STEAM ROOM FOR ANGER
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One who has no life other than school. It is hard with the holidays to deal with things like this.
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ctmbiska congrats on passing the mamo!!! Those spots they watch are so worrying now I know.
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May not be on again until after the holiday is over and wanted to say Happy Thanksgiving to everyone and you are still here so that is something to be thankful for this year.
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bc,
you got that right. Thankfully I am almost done with my paper for multi-ethnic lit but still waiting on others to post so I can repond. The one classmate who did post read the same ones as I did so I can’t respond to hers!0 -
bc,
Wishing you, your family and everyone here in the Steam Room a Happy Thanksgiving!!!!
@mommy-good luck on your paper.
I had an interesting dental visit today. Had a cleaning in August and they asked me to come back in 3 months, which was today. They did my chart ( I thought I was getting another cleaning) and now I'm being referred to a periodontist. Apparently, my measurements took a dive since 2019. In keeping up in my regular visits all this time she was saying things were stable, but the readings today were concerning. Since I have osteoporosis, I asked if that could be a factor. She said she does have a patient that is on the AI with OS and going to a periodontist. So, I guess I'll go.
I have a DEXA scan set for next month. I will be interested to see how my bones are doing in comparison to my priors. This is really going to do it for me. While I tolerate the AI well, I don't want to risk losing teeth or breaking bones. But what about the cancer returning risk? It just sucks that these results could mean stopping this therapy and keeping my peace of mind. Oh, it's pretty obvious that the $5K Prolia shots may not be working for me!!! UGH
I'll report back after DEXA scan. I hate this ——-but I'm OK. 😎 Thankful and having a good life. Just on edge at times as I'm under no illusion of getting out alive no matter what I do.
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Its done, gonna send it afterdinner. Still waiting to finish the response post portion of classwork for the week!
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I'm still mad about the way I had to be stern with the staff when I had my surgery in August. My blood pressure was really low and so they didn't give me pain meds after my bilateral masectomy and direct to implants. I didn't get released from recovery until a night nurse came in got the doctor to order a blood transfusion and my pressure went up at 4 am. I was up from the time I woke up in recovery around 2 pm to 4am and was uncomfortable. The next day, i had to get a nurse together twice because my pain meds were late. I had to use the knowledge I had from working with nurses and ask her to recite my orders and then explain why I wasn't being given my meds on time when I had 2 surgeries in 1 day. She was like well let me call the doctor to double check the orders, I said "I can call her cell right now I'm sure she'll agree with me". When my surgeon bought her newborn to meet me and for her to assess me, I told her and she got the team together. The rest of my stay was pleasant. I felt like I was being treated like I was med seeking when I didn't have meds for 12 hours due to my BP. I know others have had worse but I'm 30 and wasn't strong enough to sit up because of the pain. She should have known I wasn't faking.
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Rancar piss poor care. But all the dynamics from the nursing /md side are unknown. BUT you can request records for nursing notes and orders through Medical Records of the facility you were in. The documents will tell you about the sequence of doc to nurse contact. the key to me about your care was the night nurse coming in and acting on the Lab values(Hgb and Hct). When was it reported/posted to the computer. Did the night nurse pick up on a new report or and earlier report not acted on.
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sas-schatzi Thank you for this. I'm not sure what prompted the night nurse that didn't prompt the others. I know she was certified in blood transfusions but I'm not sure if the others were. I'll request the notes and look through them.
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ctmbiska good luck with dental stuff. I lost a lot of bone with my cancer meds and ended up dentures now. Not the "good new kind" either they have now since I have lost too much bone. The old fashioned old people kind my grandparents had. It was very sad. Prolia shots did not help but kept me from breaking my hip at least,.
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The Step-Monster-in-law is at it again! Now she is telling me that I cannot have my roots touched up or a hair trim unless I clear it with her or go to someone she has picked out to do my hair! I only go every 3-4 months and hubby likes how my hair looks after its done! If I let het have her way, I’d look like her or worse, A Complete Hag!
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Mommyof3 it your hair and your spouse needs to step in and tell them to back off and leave you alone. Sometimes you have get to get snippy with someone and if someone speaks up they sometimes have no idea how rude and incentive they are. Cancer is hard to deal with already and no one can tell you what to do afterwards as far as I am concerned. I got a lot more vocal I know with my own family after my stuff and you need to find your voice and get your spouse to advocate for you if you can't. Good luck. Family is hard. Hugs.
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I told her to speak to my hubby about it if she had a problem, he let’s me get my hair done as he likes how it makes me look afterwards!
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M0mmyof3, how on earth does your m-i-l think she has any say in how or when you do your hair?!
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She thinks she’s the queen and Iam nothing but a trashy doormat
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I want to say i am sad BC.org cut in half the zoom meetings. I am so freaking confused when the next one is. I wanted to see the ladies and hear their holiday plans and their updates. I have a new diagnosis that is a genetic find that leukemia is on my path. I went on the donor registry, and I did not get to tell them. They only knew i went to a hematologist. I had another appointment and was told about three matches have been found. Now they need to screen and all that. I am 2% with my TP53 reading, so the goal is to get the transplant before I get leukemia.
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I am sorry about your new diagnosis. I have not done any zoom meetings and since I have aphasia it is not an option for me at all. I do well to type in here and not get words wrong and use the spell check thing a lot when I do now. Hugs to you.
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Hi @katg! We are back to weekly meetings for our both of our Bonded groups, every Monday at 8pm ET and every Friday at 1pm ET. You'll receive the email reminders on a weekly basis now for both groups!
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Hi everyone it’s been a minute.
I just need to vent and nobody really understands all this better than you all. I’m very angry. Extremely angry. Just recently had my annual MRI breasts and there was an incidental finding of a partially seen thyroid nodule. So of course now I have to have an ultrasound of my thyroid and in the meantime imagining every possible worst case scenario.
I HATE SCANS !!!!!!! All scans MRI ‘s ultrasounds mammograms X-rays EVERYTHING! I’m angry that there is always something that because of breast cancer the joy that I had for life is not the same . I’m just tired. Tired and angry.Thanks for listening
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I wholeheartedly agree with you that BC robs one of joy for life. Sorry to hear that you now have another issue that needs to be addressed, Thyroid nodules are not uncommon and most are benign. Hoping yours is and you can regain some peace of mind. Mine was.
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lolany10, I'm sorry. Yes, we get it! I wish we didn't. I've been scanned so much lately that I think I should just live with an IV hooked up to me. My MO offered to extend out the frequency of my scans, but I actually prefer them every three months. Of course, that was before my recent progression. And NOW, I'm dealing with an insurance company that doesn't want to approve my radiation! I can't start the new meds until the radiation is complete. Sigh…
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The one thing I hate about having the scans done is the infernal waiting period for the results! I always end up going onto my patient portal at the hospital where they are done to see what the results are! My last one looked good, but my new oncologist never called me to confirm what the reports apparently showed as a BIG FAT NOTHING! I have a sneaking suspicion that he is going to drop that nothing burger tomorrow when I see him!
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We always think the worst and how can we not. Routine mammogram every year and then BAM cancer. Completely out of left field .
Well ultrasound is done . Now the waiting begins.
I am considering stopping MRI’s after this year. It’s not worth it. I cannot deal with this crazy anxiety.1 -
Just as I predicted was going to happen when I saw my oncologist today, a BIG FAT NOTHING BURGER! Why couldn’t he have xalled to tell me this after he got the results last month!
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lolany10 I am so sorry you are going through this and so understand. One you this everything is a big deal they find now. Where I go they do seem to understand that and a lot of times will read them and tell me results before I leave there even before the whole report is written up and in the charts for all the other docs to read. Our radiologists get the cancer thing at least here. Best wishes to you for clear scans.
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bcincolorado thank you :)
Unfortunately I had to go an outside radiology facility because my hospital didn’t have any appointments until a month from now and I didn’t want to wait. In heinsight I should have waited it didn’t seem urgent. I asked the tech and she said no I’m sorry I can’t really tell you anything. So now I will probably have to wait until after Xmas.
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I am so ticked! I had to go buy some new Christmas lights last night! They worked fine up until recently and I suspect my neighbor from Hades did something to them as she doesn’t like us and she has been trying to pressure us to take our Christmas lights down! This isn’t the first time that since she started this crap that one of my sets stopped working, I found another set that the wires had been deliberately cut to where it was hanging by a single wire and would not work at all! I think she also broke a set of my solar candy cane lights! I have also found my solar globes turned so they won’t light up at night and every night I have some solar reindeer lights that I have to move the panel so they work! I can’t prove it but it all seems a little sketchy that these things are happening since she started her crap!
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Hope everyone had a good Christmas and I'm sending my best wishes for a Happy and healthy 2024. You never know what you're gonna get. So glad to have a resource such as this site to help guide us through the good, bad, and the ugly.
Did any of you ever encounter a friend or family member that reported a cancer diagnosis when they actually did not have a diagnosis?
It really steamed me. It is so wrong and so disrespectful, especially to someone who has been through the process. My husband's sister has a daughter that has had a prior bladder cancer (stage 3). My sister-in-law has had her dead so many times. She has a lung nodule, so of course that's lung cancer. It is not. Last weekend she said her daughter had breast cancer. I said which side, she said both. My first suspicion she's speaking out of turn. After I hung up I texted this niece who said 3 of 4 biopsies were positive. Then she says she's going back for a more detailed mammogram and an ultrasound. We all know this is not the protocol, so I think she lied to me to protect her mother. Seeing my sister-in-law on Christmas morning I was then able to determine that I was subjected to all this BS from an abnormal mammogram. She ended up leaving sort of abruptly. I am 99% positive she knows I have caught onto this sham. Not sure if I will see her this weekend at my next get together. If I do, I WILL pull her aside and tell her not to tell people her daughter has cancer when she doesn't.
So wrong, and I am still steaming over it, days later. Thanks for listening.
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