Any Texas Hill Country BC Warriors?
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Make sure everyone applies for the Casting for Recovery retreat in the spring. I am at the fall one right now. It has been great so far. Met 13 other great ladies plus the staff. Yesterday we learned to tie flies and today we learned to cast. Tomorrow is the big trip to the river. It is cold but bearable.
Thank you Cindy for mentioning this last year. I still read this thread even though I am an east texas girl.
I do have a grandson in Austin expecting a son in March, so may be coming to Austin somewhat regularly.
Keep your group growing and if things work out maybe I will be in town when you are having a get together.
Many hugs.
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Jeannie - yippee! Enjoy Casting For Recovery....maybe we will meet up at a future TWFF outing or the CFR retreat. Strip strip hookem
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The wedding and the venue, Rowton Castle!!
https://plus.google.com/photos/114548905958190217046/albums/6082046362036366049
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Hi ladies, I am always looking forward to reading your posts!
Vicki, I checked out the cabin website; looks awesome!
Cindy, safe travels and good luck with all of your testing, etc. I know you'll be glad when it's over. I hope Hunter does well on the flight. Will you be there for TG? Keep us posted.
Linda, congrats on your last up-coming AC TX. I hope you breeze through it!
Jen', thanks for sharing your adventure with us!
Jeannine, would love you to join us sometime! I do need to remember to apply for the Spring CFR.
I decorated my 4' Christmas tree as a TG tree this year. I am finding that I don't put off so many things any more...used to be-maybe next year. Funny how BC changes that mind-set:).
((HUGS))
Terri
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JBdayton - feel like we are related since I have family that lives so close to you. Glad you are having fun.
Jen - wish we could all really fit in your pocket. Loving the updates and pictures!!
CFR- I got chosen for this fall but had to turn it down because of my lung issues. They said they would put me back in the lottery for spring.
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Terri and Holli -
I just filled out the paperwork and submitted for the spring trip April 10. How fun if we all got selected? How fun if even one of us gets to go!
Will post later to check on everyone else. Wanted to let everyone know that there is another support site, www.mybcteam.com
It certainly is not near as robust as bc.org as far as specific topics, moderators, medial staff....but it is a great way to find women in our area, connect, and share. Needless to say, I joined just now and have already found lots of women in Central Texas. In my profile I mention this thread and the wonderful, supportive women here. Don't be surprised if our numbers grow as word of our awesomeness gets out. If we keep growing, we will need to become our own 501C!
Can't wait to see everyone again soon!
Jeni - the castle looks amazing, you looked stunning in your blue shawl and orange hat - love!! Love the pics. We are having a great time, I can tell!!
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Hey all!
Stopping in the check on everyone!
Candy, Kelsey, Linda - how are you holding up with chemo? Prayers and healing thoughts your way!
Cindy - have a great trip! Fingers and toes crossed that your follow-up testing brings good results. How did Hunter do on the plane?
Terri - Glad you like!d the cabins. They are definitely a spot we need to go to. However, maybe a little more central for our first weekend get together - I'll check out spots in Bastrop and possibly New Braunfels. Regardless, it will be a great time!!
Jeni - Can't wait to hear your stories first hand!
Holli - hope you continue to get better and are closer to getting off the steroids
Chaos - hope recovery is going well! Hope to meet you soon!
jbdayton - let us know when you are in the area. We may need to plan a get together just to celebrate you being in town!! Hope your day at the river was a blast!!
Hugs! Happy thoughts! Nice warm relaxing bath! Whatever it takes to help you feel relaxed and ready to take on the day!
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https://www.youtube.com/watch?v=ifCWN5pJGIE
My favorite Christmas song. I know it's early, but this song is so beautiful any time of year.
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I LOVE Christmas music. I drive my family nuts. That's a great song. My fav is Oh Holy Night.
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Oh Holy Night is a great one as well. I normally don't start until after Thanksgiving, but with all the Christmas stuff up already...and the cold...it just feels right
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Hey everyone!
I just got back from the ER over the weekend I developed a seroma under my arm where the lymph node was taken... I had swelling the size of a golf ball or larger visible and when they did an ultrasound it was actually more like the size of a large orange or grapefruit! So they aspirated it and got over 60cc of fluid- no infection do that was good and relieved pressure gave me some pain meds and sent me on my way!
Seromas are supposedly very rare. Doc said it only happens in a third of all cases and usually they are small enough that your body reabsorbs the fluid over time and no further action is needed... to have one the size mine was is even rarer! Let me tell you this is one lady who is tired of beating the odds so much it at least the ones that don't work in my favor!
I had heard about casting for recovery and have shared the program with a few others but I myself am way to impatient to fish... someone would have to be under water throwing fish on my hooks lol
Hope everyone is doing well and staying warm! I'm going to go pass out!!
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Chaosrain- Sorry you have had such a rough time. Hope you are feeling better. Glad you have not lost your sense of humor!!!!
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Hi y'all!
Chaos - ah, glad you are home and doing better. Sometimes it feels like we beat all the odds...time for lottery ticket or Vegas.
Please sign up for Casting for Recovery it is an amazing gift, retreat, me time that is very healing. Never been a fish person, but it is so much more than learning to fly fish...it's the connection, women, nature, stream, just being in the moment...the lures are artsie fun, food too yummy, guides sneaks the fish on line when you are not looking and takes off like the goldfish at the carnival, conversation and group support questions, and bonfire s'mores heaven, accommodations deluxe, just trying something new and seeing others 3, 5, 15 years out living life large...it is worth putting your name in the lottery
)) fingers&toes crossed you win!Jeni - I'm so enjoying our trip with you..lke do pics coming...fun wedding:)
O Holy Night is my favorite too! LIKE Button! my family is relieved that I gave my piano to a GF to hard on it to move across country...holidays come and I get out the Christmas music and play&sing everyday:)))
Finish cleaning a sandy dirty house now off for food. Hunter does not appreciate all the gardners a country dog! Flew like a pro...but mama had separation anxiety...and now a pup shadow.
Shout out to all
(((Hugs)))
Cindy
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anyone go to this? They are supposed to talk about chemo brain.
Our South Austin Support Group will meet TUESDAY, NOVEMBER 18th, from 6-7:30 at 621 Radam Lane, Suite 200. Please RSVP by responding to this email.
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Nap time...zzzz
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Holli - maybe Terri will go with you! Chemo brain is issue...share what you glean.
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Holli, I may have gone if I had know about it on time...sounds interesting~ did you go?
Cindy, the boys have it "ruff", don't they?:) I hope all of your testing is going well.
Chaos, good to hear from you. Sorry you are having such a hard time.
Signed up for CFR Spring also. Hoping at least one of us gets in.
Colonoscopy tomorrow....UGH. Fasting today. I didn't see white wine on the list of clear liquids....what's up with that?
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Ruff, Ruff!
Terri - looks clear to me
a sip or 3. Fingers&toes crossed for your test&results. I had polyps so back end hee hee 3 years. Hope you win CFR lottery for Spring. Last weekend was the coldest ever for CFR in TX. Yeah, Orvis provides warm gear.1 down more to go...today got fitted for compression bra sleeve..ah, the new one feels so much better than my very well worn ones. Off to doggy park...looking for playmate.
Chaos, Holli, Jeni, Vic, Candy, one4, shout out to y'all!
(((Hugs)))
Cindy
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Terri - now, you can have that glass of wine! Congrats you did it fingers&toes crossed for results...whee squeaky clean:)))
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thanks Cindy!!! Checking something else off of my list:). I hope your tests are going well. Had a few small polyps...hopefully everything is fine.
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just wanted to pop in to let you know my friend and i were not near the explosion in London. The Hyatt Regency is waaay to posh for us!
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Jeni - Thanks for checking in and so
)) you are safe and having fun! Safe Travels!0 -
Here is my blog post on chemo brain.
Hope everyone is having a great weekend.
Jenny - keep having fun. But please stay safe girl!!
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Is chemo brain real? Many physicians didnt think so (especially prior to 1995). However they ( those scientists ) started researching this in 1995. I went to a Breast Cancer support group in souh Austin Tuesday evening. It was definitely a feat getting there. I was fortunate to be able to make an appt. for a counseling session for the girls a few hours before the meeting. I hate heading all the way up there unless I can accomplish several things at once. So after picking up Rhett from MDO, I headed to Austin (mind you I had already gone to physical therapy, had my second and sadly final free session with a personal trainer at the gym - thanks again mom for the membetship, and put in several hours of school time with the girls). I was pooped but I was really interested in the speaker.
I had been wanting to attend this group for a while. My main reason to go was the topic of "chemo brain". Unfortunately, I didn't feel like the group was the right "fit" for me (especially with the sacrifices i have to make to get there regularly) but again, I went this time for the speaker.
Her name was Ashley Hennegan, RN, BSN, MSN. She is a doctoral student of nursing at UT studying the effects of cancer treatments (primarily breast) on the brain and this elusive syndrome called "chemo brain" which she referred to as "Cancer Related Cognitive Dysfunction". That sounds so much better than "chemo brain". Sounds like a real side effect. The medical community is finally acknowledging that it is.
Initially it was thought to occur in only those patients who received chemo. And even at that, many physicians did not believe that chemo drugs used for breast cancer crossed the blood brain barrier.
They now know that some do. Doxorubicin is one of the chemo drugs that they know for sure crosses the blood/brain barrier. So of course I have to look it up (don't google, don't google... Aw man, I googled!) The trade name of doxorubicin is Adriamycin. The "A" in the "AC" portion of my first 4 chemo treatments. Also known by chemo patients as "the red devil". Lovely, right?
Any-who... Their studies have brought up even more interesting tidbits. 30% of patients complain of "chemo brain" symptoms at the time of diagnosis/surgery. In others words, before treatments such as chemo or radiation even start. The thought behind this is that the cancer itself (which causes a massive inflammatory response in the body ) may contribute to the "chemo brain". The areas of the brain most affected are the pre-frontal cortex (which controls executive functioning like learning new things, multitasking, flexibility,etc) and the Hipocampus (which controls memory and emotions).
There is so much more to this syndrome. But my thumb is tired from typing and I'm sure your eyes are fatigued from reading all this. Just remember the next time you ask me a question and I can't find the right word or if I have to ask you your name .... again; be kind and know that I can't help it.
Love to you all!! More health updates coming soon. I am still weaning off the steroids and still experiencing shortness of breath and pain. But I had more good days then bad last week and for that I am truly grateful!!
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Jen', glad all is good with you!
Holli, I hope you can get off of the steroids soon!
How is everyone else doing? Check in when you can~
What are your plans for TG?
Enjoying this beautiful weather.
((HUGS))
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Terri - Love the new picture. Looks like being a new grandma again is doing good for you.
Holli- So glad the medical community is realizing there is such a thing as Chemo Brain. My brain doesn't function the first few days after chemo. Can't wait to get my brain back.
Jen- Glad you are enjoying your trip and are staying safe. I have a friend that currently lives over there. In fact that is where she met her hubby many years ago and they are now stationed back there. Enjoy it while you can.
Cindy- Boy do they look relaxed. I miss being able to just find a place to sleep. One day I may sleep fully again.
I keep seeing this CFR thing posted can someone send me the link again? It would be nice to be chosen. I know the family and I really need a vacation.
Update on me. I have one Chemo session left. December 3rd should be the last one. Bone pain has been a HUGE pain in the butt. What I thought was bone pain with the last chemo drug sure isn't the pain I have now. It luckily just lasts from Fridays through Tuesdays after a Wednesday Chemo. Sucks for the hubby though as I always feel better when he has to go back to work. But on my good weeks I have been keeping myself busy. Working on some Christmas projects as well as a large wreath for the Oncology department as a Thank you gift on my last day. I can't wait to ring that bell. Last two chemo treatments have been emotionally and physically hard on me and I just have to keep telling myself that I am almost done. Almost done. My Medical oncologist is going to get together with the radio oncologist to make sure about radiation. The MC believes I wont need it after all. Lets cross fingers that I wont. I do want to start reconstruction but I think I am going to give myself a few months. I am so sick and tired of being poked and prodded. I need a break. I am sure a lot of you felt that way. But I think the one thing I am looking forward to the most out of all this once chemo is done is taking out the port. It is really really starting to bug me. I feel that once the excess skin sagged it pulled super tight over the port. It is all pokey and stuff. I can't wait for it to be gone.
Okay done blabbing for now. Thank you all for posting often for me. It gives me a chance to see that there is a light at the end of all this.
Kelsey
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Kelsey,
Good to hear from you! Thanks for the compliment on the picture. It feels good to have a "real" hair-do and something I can actually mess with instead of just getting it wet and hoping for the best! I had my first chemo one year ago, on the same day you are having your last! I hope things go well and your pain subsides. I know what you mean about taking a break from the Dr appts. It is a lot to deal with all at once. You have had a lot more infusions than I had and I had to give myself a pep talk, often. For me, getting "de-ported" was a symbol of being done with the chemo phase. It was nice to get it out of the way. Keep up the good work. You can do it!!!
I hope you all have a Happy and Safe Thanksgiving with those you love.
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Happy Thanksgivng!
Count y'all blessings...:)))
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Trying to tire out the pup for Thanksgiving...
Hope y'all have a very blessed day!
(((Hugs)))
Cindy
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Happy Thanksgiving! I hope you all are able to spend it with friends and family, and that you know that I am thankful for you.
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I've still got a ton of photos to sort- but here is Oxford: https://plus.google.com/114548905958190217046/posts/fj1wZeCa7xJ
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