bit of leftovers, which means no dealing with Joe's cooking tomorrow night heehee.

    I am going to get the Green Vibrance, by the time I do, i expect you to have a yummy way to have it! 

    I've only been to Sephora once, that place intimidates me and the salesgirls were all seemed snotty.  F snotty and F Sephora.  I'm useless with makeup, I'm always touching my eyes and my face it's a useless cause.

    I want a mini cooper, they are so cute! I could rock a mini cooper easily.

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    ldesim, good on you, for trying the Green Vibrance, You know I wouldn't give you a bum steer. I am sure it will do you good! If not, the old rule applies, you can B slap me for suggesting it! :)

    I am so glad you have found something that soothes the firey beast under your arm. I think about you suffering that burning pain often, it's no wonder you are feeling cranky. I read somewhere about a time rule, for applying oil before a Rads session, but can't recall how long it is.

    I have huge aloe plants in the garden that I break off and use the gel on injuries. Colin recently had a terrible burn on his hand that I treated ths way, along with my favourite antiseptic Pebanthan. He has no feeling in his hands, so when he eats a meat pie he can sustain terrible burns, if I am not there to watch him. The wife of the boat builder bought him a hot pie when they were at the boat and he was unaware it had been resting on one spot on his hand. When he got home there were great big water filled blisters to his fingers. It has been quite a job to keep it clean and bandaged.

    Don't be worrying too much about the company. You might just enjoy it. It's a diversion, and it may take the edge off the irritation, or not:)

    You're so right, ldesim, I do have a habit of overdoing it, but I am taking it easier. I don't want to get another bloody frozen shoulder. I have been reading on LE, and apparently frozen shoulder can be a symptom of LE too. F that, I have enough bother with Rheumatoid.

    I can't begin to tell you how awful that cruise was. I called it the "Voyage of the Damned", because they failed to tell us, before we left, that they would be docking at Container Ports. Colin was unable to leave the ship because container ports are "sterile" and "bonded" so only the organised buses could enter. He can't get onto a normal bus, so he was stuck on board at alsmost every port, and even missed a business meeting we had set up in China. It was just brutal.

    I did the "Dance of the Humpyback Spider" after we got back, and got a substantial refund of our fares, for the inconvenience. It wasn't all bad. The room was great and the food, out of this world! 

    OK, now I get what you meant about the shopping in Boston. I have experienced that in Melbourne too. Tourists and men who are pissed. It is a Universal problem! LOL

    Oh, there you go, I almost missed the next post that was on the next page. You did have a pleasant day with your family! So glad to see that1

    Take care of you, and have a nice weekend off the treatment......M

  • bobogirl
    bobogirl Member Posts: 2,083
    edited June 2013

    The dance of the humpyback spider!!  I can picture it perfectly.  Still, I will have to see you perform that dance when we meet.

    Just logged back on because I forgot to say Idesim!  I think I have the spa idea for you!  What about Kripalu?  It is in MA.  I haven't been, but I know it is so so nice there.  And I hear it has excellent food.  And variable ranges of stays.  What do you think?  I believe lots of people -- or the instructors -- wear white.  I've always been curious about that.  If you go you will have to report in on that.

    I have the Kripalu cookbook!  I wish their cafeteria was set up in my house, and I could just go help myself.  Dinner tonight: forgot (to heat the frozen) meatballs.  Whoops!

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Zills! Welcome to our  thread, so glad you enjoy our humor. We can be serious if we have to:)

    I was so impressed with all your great practical advice, but I am sorry to hear all you've been through so far. You really have got it all together, and a great family too.

    I read up on the therapy you speak of. I use all types of Asian alternatives, but haven't tried this one. I will read more.

    You are only 6 weeks out from the BMX. I am so glad to hear you've not had a lot of pain, but when you speak of the tight band, I wonder if you are experiencing what we've named "The Claw". Also, have you had the weird drinking experience? Swallowing very cold or very hot liquids that give a really strange sensation inside, on the way down? Oh the joys of Mx surgery! I call it the surgery of weird sensations! I am almot 6 months out from UMX. I haven't had pain, per se, but I have what my surgeon calls "Phantom Sensation" my nerves are still growing and trying to re-attach, across the abyss:) and I can go nuts trying to stop an itch that I can't find.

    I hope you'll stick with us. There are many threads on this site that you'll enjoy. Lots of great women, for support and advice if you need it. I am sure I speak for the others when I say, I am flattered that we were your first post. I understand how you'd be exhausted with treatment.

    I have to ask, is you niece Ariom? my name is Moira, not a lot of thought went into my Forum name:)

    I know the photo you speak of. I think that woman was so amazing to look at. I would definitely want to rock that look too if I were completely flat, and decades younger! I loved the pics with the children, and her dialogue was so inspirational. I can imagine the beach Police circling, but not knowing what to do. She wasn't exposing anything...no nips! LOL  

    Take it easy and take care of yourself..... hope to chat again soon! M

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Bobo, you were here posting as I was writing, we are dong that a lot lately.

    I want to go do a spa with you girls! (I am pouting for effect) I love that stuff. I can do it all too. I did all the training when I worked in cosmetics, a lifetime ago. Not so hot on the pedicure, but I can do a super manicure, and facial!

    I have been to Sephora, it is like a candy store for me!  Uggghh, I was one of those cosmetic girls, but I never tried to intimidate. I think it just goes with the territory. They just look like that because they are surounded by mirrors and have to stand in high heels for a whole shift on marble floors, it will give you that look! LOL

    I had wonderful customers, and I was the trainer for workshops in store too. I also had my own business for years, doing weddings and events. I even had a small loyal band of Drag Queens who loved how I did their shading and contouring. They were great girlfriends to have. I did makeup for a late night Rock and Roll TV Show called Nightmoves when I worked a a TV station. It was such a hoot. I would run downstairs to the makeup department, makeup the guest, then run back upstairs to roll tape for the segment, and run the ACR ad machine for our commercials.  Ahh what you'll do when your young and have a tight budget for a show:)

    I hope you are feeling a bit better today young Bobo. I do worry for you, just as I do for my Becca girl. I can't wait till she is back up here in mid July.

    Well, I actually stopped and did the Rites, shower and breakfast, and returned to finish this post. I am expecting Barry, our postal delivery man. We are on first name basis because he delivers here most days. He tells me I get more parcels, than anyone else in the area. I wonder why that is? Anyway, he brings me jars of home done olives, and tells me when my two olive trees have fruit, he'll make me my own olives. He is very knowledgable and used to have his own olive grove and business.

    Today I should be receiving another parcel from MyUS! I have bought a lot of yoga gear from a place called Marika. I am finding that yoga pants with a tank and a loose jersey cardigan is the most comfy way to spend  the days at home, foobed up, or foobless. It is warm and comfy, and I love that Marika has sales all the time giving 30-40% off their sale stock. You know I love a bargain, even if it is on the other side of the world!

    Bobo, did you forget those meatballs, accidentally, on purpose? Hmmmmm

    I am off to do some work, but will check back later....M

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited June 2013

    It looks like I will be able to post from my phone after all. Isn't technology grand. My husband is Irish so my niece is Moira. I paid attention. Would have no idea how to pronounce Ariom but it could be a cool name. Thanks for being so welcoming!



    I was a Girl Scout and their motto is to always be prepared. We adopted both of them and I want this to be as easy and painless as possible. Routine and consistency are the key. However I am a preschool teacher at their school and am not working at this time so... Their routine is now Daddy and he is wonderful. Can change diapers better than me now. My stomach can't handle it.



    I've visited other forums but this one rocks. The surgery site is helpful. I laughed about the whole panties vs commando issue but that was before I understood the different surgery options. The chemo ones scare me so I jump in to look at SEs and back out again. Part of my coping skills is to be an ostrich. Too much info makes my head go right round like a record.



    Leftovers are amazing. Enjoy them and way to go making cookies! That made me tired before cancer. I would cheat and make bars. You all sound like you have so much energy and have lived such interesting lives. I look forward to traveling with you.



    I'm working up to trying the rites. Not sure about the green stuff. Everything has to be vetted by the onco. But maybe the next stage I can be healthier. Right now I just don't want to be nauseous.



    The bracelet would be an Irish one but they are sold out. Imagine that. There are three stores in the "big" city nearby but not up for that trip yet. We live in the country but my treatments are in the city. It's an easy drive but I'm usually too worn out and prefer to get home before the kids.



    Sleep well.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited June 2013

    One more thing before I forget. Have you heard of knitted knockers? Would they be more breathable than other foobies? I don't want to be hot. I've only worn the compression tank once. It can get very hot and muggy here in the summer. We've been lucky so far. Thanks.

  • ndgirl
    ndgirl Member Posts: 950
    edited June 2013

    Welcome Zills.. this is a great group but a terrible reason to have to be here.. but here we are and we are dealing with this damned cancer. I know everyone on here HATES it, but I honestly think I have the most hatred for it. Lost my mom, daughter in law at age 42 and now here I am. Well as they say "why not me?"

    Idesim: no sleep yet! just a little here and there, wish I could fall in bed and sleep for 10 hours straight! yes have tried lavender, put the essential oil in my bath, and after my surgery Mayo Clinic/hospital gave me lavender in case of nausea, a little tube called Quese Ease and it helped for that. I also take magnesium and I like one called calm in a powder form that is supposed to be the best, just have to be careful to not take too much or you get the diaherra!! and cramps. I will have to talk to dr in August when I go back for checkup... hate the thought of that too. I have always been healthy and hardly went to dr, only for annual checkups and now here I go!

    Ariom: wondering about the green drink too, at one time I tried one, not your brand but another and just couldnt do it. I do juice veggies and fruits but not as often as I should. Am waiting for my garden to produce all the celery, cukes, carrots, etc. throw in an apple and I like that! So would all this healthy stuff help any cancer cells grow? or does it just keep out bodies more healthy to fight it off? I dont think anyone knows.

    Well a first for me tonite.. my little 4 year old grandaughter is spending the nite with us, and kids have a keen eye for everything so guess i will be sleeping with a foob on tonite!! I dont want her to ask too many ??? or to be scared... remember how I hate this crap!! another reason! Thinking of everyone on here. This is great therapy for all of us I believe. Good nite all.  hope everyone sleeps better than me!

    ps.. about the melatonin. heard on dr. oz that he didnt think we should be taking it as it is a hormone and then we would be messing with our hormones.. damed if we do and damed if we dont huh?

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Hi again Zills!

    Aint tehnology great! I am not a really technology minded person these days. Colin does the hard stuff, and I just play on the laptop.

    Ahh an Irish husband, very nice. I love the Irish, even though I am a Scot! I was named after Moira Shearer, my Mother and Father saw the "Red Shoes" and it was decided right there and then. I very rarely encountered the name when I was growing up, but it has some popularity now, and I am hearing it more.

    When I first came here I was telling Bobo that I wanted to have Ariom as my license plate, so my grilfriends could look in the rear view mirror and see it was Moira behind them:)

    I am so pleased to hear your husband is a great help to you. There are so many women on these boards who don't have that support, it is very sad.

    I can imagine the diapers could be awful when you're nauseous. They can make me gag anythime! LOL

    I can absolutely, recommend the Rites, but it must be approached very slowly. I waited till I was sure I was really healed, and started on just 3 reps of each Rite. I am now doing 6 reps easily every morning, I know I could do more, but my friend insists that I have to take it slow after surgery. I will do it to placate him, I hate it if he gets angry, gay ex ballet dancer, a force to be reckoned with.

    You are right to run the Green Vibrance past your Onco. It isn't synthetic, all just food, and I really get an energy boost from it.

    So you are in the country too. I am new to the country life, but I just love everything about it. I wish we'd done it years ago.

    I have heard of knitted knockers, but would you believe, I haven't tried them yet. I am actually trialing a microbead foob in an Ahh Bra with a tank over it today, and yoga pants and a cardigan. Certainly not suitable for your Summer weather, but it's icy here, and I don't like the feeling of the silicone when I am outside in the cold. It starts to feel a bit damp and clammy if you're out long enough, uggghhh I didn't have any issue wearing the full silicone in the Summer here, funnily enough, one that I have has a clear gel back which they say keeps you cooler, and I really believe it does.   

    I was on Methotrexate for 7 years for my Rheumatoid Arthritis, waste of time, but that's another story, I used to get nauseous on that, it's a chemo drug. I found through trial and error that ginger was the best to knock that. I still buy and eat ginger, and use the ginger root in my juices.

    Take care now.......M

    You're growing your veg too! I love that! My girlfriends here laugh at me when I tell them about my 9 different types of lettuce, and my herbs. I eat them every day. My Tomatoes are just amazing. I have fruit trees too, I am like a big kid running around in this garden. Colin just shakes his head!

    Just came back to edit here..sorry I mistook your post for ndgirl about growing the vegetables, but I guess you may be doing that too, as you're in the country too.

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    ndgirl, Hi!

    I have just edited the above post, I mixed up part of your post with Zills.

    We all feel for ldesim and Bobo for the sleeplessness, now you too. I just remembered the old remedy my Mother used to rely on it was called Horlicks in hot milk before bed. I haven't ever had a real problem with sleep. I can pretty much do it anywhere, but I have been known to meditate first, if I am sleeping somewhere strange, and that helps me get off to sleep. Just re read that, I should have said when I am away from home, sleeping somewhere strange conjures up weird stuff. I don't do weird stuff...not any more, anyway:)

    I had to laugh at you sleeping with a foob for your Grandaughter. I have been adopted by the children of one of Colin's attendant carers, and I run like mad to get a foob on if I see them coming through the gate. I was so terrified they'd see the drain when I first got home that I wore a shouderbag with the drain in it constantly. The poor delivery man I spoke of earlier was mortified when he came one morning and I was dragging the drain on the floor behind me as I was getting the bag ready for the day:) 

    You've got me thinking there. I am very careful to make sure I eat or drink lotd of anti infammatory foods. RA is an inflammatory disease, and they are talking about ca being an inflammatory reaction too. I am pretty sure the good nutrition gives us a healthier immune system, which helps eliminate the bad stuff. I don't believe that good nutrition would help the cancer grow, but you've put a cat amongst the pidgeons now, and I am away to research that. I'll be back!!!!

    Take care till next time...M

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Gramwe, is still MIA.

    I think the nursing duties must be taking over. If you're reading, I do hope all is well with both you and the OG. I hope the pain is subsiding and the exercises are going well.

    Take care....M

  • gramwe
    gramwe Member Posts: 238
    edited June 2013

    Well look at all you chatty Cathy's, had a doll named that when I was a kid..anyway HEY Y'ALL! Sorry I've been MIA, this house has been a zoo, and I'm exhausted! Therapist showed me the movements she wanted me to do on OGs hand, then informed me they were to be done every 2 hours around the clock, it's like having an infant when that alarm clock starts wailing every other hour. Not knowing this was going to be imposed upon us I had set up a roof raising event for this weekend so I had a group of 8 men to feed breakfast, lunch, and dinner on Sat. Allow me to explain. Last August OG began putting a metal roof on house. He and our sons were in the process of roofing after work one night he was walking barefoot on the porch and rammed a huge splinter in his foot, no big deal you would think. Well this nasty thing required surgery, crutches, and a walking boot. 3 weeks later he was still limping when he phoned from work to say his side was hurting, a hernia had popped out. Emergency surgery was required. 6 weeks to the day, when he was to be released from the hernia surgery, he had the accident with his hand. All this time he is still limping and saying that the splinter was still in his foot, sure enough 12 weeks after foot surgery he lays his foot in my lap, I see a callous, pulled it and out came the splinter, they missed it in surgery. By this time I had found the lump in my breast. It was then Dec. there were still 2 ladders hanging from our roof, he was still unable to use his hand and we went into cancer mode, without of course insurance on me, so no money to hire anyone to finish the roof. The neighbors were starting to talk about our unfinished roof. So I, without his knowledge, asked for help from friends, he was not pleased! I promised to feed them for their time and work. OG would not stay inside, nor would he sit in a chair unless I was watching, plus I had to make him do therapy. The combination of his anxiety over not being able to work, pain meds, heat, therapy made him begin vomiting. I finally brought him inside pitched a big B fit and put him to bed early in the afternoon. The roof isn't finished, but it appears so from the street, the ladders are down, and hopefully the guys will return next weekend. I need a new bracelet!



    About these knitted foobs, I saw them and even directions on how to make them, goodness knows I can't knit but I'm thinking of asking a friends mom to whip me up a pair, just to take for a test bounce.



    Sleeplessness sucks! My MO told me to try melatonin, but Dr Oz says no, that's something to discuss on the next dreaded visit.



    Spent to much time on the roof saga. The dogs are giving me the I gotta go look, they will change their minds when they see its raining again.



    Welcome to our new friends!!!!! Sorry you had to join us on this journey, together we will all get through this stupid junk. Hugs to everyone. I'll try to really catch up later.

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Oh Gramwe, I knew you were doing nursing duty, but I had no idea what else was going on. I am so sorry it has been so stressful.

    Thank goodness you had the presence of mind to get the friends involved in the roof work. I feel for the OG, it is so hard for men who are used to doing things themselves, to accept help when they are ill. So often they are the first ones to offer help to others, but they can't accept it for themselves.

    What on earth were they doing when they operated on the foot for the splinter? You're amazing! pulling out the splinter, feeding the hungry hoardes, dealing with your own stuff, waking every few hours for rehab, and you still can't sleep. I am in awe of you Gramwe, you must have a new bracelet, and I wish I could knit foobs for you. I can kniit a sweater, but I don't know about circles.

    Your dogs must be related to Dex. He hasn't gone further than the patio for days. He hates the rain and getting his feet wet. It is getting serious in parts here. The water is rising, and there are some flood warnings. It really hasn't stopped in many days.

    I hope things slow down, but I guuess you're going to be doing another lot of cooking for all the workers. Take it easy, don't overdo it.

    Oh, and I meant to say F the neighbours who were talking about your unfinished roof!

    All the best to the OG, hoping the hand is improving daily...I'll be thinking of you....M

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited June 2013

    I remember those baby days all too well.  So sorry it all happened at once but at least you've got a start and found the splinter.  You win a prize!  I am amazed at the generosity of friends.  Good cooking helps too.  I'm sure OG is just upset because he can't take care of it.  You know that manly pride.  My husband has it too sometimes but has been good about letting people bring us food but he wants to take care of the kids.

    No garden for me this year.  Don't have the energy.  Also told to avoid salads in case of contamination and have heard lettuce is hard on the stomach.  Have enough stomach issues now.  I love baby lettuce but since it doesn't sound good, won't try it.  Have friends that say they will keep me in tomatoes if my stomach ever says it sounds good.    Used to pickle green beans and beets but would cheat and get them from the guy down the road, fresh picked same day.  I also made jam.  Maybe next year.  Now my cooking (if I do it at all) consists of heating frozen meatballs and boiling noodles if it's not a bowl of cereal or heating a sausage biscuit which my kids love and it's ready in 55 seconds (sorry BoBo).

    I think you all would be amazed at your 4 year old's acceptance of your foobie.  They have great insight and humor.  I understand some of the questions get tough but they really require basic answers.  My four year old has been asking about heaven.  Thankfully he had asked before all this had started so I knew it wasn't something new.  He was worried about where the bathrooms were.  He's fine with the concept of no shots but couldn't fathom no bathrooms.  He didn't want to have an accident.  I told him he would have to ask and that made him happy and off he ran to play trains.  I love their little minds.

    Looks like my ovaries are going to have one last stand (I hope!).  My onco said I should be done since I had it for both of my surgeries.  Someone forgot to tell them!  What kind of ginger for stomach?  I find ginger to be very strong.  

    As far as my treatment plan, I don't know.  Ostrich again.  I will have 4 rounds completed (please God) by the end of July and then a scan.  He originally said 4-6 months of chemo but I'd like to get lucky once and have it disappear out of my lungs.  I believe in miracles.  I have two beautiful children.  Then radiation because it wrapped around a vein on my collarbone.  

    Going to shower and see if anymore underarm hair has disappeared.  I'm going bald fast but it's hanging on.  I'd like to have some good side effects for a change.  No more shaving, no more PMS and please no more sick stomach.  That's the worst (so far) and pray that my baby has an ear infection and not something I can get.

    Have a good Monday!

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited June 2013

    More questions. Is any lotion better than others for the scars? Was just told to start massaging them. Is it too late to make a difference?



    I experience the "claw" if I've picked up the baby or swept with a broom. And it truly reminds me of my cat when she's hanging off the screen to come in. It only happens at night and only under my right arm where the major surgery was.



    I have a tight band across the front of my chest if I've been on the computer or read a book. And it lasts longer than the claw. I've heard that band stays around but some exercises or pressure can ease it.



    I have experienced the strange coldness when drinking but part of the chemo makes me hot in the beginning so I welcome it. May not be so fun this winter. I was never an ice in my glass girl but ask for it now and lemon. Hoping to prevent the dreaded SEs. And so far I have.

    One more question. Pillows? Any recommendations? I am a side sleeper but now on my back for how long. Nothing is comfortable under my neck. Too hot, too flat, too puffy, etc.

    Thanks!

  • ndgirl
    ndgirl Member Posts: 950
    edited June 2013

    Oh Gramwe, you have had a load dumped on you! but you sound amazing! I hear you on the men thing, but sometimes we all have to accept help, I need to remember that myself as well, i was so grateful for my friends bringing in food after my surgery, but I also had some meals prepared and put in freezer, but of course someone else's cooking is always better.

    @Zill.. love the story on 4 year olds, yes the little minds are amazing! love how they process things. I remember my 4 year old grandson that lived across the street from us at the time, and his friend's grandpa died and he was really asking ?? about heaven as well, so I told him and being the kid he is... he asked me to save a place between me and grandpa for him when we got up there and then he arranged the rest of his family in place, it made me cry and laugh at the same timeLaughing! He will be 13 this July! Such a special boy to us as all our grandkids are.

    you can forego the garden this year and go to the farmer's market! then next year you will be full strength and doing your thing. My friend was diagnosed with stage 3 lung cancer a year ago in march went thru some nasty treatments, chemo, rads, surgery the whole thing and she just had a pet scan last week and she is CANCER FREE! PTL! She loves her flower gardens and last year just couldnt do a thing in it but now this year is easing back into it..  and I believe in your miracle too! Take care

  • bobogirl
    bobogirl Member Posts: 2,083
    edited June 2013

    Hey beautiful women!  Zills, remind Ariom to tell you about her scar cream and 'strips' -- she's got some great strips, I don't know exactly what they are.  And she has special myofascial massage right on the site. I've got to try that.  I didn't do the strips... I'm so badly scarred it seems beside the point.

    I agree -- farmer's market for you!  And for me, by the way.  We are moving end of summer, closer to my daughter's special school.  Not sure I understood right... did you say you adopted?  My two are both adopted!  And then idesim thinks Ariom is going to adopt her, but she is NOT.  Idesim can stay in the spare room, but I can live at Ariom's PERMANENTLY.  :)  I am sure you got all of that as you were reading.

    But wait!  I am trying to get Idesim to live with me in a Southern town like Steel Magnolias, only it is quite academically  minded as well with a lot of out of towners in it.  And it does not smell like pee.  So it is complicated.  We are all going to end up living together.  Of course you will come on a shopping trip with us!  You know, I was on this thread about flatness and they were planning a fall shopping trip to NY, to get a bunch of flat clothes, and while that is out of my budget (and I can't travel right now with the children), that sounded like maximum fun!  How is the baby?  Is it an ear infection?

    Ariom!  Those olives!  It seems you make admirers at every turn.  I wish my postman would bring me jars of hand-cured olives!  I am not as charming as you are.  You can take that to the bank.

    nd!  You still cannot sleep!  I cannot sleep -- did not go to bed last night, but it ended up being a positive thing, I got so much done.  I never know when to "take something.."  I don't tend to do that.  Have -- what is it called -- ativan, but only used 6 of my 30 - tab allotment during sx!  I feel I should do better, and use a lot of them!  But then I don't end up doing so.  I don't think they are for sleep, anyway.

    Granwe!  Terrible.  I feel terrible for the OG, throwing up and overwhelmed.  Nice strategic pitching of that temper tantrum.  I say you definitely deserve a bracelet.  Which kind will it be?

    Please note:  I am a pretty good knitter and can knit knockers for anyone who needs them.  I think I could do it pretty quickly.  Just tell me what color you want, and which kind of yarn.  I think something very soft -- I hope they won't be itchy either way.  Having the claw right now!  F the claw.  And F those nosy neighbors of Gramwe's.  Lucky I am not there, or I would give them a piece of my mind.  Hey!  I would say, while crossing the street, as if I were a New York native, which I am not, but I lived there for ten years or so.  And that one word would be enough.

  • ndgirl
    ndgirl Member Posts: 950
    edited June 2013

    Bobo, well at least you are productive while not sleeping, I dont seem to be, keep thinking I will fall asleep and once in awhile I doze a little... ugh! hate this. I am with you on those olives for Ariom.. I think I could be charming if I was to receive thoseCool! Well maybe not.. just wishing, better not ask my neighbors about that!

    About Ativan, my husband took that when he had heart surgery in 2001, he ended up back in hospital with c-diff, a terrible infection caused from antibotics wiping out all good bacteria.. but that is another story, they finally gave him that and he was able to sleep and relax some. Sounds ok but I am afraid I would become addicted to it and sure dont want that. got enough trouble going. well we will just do what we have to. I will say that when prescribed oxycoden after surgery, which I didnt need for pain, i have taken a couple weeks after surgery for discomfort and it put me to sleep, but once again a narcotic... what's a gal to do??

    I would love to live in a SC Steel Magnolia town, sounds good to a North Dakota native!! Charleston, SC is on my bucket list!! 

    keep us informed on the knitted boobs, I would be interested, sounds great.

  • wren44
    wren44 Member Posts: 7,932
    edited June 2013

    Gramwe, My father was just like OG, never wanting to accept help. One day a friend came by and asked if he could borrow Dad's lawn mower. Dad said of course. Next thing he knew the friend was mowing my Dad's lawn. Had he asked to mow the lawn, the answer would have been no.

  • bobogirl
    bobogirl Member Posts: 2,083
    edited June 2013

    OMG, Wren, that is the cutest story ever, it should be the subject of a Hallmark commercial!  How are you, Wren?  With whom in our group are you going to live?  State your true alliance now :).

    nd, is your not-sleeping due to discomfort from surgery?  Is it the Armidex?  Hmm.  Our merry band is going to crack this.  F getting addicted is what I say -- unless you have a dangerous addiction history. If you don't get sleep, you will not heal as well.  You are barely 2 months out of surgery.  Are you eating 100 grams of protein daily?  That is a terrible story about your husband.  That must have been so stressful.  Regarding your not being able to rest:  can you ask your PCP for .5 ativan?  That shouldn't get you too addicted... if it's a pain issue, though, it should be addressed.  And if it's a worry issue, that should be addressed too.  It's just as important.

    Regarding knitted foobs: what size do you want?  what color?  which yarn?  Something that will wash easily?  Cotton?  Baby cotton?  Or something softer, like mohair?  I'm ready and waiting to take your order, plus I am  making you another surprise :)

    XXXXX

  • wren44
    wren44 Member Posts: 7,932
    edited June 2013

    I would like to live with Ariom except I think she's out of rooms. Maybe she'll let me camp in her yard. Of course, I might eat all her lettuce. My garden here has plenty of lettuce plus herbs and of course, tomatoes. The tomatoes have to be babied and don't ripen until Sept. We have lots of green tomato recipes.

    I'll skip the steel magnolia town, although I might love to visit. Too close to Houston, where I was trapped for 14 years.

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    (((((Zills))))) I have a picture of where you are right now, I am so sorry that you're having a rough time. F this awful disease, and the treatment that makes you feel so bad. I am keeping everything crossed for you that it will be finished soon, and your scan shows it's clear. I so believe in miracles too!

    Now, ginger has been used for nausea as a folk medicine forever. I worked for United Airlines here in Australia for many years, and always carried pure ginger candy in my pocket for the passengers who were scared, and expected to be sick. There were lots, believe me.

    When I started on Methotrexate a chemo drug, that I took for 7 long years for rheumatoidArthritis. Ginger was the only thing that really helped with the nausea. I would suggest you ask your Onco first, as Ginger has other properties, like blood thinning, and may not be right for you.

    How is the baby? Was it an ear infection? Poor baby, in pain. I hope you got some sleep.

    I am obsessiive about scar management! LOL I use massage oil with essential oils every day. It acts as a lubricant to massage the area, but also as an antibacterial, anti viral protection. The one I always use is "Balanced Essentials Be Relieved" it is an amazing pain reliever too. This one is made here, but I would guess you'd have similar proucts over there. Ask at your health food store, or Naturapath. At night, I use a "Scar Fx" silicone strip. This is a silicone strip that you apply to the length of the scar. It takes the color out and makes the scar very flat. It can take several months, but my skin reacts very well to it, so it happens fairly fast for me.  I also have a massage every two weeks, have done since my Rheumatoid Dx in '96. The therapist I go to does a Myofascial Release technique on the scar to prevent adhesions. It moves freely over the chest wall now. It is never too late to make a difference to scars. Another thing that works well, I used this for my appendix, caesar, and a big scar for an ectopic pregnancy I had, is a vitamin E capsule. Just prick with a pin and empty the contents onto the scar, and massage.  

    I am a side, or sometimes a "face plant" as Colin calls it, sleeper. He can't understand how I breathe!

    I bought a V pillow for when I got home from the surgery, and I have found it to be the best thing ever. I can fit into it, in bed, and still use it when I sit for long stretches on the couch. I get terrible reflux and heartburn as a consequence of the meds I have taken for the rheumatoid. This pillow also helps with that.

    I hope some of this helps Zills! Take care, and I hope the baby is doing fine today........M 

  • bobogirl
    bobogirl Member Posts: 2,083
    edited June 2013

    Ariom and I are always posting at the same time!  Ouch, Wren, you want to live with idesim!  :(  I understand.  And who would want to live with two seven-year-olds!

    Ariom:  poor baby ectopic pregnancy!  {{{{{Ariom}}}}}  Just wanted to let you know I went to the special bra store today -- I did it.  It was not fun.  Will post about it tomorrow. 

    Hope everyone is well.  XXX

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Hey Bobo!

    I worry about you rattling around in the house in the wee small hours on your own. I know you are getting things done, but I worry all the same. I can't take the sleep meds either. Not that I need them often, just like you, when there is something scary pending, I find sleep illusive too.

    I have butterflies in my stomach, thinking of you this week. Gosh, I wish we lived closer, I'd so go with you to this biopsy. I don't know why we are freaking out, it is going to be just fine. You'll kick it to the kerb, just like a native New Yorker, or a ten year resident, would! and then we will move on. You will get another bracelet as a badge of honor!

    I am trying to picture me with mohair knitted knockers, ooooh, too hairy, tickly, and scratchy all at the same time, and I know I would have long strands in my lipgloss. Colin reminds me that I am like a femle version of a man, adjusting his kahunas (sp) I have a habit of readjusting the micro bead foob, and I must confess, I sometimes find myself playing with it when I am distracted and reading.  I have to get a hold of myself, no that's not right, I have to stop fiddling with the beads!:) It's a bad habit that I don't want to imprint!

    Can't remember if I mentioned yesterday that I got another parcel from MyUS. It is so exciting when they arrive, because I have always forgotten what's in it. I got some great Marika pants and wait for it......tops that have pockets for a foob. I'm in heaven. I now have all these new things to try out when the weather gets a little better. We are up to 90ml of rain now in less than 3 days. It is just incessant. I was lying in bed listening to it on the roof yesterday morning, when I suddenly realised that the automatic watering system would be going off in minutes. Nope, I didn't get up and turn it off, the control is in the boatshed, too far away from my bed, but I have turned it off for next time.

    Another squall has just come in. It feels like it will never stop. I was loving, hearing it on the roof, and watching it through the new roof windows, but now it's getting old! F the rain, I want to go opp shopping this morning.......I'll gve it a shot, and be back later....M  

  • ldesim
    ldesim Member Posts: 1,193
    edited June 2013

    Well that's a new one, I just posted in the wrong forum.. wth.

    Saved it though....

    Ndgirl, that is awful about the non-sleeping we need to all combine our heads and find a solution for you that is non-narcotic, you can't wait until August... I don't see how you are even functioning :( Hope you are having a blast with your granddaughter... 4 is a great age, does she talk non-stop? :)

    I am with you on the doctor's visits, boy has all that changed.. I am dreading the annual and of course I will probably be doing 3 month mammos for a bit.

    Moira, you need to get on the knitted knockers as we need a full report from our personal shopper!

    I love ginger, I buy it fresh and cut off a little piece that I chop up finely and just seep it in boiling water... it's supposed to be great for the stomach. Joe hates ginger, so I can't really use it in food :( What other trees do you have besides the olives?

    Laughing over the dragging of the drain! That poor man!

    {{{{Granwe}}}} your cup runneth over! No kidding it's like having a baby.. every two hours physical therapy?? F that!! So you've had almost a year non stop health issues between the two of you and how in HELL did they miss the splinter? I am dumbfounded about that one. I am glad that you are getting help with the roof.. that is something a Steel Magnolia town would do. Three meals for 8 men on little to no sleep is no small feat.. I wish I was close by to lend a hand. I have to say I don't blame OG, I am much like that myself, uncomfortable asking for and recieving help, plus being a guy makes the situation even worse. Good for you.. you keep pitching that B fit.. doesn't he know by now you know what is best for him?? His track record this past year hasn't been so hot!!

    How is his mobility coming along?

    Zills, pickled green beans sound tasty. I've never heard of them before. Beets.. yuk! I have a lot to learn on gardening, we lived in an apartment up until 2 years ago, so we never had a yard previously that you'd plant in. The house we bought hasn't had the yard tended in years, so there was a lot of labor involved and still a lot more to go, but some day I hope to have beautiful gardens, and maybe i will grow as many types of lettuce as Moira does!

    Why do boys always equate everything to the bathroom and bathroom functions? I am laughing over his concern! He sounds adorable.

    One day at a time on the treatment, I know.. easier said then done, I am in awe of you ladies that are going through all this with little children around and I am glad you have a great support system. I looked at my hair loss as a vacation from shaving, I'm Italian, so body hair has always been an unwanted intruder. I joke that I get 5 o'clock shadow on my legs and I'm really not stretching the truth much. True, no PMS/period cycle, which is an added bonus. I joked with my GF that at least I would lose some weight on chemo, but that was so not the case at all!

    Desert has arrived to my coffee table.. I will break again :)

  • ldesim
    ldesim Member Posts: 1,193
    edited June 2013

    omg I did it twice.. the radiation thread is gonna think I'm a nut job hahaha.  Here's post from 2 hours ago.

    How does the knitted foob work? I just can't envision it.. wouldn't it be lumpy and scratchy lol?

    It is raining AGAIN, it is like a mosquito paradise out there.. I'm so over it. F the rain! F the mosquitos.

    I think I'll work from the top until my coffee table is laden with food.

    I can see now why it was the cruise from hell and they should have refunded ALL of your money. I am laughing trying to envision what a Humpyback Spider dance might look like, perhaps it can be used on dancing with the stars.

    Yes, tourists and men who are pissed that piss haha. My office is like smack in the middle of tourist central with Fanueil Hall, the Aquarium, Paul Revere House, freedom trail.. etc., so from May to September it is impossible to navigate the sidewalks efficiently and it all adds up to a bunch of pissed off Bostonians, all in a rush to go nowhere. Not that Bostonians need tourists to make them cranky, we always have taxes and the weather to bitch about as well.

    Bobogirl, how on earth can you picture a humpyback spider dance? LOL. I looked quickly at the spa you suggested and it does indeed look promising. I am going to return to the site when I have more time to leisurely read through it. Thankyou for a most excellent suggestion.

    Frozen meatballs? Surely they are not meat??

    Moira, exactly what type of store ISN'T a candy store for you? Hmm?? I doubt you could appear to be snotty no matter where you were or what you are wearing... I should probably modify it to state that Boston Sephora girls are snotty. And they aren't appearing that way, they are that way. The TV station (and the drag queens) sounded like a load of fun. I can't believe all the things you've experienced! It's hard to believe you are content in the country with your 500 types of lettuce hee hee.

    Are they green olives that you grow? I love olives! Only you would have a postman who brings things from his garden along with your abundance of packages! I shouldn't talk the UPS guy is at my door quite often (not so often since this whole nasty business started). I haven't signed for a package in like 5 years and if its raining, he hides the package under something in the yard, which is kind of like going on an easter egg hunt :)

    Oh gross, it must be low tide, there's quite a stink in the air.

    I know nothing about the panties vs. commando scenario and wonder how that relates to breast surgery?!!? You're the opposite of me Zills, I have to read and read and read and find the worst possible scenario to be prepared. I hate surprises!! Before my surgery I was sitting on this site for hours upon hours and it did calm me down quite a bit.

    Well, I didn't get that far in the catching up, but dinner has been served and I will have to finish up later :)

  • ndgirl
    ndgirl Member Posts: 950
    edited June 2013

    Love Wren's story too! bobo.. no I am not sleeping because of any pain or discomfort, I have had this problem for a long time.. think I got myself into a terrible sleep habit, I have always had a tough time shutting off the brain chatter at night, I am a worrier. In 2008 my DIL was diagnosed with the dreaded breast cancer, but she chose to only treat alternatively, she refused any surgery, any treatments, drugs or otherwise, ended up putting her trust in some quack that assured her he was healing her cancer. I was on such an emotional  roller-coaster, so concerned about her, my son and their 4 boys. I will never understand her choice, sleep evaded me alot during that time. My son did convince her to go to Mayo Clinic and she did but only went once and did not do one thing they recommended! They told her if she didnt treat it she would be gone in 11/2 years and they were right on target! the saddest day of my life! so hard to see your son and 4 young boys lose their mom.

    I will ask about some help next appt. Sorry about this rant, I sometimes think my life is a soap opera!! But I really dont think anyone would believe me!!

    About the knitted boobs, sounds wonderful, I think the soft baby yarn sounds good, color?? maybe beige or whatever you would like. Just let me know how much to pay you. I will probably be like Ariom and try every foob around!! I also like whoever said to add a little weight to the first soft ones, wished I had found that earlier, I felt like the soft one was under my chin and the other boob was hanging as usual!! size is 38D. I am excited about this. Thanks, I love these boards, I cant tell you how much you all have helped me. I dont live where there is a support group to attend and so this is available at all hours!! A big thanks to all!!

  • ldesim
    ldesim Member Posts: 1,193
    edited June 2013

    I would love to have you Wren, but it is not possible as I will be living with Moira in the Foobmoire room that she is fixing up for me and where I will store all my thrift shop purchases and cuddle with rock star Dexter while eating Tim Tams.

    I have no hope in hell of catching up with these posts lol... and thought I was doing a good job until I posted in another forum.. I thought I was being all smarty pants by posting in one tab while reading in the other and that backfired.

    I too loved Wren's story and agree with Bobogirl that it would make a great Hallmark commercial that would probably make me cry.

    ok I'm too tired to post anymore.  I have to rest up to be in Bobogirl's pocket on Thursday.  Good night to everybody.. I hope Bobogirl and Ndgirl get some sleep tonight and I hope the sun is shining for Moira.

    XXX

  • wren44
    wren44 Member Posts: 7,932
    edited June 2013

    Bobogirl, Is your biopsy of a "something" or an endrometrial biopsy? I had a couple of the latter. They weren't fun, but not torture either and they don't last long. Prepare for cramps afterward. I think my doc had me take an Aleve an hour before.

    ndgirl, my yoga teacher had us do a relaxation exercise at the end of class. Lie on your back. Tense your toe muscles, then let go. Then your foot muscles and let go. Work slowly up the body. She said you can't relax until you've tensed up and can tell the difference. Some people began snoring long before we were done. And if you don't sleep, at least you'll be relaxed.

  • Ariom
    Ariom Member Posts: 4,027
    edited June 2013

    Geeeesh! I was only gone for a short while and everyone has been and gone again!

    I have to go back and read again.

    Wren, I loved that story too. It really could be a Hallmark moment, you should pitch it to them!:)

    So you're coming too Wren, this is exciting! My next project is to do up the old boatshed, so there will be plenty of room for everyone. I will need to plant more lettuce!

    I have never heard of green tomato recipes, do you eat them unripened? I have many on my plants right now. They are an old fashioned type that I bought from a Hippie at the farmers market. I have never seen them before, but they are delicious.

    Take care Wren...looking forward to hearing about green tomatoes..hmmm "fried green tomatoes at the whistlestop cafe" wasn't just a very long name for a movie after all:)