Any Texas Hill Country BC Warriors?

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  • jwoo
    jwoo Member Posts: 931

    http://www.brainhq.com/#challenges/chemobrain_1_challenge/intro

    My friend just sent me this, have any of you tried it?   I'm gonna give it  go

  • rhgsr
    rhgsr Member Posts: 179

    I saw this today and had to laugh. So I thought id share with all of you. You see, to add injury to insult, I had to renew my drivers license toward the end of chemo. So in my photo I am completely bald. No eyebrows, hair, or eyelashes!! This little cartoon clip hits close to home!! Ha ha!!

    image

  • rhgsr
    rhgsr Member Posts: 179

    Here is an update from my blog...

    I first and foremost want to thank everyone for their love and support regarding my last post. Thank you for encouraging me to be open about how I was feeling and giving me the "permission" to be open and raw with my emotions. I can't thank everyone enough for the words of support, the meals, the emails, the texts, the prayers, and just pure out pouring of love. I am truly blessed.

    For those of you who called or texted today, I apologize for not answering. While I am doing better, I'm still fighting some "blahs" over this and am trying to regroup (pull myself out if the ditch). Please know you are deeply appreciated.

    Knowing that there are others who are having much more difficulties then myself, I often feel guilty complaining about what I'm going through. I'm complaining about set backs and breathing issues (the breathing thing is kinda important though), and not being able to get back on track quick enough. But I was reminded today by two amazing ladies, known by Rhett as "Lar" and "Jos Jos", that we all have our own walk that we must struggle through. There will always be those who have it better and those that have it worse than ourselves but that doesn't invalidate our concerns, disappointments, hopes, or dreams.

    Here is my more detailed update...

    From what I know so far, all the tests came back inconclusive (except for them being confident that it is not a metastasis of the cancer). The pulminologist who saw me in the hospital will send the specimens (pieces of my lung.... Sounds very creepy - reminds me of my favorite movie when they talk about carrying organs around in beer coolers. But I digress) to the Mayo clinic to be double checked. So the thinking right now is that I had pneumonia prior to going to the ER. I had mentioned to Ronnie about a week before that my lung hurt when I took a deep breath. Then that Friday night /early Saturday morning Ronnie and I were both struck with a stomach bug we probably picked up from one of our precious walking Petri dishes. (I.e. Our beloved children). While Ronnie was miserable with it, his body worked to fight it. Mine, on the other hand, could not. The steroids lower your immune system so I probably already had a touch of a lung infection going on on top of the radiation pnuemonitis and the added stress of the stomach bug was more than my body could handle. I became very dehydrated very quickly and then I couldn't breathe. I couldn't catch my breath. I've never had an asthma attack but I would assume it would be similar to a severe one.

    The concern right now is that, while I am better than when i went into the ER; I am not as good as I was before. I did receive antibiotics in the hospital for pnuemonia. My RO told me that since I was getting better that there must be another component because with the radiation pnuemonitis, you don't start to see improvent then a decline.

    Another concern is the extent of the inflammation in my lung. The pulmonologist told Ronnie after the broncoscopy that my lung was extremely inflamed and bleed quite a bit when he took samples.

    And yet another concern is that inflammation was seen on the left lung as well ( I did not receive radiation to the left side, only the right). I had an echocardiogram before I left the hospital to be sure there was not a cardiac component. And thankfully my heart looked fine.

    I go on Thursday to have a follow up CT Scan of my chest (please pray the insurance doesn't give us a fight on this) to see if there has been any improvement ( or decline ) in my lungs since my hospital stay.

    My insurance won't allow us to see the pulmonologist that saw me in the hospital (and is in Kyle). However, they did approve one in Austin that both my oncologists say is good. Please pray that I can get in to see him in a reasonable amount of time. His name is Dr. Dallas. I kind of get tickled thinking that Dallas is in Austin. Hee-Hee!! :0)

    I am still pretty weak. And my lung hurts when I breathe and I get very SOB (short of breathe) very easily. Sometimes even with talking. Plus, I am still on the 40mg of Prednisone. Better than being on the 60mg but still a very high dose and will continue my immune to be suppressed.

    So now we hurry up and wait... Wait for CT results after Thursday. And wait to see about getting in with Dr. Dallas in Austin (Hee-Hee... Couldn't resist).

    Please continue to pray for us. While my last post wasn't all rainbows and sunshine, it is still very true. We are weary. Pray for God to work things out in only the ways that He can do them (Romans 8:28). There have been times when He has made beauty from the ashes in ways my human mind would have never imagined. Continue to pray for my beloved husband and children as they continue to battle alongside me. Thank you. 

  • keepthefaith
    keepthefaith Member Posts: 856

    Holli, so good to hear from you! We were all thinking about you while we were in Salado and wishing you were there. I pray that you are healed soon.

    Your cartoon was too funny! I had my DL photo done with my wig on...now my hair is super short. Sometimes people do a double-take!

    Jen', couldn't open your link. Sure could use some help in the chemo brain dept though.

    Cindy, haven't heard from you...everything okay?

    Happy Hump Day!

  • rmlulu
    rmlulu Member Posts: 1,501

    Hi Y'all!

    For our sanity and to celebrate hubby's last infusion...pup went to doggy day care!  Pup loved it and came home snoring:). He will be attending Tue/Thu for day care and training.  I'll join training and hopefully we will be ready for CA and GS.

    Holli - love the DL :))) so relate miss hair...AI makes me shed...your blod is heart warming...Romans 8:28 is my life verse, yes, even this!  Praying for you and your family...fingers&toes crossed for good results and answers!

    Candy - :)))) so nice to meet you!  Salado was great:) We are in your pocket and pocket party hop as needed...we even bring snacks! We will be with you Friday for your port!  Breathe, and be kind to yourself.

    One4bemi - sending healing thoughts&prayers...hope the drains are out soon!  Fingers&toes crossed as you wait for final path results...next meet up:)

    Kelsey - thanks for checking in...hang in there...doing good:)

    Chaos - thinking of you!  Love the handy work...wow you are gifted and jewelry and lures beautiful!  Let us know how you are doing and what is next...pockets full!

    Book lady - {{{squeeze}}} we are there for #2!  Sending good thoughts as you go through chemoland.

    Lydia - can't take TX out of a Texan!  Come and play :D

    Terri &Jen & Vick- thanks for the ride!  Pics! And just great time! 

    Y'all rock!

    (((Hugs)))

    Cindy

  • rhgsr
    rhgsr Member Posts: 179

    Hi ladies. I'm copying and pasting from my blog here. I'm so tired and this seems the easiest way to keep y'all updated. The first post is from Thursday. And the second is from today. Finally got a little good news today....

    -------------10/23

    I know exactly what I was doing one year ago today. I was waiting for a phone call from my breast surgeon. My mother-in-law was at the house. Ironically she's here again today but for different reasons.


    I believe the phone call came in after lunch on October 23, 2013. It was the call that confirmed that both my biopsies were positive for cancer. It didn't really affect me too much. Like I said before, I knew on October 16 that I had cancer. I wasn't being pessimistic... But realistic. My mammogram was a BiRads five category. This meant that I had a 95% chance of what was seen on the imaging to be cancer. But I was also there when the radiologist came in to tell me that my mammogram looked suspicious. I could see it in his face. He said he hoped that he was wrong. And I know he truly did hope that he had been wrong in reading that mammogram.

    So when the call came in on October 23, 2013; I didn't cry. I had already cried on October 16. But I know that this call affected Ronnie a lot more. He had told me that he was holding onto that 5%. And the phone call hit him really hard.

    Like I said before, I'm just frustrated that I'm not farther along in the healing process physically and emotionally then I thought I would be by this time. But enough about that...

    I do have some PRAISE! I wasn't supposed to get into see a pulmonologist until October 31. I made the appointment yesterday morning with the pulmonologist that was not named Dr. Dallas but Dr. Morrison instead. Imagine my disappointment as I was so tickled about seeing Dallas in Austin. But by lunch time I was called back and Dr. Dallas ironically had had a cancellation for today at 2:40. Maybe I shouldn't say ironically. Because I know I've had so many people praying for me that I just have to say it's a total God thing that we were able to get in to see Dr. Dallas, in Austin, when he was booked out through December. So instead of getting my scan today, I saw the pulmonologist and will get my follow-up scan tomorrow. A lot hinges on that follow-up scan.

    My pulmonary function tests at Dr. Dallas's office are within normal range. My lungs sounded good. And my oxygen saturation was within normal limits. However when they tested my oxygen and heart rate when walking, my oxygen dropped a little bit but my heart rate shot up to almost 170. This is very high. I started to feel dizzy, And faint, and weak. This is what normally happens to me during the day trying to keep up with three children. And also causes my shortness of breath. So they told me I needed to slow down. I laughed at them. And ask if they knew that I had three children, one that was two years old!

    The pulmonologist feels that I am deconditioned. That having chemo within six weeks of surgery, radiation within three weeks of chemo, then radiation pneumonitis within three weeks of finishing that, was just too much on my body. Then with the illness a few weeks ago it was just more than I could handle. The pulmonologist also thinks that being on the steroids for as long as I've been on them that the risk and side effects of them are now starting to outweigh their benefits. That the side effects of the steroids are beginning to cause more problems than good. So depending on what my scan shows tomorrow, if my lungs have improved I will start to decrease the steroids more rapidly at 5 mg per week. If the scan shows no improvement or worsening in my lungs then that's going to be a whole other story. So let's pray for improvement on my scan tomorrow so that I can get off the steroids and hopefully start working towards getting back to my old self again or at least a better version of my old self.

    I still have 3 surgeries I need to have and I can't even start to think about those until I can get over this road block.

    ---------10/24

    The pulmonologist called as I was pulling back into San Marcos from getting the follow up CT scan. Talk about being on top of things!!

    The CT scan looks stable with even a small amount of improvement. I guess I had pneumonia on top of the pnuemonitis. Since the lungs are stable and not worsening - it confirms that this isn't associated with any reoccurrence of the cancer. Praise God. So we are heading in the right direction now... Just slowly.

    The plan is to get me off these steroids as quickly as allowably safe (you can't just stop cold turkey). Tomorrow I will begin decreasing 5 mg at a time every week. So I'll go down to 35mg tomorrow for a week, then 30mg for a week , 25mg.... You get the picture.

    Hopefully, my side effects will begin to decrease and I'll start feeling better as i come off these. As of right now, I'm still having side effects - insomnia, shortness of breathe, pain with breathing, all over general pain, fatigue, neck pain, back pain, weakness, arm tingling/numbness, dizziness.... And on and on.

    But like I said we have taken a step in the right direction (albeit a small one). Please pray we continue to move in that direction and that there aren't anymore set backs. Please pray I stay healthy and avoid any other infections. My immune system is still compromised as long as I'm on the steroids. Also pray that I will be able to have at least one of the 3 surgeries I have left before the end of the year if it is Gods will. Pray for our insurance issues, peace for Ronnie and the kiddos, a safe trip home and rest for my mother in law, and a way for me to gradually build my strength back up without my heart exploding - ha ha!!

    ----------------
    Love you all!! I couldn't be going through this as well as I am without all the love and support from each and everyone of you!!

    Holli :0)


    Comments

  • vbishop
    vbishop Member Posts: 332

    Holli - great news! Seems like you are on the back side of this now....or getting there! 

    All - Zelda is having surgery Tuesday early morning.  Please send healing thoughts her way.  I will stop by and visit her on my way home from work, then let everyone know how she is doing.  She will be doing the exchange surgery and a hysterectomy at the same time.  God giveth and God taketh away.  The exchange surgery should be a breeze, recovery wise, but the hysterectomy will take a little longer, she is saying about two weeks.

  • keepthefaith
    keepthefaith Member Posts: 856

    Holli, thanks for sharing your blog. I'm glad to hear you have a Dr that you can trust and is diligently seeking your timely healing! Praying that you can have your surgery soon. I know you'll be glad to get off of those steroids! 

    Candy, how was the port placement? I used a small pillow as a cushion between my seat-belt and port, but not sure if you are on the right or left. Enjoy your week-end!

    Chaos, Kelsey, booklady, one4 bemi, Zelda, I hope you are doing well! Please keep us posted. 

    Cindy, how is the pups' training going? Are you out kayaking this week-end? 

    Jen', are you packed and ready to go? Sorry, can't remember when you are leaving...keep in touch while you are gone, if you have time!:)

    Vicki, thanks for the  update on Zelda. Hoping she does well. 

    I think we all need to go zip-lining in a few months, when everyone is healed and done with chemo. 

    I am working today and then going to the "Boo-da"  festival in Buda with my family. Should be lots of fun. Trick or treating, etc in DT Buda. An easy way to take the little ones out for a safe night. 

    Thanks for being there for me through this past year ladies. I truly don't know what I would do without your support! 

    ((HUGS))

  • NY2TXbaby
    NY2TXbaby Member Posts: 113

    Hope everyone is enjoying this beautiful weekend weather - I love the sunshine - it makes me feel happy. Thank you for asking about me (Teri, Vic, Cindy and Jen). It has been a busy week so I decided today would be a good day for an update. 

    Had my colonoscopy Wednesday and so far everything looks "normal" - love that word. Nice to hear normal for a change! She did take one biopsy of an inflamed area but she feels it will be fine. Because of my mom having had colon cancer - it is always something that I worry about. Had my echo test Thursday and wish all the procedures were as easy as that one! LOL  My dentist was able to get me in for a cleaning on Thursday by calling and asking another patient to switch her date - that was so incredibly nice of them. This world is filled with incredibly nice and caring people - and I get to see that everyday. My port went in yesterday on the rt. side and all went fine. In fact, I felt so good afterwards that Pete and I went for a nice breakfast at an outdoor cafe. Of course later that afternoon, when the anesthesia wore off, it felt like someone stuck me in the neck and chest with a pencil! LOL   This morning, my neck is a bit stiff, but still hope to go wig shopping later today with a friend. I decided it might be a easier to have the wig beforehand. My first chemo is still scheduled for Monday at 9 am. I listened to all your tips and think I am "prepared" or at least as prepared as one can be. I just hope my body will tolerate it so I can go through the entire 8 treatments and get the best results. 

    I still find it hard to believe that this is all really happening to me - especially since it was only 4 weeks ago that I was living my life as a fully healthy person. Someone who went to a doctor maybe 1-2 times a year or only for my routine procedures and checkups. I guess I am still in the acceptance phase...but that will soon end once I begin the chemo treatments. Thank you to everyone for their positive thoughts and tips for coping with everything - it really helps. It also helps to know that I am not alone in this journey. Hugs always, Candy  

  • BookLady1
    BookLady1 Member Posts: 196

    Good morning, Sunshines! On the other side of Chemo/Nuerlasta #2 and doing lots better on SE management thanks in large part to y'all's encourgement to be proactive about our own care.  Lost my hair this week - shave and wig cut and style before Neurlasta appt. Been playing around with the wig, caps, hats, scarves, and baldness! I realize this is an extreme solution BUT baldness has been the only relief I've gotten from these hot flashes from hell!

    Candy - sounds like you're ready as can be, and for me, meeting with the wig stylist and choosing the wig with the stylistic help of my DD before the hair loss was a good thing. Less anxiety for me. Best wishes as you move forward and YES, this does continue to feel unbelievable and surreal. Stay in touch, please.

    Keepthefaith and RMlulu - I can't wear anything without pockets, now! I love the pockets and squeezes - makes me happy!

    Vbishop- thanks for the invite to y'all's next road trip and the good wishes.

    Holli - I think you have made BIG steps and you continue to share and teach us and make us laugh with your cartoons and stories. Thanks for being here for us.

    JWoo - thanks for reminding me to exercise my brain!

    I'm being treated to a therauputic massage this afternoon with some attention to my poor baby scalp. QUESTION - any special potions or lotions (besides sunscreen) y'all reccomend? Thanks, Linda

  • keepthefaith
    keepthefaith Member Posts: 856

    Candy, I'm glad everything is moving in the right direction for you. Praying you have a good first infusion. We will be in your pockets!! If you have the Neulasta shot the day after, try taking 24 hr Claritin the day before and a couple days after. It seems to help with the inflammation and pain that can come with the shot. Don't forget to hydrate! At the first sign of any  SE's, no matter how minor, call your MO's office to get something. 

    Linda, I hope your SE's stay minimal for you. Losing your hair is hard no matter how you look at it. I got my wig before I lost my hair also. Looking forward to seeing you one day, soon!

    If you ladies are interested, ACS offers one free wig to cancer patients. There are also a few sites that offer a free scarf or head-covering. Your insurance may cover the cost of a wig, also. Mine wouldn't . Have your MO write a prescription if you want to go that route. Once the weather cools off, (if it ever does) you will probably want to have some kind of head covering if you aren't wearing the wig..
    There is also a place online that makes a covering with your own hair. I can't remember the name of it. Kind of pricey, though. 

    I bought my wig in Austin at the Serenity Wig Spa off of Anderson Ln. They have a great selection. 

    Send us some pics!

    Have a great week-end! 

  • rhgsr
    rhgsr Member Posts: 179

    thank you ladies for all your support

    linda- thank you so much for that specific encouragement. 

    Candy - here are some suggestions I gave to a friend whose mother was just diagnosed with pancreatic cancer and was asking about head coverings. Hoping it will be helpful for you. Will be in your pocket on Monday. 

    ---------------------
    Here are a few sites to check out for free head covers for cancer patients. Also, the American Cancer Society will give you a free wig (at least the one in Austin did). Also look into their "look good, feel better" classes. They give free make up classes and make up to cancer patients. Really a great class.
    http://breastcancerfreebies.com/head-gear/

    http://m.cancer.org/treatment/supportprogramsservices/look-good-feel-better

    This blog site has some great resources....
    http://sarahkathryndavis.blogspot.com/p/free-stuff-for-cancer-patients.html?m=1

    You can also make a very comfy head wrap from an old t-shirt (you may need to google it). Those were my fav because they were soft and cool.

    Good wishes is a great organization too.
    Hope this helps.
    Holli 

  • rhgsr
    rhgsr Member Posts: 179

    I second Keep The Faith on the Claritin. Take a few days before and a few days after. 

    My MO and nurse knew nothing about it before I told them.  Since my chemo they have had an Allegra rep come and talk to them about using Allegra to help with the Nuelasta pain. I thought that was interesting. 

    Holli

  • NY2TXbaby
    NY2TXbaby Member Posts: 113

    thanks everyone for the tips...keep them coming. I am willing to try anything (well most anything) to avoid the SE. I had dad about the Claritin on a discussion board and I asked my nurse and she said many patients use it and she too would recommend it. So I will take one tonight and then 7 days after the shot. Many on the site said 7 days seemed to be the magic number. I have started drinking lots more water today and will continue to do so. I did find 2 wigs today - it was kind of weird and I guess the first time I wear it out - it will feel even stranger. I am just hoping for cooler weather or I will have sweat running down my face! So appreciate all of you ladies - I will never be able to truly express my gratitude. Candy

  • rhgsr
    rhgsr Member Posts: 179

    This tree was either blown over or hit by lightening several months ago. My hubby has been trying to burn / chainsaw the remaining trunk down. But it is starting to try to grow ( see the green leaves coming out of the left side) despite the odds being against it. It makes me so sad that My hubby is burning it down. Maybe I just appreciate the "fight" it is giving :0).

    image

  • rhgsr
    rhgsr Member Posts: 179

    I am loving this new song by Casting Crowns. I wanted to share it with you ladies just in case you might love it too ...

    http://m.youtube.com/watch?v=KxLoRuQiy1g

  • rmlulu
    rmlulu Member Posts: 1,501

    Candy - breathe, we are in your pocket {{{squeeze}}} sending calm love filled thoughts&prayers for tomorrow.  

    Book lady - :)))  you deserve the massage!  You and Candy are into the woods together.  Thankful that others here can guide and support you.  

    Holli- love the song and blog!  The story about the tree...might oak!  Glad results are good and you are slowly improving...fingers&toes crossed that you are able to have that surgery done before the years end.  Hug those kiddos :)

    Jen - is there room in that suitcase for one more...we'll pay the extra baggage fee!  Have a great time!

    Chaos&Kelsey - sending good vibes and prayers!

    Fingers&toes crossed that hubby's test come back negative and pic line can come out this week!

    Shout out to all!

    (((Hugs)))

    Cindy 

  • NY2TXbaby
    NY2TXbaby Member Posts: 113

    thank you Cindy! Just had a wonderful visit with Jeni - she was so incredible sweet to come by and bring me a few things but mostly she provided some much needed support. I think I will sleep better tonight after talking with her and her giving me the courage and strength to face tomorrow's chemo. I don't know how I will do - but she certainly helped to lessen my anxiety. Thank you Jeni!  Hope everyone is doing well -- hugs candy 

  • keepthefaith
    keepthefaith Member Posts: 856

    thinking of you today Candy~

    ((HUGS))

  • shewolfpg
    shewolfpg Member Posts: 73

    Hello everyone,

    Just wanted to do a quick check in. So far Taxol hasn't been too bad other than it feels like my whole body is going through growing pains.  At least with the other drugs it was three days with intense pain in my shoulder areas and then it would be over.  It was predictable.  This one is unpredictable.  One moment fine the next miserable.  Plus side not eating everything in sight like the last one.  Actually not as hungry.  Still eating of course.  Plus this one brings more nausea but I have been able to hold that at bay.  Still insomnia like the other drug though.  Plus side 3 more treatments and I will get to ring the bell.  December 3rd should be my last treatment.  I still have to make it through my 13 year olds b'day and her sisters 18th b'day.  Normally I do so much for their b'day but I will have to outsource it to a few people. 

    Hollie--I hope you get to have your surgery before the end of the year.  I love how you place your blog on here.  It is nice to keep up with you.

    NY2TXbaby--You got this Chemo thing. Honestly I am a HUGE wimp and so far I have survived.  I am sure you will as well.  Just make sure you take that Claritin. I know it helped with me.  It wasn't until the last chemo that I started not tasting food.  Kind of annoying as I LOVE FOOD.

    As for everyone else I hope you are doing well.  I promise I do read from here daily just have a hard time responding.  I do think of everyone here all the time.  You all give me the faith and courage to make it through this.  It has been hard.  And for some reason this last treatment really brought me down but I come on here and get cheered up and know I will make this through.

     

    Kelsey

     

  • rhgsr
    rhgsr Member Posts: 179

    Kelsey- 3 more left? You got this!! Taxol was awful for me. I had symptoms similar to what your describing. It all seems like a bad dream now.

    My oldest daughters birthday was right after my BMX. She turned 9. My hubby took her and two friends to the movies them they had cake at our house. Poor hubby sat through frozen with three 9 year olds that day!! LOL.  It wasn't a huge party but she got to do something special to mark her day. It all turned out just fine. 

    Candy - how are you hanging in there? Been thinking about you. 

    Love you ladies!!

    Holli

  • keepthefaith
    keepthefaith Member Posts: 856

    Cindy, hope hubbys' tests are all good!

    Holli, I hope you are feeling better and able to get off of the steroids soon. 

    Kelsey, good to hear from you! Isn't it amazing how strong we really are? Pretty soon you'll be looking at it in your rear view mirror; and you are already supporting others!:)

    Candy,  Keep us posted. I hope your first infusion was uneventful and boring!:) 

    Zelda, in your pockets tomorrow.  Praying that all goes well. Let us know if you need anything. 

    How are the rest of you doing? chaos, Linda, Jen', Vicki...

    I am ready to get outside and enjoy this wonderful weather before it's gone. I hope I can get a free day in, soon.

    ((HUGS))

    Terri

  • rmlulu
    rmlulu Member Posts: 1,501

    Candy - thinking of you :))) 

    Kelsey - good to hear from you :) sorry Taxol is so hard on you...but ready to hear that bell ring!  

    Holli - hope you are feeling stronger each day and the drop on steroid dosage goes well and quick.  Your blogs are beautiful.  

    Are kids just amazing! And hubby's!  Bday cakes! Movies...let is go!  Kuddos to DH :)))

    Jen - ah, you're such a thoughtful sweetie:)))

    Chaos - how are you doing?

    Zelda - in your pocket for surgery!

    Linda - how was that massage :)

    Vic - where are you headed for pics...

    Terri - hope you find time to play! GKs too!  Trick or treat...boo!

    Pups at doggy daycare...ah house cleaning day.  Hubby's test came back positive for the bacteria, but they are going to take out pic line tomorrow.  Meds can damage kidneys and he's had the max so we wait and see.

    Shouts out to all!

    (((Hugs)))

    Cindy

  • NY2TXbaby
    NY2TXbaby Member Posts: 113

    Cindy, holli, Terri, and Kelsey....and everyone else who has been thinking of you - thank you. Well I made it through first infusion. The cytoxen gave me a mega sinus like headache and they promised to slow the infusion down Next time. The afternoon consisted of naps and just feeling a little under the weather because of the headache. Went to work on Tuesday and was sluggish - but hung in there until 2:30 when I left to get the Nuelasta shot. Took my Claritin day before and last night plus Tylenol,and so far so good. The shot sure did perk me up and after a 2 hour nap - had a nice appetite. Pete has been so incredible - bringing me breakfast in bed every morning, running to the store and pharmacy to pick up all sorts of things to help me. My one SE that has been challenging is the constipation despite the 8-10 glasses of water and prunes and Mira Lax, etc. but that has been a life long battle. My colonoscopy revealed I have IBS and they have made a referral to see a specialist. But no sign of colon cancer! Yeah

    I wanted to share a tip for keeping mouth moist that my dental hygienist told me about - they are called xylimelts - they stick to the side of your gum and slowly melt and keep your mouth moist for a long period of time. Better than sucking on candy or chewing gum - you can even put them in when you sleep. They are not a prescription but a pharmacy usually will have to order them. So far they are great- along with all my Biotine products. Trying real hard not to experience any of the possible SE- to make this as painless as possible. 

    No I guess the next SE will be the hair loss - not looking forward to it but am prepared with 2 wigs and several scarves and 2 cute hosts - thanks to Jeni. I know the chemo is cumulative but I am still hoping and praying that it goes as well as this first one did. The nurses were all so upbeat and the infusion center was so pleasant - with private cubicles - and I even got a window to look out on the grass, trees and birds. And I received a very nice goodie Bo's filled with water, chap stick, socks, nutria grain bars and a puzzle book and pen. They were made up,and donated by prior patients and volunteers. Definitely something I plan to get on board with when I finish my treatment. I always find that giving back - even in small ways - makes me feel better.

    I hope everyone is doing well and has a wonderful week - as I lay here contemplating getting up and getting ready to head to work! I am wrestling with - bed vs. work, bed vs. work - I guess work will win out! LOL     Candy

  • rhgsr
    rhgsr Member Posts: 179

    candy - I'm so glad your experience went as well as it could go. Yes... Be sure to remind them to push and infuse everything as slowly as possible. I found it helped me that way. But they may need a reminder. Just let them know you are more comfortable that way. 

    Stay as hydrated as possible. I found that vitamin water was a good alternative for ME (every in is different ) to alternate between the water. The water made me feel water logged and didn't always taste good to me. Set a timer if you have to to be sure you are getting enough fluids. 

    Constipation sucks. That's the one thing that I cried over!! LOL!! I thought if I have to have cancer then just please let me be able to poop normal!! What about colace daily? (Ask your MO) Also, someone mentioned black strap molasses. But I never tried it. 

    Hang in there. You gotta make it past step one before you can get to step two. You re on your way.... We are here for you. 

    This is off topic... But those of you going through chemo that have an aerobic septic system .... Be sure to let your service company know that you are going through chemo. It totally messed up our septic system. 

    Holli

  • rhgsr
    rhgsr Member Posts: 179

    Kelsey- how are you doing? Is your dad back home ( I think you said he was ). How is he?

  • keepthefaith
    keepthefaith Member Posts: 856

    Candy, good to hear from you. You can try Biotene mouth rinse for dry mouth also. You can find it at Wal-mart. I ended up with Thrush, but supposedly pro-biotics and yogurt help with it...didn't work for me. Had to get a RX. So glad hubby is there to help! I took Senekot and Colace I think before I finally got moving...UGH. I feel for you, 

  • rmlulu
    rmlulu Member Posts: 1,501

    one4beme - how are you doing?  Sending healing thoughts.  Keep us posted!

    Candy - yeah, 1 down! Hope the week goes well for you...and work is easy...now where is that easy button.

    (((Hugs)))

    Cindy

  • vbishop
    vbishop Member Posts: 332

    Hi all -

    Swamped at work - bringing home stuff most nights and weekends, like today - so I've been incommunicado.  Sorry!  Trying to keep my stress level down, as stress is not our friend.  Mani-pedi last weekend helped.  Mayry a massage tomorrow (too busy today -boo).  Fortunately, photo shoots are slow right now.  We are shooting a small race up the street in a couple of weeks, the Georgetown turnkey trot on Thanksgiving, then we are part of the Rock and Roll San Antonio Marathon photo team in early December.  I think we have a couple of other holiday races lined up close to Christmas.  The crazy race photo season kicks in by mid-February through May, so we'll be swamped then.  Hubby promised to leave one weekend open a month just to give us a breather in the Spring.  How is everyone doing?

    Zelda - is home from the hospital (came home Wednesday) and her tummy is very sore.  I sent her a text recently to see how she's doing but I haven't heard back.  I will call if I don't hear anything in the next day or so.

    Holli - How are things?

    Linda, Kelsey, Candy - How are you holding up with the Chemo?

    Chaos - still on a chemo break?  

    Jen - I know you are having the time of your life in England!  Can't wait to hear stories and see pics.

    Terri - Thanks for the ride a few weeks ago!  It was fun.  Hoping to take Candy up on her advice and hit Salado again during the holidays.

    Cindy - the pup is precious and so full of energy.  Hope training is going well.  Praying for hubby!

    Did I leave anyone out?  I apologize if I did as it is not intentional!  Hoping to see all of you soon!  I promise to be over the mad phase....almost there!!