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STEAM ROOM FOR ANGER

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Comments

  • cm2020
    cm2020 Member Posts: 530

    ShetlandPony...Hugs.

  • kathindc
    kathindc Member Posts: 1,667

    (((Hugs))) Shetland.

  • gr4c1e
    gr4c1e Member Posts: 124

    Need to vent. Coworker showed up today coughing like the building was on fire! It's been going on nonstop. I closed my office door, but I'm pretty sure OSHA regulations require my employer to send HER home to mitigate risk to other employees - regardless of whether it's COVID or the flu and regardless of whether they have another employee with a compromised immune system. We have a meeting this morning and I'm staying in my office with the door closed.

    I hate stupid people.

  • ctmbsikia
    ctmbsikia Member Posts: 776

    Shetland, sending you cyber hugs and good thoughts of the IV working and getting you out of there!

    GR4C1E, it's so unfortunate that we can't fix stupid!! We have 2 out right now. One confirmed positive, not sure about the other one yet. I stay in my cube only leaving to go to the bathroom or go outside to walk. The receptionist sprays down the place every night! I've been masking when in public at the stores, and for meetings,. Feel pretty OK this time, as I am not in close contact to anyone for a long time. Case counts and hospitalizations seem to be rising in PA. Stay safe

  • sunshine99
    sunshine99 Member Posts: 2,723

    ctm, I'm sorry about your friend. I'm sure it helps to know you care and that you are there for her. No advice, just caring.

    Shetland, I'm sorry about your fever and IV antibiotics. Hospitals are the last place we want to be, right?

    GR4C1E, What is it with people??? Why in the world can't they STAY AWAY or STAY HOME when they're sick or coughing???

  • gr4c1e
    gr4c1e Member Posts: 124

    Sunshine99 - Agreed. I pretty much have those exact words playing on a loop in my head. But, this is the same coworker who came to work a month before the COVID shit hit the fan, with (allegedly) 102 degree fever and proceeded to lay on her office floor until noon, and then left for the day. There's just no explaining why people do what they do.


  • bcincolorado
    bcincolorado Member Posts: 4,758

    ShetlandHug

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    Thanks, guys. The nurse just told me that the cultures showed infection related to my port. When I had it accessed yesterday morning, someone came by and asked the nurse to hand them the trash can. And I failed to pay attention and make sure he changed his gloves immediately. Why ask a nurse who is working with a patient to deal with trash? Why wouldn't he tell them no? WTF?

  • moth
    moth Member Posts: 3,293

    SP, I hope your team gets that fever under control & discharges you asap!

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,333

    SP,

    I hope things are controlled quickly. The hospital is on my list of top 5 places I’d rather not be, though it’s sometimes necessary. Take care.

  • alicebastable
    alicebastable Member Posts: 1,961

    Shetland, I hope they get you out of there as quickly as possible. And maybe speak to the charge nurse about the garbage incident.

    GR4C1E, Nearly every day for months, my husband has come home from work and told me about another person who tested positive. He's in the state courts system in a good-sized city, so it's three large buildings. I try to not freak out but it's hard when it's someone in his building. The idiots who come to work sick either think they're dedicated (nope, just self-centered dipshits) or they don't want to use their sick time (see "dedicated" in this sentence).

  • FarAwayToo
    FarAwayToo Member Posts: 79

    Shetland, this is outrageous! I hate that nurses are sometimes careless when accessing a port. I remember asking a nurse once if she would put on the mask that comes in the access kit. She calmly told me that she only does that if she has a cold or not feeling well (this was pre COVID, during my chemo).

    Why do they put the mask in the kit then?! I politely asked her to put one on, and she complied.

    Handling the trash?! WTF indeed! I hope the antibiotics clear the infection quickly and you are home in no time. You truly have been through a lot and deserve a break.

  • Shetland, thinking about you and sending ((((Hugs)))).

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    Thanks for your support, everyone. The patient advocate is going to stop by my room. I want there to be some education about the trash incident so it does not happen to anyone else.

    Depending on the specific organism, I may or may not be able to keep my port. I do not need more surgery! I do not need painful IVs and blood draws in my future! I do not need any more delays on starting a new treatment plan! This is how things go wrong. What if the cancer gets away from us? I was supposed to see my onc today, but I am not allowed to go as an inpatient, rolling my IV pole. But she will stop by and see me this afternoon. I don't think the genomics is back because it took them forever to start the sequencing. AArgh!!!

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    How frustrating! I hope you can keep your port and get discharged soon.

  • Kikomoon
    Kikomoon Member Posts: 358

    Shetland- I am so sorry you are having to go through this! Sending you lots of hugs and praying you get out and back on track soon.

  • denny10
    denny10 Member Posts: 421

    Shetland, I hope you get out of hospital quickly, with a working port. My viens are shot in both arms; few lymph nodes in one arm and IV chemo in the other. My port makes getting blood tests etc so much easier. (A digital hug for you.)

  • ctmbsikia
    ctmbsikia Member Posts: 776

    Both the nurse and the GI doc asked why I was there this morning. I almost replied with, "I thought I was just suppose to show up!"

    Going for a few more tests checking for liver disease. I am surprisingly calm about it and it is mostly because I have you all to thank. Your knowledge and all that you all endure is inspirational to say the least. Finally scheduled the endoscopy to fix my esophagus for late February!! Doc thought it was me putting it off, but I said, no, I was told your were booked solid. I really don't care if she believed me or not.

    I'd like to vent about what this is all going to cost. I'm getting as much done now that I can since I've reached my max out of pocket for the year Having an enrollment meeting today and although insurance company is changing my premium is staying the same. There's just no getting around it until I can get Medicare. There goes another $3-4K next year, and having to update everybody I see with this information that I better receive in a timely manner.

  • bcincolorado
    bcincolorado Member Posts: 4,758

    Hugs to you all.

  • katyblu
    katyblu Member Posts: 223

    First I want to say that I am so sorry for all that you ladies go through. It really sucks that there is an added amount of stress when dealing with cancer. Hugs to everyone and I'll push out some good thoughts later.

    Now for my vent.... I have been trying to reschedule my tox check, oral chemo, and zometa infusion for 2 weeks! I had to take an extra week off of treatment between cycles 2 and 3 due to low ANC. When I did my tox check for cycle 3 my nurse practitioner told me she canceled my original cycle 4 tox check on 1 Dec and rescheduled me for 8 Dec. She did not. I called 2 weeks ago to get the appointment cancelled and rescheduled and was directed to one of the nurses. She wasn't available so I left a detailed message and my phone number. Never heard back. Called last week and was able to get the 1 Dec appointment canceled but the lady couldn't reschedule me at the time and promised to call me back within 24 hours. She never called. I called yesterday and the person who answered could only reschedule one of the three things I needed and the person who could do all three wasn't there. So she took my information and promised I'd get a call back. Still haven't received it. Called this morning and the lady told me that only one person could schedule me for those appointments and they were not at work yet, at 9:15am. The office opens at 7:30am. Can anyone be bothered to schedule treatment for a STAGE IV CANCER PATIENT? I am so angry right now.... I have my 3 month check in with my MO today so I WILL get rescheduled and I WILL complain about the front desk and my nurse practitioner. Normally I wouldn't say anything about the NP but this is the second time she's promised to get me an appointment and flaked..... I have so many angry, inappropriate-for-here words I want to shout.....

  • Kikomoon
    Kikomoon Member Posts: 358

    Katyblu, I totally understand your frustration. My cancer center is constantly dropping the ball. They don’t even bother making promises they can’t keep though. It is surprising to hear the military functions this way too, or is it? Definitely tell your Dr. they would want to know about it.

  • ctmbsikia
    ctmbsikia Member Posts: 776

    Lost a good friend early yesterday morning. The same morning I was going to another good friends funeral. So surreal. Somehow I got thru it.

    My one friend who passed yesterday, cancer. She was still in the beginnings of diagnosis, so maybe it's sort of a blessing she went so fast. She had an appt on Monday and they sent her to the hospital and drained something like 1.7 liters of fluid. off her lungs. Then she was placed on hospice. I texted on Monday to see how things went, and all she said was that the news was not good. I said I was so sorry and that I was here if she needed me. Her last words to me were Thank you. 64 yrs. old. Hope you don't mind me sharing a small photo. Here she is on the right, her very best friend on the left, and my drunk husband in the middle. This was taken at her 60th birthday party.

    image


    My other friends whose husband passed of covid19 last week. The funeral was sad, but was nicely done. Here he is in the gray sweatshirt, my good friend (his wife) in the center black sweater. Another good friend to the right, and the other guy in the back and the gal on the left are my siblings. This was taken 2 years ago at the benefit they held for my husband when he was first diagnosed.

    In short, cancer and covid suck!!!


    image


  • bcincolorado
    bcincolorado Member Posts: 4,758

    Hug to you ctmbiskia. Yes they are are awful and take too many lives.

  • betrayal
    betrayal Member Posts: 3,732

    ctmbiskia: You have had your share of losses this year and I do offer my condolences for these losses. Neither cancer nor covid offer peaceful passings for those affected.

  • cm2020
    cm2020 Member Posts: 530

    ctmbsikia....Lots of hugs and condolences to you. You have experienced so much loss in such a short period of time and I am so very sorry.

  • alicebastable
    alicebastable Member Posts: 1,961

    ctmbsikia, I'm so sorry you've lost another person dear to you. And so young! Peace to you and all who loved them.


  • Katyblu, that really sucks. I tried to change an appt the other day and gave up. After 15 min I was #8 in the q.

  • sunshine99
    sunshine99 Member Posts: 2,723

    KIDI19, don't you love it when you're on hold, listening to the "hold music", the line sort of clicks and you think someone is picking up, but NO, it's the recorded, "Your call is very important to us. Please stay on the line and your call will be answered shortly." Then, back to the music. Sigh...

  • spookiesmom
    spookiesmom Member Posts: 8,178

    Or press 1 to hold your place in line, we will call you back. 😡😡

  • hersheykiss
    hersheykiss Member Posts: 721

    Or the line clicks, disconnects, and you have to call back and go to the end of a long queue.