STEAM ROOM FOR ANGER
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notascalmasilook, drains suck
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thank you - Dancemom! Because of cancer we had all the supplies needed to live with one, but I was happy to leave it all in the closet untouched! An unexpected surgical (non cancer) complication left me with a drain for an unknown length of time and it sux.
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Wrenn perhaps I have that as well
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Oh, I can't count how many times I lay in bed unable to sleep due to Hubby's snoring, and thinking how a pillow would solve the problem! But I knew I'd regret it. I'd get a good night's sleep first, though! Now he sleeps in the living room with a C-CRAP machine, and I sleep in the bedroom with the dog. Who snores, of course.
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wrenn, just last week I read a memoir by Jenny Pentland, the daughter of comedienne Roseanne Barr, and she said that she has misophonia. She didn’t discover until later in life that the dramatic response she had to things like the sound of her brother breathing or chewing while they were in the car on family outings was not her overreacting but a true disorder.
The thing is, I never heard the word before in my life and within a week, this is the second time I’ve come across it!
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Hate COVID and the affect on medical offices. At MO today get there and of course big line to get in because everyone stands 3 feet apart to check in at the desk. They have only 3 people up there for 6 doctors in the office and the chemo and lab in the same clinic.Even though got there 20 minutes early and it said to be there 15 early barely got checked in and into the room before my 8:00 appoitnment. Then of course doc put in orders for testings in a few months and follow uppoitment but all the scheduleers are working offsite so could not even get anything set up and now stuck at this point. I would rather shedule and know what is going on and be prepared and not have to worry about remember to follow on it and nag them again in a week if I have not heard from them yet.
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- Yes about checking in! Was it on this thread a little bit ago that there were complaints about all the covid questions when you arrive for your daily treatment? I'm happy to have my temp taken and make sure im not coughing or trying to bring down a fever or have been recently exposed, because it means other people have to consider all that too. But today, "Any travel out of the country?" I said, "I did not fly round trip anywhere over night between yesterday's treatment and today's". She apologized. I haven't been anywhere since summer 2019! Stupid pandemic, then this cancer thing that has taken up all my time for the past 15 months. I do have to say, the set up where I go is pretty efficient (knock on wood) and ALL the staff are pleasant.
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dancemom:
Back in the earlier days of the pandemic my area saw a big spike in cases but one of the questions covid screening questions on the list was still "Have you been to any covid hot spots recently?" and I was like "Yeah! Here!"
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imo fastest way to get through screening & keep the lines short for everyone is to just answer their questions. It's not their job to memorize our masked faces & remember if they've seen us before
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bcincolorado, that sounds like an over-booked and under-organized office. I've only had to book one resting appointment in the last almost-4 years. The site was down when I had my last urologist visit, so I didn't get my CT set up. I mentioned it off-hand at my next PCP appointment, just something about remembering to put it in my calendar to call. When I went to checkout, they had me all set up on a 3-way call and all I needed to tell them was what date was convenient. My MO's office is the same way. All my previous medical experience has been much more complicated, and I keep waiting for an "Oh, we don't do that anymore." I've gotten spoiled basically sleepwalking through the whole thing all this time.
ETA: I have no idea what my phone - or this site - thinks a "resting appointment" is. After several hours, I have no idea what I was trying to say.
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Moth--you are so right. Plus, can't you imagine how tired THEY are of asking those damn questions 10,000 times a day? Ugh.
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Jo-jo I just read your story and am so sorry you and your children are going through this. I am super mad at alcohol and how it can just change the people we love. I hope youare able to find some peace and please let us know how it’s going.
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misophonia. I had never heard of that before. I looked it up because I thought maybe that was my problem. Nope. I am an introvert and sometimes I, like Greta Garbo, "want to be alone" It is why I don't mind being at LGH for my infusions. For about 2 hours I sit in a chair, reading, there is a little chatter that I can tune out and all I hear is the occasional beeping of the infusion machines. It is a respite from TV, music, my DH who loves to talk.........But no - I don't have violent reactions to it. Snoring. I considered the pillow over the face as well but I find foam earplugs muffle it enough that I can sleep.
LGH no longer asks me covid questions. Q: "Have you been out of the Province in the last two weeks?" A: "I haven't been out of my neighbourhood."
BC is about to lift masks mandates. I don't know if I am ready for that.
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My hospital started texting/emailing a link that you had to fill out for each appointment, with the Covid questions on it, so when you arrived the volunteer at the door just had to ask "any covid symptoms?" while handing you a mask and pointing to the hand sanitizer.
Ive never completed any of those forms - I had so many appointments there for a while I didnt know what form I was filling out for what, so I just stopped. No one checked, no one asked, no one called, no one cared.
Regarding the mask mandates lifting - you would think Covid never happened in the UK and yet we probably have high circulating figures. Ive started going to the store and other shops maskless (unless its really full), though I still take the Tube with a mask. Pretty much just stay alert and social distance and mask if you feel you need to. Partner got sick with something/possibly covid and I never got it!
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When you are told to "travel and enjoy the time you have" by your docs and then COVID hits and live with someone on immune supression even though vaccinated and boosted and even has had 4 shots as well at this point as a result we still live in our house and stare out the window and if we go outside at all we mask or make sure we see no one if we go on a walk on a nice day. Travel anywhere else? HA! We watch PBS a lot and do virtual vacations now. Not the same at all. Do not know if we will ever get to go anywhere again before I die.
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Lots of frustration from yesterday, and I'm still steamy.
Went to an MO appointment, driving 30 minutes each way. I arrived and found out they had canceled my appointment without telling me. I had even asked if they wanted to keep the appointment given I was having surgery this week and there was no new information since the prior visit. Since I had confirmed the appointment via their online system, I assumed (stupidly) that it was still on. Their notes said to schedule next appointment 2 weeks after surgery. Why on earth wouldn't they call to reschedule and just cancel with no follow on appointment?
Then, I found out our company's (Fortune 300 level size) newly outsourced disability policy doesn't pay benefits until 7 days being out of work unless you are hospitalized overnight. My surgeon had said I'll be out 5 days. After 22 years of being careful using my paid leave (no sick leave, just paid time off), I was really pissed to find out that while the company provides 5 days a year for a caregiver to help their mother in law, I am fully expected to use my PTO for cancer surgery. With COVID, I think a lot of surgeries are now discharged the same day. I'm still just as disabled after general anesthesia as I would have been in the past where I might have been kept overnight. Treating my partial mastectomy (substantial lumpectomy including skin removal) the same as a colonoscopy is just freaking wrong.
That is all.
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sarahmaude, My lumpectomy was before Covid, and it was a same-day procedure. I was home by about 3:00 in the afternoon. I didn't feel particularly groggy afterward. It's more anesthesia than a colonoscopy, but quite a bit lighter than what I had for my nephrectomy the same year.
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I had lumpectomy as well as an out patient. I had surgery on a Wed, and went back to work the following Tues. 4 days. Yes that does suck about the benefits. Geez.
For appointments I do a pre check-in on line (portal) and the covid questions come via text message and if answers are OK they send you a Green Pass to enter the building. Sometimes they ask for it, sometimes they don't. There's no one greeting you at the buildings entrance now like there was before.
The site is looking a bit better but still what a disaster. I was visiting another forum while this one is still a work in progress and today when I logged in it said they are switching servers on the 31st! Will see if that goes well or crashes and burns. Pretty soon I'll just be talking to myself or not at all. On Sunday, a do nothing day for me, I counted and I literally spoke 6 words the entire day to someone who called me. That's close to a record for my big mouth.
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sarahmaude,
Covid is only part of the reason for limiting overnight stays. Outpatient breast surgeries, including mastectomies, were increasingly being done on an outpatient basis well before COVID. Covid may have pushed this trend forward but it was clearly headed. In that direction anyway.
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Agree. It is awful they expect you to use your PTO as well since it is cancer surgery. Would it help getting a doctor letter for your HR to use for an appeal for this? Best wishes on surgery too.
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yup, we've been doing mastectomies as day surgery here since quite a bit before covid. Mostly only DIEPs get admitted. The faster you get out of hospital, the more you move and walk, the better and faster is the recovery
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Thanks all for the perspective on overnight stays. I would MUCH rather come home. Don't mistake that. The last time I was hospitalized was dreadful, and I didn’t really start recovery until I got home. I just had a different understanding of our STD benefit, and was surprised when I saw the seven day delay in benefits. I’m really fortunate I do have enough paid leave now. And who knows, maybe I can get my return to work form signed and be able to return to my telework early.
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Reading these, I feel very lucky, my insurance from my work was covered, I only paid for family coverage. I retired last year, but an not 65, so now I pay to be on it. It is good insurance and has a maximum pay out by you and then covers everything. I pay 630.00 a month. When I got cancer, my husband handled all the doctor bills and insurance stuff, I am more afraid of getting a reoccurrence and having to deal with the insurance stuff than getting a reoccurrence. He died three years ago, be happy you have your spouses, it is very lonely without him.
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Ha Ha rah2464, My husband (also retired) breathes loud and chews loud! Makes me crazy but I don't say anything. Altho , sometimes my granddaughter will say "Grampa, slow down..no one's going to take it away". (she has dinner with us on Tuesday's. She's 10).
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kidi, that's funny. Out of the mouths of babes, right? Sometimes, when I'm annoyed at my husband's chewing or how he walks around the house, I think, "Would I rather NOT have him and his noises around the house? Definitely not. I'm sure I annoy him, too. Or maybe not, because we all know I'm perfect. LOL
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kidi919 children call things as they see them haha!
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saramaud my doc said "the big bad germs" live in the hospital and not in your house. I had my mx at 3:00 with immediate reconsrution tissue expanders put in afterwards and was home with my meds and drains in before noon the next morning after doc cleared me to leave and go home. They sent me with some heavy duty pain though and some were to "step down" after a few days and I got off the heavy ones as fast as I could since they nocked me out and made me sleep the whole time.
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sorry guys, I am pissed! I hate cancer. My daughter, my baby, 24 years old found a lump. We had to twist her doctors arm to take a look at it. He sent her for US and they sent her directly to mammogram. She is terrified. I had a DMX 2 weeks ago after cancer diagnosis. I also have a genetic mutation. Cancer can kick me around but this is too much. This cannot be cancer
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beginagain22, sending a big hug to you and your daughter.
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Hi beginagain2:
Sorry to hear about your daughters lump. I hope all turns out well. It’s hard not to worry when it’s your child. I too have a genetic mutation which I have passed into two of my three children. Although I didn’t know I had tge mytation before I had kids I still have tremendous guilt.
Sending you positive thoughts.
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