STEAM ROOM FOR ANGER
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LizabethM: I am sorry to hear about the loss of your friend. I am sorry she chose to have naturopathy as the only treatment, not as an adjunct to traditional Western medicine.
Hugs
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LizabethM, so sad I'm sorry. It makes me angry that some drs told me I had the good cancer and I didn't need chemo or radiation with less than 4 nodes impacted. Your story Makes me feel better I kept pursuing more opinions and had them both.
Ctmbsikia, I’ve been in sports bras (when I was huge)and bralettes (now after diep for years. I’ll never go back to hooks in the back.
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LizabethM, Very sorry to hear about your friend. There's too much damn cancer everywhere. All the time and money spent on research and still we have this BS. I have it, my SIL and now my boss. All different kinds. UGH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Living around Buffalo, big old chemical dump.
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I am angry on behalf of someone I never knew. It's about how a ridiculously punitive sick leave policy affected the life of a breast cancer patient. This story reminds me of the sign I gave my husband for his office: The Beatings Will Continue Until Morale Improves.
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LizabethM - sorry to hear about your friend. Decisions on treatment are difficult.
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"Treatment decisions are difficult, " says BlueGirl. Not that difficult, really, if you want a chance to live. I get angry when some poor woman with breast cancer is pressured by her husband who is willing to risk her life on some wacko stuff he read on the internet. From Lizabeth's post: "One of my dear friends...discovered she had Lobular Cancer.... her and her husband wanted to think and research....It was many months before my friend did a mastectomy. Cancer was found in her auxiliary nodes. But, she and her husband decided to try a naturopath instead of using the oncologist. Fast forward to yesterday, my sweet friend passed away with mets in her bones and liver. My heart is so sad. I know it was their decision to make, but I miss my friend." I hope it was actually her decision and not his. I did not know these people but I have seen it happen where a woman is bullied or frightened by a controlling man into forgoing the recommended treatment.
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We can only go with what is advised. If anyone here is on the atheist thread you can see some just hope god cures them. Idt anyone knows WTF they are doing. Sorry but I am pissed tonight. A friend from work Mom was just dx with some weird CA in the gallbladder ducts. I'm going to a benefit next wkend for a young man with leukemia. I am sick of fing cancer, covid and all the political BS. And if my GD husband doesn't turn down the GD tv I will be arrested. My printer won't work tonight nor will my headphones so I can listen to music rather than whatever H is watching. I would go upstairs but then H thinks I don't love him anymore. U know what? I do but .... And those have lost their spouse I'm sorry if this offends u. I am literally pulling out my hair. My niece said " can't u go back to wringing your hands?" Yeah i can do both. And I'm sick of an appt every fing day I'm off work. Sorry for the long bitch but this is the only outlet I have except SIL who has her own cancer and problems with my brother.
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Oh, KID1919, it sounds like you're having what is known in my house as a total shit day. I hate those days. They're so draining. They just suck every bit of energy out of you.
The good news is the day is almost over. Hopefully tomorrow will be better. Sending hugs. And chocolate. Everything's better with chocolate.
Trish
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LOL thanks so much! What I really need is a crying day (or 2) but I look so awful afterwards. Got that whole Celtic complection. I can no longer spell worth a shit so... maybe that's not the correct spelling. When one of my sisters and I go to a parade we always cry and look like shit after. It's just been one thing after another. And it's not even that there hasn't been good news. My chest Ct was good. CA hadn't grown, SIL blood work has looked good. (she has leukemia) So WTF am I bitching about. I was with SIL tonight and we were comparing cancers. Not just us but people we know ,,,,,,,,,,,,,I swear it's everywhere. At least I got my headphones working! LOL. And yes Trish music and chocolate is what I need.
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PS or a good fuck
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KIDI919 - " I am sick of fing cancer, covid and all the political BS" <----This sums up my feelings of the last few days - wait...strike that...MONTHS - perfectly!
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@Trishyla & Spookiesmom - YES to chocolate! Unfortunately I can't have any this week. I ended up in the ER Sunday night and CT indicated gallstones. So while I'm waiting to see the surgeon I'm on a low fat diet and Pepcid. Grrrrr.
Up until now I've been quite healthy however the CT indicated a thickening of skin in the right (cancer) breast. Yesterday I had my first mammogram since I completed radiation. I've had an issue with swelling in my right breast since the first lumpectomy last November. Both the BS and RO said it's nothing to worry about it but sent me to PT for lymphedema massage. I have very large breasts and the BS and RO felt the swelling was the result of my large breasts and gravity However the Radiologist is concerned it could be IBC. WTF?? Back to the breast center for an ultrasound today. Hopefully it's nothing but at least I feel better being able to vent.
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Good luck, Harley07. Fingers crossed that it's just incidental swelling, not anything more serious. I have truncal lymphedema and it's more of a pain in the butt than anything. Massage or dry brushing usually gets the swelling down
Trish
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I probably shouldn't even be here on this thread this morning because I'm already in a pissy mood. Actually it helps to know others are in a pissy mood, too!
KIDI, I hope today is a better day - for all of us!
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Those of you in bad moods, having a hard time, and overall just grumpy....well please feel free to come sit by me. It has already been a very long morning and I am in such a pissy irritated mood. I share all of your irritations and things that are setting you off and agree with you completely. I won't name them all because just naming them again will further set me off!
Harley, I am thinking of you and hope the u/s goes well.
As for chocolate, I do believe it would soothe the savage beast in me and I think I will take my daughter (once she finishes school for the day--she is homeschooled) and go in search of some.
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KID1919 My DH is hard o hearing and after my nagging to TURN IT DOWN sometimes we do closed captioning on our TV all the time now. We can put volume MUCH lower now and we can both sit in the room now. Since we are both home all time we do often "do our own thing" if If I am working in the kitchen or him outside on the yard or something too.
Hope it is a better day today.
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I'm in a slight state of turmoil trying to decide if I should continue taking my AI for another 3 years. Two years ago at my checkup just 6 months away from my 5 year cancerversary, my MO told me about a study that showed that if you stay on the AI for 10 years instead of 5, your survival rate goes up 4%+. I kind of balked at it, and then she said that there is another study that suggests 7 years is as good as 10. So we agreed to go 2 years and see if anything changed as far as studies go.
Fast forward 2 years exactly which was 10 days ago, and she just states that she wanted to do a bone scan to check how my bones were doing on the AI, that that would determine if she thought we should continue at all with it. Well, surprise surprise, my bones show Osteopenia now. She wants me to continue with the AI for three more years! Doesn't make sense to me.
I had her PA send me the study that is convincing my MO to keep me on the meds. She says it's because I had node involvement, but the study included women with node involvement. She sends me the study from NEJM that shows it is better to go 10 years than 5, I replied with the NEJM study that showed 7 was as good as 10 - as a matter of fact, the only difference was that if you stayed on the meds for 3 more years the only difference was more broken bones for those who went 10 years.
Now, it they most likely didn't get a Prolia shot every 6 months like I will, but I have yet to see evidence that if there is node involvement, you should go the extra 3 years.
On top of that, a property we sold that was supposed close at the end of June is still being delayed, and my mtg payment went up because I live in Fl and we have an insurance mess going on right now and the escrow numbers aren't adding up, so I have to call them too!
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Harley07--bless your sweet heart; I hate to hear about the gallstones. That can be so painful but the surgery (laparoscopic) is an easy one. I had mine removed in 2012 and have only one small scar in my belly button!
I will pray for you on the ultrasound. Hopefully the swelling is lymphedema or something simple. I'll be waiting to hear your results. Thinking of you today.
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Thank you for the kind thoughts. My day just got better. Radiologist said there is nothing concerning on the US. He thinks it's odd that the swelling and orange peel skin is on the opposite side of the breast from the incision side, so he suggested getting a skin punch biopsy, but didn't seem to think there is anything to be worried about. I'll call my surgeon next week to see if that can wait until my September follow up for the breast and to discuss the gallbladder. The US tech said she knows my surgeon does the punch biopsies in her office because she had one there. I do have lymphedema in my breast and massage does help (as does laying down). But for some reason my employer prefers that I sit up at my.desk and not massage my boobs while in the office. LOL
Happy weekend to everyone!
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Hmmmfff!! The Nerve of your employer!!!🤣🤣🤣
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What great news, Harley07!! Wonderful!
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Harley had to the gallbladder thing and let mine get so bad had to be in the hospital for a few days first because it was so inflamed they could not operate right away. Do not let it get too bad like I did and get it done so it is an easier recovery. Mine was in pain because I was dumb and thought I had a "tummy ache" to begin with. Best wishes to you.
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Pretty good day today. H bday coming up and I said I was going to get him TV headphones for his bday. He said "that's kind of a present for you". Yep. We keep closed captioning on all the time. I saw my 2 new great nieces today. Not quite 3 wks old. Twin girls. You forget how little babies are. And they are good size...one was 5lbs 10oz and the other 7lbs 3oz. Glad I didn't have to carry them for 9 months!
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Chocolate - I knew I forgot something at dinner. Time for some chocolate or maybe chocolate mint gelato.
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@bcincolorado - that sounds awful! My brother waited too longto have his gallbladder removed. Ended up with pancreatitis and in the hospital for a month followed by 3 more hospitalizations totaling 17 days. Yeah, I think it's better to do it sooner rather than later.
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HomeMom - I took femara, then arimidex for a combination of 7 yrs. Bones were fine, but had to stop when my fingers locked up so much that I could sign my name on a credit card receipt! Still can't snap with right hand, only left. Took a month off between the 2 drugs because of the locking fingers. Maybe you could take a break for a month and try the other AI. Or try to continue AIs, beef up your walking/exercise and keep check on the osteopenia. You could always stop later if the Prolia doesnt' keep it in check.
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Seeing twin babies much be fun! KID1919. How tiring for the mom and dad though. One is exhausting I know.
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nopink2019 I haven't had any debilitating issues taking it, except for the bone density issues. I do have issues losing weight and now I've developed high BP over the last two years. I also read that it could affect your memory, making you forget words etc, which I have also experienced. Did the Arimidex do that to your hands? I've not heard of that, but I'm not surprised either.
My first bone scan two or three years in showed a small issue with bone loss. I wasn't walking nor was I very good about taking my calcium, so they put me on prolia for two years. There was significant return of bone density, so they took me off the prolia. At that time I started walking 3-4 miles almost every day and was diligent with the calcium. I am at a loss as to how I could have had a 12% reduction on my hip and 7% in my spine. I'm on this ride 7 years come December. I'm guessing she wants me on the prolia with another bone scan in two years. I wouldn't need it if I'm off of the Arimidex.
There is nothing out there saying that it would detrimental to me to keep taking Arimidex another 3 years, except of course the bone loss, but the prolia would help with that. So that just leaves me with the questions " why 10 years instead of 7? Where is the study that says I need to do this?" Just in case I suppose. If it can't hurt, then why not?
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HomeMom--I was told that locking fingers was could be a side effect of AI. It mostly resolved itself when I got off. Only residual effect is not being able to snap fingers on right hand. When I started AI, recommendation was 5yrs, then onc said longer was better.
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