HomeMom - sorry to hear that, but I so get you about the PTSD and the treatment room. I go for monthly Lupron shots now, but when I first re-entered that room after treatment was done, I swear I almost passed out. They should at least warn us!
I think any possible % of staving off is worth a shot if the ses are doable.
Woot woot made it !!!
10 yrs thank you Cheryl !!!
I really appreciate seeing all if the encouraging posts. I am a newbie who finally has her plan but am admittedly scared.
I met with MO yesterday and I have my treatment plan. After being told that my cancer is not acting typically and that it is a shit cancer (my father, husband, and myself appreciate his candor) in that it is too small ( 11 mm and 2 mm in my axillary region) to normally have infected all four of my sentinel nodes (three with my macromets and one with micromets) he postulated that it has been spitting out cancer to the lymph nodes for a while. His main concern Is that it is grade 3/3 (UK terms as he was originally trained there).
He then went on to discuss everything including my 10 year survival broken down by doing nothing then by adding each and every treatment. He discussed how I was ER+ and how and where estrogen is made. Then he stated that my high PR+ was probably the thing that will save my life. Which is why my treatment plan looks like the following:
Zoladex injection every three months to put me into menopause likely this upcoming week (he did tell me dad and husband I might be a wee bit cranky 😀). I have to wait a week after the injection to receive my chemo
Three cycles of FEC (fluoruracil/epirubicin(otherwise know as adriamycin)/cyclophosphamide). One infusion every three weeks
Three cycles of docetaxal (taxotere)
He also wants me in an exercise clinical trial during chemo as I am already acting and am hoping to remain active during treatment.
Then the radiation will start after chemo and so will the tamoxifen until I get my ovaries removed and then I will be on AIs.
He would also like me to receive zolendronate when I start receiving my Tamoxifen.
Needless to say I am very nervous as I want to be able to complete all the treatments and have a good response toincrease my chances of survival.
Hugs and love to everyone going through this.
Hi all, I was 10 years out on July 31, 2019. Onco suggests to get off of Arimedex, am too scared to do it. I wonder where I can get a cheap pet scan to just look over everything!! Any suggestions???
congrats dood! I don't think there's such a thing as cheap pet scan. They don't just do scans. You have to show symptoms. Talk to your mo about ways to reduce chances to progress like diet and exercise.
I have been thinking about this a lot. Maybe you can ask for a CTC test (Circulating Tumour Cell)? Then if you have no CTCs, you may feel reassured to get off the AI. On the other hand if you do have CTCs then that might just scare the bejesus out of you, so it's a damned if you do/damned if you don't scenario. I am hoping by the time I come up to 10 years there will be a test I can take, something that lets you know if the AI is still working. With my diagnosis I should probably be on Femara until my bones collapse, but I feel and look 20 years older than I am on this drug, and I can't wait to get off it.
10 years here! Don’t post or visit that often but we are still here!
10 years here! Don’t post or visit the site much but we are still out there!
thank you @kim40 for coming back to share this milestone . Cheers to many more years
Tnx for coming back! Gives hope
wonderful news. thanks for posting kim40.
hello I have been diagnosed with stage 3 IDC almost through with chemo AC+ T I was wondering if you share with us what you did after treatment that you think helped with surviving this long
Hello realised you're er+ but was not put on hormonal therapy. I'm about to complete chemo I will do rads to my doctor is talking about hormonal treatment but I'm not sure about that. Can you share with us what you think you did after treatment in terms on diet you think helped with beating the disease for this long?
hii! What treatments did you undergo
hi! What chemo did u undergo and what food did u eat
So after thinking about my big 10 year milestone coming up several times over the last few weeks, I finally hit it on Saturday and.....I forgot. When I was first diagnosed I was so shocked by the people many years out who didn't remember every detail of their diagnoses anymore, and didn't think I could ever forget a single thing about mine. The date 11/9 kept catching my eye that day, but it wasn't until last night that I remembered why. So here I am, 2 days late, to finally post on the thread I so aspired to!
Nice to "see" you again kim40!
Love to all!
So happy that you forgot for 2 days. That is a big high 5, I truly pray for that day as some days Im not sure Im going to make it to the next. The letrozole they have me on is giving me fits most days with bone pain
Hi You all!! Tada.... I made it . Each year came back to post on the five year thread but this year I get to join this amazing group . Ten years ago I got to check off all the great boxes ( cancer, stage 3 , grade 3 positive nodes etc etc) the five year thread was the first reality check . People really do survive ? That thread saved me from the dark thoughts . So to those just starting the craziness of appointments , chemo and all the other cancer related stuff, Here we are the stage three folks ten years and beyond. So happy to plant myself here and I will aggravate you all once a year to sy hi . Thank you to the many who post here and thank you for sharing. Your stories ten years ago saved me from myself. Love to you all.
God Bless you
Just had my 13 year anniversary of diagnosis on Saturday (11/9). Other than dealing with lymphedema my life feels pretty normal. Whatever that is! 😜
Congrats to all the 10+ anniversaries!
Can you share with us what you did after treatment that helped?
can you share with us what you think contributed to BED after treatment?
sorry I meant NED
Amen I tap into your blessings
wow I am so encouraged I have 21/22 nodes
I just wanted to say thanks to all the ladies that keep coming back here to post. It really helps those of us in the earlier stages to hang in there. I'm coming up to my 3 year cancerversary and I'm having a wobbly time at the moment with aches and pains from Femara and my body just not keeping pace with my mind and my life. So thank you. I keep coming back here and your messages give me hope. Keep posting ladies. Love to you all.
hi! my mom just got diagnosed with stage 3b breast cancer, er pos and her2 pos. can any of the survivors here share a piece of advice when it comes to diet and lifestyle for her chance of survival to increase?