STEAM ROOM FOR ANGER
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I'll tell you what I removed. That maybe stage 4 should have an anger forum as well. Leave OP alone as that's where all this started from! We are all in different stages and no one deserves to be made to feel horrible for thinking they might be helping someone! What part of this do you guys don't get! Seens pretty simple to me!
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no you said on a stage four thread to stage four women. That stage four should have their own steam room !!! There was no maybe anywhere , it was sarcasm and honestly rude. Excluding us. And you're not even stage four and you said that on. A Stage four platform at least I can respect every stage ! Without choosing what Information I pick and choose to decide to share on certain threads to make others seem like bullies. When to me that's exactly how you made me feel on my own thread! Made the stage four ladies feel. That is my issue. Only. Also if you look back you'll see I never had an issue with any posting of any number anywhere!
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runor brought it there with her call the suicide hotline when you were out of coffee, obviously mocking. Horrible. And no worries, I'm not reading that thread anymore. Your welcome.
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I don't personally feel like we need a separate area for stage IV. Ranting about stressful situations is what this thread is about.
I don't feel like this is a Stage IV versus earlier stage issue. This is disagreements about a post another member made and the feelings that the thread was hijacked from a particular topic. I don't personally believe any highjacking actually went on. I would hate for us to be separated because we all get under stress about things and I know I have found this thread helpful to me and hope I can help others as well.
Though the topic can certainly be brought up, the purpose of releasing our stress is a universal one whether stage 0 all the way up to stage IV. I don't feel separation is necessary. We just need to drop the subject now. It's been gone over and over now and not getting any resolution.
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artista~ you need to lighten up. I’m fighting for my life and I try to end a bad subject with a little humor. Which was also done on my thread. I don’t control what people post. But it’s obvious you have no respect for what you posted. At least runor has the decency to apologize.
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Illimae,
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Thanks, Mara, it’s difficult. The youngest is autistic and when she’s here (no drama at Grandma’s house) she doesn’t want to leave, always asking to stay. She’s my best medicine.Our son lives with us so we have them every other weekend but I miss them daily.
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Wanderingneedle, poor little sweetie. It's so hard being away from those you love. Will keep sending my good thoughts out to you and your family.
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Runor, I think you can give it but you can't take it....
You did take a swipe at the OP in another thread. Yes, you brought it over to another thread. You know it. Own it.
Now Artista is getting jumped on too, just because she's kind. What's wrong with everyone?
GP
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I've been catching up on the posts of the last couple of days.
I must be slow. Or clueless.
What's wrong with having a respectful, supportive, and sometimes humorous discussion about death with dignity? And with this being an open, public website, and with that discussion veering into the topic of how someone might choose to end their life, what's wrong with posting a suicide prevention number, just in case a reader or participant who is otherwise physically healthy (whatever stage of breast cancer they may or may not have) is depressed and suicidal?
Similarly, since the opportunity to vent here is so helpful to so many, and since many Stage IV women do not come to this thread and some choose to post only in the Stage IV forum, what's wrong with having a separate Steam Room in the Stage IV forum, in addition to having the Steam Room here? Anyone can post here, including Stage IV women, but this creates a space for those Stage IV women who would like to vent but who prefer to stay within the their own forum. What's wrong with that?
I don't see either of these things as being an "either/or". I don't see how one negates or lessens or restricts the other. I see it as a continuation of the open discussion that we've seen for 188 pages of this thread, and a recognition that the audience on this site is very broad, with different issues and different concerns.
What am I missing?
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I've been following this discussion. I thought this thread was supposed to be a place where people just vent and go on. I doubt I will ever post in this thread as people are too rude.
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Simone and Beesie, you are both right. We are supposed to pop off about a stressor in our lives and maybe get support. It will be a shame if people lose it. I know this has helped me a lot in times of intense stress to say what I need to. I also don't want a separate room. That is not necessary. That will not help. This is not about early stage versus late stage. This is about disagreeing while respecting others in this group.
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Lol. The last four of six posters are all stage four. Lol okay yeah that makes sense.
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I totally agree Micmel. Plenty of Stage IV post here. We don't need to be shoved somewhere else. Thanks but no thanks.
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Illimae's post is the best!! And I totally agree with Simone8. Just my opinion.
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Good prognosis, you may be right. Or not. I'm not entirely sure. But good on you for putting a name to it!
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My Rant:
I am mad that I was not educated by the IR and MO on PORTs prior to my procedure in 2016. My Bard port is not a Power Port and precludes me from having MRI contrast injections. So my poor veins have to deal with an IV.
BCO..maybe you can have an educational page to help those getting a first time port?
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Dear SandiBeach57,
Thanks for the tip. We will look into it.
The Mods
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Just venting!
Never had a problem with my thyroid until breast cancer. Now have hypothyroidism, which makes me really, really constipated despite medication..So constipated that they decided I needed a colonoscopy. So constipated that I that needed "old school" prep--had to drink a gallon (that's 16 cups) of vile liquid. So vile that I puked twice at the start. They said I had to keep drinking, so I did. Drank it all and then puked four more times, violently. Turns out I have to have another colonoscopy in 6 months because I threw up so much of the prep that my colon was not clean enough for the doctor to see everything. Best part: now have sciatica from PUKING. No joke. Just diagnosed today.
So frustrating. Kinda funny, too.
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Is there any other way to prep for a colonoscopy besides having to drink that other stuff? Maybe ask your doctor if you have not. My prep was different, I just could not eat for a couple of days and given laxative to clear me out.
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Leidy, glad you can find some humor in such a very frustrating experience. My colonoscopy prep seems to change every time I have one. Next one is due in October this year so we'll see what it will be this time!
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SandiBeach I'd be furious too, there's no excuse for not ordering a Power Port for someone who is metastatic and will be getting regular scans!! Veins can become a big issue once you go on "chemo for life".
There's no excuse for hospital staff not using a Power Port when requested too. I don't know if this will make you feel better or worse about not having a Power Port, but my rant is that even though we made sure I did have a Bard Power Port, every single time I get scanned, no matter where I go, they either a) don't have anyone qualified to access a port, or b) won't bring a qualified nurse in because they are positive they won't have a problem accessing my veins even though my MO has told them that my veins are shot from chemo and then spend 20-30 minutes turning me into a pincushion with bruises and blown veins from my elbow to my fingers!
My latest absolute horror story about this topic is posted on PinktoberSucks if anyone wants to read it (I have no affiliation with PinktoberSucks and it's posted anonymously. After I wrote about it briefly here in another thread, a member who helps run the site asked if I'd be willing to write an article about my experience and I agreed because I think it's a topic that needs a wider audience. I hope it's okay to post a link here, but if not Mods feel free to remove) - http://pinktobersucks.com/how-not-to-do-an-mri-brain-scan/
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SandiBeach, I would have never thought that there was a difference between ports. I'm so sorry you got the wrong one.
Leidy, it seems like some bad dominoes are falling your way: hypothyroidism, constipation, and sciatica! Yikes! I hope everything can be sorted out soon. Maybe another colonoscopy prep can work for you.
LoriCA: I'm so sorry for all they did to you. It is inexcusable that they ignored the form. I suggest that you inform both your MO and the patient advocate for that hospital.
Also, bring a copy of your article with you on your next scan. Tell the next set of techs, if they don't access your port, you'll repost the article with their names on it!
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I have a power port, but it is not used for blood draws. My MO says that the constant use of the port will lead to infection. I worry about my veins holding up with the weekly blood draws that are taking place now. I have good veins now, but how long will that last? I do think in my case the blood draws are handled by technicians rather than nurses, so it is cheaper for the infusion center. I have watched some patients have a terrible time getting blood drawn even though the technician is trying hard not to hurt. I need to find out more about this. Thanks for the info
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I have had a Bard Power Port for 8 years and it is used for everything! What would be the point in having a power port if not to use it as designed? Infections? Well of course it has to be properly cleaned when accessed but that’s done routinely whether you’re having an infusion or a blood draw!
I think power ports are often not fully utilized simply because they don’t have enough port trained nurses available
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I don have great veins and have to get my port accessed anytime I have a scan involving contrast at the cancer clinic. The plus side is that scans must be daytime since the cancer clinic only has daytime hours.
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exbrnxgrl I am so jealous that you have had your port used for everything! Mine is used for blood draws and infusions, but not once has it been used for contrast media. After that last experience I am going to put my foot down, and I'll likely change where I have some of my scans done. And you are right, it is because there are not enough nurses trained to use them, and there's no excuse for an imaging center or department that deals with a large percentage of cancer patients.
JCS I know there is a small risk of infection but I have never heard that constant use would lead to infection. If you don't use it regularly it has to be accessed and flushed with Heparin every 3 months anyway, so it makes sense to use it when you can. I'm on Herceptin so mine is used every 3 weeks for blood draw and infusions (Herceptin is very harsh on veins; that and multiple rounds of chemo is what trashed my veins). They follow a sterile procedure when accessing it.
Anyway, I can understand putting a regular port in an early stage patient who will typically have the port removed after treatment, but for a metastatic person who will likely need it for the rest of their lives, there is no excuse for not ordering a Power Port. Once you hit the "IV chemo for life" stage a Power Port is a necessity because of the damage chemo does to veins.
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My port has been in 8 years. I never wanted it out, just in case. I was stage 3, grade 3. During that time I ran into nurses who said they had experience with ports. They didn’t. I’ve learned not to let anybody that isn’t a chemo nurse near it. It was used in my last surgery to administer sedation and fluids.
Now stage 4, port still in place, on ibrance.
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I agree with many RNs not knowing how to access the port. I go to the infusion center for labs where all of them know how to use the port. But it's a no for scans, abx, etc. Always IV. They say they don't know how or they don't want to risk infection which is the same as don't know how.
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