new and future flat sister, with questions
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Thinking I spoke to soon about feeling good. Woke up from a nap nauseous and have a nasty headache. Hoping it will ease up in a bit. Pop back in later!
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Look at PRB taking the piss out of our M! That is cracking me up.
No, Glennie, I have to stay with my PS. He was at the post-op, BTW. I was in and out of there, unlike our poor Z today, who had a terrible morning of it. I'm scheduled in for the next one: homecoming week, so I don't have to miss classes. Eight weeks away.
Major terrible family drama with MD and my brother today. Which I refuse to get into for fear of further poisoning my evening. I am 44, after all. I don't need to whine about the fact that my mother is in town -- in my town right now -- at my brother's, but she'd 'forgotten' that I had surgery Monday. And really there is much that's worse than that, even. Instead, I am counting my blessings. My new sx twin from the August thread, Ally, sent me a text message when she pooped, which made me giggle for the whole rest of the day.
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oh Zills. Hang on I am running your way to decannulate
that port!!!! You been waiting much to long!!!
O2
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JS, I hope you got that nausea under control, your boy is a gift!
I'll have you all know I sit here today, in sweats and hoodie, no swanning or floating for this girl! No housework either, no point with painters who are using sanding blocks on plaster. It will be a big clean up after they finish.
Bobo, MD is a complex one, isn't she? I wish it were easy to just not give a toss, but the invisible umbilical is always there, no matter how badly they behave, I am sorry about that!
I am off to the Opp Shop and to catch up with the girls, will be back later! Might put on a gown, flick a feather duster made from the tail feather of a dodo and order the servants around , when I get back! I'll let you know! lol M x
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Bobo
I giggled when I read your post about Ally pooping!
F family drama! You don't need that right now.
Surgery on Homecoming week so you don't have to miss classes? Damn, woman, you are tough!
Z, are you doing ok????
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hot flashes, full moon and results tomorrow. Not a good combo for sleep. Neither is a toddler in your bed. Last night was the boy. Is it just coming home from a month away or picking up on drama?
JSJ. Get some ginger root. Walmart also carries frozen ginger in mini ice trays in veg section. Peel 1/2" and steep 15 min. Sweeten to taste. I also added a green tea bag. You need to drink, drink, drink. Smell mint or some say vanilla. Chew gum. Eat oyster/soup crackers, dry cereal (mine was kix) one at a time. Eat something small frequently. Take those a/n. Don't get behind. Piggyback every four hours if needed. Call dr for different script. Take OTC antacids. I like those soft chew tums or chewable alka seltzer. It doesn't last usually more than a few days. Walk while waiting for meds to kick in.
Take the stool softeners religiously. Nothing worse than chemo constipation. Don't be embarrassed about enemas or suppositories. Sailman will get them for you.
The best thing is if you do hurl, you'll feel better immediately. It's a spectator sport at my house. Boy is the coach. He can tell by my facial expressions. Asks 50 questions and rubs my back. Now the baby is in there too and we have a tiny bath. I imagine if we had indoor pets, they would be lined up too to watch.
Here's the JS video for nausea.
https://m.youtube.com/watch?v=R11-jiBlbGU&feature=youtu.beHang on!
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Dr Z to the rescue! Jsj, Z gives really good advice. Throwing up is a spectator sport at my house too, with pets lined up.
M, we are all onto you! We know you swan!
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Z ! you're amazing! JS, I hope it all helps you! I swear by the ginger too, for nausea. I used to carry ginger sweets to give nervous passengers and 7 years of Methotrexate made me wish I had shares, in the Ginger Farm!
Well I am back, no swanning in a diaphanous robe, for this girl. There isn't a surface that isn't covered in fine white plaster dust, including this keyboard and I can taste it too. I have to resist cleaning it all tonight, because they will sand it all again, tomorrow. yuck!
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I forgot about the ginger candy. Had to find it at a health food store like trader joes. Comes in both chewy and hard. I would just take a little bit. Sleepy time tea is good cold. I always wanted cold drinks with lots of ice. Went to sleep many a night with a cold wash cloth on my forehead, holding my thumb. I still slept propped up like after BMX.
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You're up early Z, are you ok, you were here a few hours ago. I'd love to sit and have a cup tea with you right now! I am in the bag, plaster dust in my hair and all! Hugs to you...M x
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I see everyone is up. Zills, in the bag.
M : ugh. Dust everywhere! Are they cleaning up after they finish? I'm sure it will be lovely in the end but the process is yucky.
Ok so I love the hotel pillow. Shoulder not in screaming pain so pillow is coming home with me. Don't rat me out. I suspected the pillow was a player with this issue but I tried 3 different ones w/o luck. Now I got one. Let's see if it continues to work its magic when I get home.
Just waiting for a tad more sunrise to go for last walk on beach. Wonder if I'll see another starfish. My friend send me the meaning of starfish totems but I couldn't copy paste it on this tiny device. If you are interested, I will when I get home and back on desktop computer. It was actually pretty cool.
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Hi Glennie, enjoy that walk!
The painters are actually very good about cleaning up where they are working, before they leave each day, but it is the dust that settles on all the furniture in the other rooms that drives me nuts. It is so fine, it just settles on everything, because the doors and some windows are open to let in the air. We have black stone bench tops in the kitchen and thy are completely covered in it.
It will be great, when it is finished and everything is put back, but till then, yuck!
I want to know about the starfish totem! M x
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Oh my. I figured out how to copy paste.
What do you think, M?
Starfish/Sea Stars:
Teaches how to maneuver successfully in any situation. This creature is very agile and extremely strong. Starfish has amazing regenerative properties with an indication of coming back stronger and more abundant. If Starfish comes to you something in your life may take a year to regenerate, but when it does, it will be better and more abundant. Starfish shows how emotions can help propel you forward by tenacity and determination with slow and steady movements. It is a time to keep intuitions sharp and your outer "shell" hard. The wisdom of Starfish aids in strengthen your resolve by the wisdom of emotions and your own inner fortitude and strength.
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Yep, I've been up since three. In the bag for Z.
Glennie is stealing a pillow!!! OMG! We are a ragged band of criminals here.
Well there was much drama yesterday thanks to MD, it was difficult to rest, so today I have promised myself that I would stay in bed as much as possible, take pain meds, and rest and watch movies. Hope the drama machine does not start up again.
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Bobo, I hate that MD and JAB (jack ass brother) are causing you grief AGAIN! I am here in the bag if you need me to give a good bitch slap. Zills, I was up not feeling well at all when I found your post and was wishing for some ginger. I took a zofran and tums and hurled a couple of times. Took a shower to try to steam the headache away and finally went back to bed about 3am. Glennie, if you roll the pillow like you would a sleeping bag you can push alot of the air out of it and it will fit in your suitcase better. LOL... Aiding and abetting, oh my... M~ your house will soon be lovely for you to float around in your white flowing dress. Hopefully the dust will be gone soon. Guys are off to work and I am thinking a dark room and pillow sounds lovely. Zills.. you mentioned holding your thumb?
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I reply quick as I have to check out with stolen pillow. She said to hold your thumb with all the fingers of your other hand for at least five mins. If you hold your first finger it's supposed to help anxiety but the thumb is for nausea. Hope I got that right. It's Jin shin? Something like that.
I hope you feel better!!
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Yes. Wrap other hands fingers around thumb. Hold lightly. Try with different hands or other fingers. One will feel better than another.
Headache from steroids. I used zofran, compazine. Didn't like phenergen. I promise you will feel better before your next round. You will be strong. You can do this.
Middle of the night is normal. I love the warm and fuzzy thread. Will make you laugh.
I've thought about taking a pillow before. Have one I like now.
Baby up. Came to our bed. Hot flashing so went to her bed. Boy up. Neither could find me. They played. Then he fell asleep and she was stuck in his room. Let the hollering begin. Her and the cat "Mama" "mama" "mama".
Waiting on results. Anxious. Have JS afterwards. Holding thumb now. Even get boy to hold when he's upset.
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Thanks Zills.. we are right here with you waiting...
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Phenergan gave me horrible dry mouth like Sahara Desert. Awful. Never again.
Taking off now. Back in touch when home.
Waiting with you Zills.
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JS- hope you are feeling a bit better. Ginger Ale, the real stuff, helped me throughout my rounds of chemo. I ate whatever I could, maybe not too healthy at times, but I was able to keep my strength up. I also drank until my eye balls were floating. Red devil had me peeling pink the first few hours and I quickly learned that getting that stuff out of my system made me feel better. Zofran made me sicker and I did better on compazine. I also used those blue gel packs from the freezer. Wrapped in a kitchen towel they stayed cool most of the night! As Zills said, you can do this!
Bobo-my bitch slapper is polished and ready! If MD and, I love this, JAB, cause you anymore grief I am armed and ready! I hope you are able to rest today. Can DLLP run interference today? Family relationships are always so complicated. Sending healing hugs to you!
Glennie-hope the beach holiday doesn't lead to a life of crime! Lol. I do hope your holiday has given you a much needed respite from all the worries.
Zills-what can I say during this difficult time? Decisions, decisions, decisions. I too have had to make some and it is not easy. While I am tempted to offer my free advice, I will just say, I will bitch slap anyone who hurts you! I am on your side always! Waiting......
M- careful you don't overdo and wind up with the claw! The dust would drive me crazy!
Love all the photos posted! Keep them coming!
Hi to O2, Wren, ND,Spookie, Helenna, Fia, PRB, GB, and the rest of the gang.
Posting before this becomes obsolete! Susan
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Good scan. Responding to tamox. Wants to improve my QOL by removing hot flashes with nurantin (sp). Afraid of more SEs. My mom couldn't take it and the withdrawals were awful. He says no withdrawals. Supports me not going back to work. My life will be fight, live, fight again. I'll never be cancer free. Always be waiting for it to pop up somewhere else.
Was expecting next scan in three months and go longer next year. Next appt/scan in two. WTF? Nurse couldn't explain why.
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Zills, glad for the good scan, just a note to you that a friend of mine has stage 1v lung cancer and she is still doing ok, last scan was clear but she always says she knows it can and probably will pop up again but that she will give it a blast again. Now she is strong but always tired after just one day of doing anything, and she is much older than you too. You have a load with kids, hubby and life just in general.Thoughts and prayers going your way always.... thanks so much for the card from Ireland.. how thoughtful of you.
Ladies,, I really need some therapy here, last night one of my dear friends suffered, in my opinion, one of the worst happenings in life.. her 16 year old grandson committed suicide by shooting himself and she was the one to find him. My heart is just aching, another friend and I spent the night with her until her son could get home, (he was on vacation). Never thought I would ever feel so bad for someone as I did her.. and of course the parents. Our sons grew up together and went to school together. The parents were divorced and not a friendly one, if there is such a thing, there is so many unanswered ??? that will never be answered for them. Such tragedy, straight A student, worked partime job, starting position on football team, sounds like he could have had a bright future but depression or whatever took over his young life. Parents saw no unusual behavior... just a sickening sad day.
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ND- I am so very sorry! My nephew committed suicide in '09. He too shot himself leaving a note to his mother. This will be gut wrenching as each family member questions what they could have done, what they missed and deals with the most horrendous grief. Unfortunately, some people will say stupid hurtful things to friends and family. The best thing you can do is to listen when she wants to talk. Cry with her, laugh with her as she remembers funny stories, share any happy stories you have. Just be there. Knowing I could talk honestly to a friend as I went through the stages of grief was the best help to me. Having that friend to talk to after things settled down was wonderful. When my sister-in-law murdered my niece and nephew my in-laws (the dad is my husband's brother) were devastated. Even though they were not a big therapy family, they went to grief counseling. It helped tremendously. Mom went to counseling again after my FIL died in December. It really helped. My heart is with you and I will keep you and your friend in my prayers.
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Zills-hooray! Yippee! Way to go! So happy for you! Great scan definitely deserves a party! What are you going to treat yourself to?
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ND, I am so very sorry for your friend I cannot even imagine ! Please let us know how we can help ! My thoughts & prayers are with you !!!
Zills, WOO HOO !! So happy for your results!!!
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ND, It's hard to think of anything worse happening to someone. I agree with the grief counseling. There's an organization called SOS, Survivors of Suicide. I wish we would just ban guns. Perhaps rent them out to genuine hunters in hunting season.
Zills, Happy for your results, doing the happy dance!
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Zills - so happy for you. What a relief that must be. Two months doesn't seem right. Maybe you should call back and ask if that was a mistake.
ND - not much to say. I don't know how people/families handle losing children, and really wouldn't know what to say, because nothing seems like the right thing to say in a situation like that. A very good friend of mine lost her daughter to a horse riding accident. She left work screaming when she found out, and I will forever remember that. It haunts me..and that was well over 10 years ago.
Oh M - I think you will forever be known as the woman who floats around wearing long gowns and spreading your magic as you go! I kind of like it
My ankles are very swollen! All the painting on Monday and Tuesday, followed by a Kohl's back to school shopping marathon yesterday has had a toll on this old body. I guess my co-worker paid me a compliment today when he seemed shocked that I was 57. I'll take that as a good sign! Not looking forward to going to an amusement park this Saturday. I am tuckered out I tell ya.
Well I should go.. took the afternoon off to hang out with my sister and daughter.. but they are in dd's bedroom cleaning out her closet. I should get in there before they throw out some special stuff stored in there. I wish I wasn't so sentimental ... I have a hard time giving her stuff away.
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Thanks ND. How long has your friend been stage IV? Yes I will give it the good fight again. I'm sure part of the fatigue is just learning to deal with my new normal. I shouldn't complain if that's my worst SE.
I'm so sorry about your friend. I second counseling, being there and don't be afraid to tell stories. I hear a lot of times people are afraid to talk/tell stories because it's upsetting. They probably will never understand why but there were good times that deserve to be remembered.
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Zills: Congrats on good scan. If you do try the Neurontin, start small, go slow. And yes, if you want to get off of it, you must taper. (trust me, I'm a pharmacist) Try 100 mg nightly for the first week,, then up to 100 mg twice a day if needed,, can go higher,, but start there.
ND: there are no words. ((HUG)) I am so sorry for your friend. All you can do is be there for her,,, counseling would be a great idea for the whole family.
SGC: I may have to turn to a life of crime. I came home to unpleasant snail mail and message on answering machine. (legal woes) Called my best friend and whined about my new stress,, as if upcoming biopsy and HX are not enough,,, and she said,,,, you have enough stress!!! You don't need this!! I know,, I know,, but it is out of my control. **SIGH**
But I had 3 days of beach time. Ava had a good time at camp and they spoiled her to death. Took a million pictures of her! She hung out in the office!! She's a diva at camp too! One of the worker's daughters comforted her during a thunderstorm. So I think she had a good time,, but she is always happy to come home.
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Yea Zills!!!! WOOOHOOO
If you can tolerate the Neurontin, it's a good med. it comes generic and is cheap. It made my fibro/cog fog worse. I had to stop
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