STEAM ROOM FOR ANGER
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Well, it's the polycyclic aromatic hydrocarbons(PAH)--the char, smoke from fires, smoking. (as I puff away) On this weight thread I did, I was doing some divergent, but related study on the microbiome and happened on all this stuff that I didn't want to know. If you want to read , please, start from the beginning. If not ignore LOL. AND yes the PAH's have been found in breast tissue as well as many other places in the body. Same with bacteria.
Italychick It is so true about margarine. In the 70's when American Heart Association was pushing the switch to margarine from butter. I stuck with butter. I figured margarine was manmade and only made/invented early in the 1900's. I was sure they would find something wrong with it. Butter is thousands and thousands of years old. Better track record.
Kathy yes, moderation. except for my wine and cigs. (I'm bad).
https://community.breastcancer.org/forum/73/topics/832722?page=1
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I truly believe that a virus(s) can cause some cancers. The blaming the patient game has got to stop and the biggest offenders are physicians. Until there is hard, and I mean hard evidence where something has been studied ad nauseaum, then mouths and breaking news needs to remain silent.
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Kathy, here's some of the virus related cancers
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I have similar thought Kathy. Hard science versus talking heads, has made connections between weight and the Microbiome. Yet it hasn't been incorporated into the doc vernacular yet. My guess it's going to be 5-10years. May be pushed sooner b/c this blame the victim is pissing allot of people off.
The meat thing is in question partially for me b/c I have studied the PAH's, but I haven't studied the nitrates. The polycyclic aromatic hydrocarbons have been heavily studied and reproduced in subsequent studies. How PAH's relate to meat is the char. the char created in the cooking of meat is a carcinogen. The smoke created from the burning of wood is a carcinogen. So why isn't the public told more of these. What's that?
Why isn't the public told of a diary industry here in the USA that allows pregnant cows to be milked all the way through their pregnancies. This allows high levels of estrogen to enter the milk supply. Other countries prohibit importation of milk from the USA b/c of this. What's odd is the first reading of this highlighted that in Nepal, the Sherpa's had more sense to not milk their cows after the 2nd trimester. What's that?
The national problem of antibiotic resistance bacteria killing thousands. This year the push begins to stop overuse of antibx's with patients and prohibiting the use in animal feed. When the connection has been known for years, that it was feeding the superbug problem. Our immune systems are damaged daily b/c of these two problems 1. overuse 2.through the food chain. What's that?
Why isn't there more of a push to triple the efforts re: identification of symbiotic bacteria that live throughout our bodies? (quick definition-symbiosis living in mutual harmony). What does it mean when a bacteria that has harmoniously lived in a person's body for undocumented number of years and then surgery occurs. Disrupting the harmony and the bacteria becomes pathogenic. Is it really pathogenic(causing illness)? The danger here is because we don't have an answer, is patients can be subjected too months of high powered antibiotics. Those high powered antibiotics damaging the immune system. Did the patient die b/c of the bacteria or the treatment? What's this?
We read the members tag lines when available. We listen to each other about our lifestyles. We know it's a crapshoot.
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cp418 started this thread on the meat issue. ChiSandy and Downdog had two really good posts.
https://community.breastcancer.org/forum/73/topics/836119?page=1#post_4537243
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***SCREAM!!!!!!!***
%~+~~,+%,~~}~}}?,,,, d!!!!!!!
Ok. I feel a tad better.
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For the first time since dx almost 8 years ago B12 dropped - solution from PCP - eat some red meat!!!!! I love my PCP!!!
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Arghhhhhhhhhhh! Some days, I feel as though I am speaking in a foreign language to my clients. They just don't freeking listen! Ok, rant over. Thanks...I needed that. xo
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XO
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Why can't they get the f---- paperwork right!!! If the oncologist's admin would just DO what I told her!! In her defense she almost did. It was close. But then when I call and e-mail today to try and fix it no one gets back to me. Arrrggghhh. The worst thing about healthcare is the paperwork.
As a result I'm going to spend 90 [extra] minutes in the waiting room tomorrow. Sigh. Double sigh. And I ALMOST had it set up to go as smooth as a baby's bottom. Guess I'll bring a good book.
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OMG!!!! Teenagers!!!!! OY!!!!!! 17g, 14b and they are driving me insane lately! Mouth. That damn mouth always has to be runnin back. Grrrrrrr!!!!! They've been pretty good helping since dx but good lord! My patience and tolerance level is soooooo low right now! Ones cleaning the kitchen/making tea, and the other is tending to the litter boxes. IN SILENCE! Then it's off to bed with them!
Ahhhhh!! That feels better.
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Haha! I was the last to post and I about to dump more here.
Lost a dear friend last week. Not to death, just lost the friendship and I'm so pissed and hurt. Almost 3 yrs of talking everyday and he suddenly went ape chit on me for texting too much one day, asking if he was mad at me (he obviously was), and unspoken expectations he thinks I put on him regarding text reply time O.o
I called him on some of his BS. He has a lot going on and I really don't think it had to do with texts alone. We've always tested each other, daily. Randomly. He would text me. I would text him. Bla bla bla.
So many thing said over the course and now I feel like it was all lies. I'm here for you always, anytime, day or night. Yea. Whatever. Signing off with I love you's.
So many laughs. So many random conversations. So much said. And suddenly I'm a villain and the worst person ever. I don't understand how even a friend can be lost because of a disagreement. It escalated way further than it should have. We both played a part in that. I'll own that. I'll even own leaning on him more this past month or so. And seeing it as more than what was at the surface, I'll own that too. But I refuse to take accountability for the whole thing. No. It takes two to go back and forth. Some of the things he said were unnecessary and very hurtful. I hate it when people stab with their words cause they're mad. I don't like to argue and fight, I'd much rather discuss. But whew did he fly off the handle.
Says I've hurt his feeling before. So, why didn't you say something then? Why wait, months, to bring it up? It festers when you let it sit. And then.....
I'm missing him. Missing our friendship, our talks, our random texts. Bleh. FRB has caused a lot of friends to walk away. Frustrating.
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Simplicity, hugs, be patient, time may heal.
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Simplicity, even the best people can be assholes sometimes. Early on in treatment, my husband, who is mostly a saint and has been there for me through everything, got all amped up and started yelling at me. I said well maybe I won't be here next year for you to have to put up with. Yeah, not my proudest moment. Give him a day or two, and then reach out
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Italychick, I'm ashamed to say (well, not really!) I said the same thing to my husband a while back. He didn't exactly yell, but was all weird one day, acting like he didn't hear me when I said something .. off somewhere in his own world. Some of you may know how that goes. I think we just need more TLC during all of this. Too bad we don't always get that. Seems to make things even harder.
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Just sending some hugs and understanding Simplicity. It is always hard when we feel betrayed by someone we thought we knew better than most anyone - someone close. I would be devastated if I lost either of my two best friends. Be kind to yourself. He may come around when he realizes how much he misses the friendship. He could just be going through something of his own perhaps? Not excusing him, just trying to add some levity.
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Thanks Ladies.
Aha April. So funny that you say that. He has a LOT going on, but according to him, that has nothing to do with it. It's all about me texting him, asking if he was ok and if he was pissed, since he wasn't replying. Idk. What I hate is the fact that this is weighing so heavy on my mind. I look back on the past 2.5-3 yrs...it just makes no sense. I'll own texting him 3 x in 9 hrs, I'll own wondering if he was okay and if he was pissed. No problem. I cannot, however, take accountability for the whole thing blowing up. I won't. I looked over the conversations at least 5 times. I just don't see me as the only participant.
Argh. Humaning is hard sometimes
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Simplicity, give it time to play out..............a couple of weeks
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I want to be DONE with hormone therapy. I want to feel good again.
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Thanks Sas. I need to get my brain to move forward.
Meow, I am not there yet, so I cannot imagine. I have heard terrible things about hormonal therapy. Not looking forward to starting
Thanks everyone for listening and replying.
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Simplicity mayb he was having a bad day. Give it a break..then text and say, I miss u no bodh puts me in my place like u (or something like that)
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i hate how everyone thinks I'm all better and the cancer is gone and will never come back. I hate how people are annoyed that I am not OK. I hate how everyone wants me to make them feel better so they can be happy. I don't want sympathy, I want understanding. I feel so lost and scared and angry.
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Me too14: oh my, how hard and scary this must be for you. I don't think those that have not gone through it can understand that fear that is always there. I'm sorry you are going through this and at a young age. It is not fair this happened to you but we have to deal with things as they are. Are there any support groups in your area? Take care, people here understand, and some have some good advice .
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Thanks for being here! I'm sick of being treated as fragile, week, slow - I'm not and I go at my own pace and do pretty damn good! Being together as a family is starting to get to me! Know they love me, but I feel dismissed not protecte
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BookLady, I had a family member who tried to get me to not do some of the family activities for fear I would get too tired and that would be bad for me. I had to tell them that while I appreciated their desire to take care of me, being left out was much worse than being tired. I know when I need to take a break.
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Shetland, that's it, exactly! My DH has walked a fine line when I get angry if he doesn't help me and angry when he does. Why can't he read my mind?? (Ha) guess it's time for another Cancer Chat to clear this up. Good for you setting your family member straight. Thanks ✌️❤️Linda.
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Funny how people are. I feel like I was almost neglected through the entire process because my husband had heart problems and surgery at the same time, plus I have kept working so everyone assumes I am fine. In reality I feel almost a loss of innocence accompanied by sadness
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ORKnitter, I know how you feel. I kept all my troubles to myself, worked through everything, exercised, kept grandkids, etc. Now what I hear all the time is how strong I was, and how easy I breezed through everything. It was chemo, folks, there was no EASY! And I have no way of knowing what long term side effects I may experience. Let me give you just one day of how messed up my guts were, the days I was so swollen no shoes would fit on my feet. Or how it felt to lose my hair, washing and combing it and having a chunk come out on top of my head resulting in a huge bald spot in one second, and then spending five months looking like a bald old man. And now the wait for it to grow bCk to a decent length. Or how bad my feet and hands burned. And how I felt when my eyebrows and eyelashes fell out. An almost instant 20 pound weight gain. And how everything tasted like burnt cardboard. And how panicked I felt getting stung by a bee and having to take antibiotics just in case my body couldn't fight it off. Or dealing with sores on my head from hair loss. And panicking every time they did my bloodwork. And the allergic reaction at my first chemo treatment where they had to stop it and give me Benadryl and hope they could continue. Or the day I laid in bed with my guts burning in agony while my family, grandkids, brother, etc. went and had a nice day at the beach. Or the terror of waiting on bone scan and pet scan results, waiting to see if I was really a stage 4. I'd like the people who said chemo was easy to just go through one day of what happens during chemo, then see how easy they say it is.
Yeah, I guess it was easy...not!
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My rant is about other patients in the chemo room who want to play diagnosis trumps...an older fella struck up a convo with me saying how bad his liver cancer is, and how his treatment has it under control and the lesions no longer show on the scans. He then couldn't wrap his head around me being younger, terminal, have been on chemo for longer than him and then trotted about the complete bollocks about how I couldn't be *that* sick as I look so well...
(don't get me wrong - I'm delighted for him that he's NED and in maintenance but another cancer patient trotting out the 'you look well' line...sheesh)
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Ouch blondedoris, must have been tough not to haul off and punch him in the groin when he did that. There are a lot of ignorant people when it comes to stage IV cancer in any area of the body I suspect. My MIL was Stage IV colon cancer before she passed and some of her friends remarked how good she looked and why was she still having her hair done and a mani/pedi if she was so sick. WTF? I guess they got their answer when the obituary came out for her. I was incensed when she told me but she just laughed it off cause that was her nature. Hugs and glad you could spout off about it in a safe place like BCO and this little rant room!
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