STEAM ROOM FOR ANGER
Comments
-
Bump
0 -
This definitely sums up our lives..................................
0 -
Dear NGD54 - I am on oncologist #5 - !!!! - and finally have one that is the most supportive and loving I could want - I beat myself up for 2 1/2 years because I couldn't get along with the docs and was always angry because of issues you mention in your post. Not only is my current onc completely there for me - I believe she is an excellent physician and I trust her. And believe me too when I say sometimes I am the patient from hell - and still she is there. So keep trying - go out of town if you have to but don't give up - having the right treatment team makes all the difference in the world. I wish I knew about this topic when I was going through angst about tx providers - I still have a good rant or two in me, but that is for another time. Hang in there - you deserve to be treated with love, dignity and respect. Susie
0 -
MO says see the BS for follow up, family Dr says see the BS for follow up...I call the BS and the receptionist says "why are you seeing the BS? Did she ask to see you?". No...but I'm asking!!! I have a huge honking lump/cyst in my good boob (I can see it when I lay down) and the bad boob is 4 months post rads and tightening up like a Tupperware bowl...(I have existing implants) along with 2 other complex cysts that are supposed to be being watched.I just want a proper investigation, a clear mammo...yes, I can handle the squeeze...but I can't handle feeling bounced. If cysts and BC are estrogen fed...is the tamoxifen not working
0 -
jj. So did the receptionist make the appointment?
0 -
Appt is today....hoping it goes better than I am expecting!!
0 -
Sas, that Dr. Seuss poem is perfect....sums it up for me too, especially lately.
Hugs to all of us who suffer fools (some doctors and relatives/friends as well) and who continue to plod along despite our lives being turned upside down by this evil disease. Next week the country will be awash in pink and I will be quietly gagging on it all.
My real rant is this...YES, I was lucky to be diagnosed with "only" DCIS...but, still had to have surgery (twice in 3 weeks) and radiation and take an AI which is brutal. Cut, burn and poison...the usual "treatment" for BC. To those of you who say "You didn't have "REAL" cancer, I say this - KMA! It was real enough to me and to all of my DCIS sisters.
Thanks for letting me get that off my chest. Now back to your normally scheduled lives.
0 -
April I so hear you. If we didn't have cancer why would they do surgery on us, plus treatment.
Since dx everyday is breast cancer awareness day. Sigh
Hugs all
0 -
I hear you too, after six surgeries it's hard to feel lucky. A pretty radical solution if it wasn't much of a problem in the first place. Of course I do understand there are many women who have faced, and continue to face far worse than anything I have, it's just difficult sometimes when people trivialize what I've been through
0 -
New Year's Resolution -- stay out of the OR [operating room]. I was successful last year.
0 -
Finally found a place for my rant!!! Thanks
Of the five people that I informed about my diagnosis; two being my parents and three of them very close friends for 5+ years, all five of them are reacting in very different ways. This is natural but at times VERY annoying when I have come to terms with the fact that I have cancer, Im ready to fight now
I find my self giving them pep talks about my cancer, Its really annoying. Its robs me of the positive energy that I have been harnessing for myself for the past week since my diagnosis. Granted I cried like a baby to my mom when I first found out. But I pulled myself out of that mood with my health providers helping me understand that this is not final, in the slightest.
I wish I would have waited until I had my surgery date and treatment planned out and then told people.
I hate getting too many phone calls unless its from my MO, Breast Surgeon or Nurse Navigator with information.
Its like having to relive the day I found out all over again.
Most people say..
"I dont know how your doing it, I would be in a corner crying..." (Is there any comfort in that...really?)
Even my PCP said "Well if I were you, I would just get a mastectomy and that way I wont have to deal with cancer at all". (I'm thinking, your a completed idiot.)
"Are you okay" ( This one I understand, but don't ask me a million times. My mood changes just like any human.)
I regret telling people, really
A close friend of mine told a prof/personal mentor that we both had in college, did she even ask me? Are you the cancer patient or am I ? People try to help and instead become annoying.
0 -
My friends here. Scuttlers posted this and it's just to good to miss. It's all the bonehead comments in one place.
5 hours ago scuttlers wrote:
2 hours ago scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!
0 -
Jinx, This definitely goes along with what you said. I also put in the same box Scuttlers comment on how she was going to use the bingo card. sassy
0 -
oMG! That is perfect. I am printing it out
0 -
Just saved the bingo card! Priceless!!!!
0 -
sas-schatzi wrote:
Cheerleading for BCO. They are our home, our resource, we gain so much by being here. They have costs. Let's help.
They make periodic requests by email. They're is the donation link in the header. An easy way for those that do online banking is to set up a donation on a predictable basis.
We need to do this. They take care of us. Let's make sure we take care of them.
You don't have to send a check. Do it simply in your online banking. But if you are still stuck on checks.........
To donate by mail, please send your check payable to Breastcancer.org to:
120 E. Lancaster Avenue | Suite 201 | Ardmore, PA 19003link to BCO Our biggest advocate
https://community.breastcancer.org/forum/110/topic/834331?page=1
Link to the mainboard donation page
0 -
Wow Sas! Thank you so much for the support -- we really, really appreciate it!!!
(Just a note, our office recently moved, so we updated your post to reflect the new address -- the update will be sitewide soon!)
Thanks again!!!
0 -
I am really angry with people who believe "disability" is their profession. People, daily, who parade that "permanently and severely disabled" label when they can obviously write, can obviously stand up for themselves against a bureaucracy to successfully get their wish, but who got certified and now parade it around like its a privilege for people to be picking up dog crap or driving uber or manning the takeout lane to be supporting multiple-degreed orators. Same with the guy who drives and walks dozens of miles to some beach and fishes in his waders, pulls motors and tries to deal pot for cash. He's got a heart valve condition obviously under control and some mental whatever that he doesn't have to overcome now that he needn't get a job.
Your 5150 in 1998,88, whatever does not entitle you to 20 years of vacation. I see it with these professionally disabled all the time. I get up. I go to work. Headache, backache, psych. We go. If I'm able to a) be mobile and b) able enough to comprise this not beautifully written post, I will be getting back to work as soon as that happens. II have to do it until 2032 and it floors me that there are people out there who are not retirement age and could work but would rather have me pay for them.
0 -
Pinktober Revoultion is running pretty hot. If your anger or thought are about pinking and pinkwashing here's the link
https://community.breastcancer.org/forum/102/topic/791442?page=78#idx_2338
Other post it here.......................
0 -
Sassy, all this pink, I need a who cares button. I'm pretty aware already. Maybe going for a bone scan, blood labs, cardiology appointment, CT, and oncologist appointment reminded me. While I wait for all the results, I can look at all the "pink". I'm going to barf, either it's the pink overload or the waiting!!!!! Or the usual, the fear of hearing "it's back". Not sure what would be more disturbing to hear "you have breast cancer" or it's back". Oh crap I have breast cancer, so the odds suck it. Guess I am 50%.
I was so hoping to leave my butt kicking cancer killing boots behind...............so game on again, I will post the results!! Better be STABLE!!
0 -
fingers crossed for good results Beach x
0 -
blondedoris, THANK YOU!!!!!!! Cheryl
0 -
(((minivan))) Just a hug...my brother was a big problem for my Mom and she was there all of the time and healthy and able to do what was needed. Still he was in trouble with cops etc. Not your fault. Remember that.
0 -
Bump for a vent. Only place you're encouraged to drop a vent then leave for a healthier place
0 -
why do some people make my blood boil? Why can't I just let it go? Not in my real life...well not in my current proximity...just on the boards. I loathe her. And I can't understand why others don't see what she's really all about---herself! Grr
0 -
Okay Kjones, look at the topic box. Decide if you want to confront her. The rules on this thread say confrontation is allowable.
The Mods have read the thread rules. They didn't negate them. What they asked only was that political stuff go to another thread.
I did this thread b/c confrontation wasn't allowed on another thread. We have to have a free space to say to someone "I don't like what you are saying."
Confrontation has fallout. But it also can resolve an issue. I wish I had a venue to resolve a stalking issue in the past. This venue would have allowed me to say "cut it out".
0 -
oh she knows sas. I was pretty clear about it on another thread. I have blocked her, but I will unblock to see what she says on a thread I commented on. i did sit back and watch her posts for about 6 months or so and it led me to look at other threads and other conversations...she claims to be bullied al the time, but I have dropped my jaw more than once at her responses...especially toward people with different view points. Blah blah blah
0 -
A lot of us know who you're talking about Kjones13. I've blocked her too. All I can say is do your best to stay away from the threads she's on.......... Read up on passive/aggressive behaviour and you'll understand you will never get through to someone like that..........they cannot stop thinking of how wronged they are to even hear another's point of view.
Focus on the good things in life and on those who support you and are positive in your life and move to another thread - I'm off now......
Always thinking about and sending good and loving thoughts to all my sisters - EVERY ONE!!!!
0 -
Kjones, sending you a pm.
0 -
good advice goodprognosis. I know better. I got to hold my friends new born baby today! It was a great day! Thanks for letting me vent
0
