STEAM ROOM FOR ANGER
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@bcincolorado thanks for the AARP suggestion. Also Silver Sneakers website has lots of exercise videos for seniors
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Hi Chicagoan, the fog is lifting re the truth. Spain as brought their chief honcho up on charges, Scotland produced a report that was in the news yesterday effectively condemning the mandated stuff, Pfizer exec admitted during inquiry in Australia this week that a different batch was flown in for Pfizer people.
Just as in all research reading the actual study is the best, but not a guarantee the peer reviewed study is a good one. Recently a big wig doc from Harvard that was a world expert on Honesty has had all her research retracted for the last ten years or so b/c she falsified data. Untold numbers of other studies using her research are being retracted. Ironic, Honesty expert 's whole career a fraud. Another, professor at Florida State "renowned expert" on crime is out of a job and research being pulled b/c he falsified data when a research assistant ratted him out for playing with the numbers.
Plug in the word Errata should bring up the website that is the central place for info of retractions from peer reviewed journals. There are other specific websites that are watching for retractions.
The overall damage done by people that cheat in science is so sad and criminal, b/c once out into the internet all the info can't be corrected. People are harmed by the cheating
Can anyone tell me how to find "your topic list"
Bcincolarda, sorry to here things aren't good. Blessings. Thanks for the couple of notes I found in my inbox.
Anyone have Egads007 topic on Keto link???? It was the mostly perfect put together info.0 -
Hi @sas-schatzi!
You can find your list of favorite topics by clicking My Bookmarks in the Quick Links menu bar on the right of your screen on desktop, or at the bottom of the page on mobile. You can also access these by clicking your profile image, and then selecting Bookmarks.
We hope this helps!—The Mods
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Had mamo and us on non-cancer side this week. Fortunately they read it for me and I do not have to wait for results. The spot they are watching appears a little smaller they think. I have very dense tissue so it is hard to see. I call them stupid boobs. Looks like cancer labs were ok maybe. Hopefully when I see MO next week she agrees and lets me off for a bit but do not know if she agrees or not. Sometimes she is more picky it seems than the radiologists are. Seems like the testing and waiting never ends.
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Aw, bcincolorado, I feel sorry for you! I am at the point where I want nothing to do with anything even remotely associated with breast cancer! I still visit BCO because there are some non-cancer topics I like, and some, like this one which I still read.
I think the waiting and testing does get less, but never really ends. I had two mastectomies, so no real boobs and the testing and waiting hasn't ended. I decided to just enjoy the time between appointments and try not to think of breast cancer. Hope you can find some enjoyment free of breast cancer too!
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True so true, I think the key to survival is staying ahead of and top of approvals by insurance and knowing doc limitations. I'm here simply b/c I UNDERSTAND THE SYSTEMS. Didn't mean to cap i.e.yell. I made so many things happen in the firsts weeks of my DX. between docs and insurance. Breast cancer and brain tumor dx'd the same day. Breast surgeon said see you in three months b/c the assumption the brain tumor took precedence over the BC. B/C I knew as a nurse, I understood how to get things done, and I got it done, I was on the table 3 weeks later. That was 2009.
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I knew medical stuff since DIL is an RN and DH is a transplant patient and diabetic so we had learned a lot before I got bc or my dementia. I think the docs sometimes do not understand why we are not freaking out about something when a lot of people do and sometimes at this point it is almost "one more thing to deal with" and we have to try to keep going for our grandkids. and to at least make it until my parents pass away if I can. Dh has lost his already but I have mine and my mom moved here so know I will have to deal with that or DH will at some point. Just trying to keep cancer away and my dementia from getting worse if I can. The kind I have is like what Bruce Willis has, aphasia and there are different kinds and words are hard and typing sometimes. Glad not working on a computer and dealing with clients all day. Could not do with that.' DH has to talk to the docs sometimes for me since he can answer their questions and knows the answers they ask.
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Thank you for sharing all that bcincolorado. Hang in there! You've got alot on your plate, and appreciate your sharing.
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Wow, thise last few posts really triggered me. Guess you all don't believe that population density matters and that covering mouth and nose while sniffling, coughing, contagious with any upper repertory illness slows the spread.
Like most of us here, I have medically induced nutrepenia due to cancer meds. I am on subway every day. I appreciate others not coughing on me. I plan to mask on transportation for the long term. To keep my upper respitory infections of all varieties to a minimum.
I've been in rural places and I get it that it seems unnecessary. In suburban grocery stores, it's normal to be "socially distanced" just because there is space. In the ubway, I am pressed against strangers. Many of them traveling from places that don't get density.
Cities are different. Public transportation is different.
Not to get political, but SAS, I am glad you are not my next door neighbor.
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dancemom even though we are super vaccinated DH is a transplant patient and we pretty much live at home most of the time. Our local grocery is closed right now after issues during remodeling for a few months and we get free deliveries right now. Tip the driver and order is not always right but not going even to the store and they leave it at the front door even in a few hours after we order. Most of the time not even up to sitting in the cry room at church (alone) in a high back chair where I can put my feet up on an ottoman in there I watch it online at home which is easier on me right now and not even leaving for that. Wear masks at doctors I do in person and try to do virtual if I can at all. Of course those pesky tests you do in person but they are all good about masking even. I do live somewhere people are respectful of those who want to mask and keep their distance. I have even some of the older people when I was in the cry room who come in not only with a mask but also wear those gloves as well. We also have sanitizer everywhere in there.
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Ohhhh @dancemom Would it impress you that I had near a million views on the threads I started on BCO before I left in early 2019. I was the girl next door. I left at the time b/c 6 friends had died in about 4 months. Not that others hadn't passed in previous years with a feeling of great loss, but these were all phone friends too. Several I whispered in their ears at death or close to death. Three since then, from here.
The reason for that kind of viewing is I didn't make it about myself. For example, this thread. There was a cat fight elsewhere. We needed a no holds barred area that we could let it all out. Hence, we are here now. I got the science thread going, where we all could post research stuff. I suggested the Spanish language arm, which I have no clue where that is now.
I did a thread on how to evaluate studies. Can't find it. Bummer. I now did at least a favorites saving of some mask studies, but that would have to placed in the science group. It takes a great deal of time to pull one of those together. Maybe.
I get your density concerns. Gobbers, lots and lots of gobbers. I tried to find the study that gave numbers on how protective masks were. I thought it was the Denmark study. But couldn't pull the info. Doesn't mean it's not there. Just means my persistence wasn't there. It could be that it wasn't the Denmark study, that my memory is connected too. But these are the numbers I remember. Cloth masks about 6%, Surgical masks about 11%, K95 the number was close too N95 which was around 45%. The key for me was N95's that are considered the best were near only 50%. But I could easily understand it without a study.
N95's were developed in the 2000's thereabouts. Whether it had to do with SARS 2003- dunno. What happened through OSHA was that all hospital personnel had to be fit tested for the N95. The tester had to be qualified by going through a course. It was a hood placed over your head resting on the shoulders, then scent testing. The size of the mask was based on your ability to sense the smell of the testing agent. I'm particularly, sensitive to this info as I did not clear the fit test for even the smallest mask. My nose isn't weird, it's just small. Face appropriate. What was horrible and was a breach of federal regulations is the tester marked me okay for the small mask. Should I have contacted OSHA, the bosses, etc. The testing okay'ed us to work with respiratory illness like TB. Sars wasn't mentioned. I left there shortly after, perhaps I should have reported it, but now ancient history.
Here we are now. The public has been led to believe that N95's are the gold standard. Obviously, the best. But fit testing isn't talked of or done with the public. You perhaps, go on the subway and think a blue surgical mask is doing you good. 11% is good? N95 around 50% is good. It's a false narrative.
We all here have a greater risk factor. How we managed itis different based on our choices. I choose no vax . next post. :)2 -
I wasn't covid antivax initially. I was anti-new drug. I started in 1969 as an aide. Nursing school in 1971. The first week of nursing school they required updates on vaccines. I talked my way out of smallpox update b/c of data. The polio vaccine they said I either take it or drop out of school. I had polio in 1952. Well documented. I got horribly sick, missed a week. Not sure how many days into it, I asked for the PDR. Black box warning—NOT to be given to a patient that had polio. There was a kerfuffle about that for sure. Not sure if it changed things as my twin and I life long had many of the same post polio complaints. Early, in the 1970's I learned there was a lack on doc's and nurse part of carefulness with drugs. I became a stalwart of understanding drugs. Particularly, when it came to me.
Around 1999 when Celebrex was the new wonder drug. I lost my chiropractor. I thought it reasonable to seek a full-blown evaluation to see if Celebrex was a good drug for my musculoskeletal complaints. Neuro, Ortho, Rheumatology, GI. They all cleared me. Ended up with a colon resection. I had researched it on the internet and the Black Box warning never presented itself. But as I was going through the colon fiasco, I looked again to the BOOK PDR. Seared into my memory "Not to be used with a history of diverticulosis, diverticulitis, has been known to cause spontaneous colon rupture". I had a history of diverticulosis with a hospital admission. None of the doc's, even the GI doc, put the history together with the drug.
My advice to patients was always, consider waiting a couple three years when a new drug comes out to see what the aftermarket reports showed. I got caught by Celebrex. THEN we went on to the Aromatase inhibitors. I still remember the video of the U of M lead researcher saying "We never had the reports of musculoskeletal pain in our clinical studies, that we are hearing about now. We are going to have to look at that." The early days here about the reports were clear. Horrible. Docs denying that the pain was real. Then the denial of pain medicine.
By the time it came to taking the covid vax, I had the same attitude. Watch and see. New drug mRNA. All new novel(redundant) drugs have the potential to cause harm. The attitude was based on injuries to myself and innumerable patients by drugs. Watch and see.
Even though I had most of the risk factors: Hypertension, Obesity, Cancer history (BC 2008-9 and Thyroid cancer 2014, and nose cancer 2020) I was willing to not take the vax. Just b/c of my history of drug weirdness and history. My twin just died June 24 2023. She took two doses. Did that have an impact. Dunno. Will never know. She had a very serious history last 10 years. But also, a BC history that she survived from1996 with extreme lymphedema and liver loss due to alcohol.
So we each bring our own baggage to any conversation.
Did I get Covid? Yes, I did. July 4th 2022. Five of us shared a joint. We all were sick. Survived it. I know I will be lambasted for my statement that it was an interesting experience. But everything I experience apart of me evaluates what is going happening. My guess when I die I will be saying the same thing.
The interesting things were the first five days were predictable based on the written info. My experience was that there were three body places that were particularly affected: 1 Trauma to a calf in 1993, that area I've had to always watch b/c of compartment syndrome i.e a bleed into a muscle space that is contained b/c of the connective tissue that surrounds the muscle. It's been trouble spot for years, mostlly healed, but would get iffy at times. It was as if a gremlin was prodding it aggressively. Management for changes in the past was Aspirin. I took aspirin. The 2nd was the left Achilles, that was aggressively attacked. It had been a problem with a "something variant of eczema a year or so previous. Same gremlin attack. What still worries me is the brain. The feeling was the same gremlins popped all over my brain.
SOOO, the question is: Since there were two known areas with past histories of tissue trauma, what did it mean that the same sensing of the gremlin attack mean about the brain. Oh yeah, history of a brain tumor. So, previous tumor and crani. The gremlin attack at each site was something that had multiple appendages that was grabbing and attempting to pierce. Jumping as if to break something, That was my sense of it. The attack on the brain was the hardest. But my sense of it was that it was repelled.
Then the respiratory thing at the 5 day mark. lasted approximately 5 days with another week or so of recovery.
Dunno now why the story. It just kept flowing. Perhaps, I've come back b/c my twin has died. Hmm yeah. It sucks. The positive is she died on my wedding anniversary. So, my husband who was dx'd with lymphoma 3 months behind my BC dx and died in 2010 and her will always be remembered together. Even when she was progressing in dying, on the 20th of June I thought could she make it to the june24th. She did. I told my brother to whisper to her to come see me when she left. I prayed for my Greg to met here and all the relatives. She died early the 24th. The next day a thing that had been on the wall for 30 years fell with great force on the floor. The doorbell cover. "Okay you are here :)" but no other sense after that.
Do I feel better that I've written this. hmmyes and no. Mostly I miss her2 -
Sas-Schatzi-Sorry for the loss of your twin. Must be very strange now to have part of you gone. Glad she was able to "visit" you. Thanks for the discussion on masks and vaccines. I also worked in hospitals and have been fitted for N-95 masks. The proper fit was extremely tight and uncomfortable to protect me. I never understood how people bought in to cloth masks protecting us from a microscopic virus.
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Sas-Schatzi-Sorry for the loss of your twin. I am so sorry for your loss and know this has to be especially hard on you. Hugs to you.
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@bcincolorado Thanks, thanks, hugs back. So sorry about the second hit with the dementia thing. Sucks. I had a couple of old messages from you when I logged in this time. What led you to suspect something was going on? Should I go back and read old comments? I get that when you may have explained at length and now tired of re-explaining. Hells bells might be in your last post. Kinda why I'm asking, somethings going on here, even trying to figure out which doc to go to, bummer.
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@chicagoan Thank you, yeah, bummer, we talked several times a week. We were both adverse to traveling. We only were together twice in 20 years. Very weird. But we were very comfortable with the phone. I was with her in the last couple of weeks.
The mask thing. the Denmark study was ignored basically. Public not being notified of OSHA fit requirements -awful. You are so right about the tight fit. Even with the tester trying multiple times to get my fit right, I still smelled the scent.
Why did people buy into the cloth masks and masks. Fear. The early reports were not good. The west coast reports from the initial nursing home. Ever something facility. Media. It's like the guy that shows up at all hurricanes, Italian name Can something. The joke here in Florida, it's bad when he shows up. Now with supposed "worst temps thingy" The back screens are all in red to change perception. When by history we are the same in Florida as we have been since it started to be measured. The screen is an oh so subtle thing. My machine had "88 degress Near record". Duh, by adding the near record, it causes a question, a concern. It's a normal temp for Florida in August. Change the language, change the presentation, it plays well in poukipsee.
What I object to is that by the false narrative that masks work, people can be harmed by thinking themselves safe and others are harming them by not masking. Creates division, anger, hatred.
Now for my self when I got covid, it was a fools tread. Someone came to a party of five, she was sick, didn't declare it. We all shared a joint. We all got covid. No testing on my part, but two were. It's kind of a duh thing.0 -
Hahaha, I reread my note from the 18th friday, Damn ring cover popped off again on late Friday, only partially, then off on Saturday. Totally no coincidence. No nada. Nothing. Just a snap lock thing. Kinda reminds me of GHOST the movie.
Maybe we need a ghost and phenomenan thread?1 -
Okay did it: "Ghosts and other Phenomena" thread
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As a new nurse in the late '60's, the only masks available at that time were made of cloth. I worked in a pediatric communicable disease ward and can honestly say I never became sick then. So while you may think they are worthless, I was exposed to many communicable diseases transmitted through the respiratory tract and for some there were no vaccines available yet. They served as a reminder of my need to be mindful of disease transmission including handwashing, avoiding touching my face, etc.
Initially I used the cloth masks with a filter in them and for all the negative reports you are citing think they kept many from contracting Covid from non-maskers. I think they reminded people to be careful of close contact with others, to be socially distant and to be mindful of others. In those 3 years, I never even had a common cold and only had access to surgical masks and N-95's in the last of those 3 years.
No mask guarantees 100% efficacy in disease prevention and quite frankly even 50% efficacy is better than none. I continue to mask in situations where there are large crowds, on airplanes, etc. even though I am up to date on my Covid vaccines and boosters. I did contract a mild case of Covid in January on a cruise which could be categorized as a super spreader event. I was one of the lucky ones who survived and how many of those who were unvaccinated, and anti-mask, on their death beds changed their minds?
I respect your right to express your opinion but to cite articles which support your stance and then mention they are not available for others to read doesn't provide them with the opportunity to see how you formed your opinion. As my mother would say "your opinion and x amount of dollars would buy a cup of coffee." You may say the same about my opinion.
I believe in science both as a nurse and as someone who spent years working in infectious diseases detection and prevention. I did not just survive BC, to die of a communicable disease.
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@ctmbsikia No question masks are a controversy. BUT it is known aerosolized particles aren't filtered. Hopefully fit tested N95 does it. BUT I read the Factcheck.org post that you linked. There is lot's of gobblygook in it.
Their conclusion paragraph "“Ultimately even a very careful person will be infected eventually, but masks could delay that or reduce the rate of infection from once per year to once every few years, perhaps,” he said. “Community masking is not aimed to prevent everyone from ever getting infected, the aim is to reduce transmission and ‘flatten the curve’, reducing peak healthcare demand, or to work in combination with other measures like social distancing to contain transmission in the short-term.”
WOW says a whole lot of nice words but doesn't say they work. It's why I wrote the thread about how to read studies(and articles about studies which is apparently in the BCO computer netherland. Think about what this is saying "but masks could delay that or reduce the rate of infection from once per year to once every few years". Interpretation? Where masks endlessly? I get that the cancer community is at risk, I've had 3, BC Thyroid and nose twice. and surveillance for a bunch more b/c of taking RAI-31 for thyroid. I'm not oblivious of you concern. This fact check writes a good—-con line. They are trying to lay low, discount, smear Cochrane et al. You'd be better off reading the whole of Cochrane and paying attention to what they say. They are the star in the industry of watching studies and evaluating them.
Thinking about comparisons. The drug go to is dailymed which is the government repository for all drugs. Could have given a full URL if I knew beforehand I would cite them. Another site that is very valuable is Medscape., another Healthline. Medscape is primarily directed at professionals, but don't be dissuaded trying to register. It's free. Once registered you get access to studies and the companion articles explaining the studies.
That is truly a key, the companion article. I'm sure in the industry there is a bonafide name. It's one step out from the study. The reporter/author takes the study info and translates it for us mere mortals.
IF there has been no mischief in the study, and IF the next level reporting states correctly what the study is saying, we may get useful info. The problem is mischief. Next post0 -
With BC it has been commonly cited that obesity was a risk. I searched it back until 1992. The first discussion of obesity. Seared in memory. It was in the discussion section of the study. The discussion section of any study is a summation of what the authors have learned. They describe what they feel (edit) is significant and conclusive, what are areas that are inconclusive but have importance and need further research ( by definition speculative). It's a discussion. Then each study has a conclusion. The problem with the BC research as near as I could trace, WAS the next level reporting included it as a risk factor. Once something is reported at that level, it's a given. It's in the risk list. Now oddly when I did that search, I was studying the microbiome -2015 here- What the microbiome search showed was that there was a connection. BUT THAT IS DIFFERENT THAN WHAT HAD BEEN IN THE MEDICAL VERNAULAR SINCE 1992.
For approximately 20 some years, obesity was in the risk factor list on all(most) sites. Nothing conclusive was shown. My look at it was in 2015, nothing conclusive then, but they thought a connection was found. AGAIN, not conclusive. Perhaps, something since 2015 has been categorically with data finalized. (NOT going to look)
Hence the point being is studies can be flawed and gain wide acceptance, or the reporting can report the findings incorrectly, or once in the public sector is consider gospel. My opinion, the study interpreter is where the mischief can do serious harm if there is no miscchief in the study Their job is to truly report. If they have a bias of any nature, that can cause all kinds of problems. On Mesdscape they can be trusted. My bias is I trust Medscape and the interpreter at that level. Outside Medscape, no I don't trust.
Corporate type sites b/c of legalities have a responsibility on reporting. What happens is you get each subspecialty writing guidelines for their thing on a calander expexted timeline. For example, American Heart Association has their main congress every 5 years, but produces new guidelines at the 2.5 years. And then if there is an something unusual, they publish new guidelines. I ran a paramedic program. The joke in our statewide group was "What are we teaching this year?" Hey, lives depended on it, and we were joking about it. B/C we knew you can't jump that fast.
Think about it: the American Heart Association recommended margarine v butter in the 70's. Then the whole trans fatty acid thing blew up when? DUH. My choice at the time was to do a library search on margarine. 1930 thereabouts, chemically made, at that point only 40 years old. All off history for thousands of years cows /goats origin for butter. I went with history. Oddly, enough my twin went margarine. Different outcome.
I'll say question now, but it the science question. It's an abstract for future research. May be being researched now.
Question: What has been the impact of the chemical basis of margarine on health and longevity? A study like that should have been done when margarine was introduced in the 30's. Then when American Heart Association(AHA) recommended it in the 1970's . what did they base their recommendation?
It's what I describe as a breadcrumb trail (Hansel and Gretel). You have 1.something you need to know, 2, you figure out how to find the info, 3, you follow each lead exhaustively 4. reexamine subject every x-y years based on need or interest. Works with anything.
For all here, you need to read and research everything about your disease. You need to be your own advocate based on what you have learned. Those that say you shouldn't go to the internet are wrong. Let me talk about what I learned about how to search medical stuff ———next post1 -
My job in the late 70's was running a Paramedic program. It was in the Department of Emergency Medicine. All doc residencies have what's called Grand Rounds (presentations). The nitty griity, the resident was expected to review at least several dozen articles/studies (weight on studies) for x number of years (weight on most recent years), include a historical perspective, then develop a presentation with Audio/visual, then a question/ answer period. AND present what their opinion was the future based on all this info. It was quite fun. Seriously fun.
Outcome from my point of view, for example, was the resident that did the required residency bug/ spider/snake research became my go to guy to do the bug spider snake lecture for the paramedics. The further outcome was they became the resource for other docs.
What it taught me is how to research and evaluate what I was reading.
I did do a thread on this, it's in the abyss
1.Determine search term(s), modify as needed to pull studies, 2 Expect to superficially read many studies to see if they apply to the question/topic. 3. Refine search by deleting studies or refining search term.
4 How to read a study as an ordinary medical/ nursing/ nonmedical person. This is my approach probably millions of other approaches. The construct of a study is absolute. It was so to speak codified in the late 40's. and is referred to as the Scientific Method. The intent was that world wide research could be expected to follow a common method. That way anyone can research the same question to validate the previous study
The construct: Abstract, Introduction, method, data, discussion, conclusionMy approach, remember I said that, would love to have others to state their approach,
I read the Abstract which is a synopsis (The short story with a conclusion Kind of like Cliff Notes) The body of the study states intent (Question and hypothesis), method, data, discussion, conclusion.
I read the abstract and the conclusion first. Reason is long ago, not sure which year or study. The abstract was not stating what the conclusion was stating. It was a random catch. It was quite a WTF moment. Why would that be done? Anywhooses that's been my approach ever since. Have I found discrepancies since? Not that I can quote now. But that one occurrence caused the wariness.
Then I read the discussion, Maybe the introduction to find out what their initial thoughts were. The discussion is very informing but can be misused. They identify the strengths and weakness of the study and identify areas of future research.
It can be a problem where the next level decipher of the study translates it to us normals. I did a posting on the science thread, on an AP associated press release that said that Champaign could reduce Alzheimer's. It was in our press and on the tv news last a few days. I traced it to UK Sun News, to an interview that the person being interviewed was going to start (Otry)a study and talked about all that they "predicted" would be the outcome. But they hadn't been approved for the study, no enrollee's in the study0 -
My job in the late 70's was running a Paramedic program. It was in the Department of Emergency Medicine. All doc residencies have what's called Grand Rounds (presentations). The nitty griity, the resident was expected to review at least several dozen articles/studies (weight on studies) for x number of years (weight on most recent years), include a historical perspective, then develop a presentation with Audio/visual, then a question/ answer period. AND present what their opinion was the future based on all this info. It was quite fun. Seriously fun.
Outcome from my point of view, for example, was the resident that did the required residency bug/ spider/snake research became my go to guy to do the bug spider snake lecture for the paramedics. The further outcome was they became the resource for other docs.
What it taught me is how to research and evaluate what I was reading.
I did do a thread on this, it's in the abyss
1.Determine search term(s), modify as needed to pull studies, 2 Expect to superficially read many studies to see if they apply to the question/topic. 3. Refine search by deleting studies or refining search term.
4 How to read a study as an ordinary medical/ nursing/ nonmedical person. This is my approach probably millions of other approaches. The construct of a study is absolute. It was so to speak codified in the late 40's. and is referred to as the Scientific Method. The intent was that world wide research could be expected to follow a common method. That way anyone can research the same question to validate the previous study
The construct: Abstract, Introduction, method, data, discussion, conclusionMy approach, remember I said that, would love to have others to state their approach,
I read the Abstract which is a synopsis (The short story with a conclusion Kind of like Cliff Notes) The body of the study states intent (Question and hypothesis), method, data, discussion, conclusion.
I read the abstract and the conclusion first. Reason is long ago, not sure which year or study. The abstract was not stating what the conclusion was stating. It was a random catch. It was quite a WTF moment. Why would that be done? Anywhooses that's been my approach ever since. Have I found discrepancies since? Not that I can quote now. But that one occurrence caused the wariness.
Then I read the discussion, Maybe the introduction to find out what their initial thoughts were. The discussion is very informing but can be misused. They identify the strengths and weakness of the study and identify areas of future research.
It can be a problem where the next level decipher of the study translates it to us normals. I did a posting on the science thread, on an AP associated press release that said that Champaign could reduce Alzheimer's. It was in our press and on the tv news last a few days. I traced it to UK Sun News, to an interview that the person being interviewed was going to start a study and talked about all that they "predicted" would be the outcome. But they hadn't been approved for the study, no enrollee's in the study. At that point I guesstimated 2020. That was about guessing 10 years ago. At the time I thought the Champagne afrea of France was quite happy. All the free advertising re: Champagne No study done, but reported throughout the US as a way to ameliorate Alzheimer's
The serious point of that: AP reported it, assumed there UK arm was correct. Reported on all networks and news outlets. It was completely a messed up false story. No one checked anything.
Again be your own advocate check everything related to you own care0 -
sas-schatzi thanks for sharing that link and glad you feel your sister's presence still.
ctmbiska good to see you and glad to know you are still around. Know you have some hard things going on in your life. Hope you have been able to enjoy your summer months.
Already got reminder on MO appointment this week. Keeping fingers crossed.
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Just found this thread! I have a younger sister who has been somewhat jealous of how my life has turned out compared to hers. I got married, had three boys, and have been pretty successful as a realtor. She divorced from an abusive husband, and never got remarried or had children.
She thinks I lead a charmed life, like everything just falls in my lap. When I told her i would be getting reconstruction surgery and my other breast would get a free lift, she said "See, even when something bad happens to you, something good happens to you!". Grrrrr.
She has her health own issues and I've never said anything to her to make light of it (COPD and a thoracic tear). She just has this love hate thing for me that makes me feel such toxicity, and I'm all she has!
On another note, a woman I met who's daughter dated my youngest son, was diagnosed about a year after me. Her daugther tragically was killed by a drunk driver while she was on skateboard. At her memorial she told me about her diagnosis. It was node positive, but she didn't have chemo or a mastectomy. I was automatically set up for chemo once my nodes were found to be positive. I didn't understand the treatment, but some here said that was normal. Now I find out that early this year she was diagnosed with stage 4. She was undergoing chemo treatment and her husband is begging for prayers. I tried to reach out to her, but I've had no luck. I sent her a PM on facebook to let her know about this site, but she didn't read it. :( I'm hoping that she responds well to treatment and I'm constantly checking his page for an update.
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Hi @ sas schatzi, as the OP of the steam room, just want to say thank you for starting this thread. I've spent some trying times in here. Nice to see you came back. I always appreciate reading other points of view, without bias since everything these days is so polarized and politicized. It's hard to have sensible conversations with people these days.
@bcincolorado-sorry to hear of your recent fall and hope you are recovering well. Wishing you well on your appt. and with the issue they are watching.
@homemom I just couldn't imagine having a sister like that. My sister and I are not exceptionally close at all, but we do have a loving relationship. That goes for my brothers as well. I try not to go on more than a couple weeks or a month without touching base. Otherwise, she would just go on living her life which she once told me that's what she wants to do. She is metastatic (practically de novo) since age 50. Bone mets. Very different from me @ stage II. She's anemic now and on another hiatus of Ibrance so her MO can try and figure out if it's the drug, or the cancer. Luckily, she hasn't needed any more red blood for awhile now. I hope you stick it out with your sister-best wishes with that.
I am actually doing OK-well I think I broke my big toe Friday night. Going for an X-ray on Wednesday morning. Pretty steamed about that~!!!!!!!
My daughter just got engaged, and this weekend I'm throwing my son a 30th birthday party at a restaurant on the water. I'm anxious about spending all this money, but surely this is why my husband left me with some. It's still a scary thought. It's not going to last forever, and I have 5 1/2 years to go before I can get full SS benefits and be back to having 2 incomes. Job is going fine. The bay cottage is still not finished. Currently waiting on the owner to bring over a fridge and stove, and then we are left with all the finish trim and things. The weather has been good on weekends lately, so I try and go down and do what I can, plus enjoy the water and family and friends I've made down there. I'll leave you with a picture of the back bedroom that I painted after the walls went up, and over the winter I worked on making these boards from pallets and they just recently were added.
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homemom I hope they do respond to some treatment for holding it off for a bit. I know everyone has to make their own choices on what is best for them for treatments and reconstruction or not but know some are so scared to do much and it hurts them a lot in their options. Keeping good thoughts for them and you.
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@ctmbsikia Thank you, I'm sorry your sister is going through all of that. I wish I had a better relationship with her, but she thinks we have a great one. I'm just an enabler because she says she suffers from depression and I don't want to do anything to push her over the edge. So in her eyes, I guess her words and actions towards me personally aren't very destructive. I could write a book on what I've done for her and how she has pretty much verbally abused me in return. She has been renting around the corner from me for the past 2.5 years and she just bought a property, so she will be moving about 20 min away in the next week. That will help a lot, but it's not that simple. Anywho, it is what it is, nothing a good psychiatrist couldn't fix.🙄 LOVE the woodwork you're doing in that room. Is that a weekend property you own?
@bcincolorado I got the impression that the doctors said she didn't need it. She was a bit of a problem drinker and it got worse after her daughter's death, which I couldn't blame her for trying to mask the pain. I feel so bad for her and hope the treatments buy her many many years like I see for some women here.
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I really and truly think the US health care system is getting worse every year. My insurer is married to CVS and I never go to CVS, always used the pharmacy at the grocery store. Insurer started making me jump through hoops opting out of this or that. The pharmacy calling every month saying insurer wasn't covering a certain script. So, yeah, I logged in and signed up for mail order with CVS. It actually is saving me $$ and it's a 90 day supply instead of 30. BUT the anastrozole I have to pick up. I don't know why. The other 3 meds have been delivered the last THREE TIMES to my sister in laws home. Of course, that's the mailman's fault, but seriously?
I just logged on again to try and change to just pick up ALL my scripts. Do you think this is allowed? NO. You can switch from pick up to mail order, but not the other way around. I thought about changing the ship to address to CVS, but I chickened out and sent a message instead to ask if I could switch to pickup. Well, here is the response:
We are unable to remove the prescription from your list at this time. However, we can request the prescription to be discontinued so it will no longer appear on your refill page. If you would like the prescription(s) discontinued, please respond to this e-mail with the name and strength of your medicine(s) so we can submit your request to our
pharmacy or call Rx Member Services at the toll free number on your member ID card.Now, I did not reply to this email. They called my primary doc and said I discontinued!!! That triggered another phone call from them to me to check to see. Jesus. I logged back in and just re-ordered the 3 scripts, and I picked up the 1. Get another phone call regarding payment. These people don't know what ringing phones do to me!! I didn't check which card I had used to check out so that was my fault. My "Health spending account" is bone dry for the year! Had to make another phone call to speak to a human, and I gave them the payment——nowhere on their site was I allowed to change the card number myself.
Unreal! I feel better now. Hope everyone is hanging in there.
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You can try talking to the pharmacist at CVS about changing scripts to pharmacy, My DH was getting his scripts from CVS via mail and I was concerned about the effects if extreme temps on the meds in the delivery process plus sitting in a mailbox. He was able to get them changed. Our prescription insurance is aligned with CVS much to my annoyance.
Personally I find CVS to be a royal pain when it comes to customer service. Our pharmacy is overly busy and I feel short staffed for the volume of business they do. Last year they posted walk-in flu shots were available. Did not post anywhere that they were restricted to certain days only. I was told that I needed an appointment on the day I tried a walk-in and directed to come back the next day. Told them, nope and went to another CVS that truly had walk-in shots offered.
Cannot remember if they own Aetna or Aetna owns them but they are going to be doing massive layoffs soon and not sure if this will impact pharmacies. Turnover of pharmacists and staff is continuous. Overheard them complaining about the antiquated computer system they use for prescriptions and that is scary. It was one of the pharmacists who was complaining.
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