CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
-
QMC - yes, like a Stephen King character - the Dark Thing stalks Crazy Town.
0 -
As long as the dark thing isn't a clown!! Tomboy, awesome news about your new pain management. Shorfi nice to see you. Have we all traveled into the dark place at the same time? I'm on the verge of tears but I don't think it's all related to the big C. It was a year ago on Monday that my DS was transported by paramedics to the hospital at death's door. He's an amazingly resilient young man but the trauma is still with me. Hubby and I working on him and he was dying right in front of us and with a panicked look in his eyes. I think we could have let him go if he looked like he was ready but he was fighting. So we called 911 for the first time ever and God bless those paramedics who not only stabilized him but agreed to take him to the children's hospital instead of the closest one. We live every day on the edge of what could happen knowing next time it will be to let him go. Argh, sorry for being so dark and maudlin. The depression hovers over me like a dark cloud today.
0 -
Thanks, Katy! My Pop used to say, "Girl, don't compare your inside to everyone else's outside, 'cause everybody has something going on."
Hugs to all of you crazies!
0 -
Jerseygirl, your dad was a wise man. My mother has sayings like that, I love to hear them.
Uh, oh. Did I miss something? What dark thing stalking c-town? It's not me, is it? Yikes! I do get a little paranoid!
molly, I am so sorry about your son. I don't know the whole story, maybe I missed part of it back a few pages? But I am very glad for you that he IS a FIGHTER, and that you guys called the paramedics!! There is nothing sadder I think, than losing a child, I imagine. All the mothers I know, they would be devastated. Will you tell me what happened? Is he okay now? Big hug for you.
Hope everybody isn't in too much pain, or in a hopeless place.
I love you all more than I can say very well, but I hope you know it!
0 -
Tomboy, thank for asking about my son. Long story short, he had encephalitis at age 7 months which left him with brain damage, seizures and a movement disorder. His rare seizure disorder caused further regression and so he's full care, unable to sit, stand, walk or talk. He has seizures every day. Developed asthma around age 5 and eventually progressed to chronic lung disease. He's 17 now. He's also sweet, funny, loves people and communicates his needs quite well despite the disabilities. When he grew quickly in his teens he developed severe scoliosis, and a weak swallow which led to multiple pneumonias. Last year he got really sick out of the blue and basically was dying right in front of us. He was in the PICU and not getting better so they sent him home to die. ( he's been on hospice since 2013) Thankfully he's still here but every day is an adventure with him and I know one of these days we won't be able to pull him back from the brink of death. So that's my baby and he's the biggest blessing of my life.0
-
Tomboy, I wish I could really express how much your tone of kindness means. I really needed that today.
0 -
(((Molly))))
0 -
Oh Molly, What a heart breaking and heart warming story of your son. I feel your pain on many levels. Bless you for your total love and devotion for him. I totally admire you for what you do each day. Hugs and love, Jan
0 -
Molly- thank you for sharing your beautiful story. And thanks to dear Tomboy for asking.
Pennsy- hope things have gotten a bit lighter. I certainly know where you've been. Hugs.
0 -
Quilting Corner? In our Crazy Town? Yippee. May I please be the curator, please, please?
Today's trip to eye doc: stable. 500 miles and 12.5 hours.
Tomorrow we have appointment with Social Security. It's an ongoing issue that can't be solved on the phone, they say. What's the chance they can solve it in the office?!
0 -
Thank you all. I am very blessed to have my son. He's really changed my perspective on life.
This is Wyatt
0 -
Molly, thank you for explaining more about your son. I knew he had had some medical issues, but I didn't know the details.
Jan, glad the eye doc appointment was good.
Beppy, hoping your husband's illness does skip over you. It's awfully hard not to catch the same bug when you're taking care of someone.
Poppy, lymph would be the first thing I would think of. I sure wouldn't wear that style of bra again, anyway.
Ducky, I'm glad to hear your granddaughter is back in school, and her blood tests were OK. Whew!
((JerseyGirl)) I can't believe now you have a power outage postponing rads. I think our MO's get pushy because they want us to do well and worry about the consequences of us not taking the hormonals. But sometimes they don't handle it in the best way. I don't suppose you can convince your husband to call the doctor about his headache? Five days would worry me, too. He might just be fighting what the kids had, but I bet you'd feel better if he had a quick once over.
Pennsygal, I know what you are talking about. I hope that cloud lifts for you soon.
Waving hi to Katy, Tomboy, Shorfi, Octo, Queenie, and our quiet crazies.
0 -
I think it's time for a group hug! Everyone needs to gather around. I know it doesn't solve our problems, but it sure can keep the darkness at bay!0
-
in line for a group hug! For some reason, I was feeling inexplicably bereft yesterday. Nothing specific. No trigger that I could figure out, other than looking at bras in Nordstrom.
0 -
Molly.........thank you for Wyatt's picture......what a happy boy................I can see why he makes you smile......hugs .....your a Supermom............
0 -
Lining up for the group hug!!! Queenmomcat, I, too, was feeling bereft yesterday, and can't put my finger on the cause... Just stupid cancer...
Cubbie, yes I'd prefer that my hubs went and got checked out... we'll see what happens today. Went for my ECHO, home for a quick lunch with the kiddos and then on to my SIM for boosts, and rads.
Molly, how handsome and sweet is your boy! Hugs to you!
Tomboy, yep, my grandpop was a wise man indeed. People sought his wisdom from close by and far away.. He was amazing!
Chasing the darkness with sunshine today... I'm determined to shine today... smile at everyone, laugh at everything, cheer everyone on!!!! GO! Warrior Women!!!!!!! Warrior On to all of my crazies!!!!1
0 -
Jerseygirl, if your hubby is like mine then getting him to the doctor is a huge ordeal. Big group hug for all! May we have sunshine in our hearts today.
0 -
molly, you are blessed to have the strength to raise your son with his many challengeso
And he is so lucky to have a strong woman as his mom
0 -
Molly, what a beautiful boy Wyatt is! (He and I share the same eyebrows, and I leave 'em like that) You and he have been a tremendous gift to each other, I am sure, he has the high voltage smile to prove it! Thanks for sharing about him, I am glad because now when I think of you, I can remember that smile, and include him into my best wishes for you. ((((Moll & Wyatt)))).
(((((((((((((((((ALL CRAZIES!))))))))))))))))
QMC, after my arm swelled up and never went down again, really, I was very jealous of the arms I would see on the Los Angeles Lakers basketball team members...! Because my arms matched, and were very strong and well delineated. I loved my strong little body! I am working on it, but I am not sure I will be like that again. Hugs for you on the side.
And for my just ducky Ducky
0 -
A group hug? How perfect! Count me in.
We've had rain, wind, and sunshine today. And right now it is perfect outside. Glorious! Wish I could serve this up to those feeling bereft today.
Ducky, how is DGD doing with school? You and your pilot are coming to our SoCal gathering, right?
0 -
Jan, it HAS been glorious weather in the last 24 hours! Thank you all for loving on my Wyatt.
0 -
Molly - Wyatt has a great smile and his spirit shines through his eyes! I love that picture!
Butterfly- you are more than welcome!
Jan - you can curate the quilting nook! If you need a day off, I am sure there are plenty of volunteers to assist!
Ducky - very happy your DGD is back at school and out of the hospital. It is manageable, but I can see where there can be a worry about compliance.
Jersey - Did you have a "chemo kit?" I.e. Gloves, mask, tissue, hand sanitizer.. It might be a good time to pull it out when caring for your family. Fatigue is very common with rads and builds throughout treatment. I think I was more exhausted 2 weeks after rads ended, than I ever was during.
Major panic attack today. It is so ridiculous. Stupid stuff brought it on, more stupid stuff cranked it up. Took my Ativan and snuggled in my new "nest." It is s papasan chair from Pier 1 and has one of the fuzzy, soft, chocolate colored cushions. Brown rattan frame. It is a "secure" feeling when I get in one. Like a hug. It definitely came in handy today.
Hugs to all of you! Love you all!
0 -
joining that group hug....and want you all to know that this weekend I will work on locations and logistics for our SoCal get together March 26th...more info to come very soon!
Hugs
Octogirl
0 -
Got some good news today - my former co-worker who was diagnosed with cancer got his post surgery results back, and it's not cancer! They were so sure, but it turned out to be a benign tumor. He still has a long recovery ahead of him, but we are so relieved.
Tomorrow I'm off to the University for a second opinion with an MO there. I've seen one of their surgeons, and one of their ROs, so I might as well round out the team.I was supposed to meet with him last December, but had to cancel due to the ice storm. A lot of my questions have changed since then. We'll see what he has to say.
0 -
Good Evening Crazies,
Poppy, I'm no expert on lymph drainage, but that does make a certain amount of sense. I hope those lumps continue to stay GONE!
Ducky, I'm so glad you DGD doesn't have leukemia. I hope she continues to stay stable. Thank you for keeping us updated.
Jersey, A very special friend pointed out to me tonight that our Crazy Town is a place to talk about our fears. It's our special place we come to feel loved and not so alone in the world. So please don't think your funk will bring us down with you. We are all here to help you along when you're feeling down. I hope your blood work and ECHO went well today. Please be kind to yourself. You're having to deal with so much all at once. Gentle hugs to you!
Shorfi, It's so good to see you! Welcome back!! I hope your pain has gotten better. Please pull up a comfy chair and relax. We kept your seat warm while you were gone.
Pennsygal, I'm sorry you've been struggling. Be kind to yourself and know we are all here to listen whenever you need us. You are not alone.
QM, I'll assume the dark thing is fear of progression? We try to keep the dark thing locked up in the corner. I'll beat it with a stick if it comes near any of you!!
Molly, Thank you for sharing your sons story with us. It sounds like that sweet boy is a fighter just like his mom. Such a great picture! It really captures the twinkle in his eyes and his beautiful smile. You are an amazing mom. You've been through so much. Great big gentle hugs to you!!
JAN, I nominate you as curator for our Crazy Town quilting corner. Anyone second that???
Cubbie, That's great news about your friend!! What a relief that must have been for him, his family and his friends. I LOVE to hear good news. I went to the PCP yesterday and I was diagnosed with bronchitis. They put me on a zpack and gave me cough medicine with codeine. DH is doing much better. Thank you for thinking of us both.
Robin, Great big hugs to you. Panic attacks are just awful. Keep holding on to the crazies. We are always in your corner. That chair sounds so comfy!! We should get some of them for our CT porch!!
Octo, If I haven't thanked you already, thank you for arranging our get together. I appreciate all of your efforts!!
Here is the requested group hug.
I think I REALLY need one of those tonight.
My MO called me today with the results of my CT scan. My lung nodule has grown. It went from 6mm to 1.5cm since July. The report said it's concerning for metastasis. My pericardial thickening increased from 4-5mm to 10mm. He sent in stat orders for me to see a pulmonologist. Of course I've done a lot of Crazy Town reading tonight. From what I've read, benign nodules don't grow. You all know I haven't felt well for a long time. The positive side of me is holding out hope that it has something to do with my RA inflammation. I like to blame my RA on all the weird things that pop up. Any good juju you can send my way, I would really appreciate. For those of you that pray, please keep me in your prayers. I worry more for my poor DH and children who have been through so much with me. I was hoping to give them all a break for awhile.
I love all of you crazy women. I'm so very thankful for all of you.
Love to all....quiet crazies too.
0 -
Slow, this is for you
0 -
I will be praying even more for you, slow. I pray for all of the crazies. I can only imagine where your mind is going right now. Cubbie, great news about your friend. We lost our friend and former neighbor to heart disease today at the age of 52. Two young children and a beautiful wife left behind. So sad. Love you all.
0 -
Slow.. Lifting you up with love, hugs, and prayers xx
0 -
Slow..
0 -
For You Slow:
0
