STEAM ROOM FOR ANGER
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Cancer sucks, covid sucks, the mess in my city sucks. Maskless people who laugh "haha I'm vaccinated " while exhaling on the subway next to me with 600 anc and my youngest who is not eligible for vaccine yet, suck.
I wish people would consider others. Realize that it's NOT all about you! I really don't give a poop if you don't want to wear a mask or get vaccinated. Then hold your breath until this pandemic is under control!!! DO NOT SHARE MY AIR.
And also, I wish I knew if my body is finally tolerating this new lowest dose. Hopefully I'll have good news on that in 2 weeks.
I wish I knew if I could travel to see my parents, in-laws and siblings overseas. I can't get stuck quarentined somewhere without access to my monthly prescriptions and treatments.
I wish I knew what "isolated lesion to sternum," REALLY means.
I wish I knew what "we'll re-evaluate you for surgery in a few months" means.
Also, 2 years ago I was diagnosed with EOE, leading to the discovery that I'm allergic to everything yummy (dairy, wheat, sesame, watermelon were on the high end). So I can't even have that ice cream or pastry or brie on fresh sourdough tteat.
Stuff sucks
Ok, that's my rant for now.
Thanks
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And another thing.
why does my husband tell everyone, EVERYONE, complete strangers(!) That i have breast cancer????
I didn't even tell my mom for a while!!! Its my body, and I'm taking care of it the best I'm able, and I'm still me. I'm tired, I'm scared, but I still go to work and take care of my kids and I don't need to be constantly trying to figure out how to respond to people. They do not need to know, it has no affect on them what so ever. And I have enough to worry about.
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KIDI919 - Glad she's able to get sleep. Hope the rash heals quickly. It's common to give steroids just before IV chemo to prevent allergic reaction. The steroid high is a pain, but temporary.
Dancemom - Cancer during covid does suck! On top of that you have severe food allergies?!? I think I have a gluten intolerance that I need to take more seriously. But I love really good pastries. I hope you've been able to find good treats. I actually like ice cream made with coconut milk and chocolate mousse made with avocados.
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I am desperate for water at the bay cottage. I left a voice mail for an old friend today to see if he has any availability. A real plumber. So disappointed in my hubs family already down there and were supposed to help me finish. It’s just not going well. They are too frugal I think. Sucks. But I’ll leave you with this. I sat at my front door of the unfinished cottage just watching-cause it is beautiful. At least there’s this.
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Very pretty view.
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That view puts me on vacation for a moment! Enjoy
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Any day I see an eagle is a good day
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I was wondering if that was an eagle. Saw one last summer fly over my daughters yard last year. Wonderful sight.
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My sister's pet showed stable disease, so 3 more months off of Ibrance treatment.
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ctmbsikia, good news that the PET was stable. Thanks for sharing this and the beautiful photo!
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Great news, ctmbsikia; what a relief, it must be!
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Wonderful! So happy for you both. Stable is good.
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Yes, thank you! Nothing to vent about today. Surely I could think of something ...........
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I wondered if that was an eagle in Ctmb's photo! You know, I think that seeing an eagle in the wild is on my bucket list. Yeah.
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GAAAaAAAAAAAAAAAAAaAH!!! I can't take it, can't deal. Waited an hour and a half to see another wet behind ears PA ive never met and obviously spent a whole 5 minutes reading my chart. Oh my labs say i can restart the ibrance. Yippyskippy. I spent the whole time trying not to cry in front of some guy I just met and nothing I said made any sense.
I walk 2 miles a day with numb feet and eat maybe half what everyone else does so WHY am I gaining weight? Why do I care, it's pointless now? I was supposed to go backpacking this summer, finally was getting back in shape after cancer except for that annoying back ache that turned out to be cancer mets eating my backbone and ribs and shot my life to hell. Again. Now I can barely walk around the park, much less work out or anything. I'm supposed to be grateful blah blah blah.sometimes I am, sometimes I'm not. husband tells everyone I'm doing fine. I'm not fine I have scans in 2 days to see what the cancer is doing. If i had scans 2 years ago this could have been treated before it damaged my spinal cord. Not the protocol? whatever. It's bullshit. Just another sign of the other pandemic, global stupidity. My back hurts. Its all the hardware, nerves waking up angry or cancer eating more bones. I'm trying to work but I'm miserable. I have to keep my insurance. If i go on disability there is a 2 year wait for Medicare??.impossible. I might not even have 2 years. I'm afraid of dying like this....I don't want my mom or anyone else having to watch me die slow like this. I would quit my pity rant here and go biking except the damn state is on fire and smoke is so bad I can't even see the foothills. I would go to the movies or something except morons around here don't wanna get their covid shot or wear a mask. They call it freedom, i call it entitled stupidity. I don't give a F about politics. I want to outlive my mom.
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My hands were shaking taking that photo. There’s a tree line in front of our cottages before the beach and have a shot from last year where he/she just perched in the tree leaving crab shells on the sidewalk. It’s Maryland after all. Hubs took this pic of the peacocks. We had goat too but the owners did take him back to the farm. He was ok but annoying pooping all over the place.
Have friends here in PA with an Eagles nest on their property. Telescope. Game commission visits them. They have miniature ponies too. And 2 labs.
Eagles are loud. I’m learning their noises.
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MK please let us know how your scan goes. Sorry I was posting same time. This is a vent thread after all. I have no words cause I know it’s all bs. Stay safe and as well as you can be.
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Kestrel, excellent rant. You are right.
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MK, I'm so sorry...
Carol
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you birds post is beautiful. Are they Angry birds Like me? Haha. Maybe there should be a birding board. I have some good shots
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MK I suggest you call Social Security to see about Medicaid. You may be pleasantly surprised at what they say.May not be a 2 year wait. Good rant!!!
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Kestrel, that is a good idea to start a birding thread. You should do it.
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Look at this mess. Went for labs this morning and the results came back already. I mean if I had a choice I think sudden death by heart attack or stroke is a step up from cancer. My Primary will probably raise my statin? Ugh. A1C stayed the same (5.9%) Alk Phos is 128. Calcium which was over 10 something in the ER is 9.9% today. WBC back to normal, neutrophils came back to just within range from my ER episode. WTH? CO2 is low and Anion Gap is off (again) but only slightly. Pretty sure they did a Vit D and a PTH which usually takes a few days to come back. I really rather not know all this stuff, but seems I don't have that choice any longer.
Component Your Value Standard Range CHOLESTEROL 236
REFERENCE RANGE
<200 Desirable
200 - 239 Borderline High
>239 High mg/dL<200 mg/dL TRIGLYCERIDE 325 mg/dL <150 mg/dL HDL CHOL 69 mg/dL 40 - 59 mg/dL CHOL/HDL RATIO 3.4 <4.5 LDL CHOL 102
REFERENCE RANGE
<100 Optimal
100 - 129 Near Normal
130 - 159 Borderline High
160 - 189 High
>189 Very High mg/dL<130 mg/dL VLDL CHOL 65 mg/dL 8 - 32 mg/dL 0 -
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Dancemom: I am so sorry everything sucks! And I was ready to reply to recommend Coconut Bliss (if you aren't allergic to coconut) -- their chocolate ice "cream" to to die for. We aren't even vegan, we just love it so much it is our preferred ice cream.
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Great news ctmbsikia!
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ctmbsikia: Peacocks are WAY louder than eagles!!!! Great photos though!
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MKestrel: Oh I am so sorry!!!! All of it sucks. And the smoke on top -- I can't even imagine what it must be like there now -- I am all the way over in Vermont and we have air quality alerts from smoke for the Oregon fire!
Sorry for all the posts. I am sick with Anaplasmosis (stupid, bad tick-borne disease for folks in places with different bad tick-borne diseases. It is making me stupider than chemo brain, so I can only read and reply to one post at a time. At least I am mostly upright today. Even managed 3 hours of work.
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